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    • 5 hours, 16 minutes ago
      Lenora Ventura likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 6 hours, 51 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      same here. I was able to get a neurologist to diagnose it as that.
    • 6 hours, 52 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      I have developed this very weird numbness and pain in my left outer thigh which I attribute to neuropathy, although there has been no official diagnosis. Of course, like every good diabetic, I did my own research and found that it is called meralgia paresthetica. It only comes on intermittently and rarely interferes with daily functions. Rest remedies it. Having lived with T1D for 56 years so far, I consider myself to be pretty lucky...so far.
    • 6 hours, 53 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      I feel the same way. I'm never sure who to believe or how to get a valid assessment.
    • 6 hours, 53 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 9 hours, 36 minutes ago
      Lawrence S. likes your comment at
      Do you live with diabetes-related neuropathy?
      Gastroparesis
    • 9 hours, 37 minutes ago
      Lawrence S. likes your comment at
      Do you live with diabetes-related neuropathy?
      In late summer of 2017 I lost all feeling in both lower extremities to my hips and both upper extremities to my shoulders. It was not all diabetic related though. Lowered the drug in my chemo regimen but didn't reverse by next treatment, so that drug was stopped. Slowly I regained feeling in my arms and legs; left with no sensation in hands & feet up to ankles & wrist. I'm thankful that my oncologist realized that it wasn't just a diabetic thing.
    • 12 hours, 26 minutes ago
      Sandra Rosborough likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 13 hours, 14 minutes ago
      KSannie likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 16 hours, 21 minutes ago
      Lee Tincher likes your comment at
      Do you live with diabetes-related neuropathy?
      My feet were killing me when I started taking insulin. Saw on another website that alpha lipoic acid (ALA) was good for neuropathy. Once I started taking it, the pain was gone within a week! Still using it 20 years later, still pain free
    • 16 hours, 22 minutes ago
      Lee Tincher likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 16 hours, 41 minutes ago
      magoo likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 16 hours, 42 minutes ago
      Mike S likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 16 hours, 55 minutes ago
      Dennis Dacey likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 1 day, 5 hours ago
      ConnieT1D62 likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      I spend a bit of time in my garden, yardwork , the animal shelter. Days I'm not with the Shelter my herd gets walked.
    • 1 day, 5 hours ago
      ConnieT1D62 likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      avid cyclist for many years now ........... OK ..... add in resident year around maintenance yard work
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Walking and hiking.
    • 1 day, 13 hours ago
      Steven Gill likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Try pausing insulin on your pump if you are below 150mg/dl.
    • 1 day, 16 hours ago
      Daniel Bestvater likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 1 day, 16 hours ago
      Dennis Dacey likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 16 hours ago
      KCR likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 16 hours ago
      KCR likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 1 day, 16 hours ago
      TEH likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 2 days, 13 hours ago
      Bonnie Lundblom likes your comment at
      What event(s) prompt you to calibrate your CGM? Select all that apply.
      I always do 3 successive finger sticks about 1 day after applying a new G7 sensor. I'm amazed at how much variability there is among sensors. Some are spot on, and remain so during the entire 10 days, while the worst I saw was off 100 mg/dl at the start (reading half of the actual level) (I demanded -- and got -- a replacement for that outlier, since I did't want to have to trust it for days and go through piles of strips just to see if it was as bad as it seemed). I generally also do another batch of 3 tests several days later, just to check. I care about accuracy. I've found that it is essential to do multiple sequential finger sticks to get an accurate number from strips, since they too are far more variable than I am comfortable with. If the variability in strips is too great, I do 4 tests rather than 3, and throw out one, averaging the rest. I love my CGM, but it doesn't completely replace strips.
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    If you use an insulin pump, on average, how often do you bolus an amount that is different from the suggested dose from the pump’s bolus calculator? (I.e., entering a number of insulin units without using the calculator at all, editing the bolus calculator’s suggested dose to be higher or lower, etc.)

    Home > LC Polls > If you use an insulin pump, on average, how often do you bolus an amount that is different from the suggested dose from the pump’s bolus calculator? (I.e., entering a number of insulin units without using the calculator at all, editing the bolus calculator’s suggested dose to be higher or lower, etc.)
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    How often does your T1D health care provider screen for neuropathy with a monofilament, tuning fork or pin prick on your bare feet?

    Sarah Howard

    Sarah Howard has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    30 Comments

    1. Cheryl Weaver

      After I’ve had my pump on for a couple days the insulin I bolus with it doesn’t bring my blood sugar down, or prevent it from going high. I have to inject using a syringe and needle to bring it down. The insurances say to change your site every 3 days, but between that 2nd and 3rd day something seems to happen, where it isn’t being absorbed as well. So the blood sugars go up, and I have to bolus the old fashioned way, with a syringe.

      4
      3 years ago Log in to Reply
      1. LizB

        Ask your doctor to write a new prescription that says to change every 2 days instead of every 3 days. Not every insurance will go for that, but sites sometimes don’t last 3 days for everyone.

        4
        3 years ago Log in to Reply
      2. Sherolyn Newell

        I sometimes have that issue as well, but it’s not consistent. If I see the insulin not working as well, I will adjust my bolus amounts up by 0.1 or so.

        2
        3 years ago Log in to Reply
      3. Larry Martin

        You need to change your carb ratio or insulin sensitivity to fix those issues. Carb ratios and sensitivity vary widely throughout each day.

        2
        3 years ago Log in to Reply
    2. Greg Felton

      I don’t think the tandem’s calculator is aggressive enough when my BG is rising and arrows are pointing up. I will often over bolus.

      3
      3 years ago Log in to Reply
    3. Lawrence S.

      I often make adjustments for exercise, other physical activities, which works out to most days.

      2
      3 years ago Log in to Reply
    4. GLORIA MILLER

      My pump will do this but I chose not to use that function. I feel I can calculate the necessary bolus better than my pump.

      1
      3 years ago Log in to Reply
    5. Sherolyn Newell

      I sometimes have a few days or a week when the insulin seems to be less effective. When I see that happening, I will raise my bolus calculation a bit. I don’t change my settings because it always goes back to normal. Less often, the insulin seems to be supercharged and I have to back down bolus for a couple days. And it varies by time of day, sometimes lunch insulin doesn’t seem to work, other times it supper.

      1
      3 years ago Log in to Reply
    6. Mark Schweim

      I normally don’t but I’ve been fighting a combination antibiotic resistant bacterial and fungal infection in my sinuses and throat since the beginning of April and with this stubborn illness I’m having to usually increase the Bolus amount as much as double what the pump calculates I need.

      3 years ago Log in to Reply
    7. Patricia Kilwein

      If I’m struggling with an illness or on a prescription that causes high BG, my doc or edu will give me instructions on a temp setting for basal. The only time the bolus changes take place is when there’s a trend change and A1C goes up.

      1
      3 years ago Log in to Reply
    8. Maggie Morgan

      I will often give less insulin if I know that I will be working out in the next 2 hours.

      6
      3 years ago Log in to Reply
    9. Angela Pennacchia

      My Dr. Did write me a new prescription for every 2 days, as I have the same problem. I am on Medicare and they accepted it.

      3 years ago Log in to Reply
    10. Linda Zottoli

      Often, for lots of reasons. Pump doesn’t know some things that I know: what I’ve already eaten to deal with a low or otherwise without bolusing, the walk I’ve just taken or exercise I am planning, come to mind. And, for correction boluses, I have the correction amount set to work fine for some bg variations, but for readings above maybe 200, or even lower if long lasting ones, I also have to consider a decrease in sensitivity. And, sometimes, if I know what I want bolused, it’s just easier to just plug in the amount. (though can’t use info about percentage basal/bolus then).

      4
      3 years ago Log in to Reply
    11. AnitaS

      I do at least a few times a week as sometimes my insulin isn’t working because of the infusion site may not be as responsive to insulin as other sites. I may not plan on exercising as I usually do at a certain time. I may bolus more for high fat foods or bolus less for an activity that I am about to do. The reasons are endless.

      1
      3 years ago Log in to Reply
    12. kristina blake

      I am very aggressive in my T1D mgt. For meal boluses, I take into account any FOB (food on board – as best I can guess), I also pay attention to trend arrows. As another response said, only I know what is ahead for the next couple hours. While I do have different settings for about 9 different time zones throughout the day, I also titrate up (or down) based on the bg reading (if bg is under 130, I use the correction setting in my pump, if I am between 130-160, I increase by 10%, etc). I also have this “lovely” symptom of rising bg (lovely, because it comes in handy) – I get heartburn as my bg rises. I use what I can!

      3 years ago Log in to Reply
      1. Patricia Dalrymple

        OMG: I have just started experiencing this when I am high. It feels like I need to burp. It can’t.

        3 years ago Log in to Reply
    13. Bea Anderson

      The pump wizard does not know if I’m exercising or factor in other life issues.

      3
      3 years ago Log in to Reply
      1. Karen Brady

        my system doesn’t have an exercise setting/profile either, so I have to adjust manually for this (or even if I’m at work where I’m active and walking around, vs sitting on the couch at home)

        3 years ago Log in to Reply
    14. dave hedeen

      I add fat ‘carbs’, if eating food high in fat, pizza or pumpkin pie

      1
      3 years ago Log in to Reply
    15. Leon Ullrich

      My pump does a good enough job estimating with all the factors included in the pump. If the factors are wrong they are reviewed with my doctor.

      1
      3 years ago Log in to Reply
    16. William Bennett

      Some stuff you just get a pretty good sense of after you’ve been at this long enough. Things I eat frequently I rarely bother with the Wizard for, and stuff that’s unusual or hard to estimate b/c of fat content I’ve just built up a routine of my own for (pizza, Chinese). Of course it was very different before CGM, when it was much riskier to guesstimate things.

      2
      3 years ago Log in to Reply
    17. Janis Senungetuk

      Since my pump doesn’t read minds or calendars I often need to change the suggested bolus amount.

      2
      3 years ago Log in to Reply
    18. Carol Meares

      I don’t really count carbs. It is difficult when eating low carb. I have my carb to insulin ratio set at 10 to be able to easily calculate insulin I need for a meal due to protein, fat for resistance and yes, some carbs, type of activity level, stress, health condition, etc. The estimate I give may need to be corrected later or maybe not.

      3 years ago Log in to Reply
    19. Carrolyn Barloco

      I respond to upward trend arrows by taking a 1-2 unit bolus

      1
      3 years ago Log in to Reply
    20. TEH

      I adjust the carb estimat based on the fat content and my experience with certain meals. Must dinners average 50 g of carbs…

      3 years ago Log in to Reply
    21. Patricia Dalrymple

      I lower it sometimes with fresh insulin but have started lowering my basal for that because it is very consistent. Every Sunday I visit my dad. Even though I eat the same thing most mornings, when I go there my BG always goes low so I have been lowering my bolus a couple points.

      3 years ago Log in to Reply
    22. mbulzomi@optonline.net

      Except when I’m sleeping, I always self-Bolus. Control IQ is too slow to react. I have no patience with Control IQ. Some time when I used it, it would take 4 hours to bring down my numbers. Good for new kids, not me.

      1
      3 years ago Log in to Reply
      1. mbulzomi@optonline.net

        After reading some comments it evident that we use different Insulin pumps. and delivery systems. Most likely we cannot compare their action.

        3 years ago Log in to Reply
    23. PamK

      I chose 2-3 times/month because I only recently started doing this. I have found that when my BG is over 250mg/dl the calculator doesn’t deliver enough insulin to bring me down.

      3 years ago Log in to Reply
    24. Cheryl Seibert

      There are specific situations where I override a bolus calculation or enter a manual insulin-only bolus.
      1. My Tandem pump will occasionally ignore the IOB in the calculation. If my BG is NOT high, I will override the suggested bolus to the ‘correction calculation.
      2. Manual extended bolus if the site is getting bad and I cannot immediately change it. Extended bolus will act like an aggressive basal rate and absorb better.
      3. Intended exercise after a bolus….. I often reduce the meal bolus if the exercise will be moderate, heavy or of a long duration.

      3 years ago Log in to Reply

    If you use an insulin pump, on average, how often do you bolus an amount that is different from the suggested dose from the pump’s bolus calculator? (I.e., entering a number of insulin units without using the calculator at all, editing the bolus calculator’s suggested dose to be higher or lower, etc.) Cancel reply

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