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    • 1 hour, 13 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 1 hour, 13 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 2 hours, 29 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Very, but more worried about it even making to the FDA and approved there first.
    • 2 hours, 29 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 2 hours, 29 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 2 hours, 31 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 2 hours, 31 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 2 hours, 32 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 2 hours, 33 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      General access to islet transplants is still years away. FDA has to deem it safe. Though, I am excited about the possibility.
    • 2 hours, 33 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 4 hours, 34 minutes ago
      Patricia Dalrymple likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 5 hours, 12 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 5 hours, 13 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 5 hours, 55 minutes ago
      Marty likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 6 hours, 18 minutes ago
      dholl62@gmail.com likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 6 hours, 41 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 6 hours, 42 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 6 hours, 42 minutes ago
      atr likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 6 hours, 57 minutes ago
      Sarah Berry likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 7 hours, 58 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Age 73 here. I'm in the same boat. I ogten am considered too old for consideration for "smaller" research projects. But - best of luck to them. I'll be rooting on the sidelines.
    • 7 hours, 59 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 22 hours, 59 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
    • 22 hours, 59 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
    • 23 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 4 hours ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
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    If you wear a CGM and share your CGM data with any of your loved ones through an app, for which types of CGM alerts does your network receive notifications? Select all that apply!

    Home > LC Polls > If you wear a CGM and share your CGM data with any of your loved ones through an app, for which types of CGM alerts does your network receive notifications? Select all that apply!
    Previous

    Do you currently use any of the following CGM systems?

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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    20 Comments

    1. Larry Martin

      I am really surprised you didnt have the choice to share it on Facebook. Don’t they need to to help with marketing for you guys?

      1
      5 years ago Log in to Reply
      1. ConnieT1D62

        That comment was unkind, sarcastic and not very nice. I have lived with T1D in my body since 1962, have been a TID participant for several years, and am a Masters prepared RN diabetes education specialist. I can say in defense of TID Exchange they are not in the business of marketing anything for anyone. The purpose of this website is to collect real life data and opinions about life with TID, and to provide relevant and meaningful information to help us all live better lives.

        4
        5 years ago Log in to Reply
    2. Mick Martin

      The only people I share my CGM data with is Medtronic, my endocrinologist, and my Diabetes Specialist Nurse (DSN).

      My wife has absolutely no interest as she believes that she already knows everything there is to know about diabetes. (sic)

      1
      5 years ago Log in to Reply
    3. Carol Cunningham

      I shared urgent low message with my spouse.
      I also share with my co worker. We are both T1D and are diabetes educators – this way we can show and explain the pros & cons of these devices.

      2
      5 years ago Log in to Reply
    4. Daniel Bestvater

      I used Dexcom share with my wife for a few months. Made her a nervous wreck! She’s a nurse and every time it was outside a non diabetics range she would panic!! So, no more sharing data!!

      3
      5 years ago Log in to Reply
    5. Steve Gold

      Nobody except my doctors is interested. Besides most don’t know how to interpret it.

      4
      5 years ago Log in to Reply
    6. Gerald Oefelein

      I share only with my diabetologist.

      5 years ago Log in to Reply
    7. TomH

      I use Dexcom’s Share with my endocrinologist (gets the data, not alerts to my knowledge) and my wife (she gets alerts). My wife is helpful in that she doesn’t panic, but will ask how I’m doing if a high or low lasts very long.

      1
      5 years ago Log in to Reply
    8. Kevin McCue

      I shared data for a week, but had to discontinue due alarms interfering with their daily activities. Welcome to T1d

      2
      5 years ago Log in to Reply
    9. Natalie Daley

      Sharing data with the doctor is the other reason for wearing a CGM. It should have been an to choose.

      1
      5 years ago Log in to Reply
    10. Sahran Holiday

      Have a new endocrinologist. May share data if she wants to when I see her next time.

      5 years ago Log in to Reply
    11. Janis Senungetuk

      Other: only share with endo and diabetes educator

      5 years ago Log in to Reply
    12. Jneticdiabetic

      I think this question is intends to ask about real-time CGM data sharing rather than giving your medical team access to device reports. I use a Medtronic 670G, so no live sharing capabilities. I did previously use a Dexcom and shared with my husband. It was a little bit too much having both the alarms and my well-intended husband reminding me when my BGs were off. If I could limit alerts to just low warnings, I would consider that for safety. I bet sharing is helpful for parents of little ones with T1D.

      5 years ago Log in to Reply
    13. TEH

      I used the 670G and now 770G. My wife hears the alarms somtimes, not always. I usually share a summary of my meal time SG response.

      5 years ago Log in to Reply
    14. Carol Meares

      I actually share my data with my doc but only during the appt.

      5 years ago Log in to Reply
    15. George Lovelace

      Only Endo has access to Data

      1
      5 years ago Log in to Reply
    16. LizB

      My endo takes my 770g pump to download at my visits but I know there is a way for me to sharethe Carelink data without them needing to take my pump from me. I keep forgetting to ask.
      Prior to the 770 my sister had asked if there was a way for anyone else to see my data and at the time there wasn’t. Now that there is I still won’t share with her because she won’t share her Dexcom with me!

      5 years ago Log in to Reply
    17. KarenM6

      I only share with specific doctors, not any loved ones. So, no alarms and no data sent to family or friends.
      I don’t need even _more_ people hounding me about my choices and my diabetes care.

      5 years ago Log in to Reply
    18. PamK

      I actually started sharing with my spouse so that he could see what my daily BG readings look like. He had been hovering – – “Your sugar is at 75, shouldn’t you be eating something?” or, “You didn’t eat/drink much, don’t you think you should have more?” So, I asked him to allow me to share so that he could get a better idea of what my life with diabetes is like.

      I have found, now that he has calmed down, that I really like sharing. It is so nice to know he has my back! If he sees I am low and doesn’t see any signs that I am treating it, he’ll call or text me to make sure I am aware. I is a comfort to know he’s there!

      2
      5 years ago Log in to Reply
    19. Leona Hanson

      I would share but there’s no internet out side of the house so I don’t use the share

      5 years ago Log in to Reply

    If you wear a CGM and share your CGM data with any of your loved ones through an app, for which types of CGM alerts does your network receive notifications? Select all that apply! Cancel reply

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