Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 1 day, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 11 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 13 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 16 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 17 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 18 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 18 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 19 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 19 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 11 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 11 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 13 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 13 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 15 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 17 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 17 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 18 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 18 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 19 hours ago
      Laurie B likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
        • T1D Care Plans
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Industry Partnerships
      • Academic Partnerships
      • Previous Work
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    If you wear a CGM and share your CGM data with any of your loved ones through an app, for which types of CGM alerts does your network receive notifications? Select all that apply!

    Home > LC Polls > If you wear a CGM and share your CGM data with any of your loved ones through an app, for which types of CGM alerts does your network receive notifications? Select all that apply!
    Previous

    Do you currently use any of the following CGM systems?

    Next

    How would you bolus for a serving of chips and guacamole at a restaurant?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

    Related Stories

    Advocacy

    Meet the Expert: Advancing Equity, Technology Access, and Connection in Diabetes Care 

    Jewels Doskicz, 2 days ago 11 min read  
    News

    A Nutritionist in Your Pocket: How One Family’s T1D Journey Inspired the Creation of SNAQ 

    Michael Howerton, 2 weeks ago 4 min read  
    Lifestyle

    Finding Strength in the Journey: The Unexpected Upside of Living with Type 1 Diabetes 

    Jewels Doskicz, 3 weeks ago 5 min read  
    News

    What’s Keeping Glucagon Out of Reach for Many with T1D? 

    Jewels Doskicz, 4 weeks ago 6 min read  
    News

    Thinking About Type 1 Diabetes Autoantibody Screening? Here’s What to Consider 

    Jewels Doskicz, 1 month ago 9 min read  
    2025 Learning Session

    T1DX-QI 2025 November Learning Session Abstracts 

    QI Team at T1D Exchange, 1 month ago 1 min read  

    20 Comments

    1. Larry Martin

      I am really surprised you didnt have the choice to share it on Facebook. Don’t they need to to help with marketing for you guys?

      1
      5 years ago Log in to Reply
      1. ConnieT1D62

        That comment was unkind, sarcastic and not very nice. I have lived with T1D in my body since 1962, have been a TID participant for several years, and am a Masters prepared RN diabetes education specialist. I can say in defense of TID Exchange they are not in the business of marketing anything for anyone. The purpose of this website is to collect real life data and opinions about life with TID, and to provide relevant and meaningful information to help us all live better lives.

        4
        5 years ago Log in to Reply
    2. Mick Martin

      The only people I share my CGM data with is Medtronic, my endocrinologist, and my Diabetes Specialist Nurse (DSN).

      My wife has absolutely no interest as she believes that she already knows everything there is to know about diabetes. (sic)

      1
      5 years ago Log in to Reply
    3. Carol Cunningham

      I shared urgent low message with my spouse.
      I also share with my co worker. We are both T1D and are diabetes educators – this way we can show and explain the pros & cons of these devices.

      2
      5 years ago Log in to Reply
    4. Daniel Bestvater

      I used Dexcom share with my wife for a few months. Made her a nervous wreck! She’s a nurse and every time it was outside a non diabetics range she would panic!! So, no more sharing data!!

      3
      5 years ago Log in to Reply
    5. Steve Gold

      Nobody except my doctors is interested. Besides most don’t know how to interpret it.

      4
      5 years ago Log in to Reply
    6. Gerald Oefelein

      I share only with my diabetologist.

      5 years ago Log in to Reply
    7. TomH

      I use Dexcom’s Share with my endocrinologist (gets the data, not alerts to my knowledge) and my wife (she gets alerts). My wife is helpful in that she doesn’t panic, but will ask how I’m doing if a high or low lasts very long.

      1
      5 years ago Log in to Reply
    8. Kevin McCue

      I shared data for a week, but had to discontinue due alarms interfering with their daily activities. Welcome to T1d

      2
      5 years ago Log in to Reply
    9. Natalie Daley

      Sharing data with the doctor is the other reason for wearing a CGM. It should have been an to choose.

      1
      5 years ago Log in to Reply
    10. Sahran Holiday

      Have a new endocrinologist. May share data if she wants to when I see her next time.

      5 years ago Log in to Reply
    11. Janis Senungetuk

      Other: only share with endo and diabetes educator

      5 years ago Log in to Reply
    12. Jneticdiabetic

      I think this question is intends to ask about real-time CGM data sharing rather than giving your medical team access to device reports. I use a Medtronic 670G, so no live sharing capabilities. I did previously use a Dexcom and shared with my husband. It was a little bit too much having both the alarms and my well-intended husband reminding me when my BGs were off. If I could limit alerts to just low warnings, I would consider that for safety. I bet sharing is helpful for parents of little ones with T1D.

      5 years ago Log in to Reply
    13. TEH

      I used the 670G and now 770G. My wife hears the alarms somtimes, not always. I usually share a summary of my meal time SG response.

      5 years ago Log in to Reply
    14. Carol Meares

      I actually share my data with my doc but only during the appt.

      5 years ago Log in to Reply
    15. George Lovelace

      Only Endo has access to Data

      1
      5 years ago Log in to Reply
    16. LizB

      My endo takes my 770g pump to download at my visits but I know there is a way for me to sharethe Carelink data without them needing to take my pump from me. I keep forgetting to ask.
      Prior to the 770 my sister had asked if there was a way for anyone else to see my data and at the time there wasn’t. Now that there is I still won’t share with her because she won’t share her Dexcom with me!

      5 years ago Log in to Reply
    17. KarenM6

      I only share with specific doctors, not any loved ones. So, no alarms and no data sent to family or friends.
      I don’t need even _more_ people hounding me about my choices and my diabetes care.

      5 years ago Log in to Reply
    18. PamK

      I actually started sharing with my spouse so that he could see what my daily BG readings look like. He had been hovering – – “Your sugar is at 75, shouldn’t you be eating something?” or, “You didn’t eat/drink much, don’t you think you should have more?” So, I asked him to allow me to share so that he could get a better idea of what my life with diabetes is like.

      I have found, now that he has calmed down, that I really like sharing. It is so nice to know he has my back! If he sees I am low and doesn’t see any signs that I am treating it, he’ll call or text me to make sure I am aware. I is a comfort to know he’s there!

      2
      5 years ago Log in to Reply
    19. Leona Hanson

      I would share but there’s no internet out side of the house so I don’t use the share

      5 years ago Log in to Reply

    If you wear a CGM and share your CGM data with any of your loved ones through an app, for which types of CGM alerts does your network receive notifications? Select all that apply! Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]