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    • 9 hours, 27 minutes ago
      KarenM6 likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Insulin, meters, diabetic tech are not magic wands. Its usage does not guarantee only "positive" results. Negative events can and do occur, period. Non -D- typically (incorrectly) equate negative events as being total user failure, severe user errors. As diabetics we get blamed, despite having made zero mistakes on our part. We make seriously educated best guesses, despite that truth, we can and do fail anyway sometimes! Outsiders falsely need to believe inulin, our tech are complete-total cures, rather than tiny bandages at best. When confronted for using (sic. my) "drugs" in public, no matter how invisibly done... it is their self righteousness , poor assessment which is the issue. I gladly squash such insects...
    • 14 hours, 28 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      The more important question is 'how well does the clip work'. For me, the Medtronic clip worked very well, but the Tandem clip is quite ineffective and the pump falls off my belt during things like yard work or other bending movements.
    • 14 hours, 29 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I answered never. I always use a clip -- I wear my t:slim x2 on my belt -- but not the Tandem clip. I use the black t:Holster Rotating Belt Clip. Very pleased.
    • 14 hours, 30 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I am rough on pumps and use a Tandem X2 but dont use the Tandem clip/holster. I use a neoprene case and a pouch with a metal clip. Thenmetal clip is uncomfortable while I sleep. Looking for a different solution for wearing my pump at night.
    • 1 day, 10 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I answered that nobody wants to be screened, but I was answering based on my immediate family. I did let my deceased type-1 diabetic cousin's 35 year old son know he can be tested for his likelihood of becoming type-1 diabetic. He said he may be tested as he was always curious if he had a chance.
    • 1 day, 11 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have T1, and when my oldest grandson got T1, the other 3 grandkids got screened. The grandson who's the brother of the one with T1, showed a strong possibility of being a future T1 diabetic. It sadly came true about a year later.
    • 1 day, 11 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have LADA, and the idea of screening has not come up, either by me or my adult children. I guess I need to present the opportunity to them so they can make the decision.
    • 1 day, 11 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 1 day, 14 hours ago
      Samantha Walsh likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 2 days, 9 hours ago
      KarenM6 likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 11 hours ago
      Katie Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 12 hours ago
      Kate Kuhn likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 12 hours ago
      Karen DeVeaux likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 2 days, 13 hours ago
      Kelly-Dayne likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 14 hours ago
      William Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 14 hours ago
      Jneticdiabetic likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 2 days, 14 hours ago
      Lawrence S. likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      my siblings & parents are older (like me) and they've never expressed any interest in getting tested. my nieces and nephews have never said anything either
    • 3 days, 2 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I participated in several ADA walks not long after being Dx with T1D. As Ahh Life points out large $ are rased, but where do they go? I stopped supporting ADA for that reason. I think JDF is much more open on where the funding goes.
    • 3 days, 2 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      JDRF only. I like knowing that my contributions are going specifically to T1D.
    • 3 days, 2 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 3 days, 6 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      Switched a long time ago to Tandem/Dexcom from Minimed because of improved and more automated control, and haven't looked back. Still wishing for a cure, but know it's not going to happen for dinosaurs like me. I'll just be glad when young people will will one day experience that magic word: cure. It's too easy to sit around and complain, but it's high time for a cure, and way past time having us depend on treatment that is pretty much a money maker for big Pharma when it seems as if there's a cure waiting in the wings. Filling up landfills with used pump supplies, etc., makes our society look nothing but incompetent and greedy. Sorry to rant.......
    • 3 days, 6 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      They do too often. Why I ask? Well because it will help long term.... oh how do you know that it will help? It's a brand new medication, never been used by the D community, except for the shortest term study mandated in order to get it to market, and sell. Long term has never been achieved... its NEW. Let's revisit/wait a couple years... if its MAGIC medicine, sure I'll try it. But unless it's got magic properties, guarantees magic results why would I want it, until it's been used for a decent while??? Oh well... yeah, guess that does makes sense....
    • 3 days, 23 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      Yes and for the last year and a half that is exclusively what I have been offered so I am not getting all the usual checks an in person endo visit requires. ADA and others spent 10-20 years convincing endos they needed to check patients feet and that progress has evaporated.
    • 3 days, 23 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      I would rather see in person. He checks my feet, BP etc. we have a chance to catch up and for me to ask questions. To me so much better face to face. We did virtual during pandemic.
    • 4 days, 7 hours ago
      Phyllis Biederman likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I’ll occasionally use the holster with clip that came with my pump or a protective case of my own when I’m wearing something without pockets. However I find these quite bulky thus usually just slip my pump in a pocket.
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    If you use a Tandem insulin pump with Control IQ, which of these options best describe your use of the “Sleep” activity setting? Select all statements that apply to you.

    Home > LC Polls > If you use a Tandem insulin pump with Control IQ, which of these options best describe your use of the “Sleep” activity setting? Select all statements that apply to you.
    Previous

    If you’re a person with T1D, after having multiple highs and lows over the course of a day, how affected do you most often feel – physically and emotionally – once your blood glucose levels are stable?

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    Has your career path been influenced by living with T1D or having a loved one with T1D?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    23 Comments

    1. Molly Jones

      I chose “I use the Sleep activity setting during the hours that I’m sleeping”, but my sleep hours are not definitely 2300-0800 and I don’t change the settings as I would for activity.

      1
      2 months ago Log in to Reply
    2. Kate Kuhn

      I switch to the Sleep setting around 8 PM to avoid Midnight lows.

      2 months ago Log in to Reply
    3. Marty

      Lately, I’ve been using the sleep setting to avoid “stealth” correction boluses during the day as well as during the night. After decades of tightly managing my control, I still haven’t been able to relinquish control completely to the algorithm. I’ve been doing correction boluses manually. I don’t like to be in the middle of a strenuous activity that I thought I had room for BG-wise only to find my pump had decided to fix my BG for me. Also, I prefer the slightly lower baseline BG that the sleep mode aims for. I’m about to spend some time in the hospital getting my knees replaced. I’ll let my pump takeover then since it will probably be thinking more clearly than me at that point.

      3
      2 months ago Log in to Reply
    4. Lawrence S.

      I have only used the sleep mode during my regularly schedule sleep times. However, the thought of using it at other times gives food for thought. I wonder what would be the advantages of using the sleep mode during awake times?

      2 months ago Log in to Reply
    5. Nevin Bowman

      I use the sleep mode almost 24/7. I don’t want my BSs as high as the other modes allow.

      2 months ago Log in to Reply
    6. Derek West

      For the 9 months since I got the pump my sleep mode has been set from 1:00am to 6:45 on the suggestion of the nurse who helped me set it up. I actually usually go to bed around 10:30 and after reading some of the comments here I obviously need to do a little research and possible make some adjustments.

      1
      2 months ago Log in to Reply
    7. Tanya Levchuk

      I just started using the sleep setting last night

      2 months ago Log in to Reply
    8. Russell Buckbee

      Never use the sleep setting as it takes me too low. I always use the exercise setting 24/7 so my sugar will stay high enough. Go figure?

      2 months ago Log in to Reply
    9. AnitaS

      I used to have my sleep mode on from 11 pm till 7am. My diabetes P.A. had me change to using the sleep mode for the whole 24 hours. It helps me have a slightly tighter blood glucose range the whole day as the t-slim gives a slightly tighter goal in sleep mode. It doesn’t give me bolus corrections now but I very rarely had automatic bolus corrections anyway and the corrections were so minor that they really didn’t make a difference in my blood sugar control.

      1
      2 months ago Log in to Reply
    10. Janis Senungetuk

      When I first got the pump I set the Sleep activity for 12 AM to 9 AM, close to the actual hours. Since then, I’ve found that I’m often resetting the start time if I’m in the middle of editing a photoshoot or reading the news past midnight. I don’t think it actually makes that much difference. I still need to get up around 9 AM to take my morning prescriptions and start my day, but I’m not on a time clock. Control IQ has done a very good job of of keeping me in range during the night and I see no reason to play games with the setting…or the pump.

      1
      2 months ago Log in to Reply
    11. KarenM6

      So, the sleep mode keeps your blood sugars low? I’m very new to Tandem Control IQ, so I’ll have to read up on this mode that my doctor recommended.
      Does sleep mode use a “gentler” correction bolus?

      All I know is that I keep going low and the machine doesn’t seem to want to correct it even on sleep mode.
      Maybe I’ll start using exercise mode for sleep?!!

      2 months ago Log in to Reply
      1. William Bennett

        Sleep Mode sets a lower target which is why some people use it 24/7. OTOH, it will not issue a correction bolus even if one is warranted, so you need to keep an eye on that and do it manually if you need one.

        2
        2 months ago Log in to Reply
      2. AnitaS

        If you keep going low while sleeping, you probably have too high of a basal setting. Since you are new to the system, you can contact your doctor to help you adjust your settings if you aren’t comfortable doing that yourself. If you just use exercise mode while you sleep, you will likely go too high as that exercise goal is set to between 140-160.

        1
        2 months ago Log in to Reply
      3. KarenM6

        I wish there was a button for me to reply to you guys! But, hopefully you will see this:
        Thank you SO MUCH for your answers to my questions!!! I really appreciate it (more than you can know). I understand those modes now.
        What machines can do is just so fascinating! Thank you. 😀

        2 months ago Log in to Reply
    12. Kate McCarthy

      I use omnipod.

      2 months ago Log in to Reply
    13. TEH

      I hadn’t considered using sleep mode 24/7. I might try that. Thanks to all that commented.

      2
      2 months ago Log in to Reply
      1. Becky Cain

        Yes, thanks to everyone.

        2 months ago Log in to Reply
    14. Jneticdiabetic

      I marked sometimes use when I’m not sleeping because I have sleep settings set, but often stay up later. Sleep mode overnight does help me wake up in range almost every morning, which makes it my favorite Tandem feature. I’ve been tempted to try using sleep mode 24/7 for tighter control, but I’m worried if the algorithm is assuming I’m not moving when I am, it could make me more prone to lows.

      2 months ago Log in to Reply
      1. AnitaS

        I don’t think that your concern will happen. The basal adjustments I believe will only kick in if your sugar levels are below or above where they should be. I have used sleep mode 24/7 for at least a year and haven’t had more lows.

        2 months ago Log in to Reply
    15. KIMBERELY SMITH

      I don’t use

      2 months ago Log in to Reply
    16. LizB

      I am Team Sleep mode 24/7. I like that it aims for a lower target and the lack of automatic corrections isn’t an issue for me. During the day I can correct myself if needed, and sleep mode keeps me steady overnight.

      1
      2 months ago Log in to Reply
    17. T1D4LongTime

      Control-iQ does NOT correct soon enough to give me good control. I have brittle T1D so I run Sleep Mode 24/7 which has a lower target BG. It then is more aggressive and reacts sooner with increased basal. The downside is that I need to manually take correction boluses for highs and that means more alarms (sad, but I’m 85-95% in range with 25-30 StdDev). 🙂 I have better control with Sleep Mode.

      2 months ago Log in to Reply
    18. Becky Cain

      I have such a problem with Control IQs correction when I’m trying to get over a low and it kicks in a bolus. Ugh!! Think I’ll try Sleep mode and do corrections myself for awhile. Thanks for the encouragement to do this!

      2 months ago Log in to Reply

    If you use a Tandem insulin pump with Control IQ, which of these options best describe your use of the “Sleep” activity setting? Select all statements that apply to you. Cancel reply

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