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    • 14 hours, 52 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 14 hours, 54 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 14 hours, 55 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 14 hours, 56 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 15 hours, 4 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 16 hours, 56 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 16 hours, 57 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 16 hours, 59 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 21 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 23 hours, 2 minutes ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 23 hours, 47 minutes ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day ago
      ConnieT1D62 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 1 hour ago
      eherban1 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 12 hours ago
      NANCY NECIA likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 15 hours ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I won't use the word "diabetic" as a noun. It's as simple as that, an adjective, yes. I didn't refer to a good friend with MS as a "sclerotic". When I was working with first responders, I tried to remember to say "schizophrenia is involved", or "there's alcoholism at play here".
    • 1 day, 15 hours ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 15 hours ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      No one has said (in seriousness) you can't eat that, but I have gotten the question "Can you eat that?"
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    If you use a CGM, at what blood glucose level is your “low” alert set? If you use multiple alert schedules, select the number that is your “low” alert at 12 p.m. in your time zone.

    Home > LC Polls > If you use a CGM, at what blood glucose level is your “low” alert set? If you use multiple alert schedules, select the number that is your “low” alert at 12 p.m. in your time zone.
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    What advice would you give to a caregiver of a teenager with T1D?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    20 Comments

    1. qachemist

      I set my alert higher than normal because it takes me quite a while to absorb even pure sugar and have it register on the CGM, so I give myself plenty of time to monitor and adjust.

      1
      3 years ago Log in to Reply
    2. Annie Wall

      I answered 55-59 because that’s what I have on Dexcom. However, on my Tandem my low alert is set to 80. Why the big difference? I don’t want alerts from both Dexcom and Tandem. I chose 80 for Tandem so I have plenty of time to stop the drop.

      2
      3 years ago Log in to Reply
    3. Jane Cerullo

      Works well for me. I am
      Alerted that I may be going low.

      1
      3 years ago Log in to Reply
    4. Gary Rind

      used to have my low set at 60. In a video, the TCOYD endos suggested that you set it at 80 so you can address your BS before it gets too low. Works out really well for me.

      1
      3 years ago Log in to Reply
    5. Carolann Hunt

      Multiple- my daughter’s phone is set at 100 so she will react sooner than later. My Nightscout is set at 65 so I react if she didn’t already

      3 years ago Log in to Reply
    6. Lawrence S.

      70, all the time.

      2
      3 years ago Log in to Reply
    7. Henry Renn

      I have it set high bc I like to have warning well in advance if my bg might go down so low I have to treat it.

      1
      3 years ago Log in to Reply
    8. JeremyW

      I used to have it set lower at 70 to be alerted less. But now it’s at 85 because I found that most of the time I go under 85 I’m headed for 70 anyway so it wasn’t really less anyway, and might as well know sooner.

      Night is different, no low alerts except 55 required alert because of compression low false alarms.

      2
      3 years ago Log in to Reply
    9. LZ

      Have 80 on dexcom, 75 on tandem

      3 years ago Log in to Reply
    10. Donna Condi

      I have my low set on 90 so that I can do something before it gets too low.

      2
      3 years ago Log in to Reply
    11. Pauline M Reynolds

      I use 80 because my lows seem to come fast.

      1
      3 years ago Log in to Reply
    12. jo

      I have it set at 70 at all times, because it only goes lower from there and rather quickly.

      2
      3 years ago Log in to Reply
    13. C B

      80 because 70 is already low

      1
      3 years ago Log in to Reply
    14. KarenM6

      My low alert is set at 80. Having hypo unawareness means earlier alerts are better.
      I change the alert to 90 to 95 if I have to drive any long distances (over 60 miles) because of the hypo unawareness, too.

      2
      3 years ago Log in to Reply
      1. Lawrence S.

        Good idea about driving long distances.

        3 years ago Log in to Reply
      2. KarenM6

        Thank you, Lawrence S! 🙂

        3 years ago Log in to Reply
    15. AnitaS

      I have mine set at 85, for the same reason most people set their alarms a little higher–to prevent my sugar from going under 70.

      3 years ago Log in to Reply
    16. Bea Anderson

      I have 2 low settings. 70 low and 55 urgent low. I bump it up if away from home. 16 years t1, and still have awareness. Settings might be too low, but have been able to fix things myself. First I pause insulin pump for 30 minutes. If I seem to feel ok I check bg to verify bg. If shaky or sweaty, I do glucose tabs or skittles.

      3 years ago Log in to Reply
    17. Jen Farley

      I have mine set high 90 is my first alert, by the time it hits the 50’s it won’t shut up. I drop fast. My endocrinologist wants the lows to stop because I no longer feel the lows. A little secret, I prefer lows over highs due to the correction for high blood sugars take longer and I feel worse. Lows I take some glucose and they go away. I do get the point, more die from the lows than the highs so following the rules.

      3 years ago Log in to Reply
    18. T1D4LongTime

      During the day, I have it set at 60, but many times I will silence it because after you treat a low, it drives you nuts until the SG comes back up. My TSlim incessantly alarms at 55, so a Rise or Fall Rate alarm is often more helpful.

      3 years ago Log in to Reply

    If you use a CGM, at what blood glucose level is your “low” alert set? If you use multiple alert schedules, select the number that is your “low” alert at 12 p.m. in your time zone. Cancel reply

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