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    • 1 day, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 7 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 9 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 14 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 15 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 15 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 16 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 16 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 8 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 8 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 10 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 10 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 12 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 13 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 13 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 15 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 15 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 16 hours ago
      Laurie B likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    If you lived with T1D as a child, were you restricted from participating in fun activities that typically involved candy?

    Home > LC Polls > If you lived with T1D as a child, were you restricted from participating in fun activities that typically involved candy?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    18 Comments

    1. Britni Steingard

      I was allowed to participate but, for the first few years at least, I had to trade in my candy for pennies and/or nickels. Then I was allowed to buy whatever I wanted with the money.

      5 years ago Log in to Reply
    2. Michelle Saunders

      I got to go trick or treating, but my brother got all the candy. Easter and Christmas I got sugar free candy or treats that could easily be figured into the exchange diet.

      5 years ago Log in to Reply
    3. Rebecca Lambert

      I was diagnosed as an adult

      1
      5 years ago Log in to Reply
    4. Nevin Bowman

      I participated but did not eat the candy. My mom was very strict with my diet and 40+ years later I’m very thankful. I had an A1c of 6.0 in 1977 before glucose testers were on the market.

      5 years ago Log in to Reply
    5. Jana Foley

      I personally was diagnosed as an adult, but my Terr two youngest children were diagnosed at ages 6 and 11. They were allowed to participate and eat the candy they received because our endo had told us that sugar free candy still had the carbs, just from a different source so we would have still needed to bolus for them. So we went with bolusing for the stuff they really wanted, but we very careful about the quantity they ate.

      5 years ago Log in to Reply
    6. Judy Hampton

      It seem funny now, but I was diagnosed in 1960 and given “diet” jellies, sodas, tea, etc. There was no restriction on candy at Halloween. LOL

      5 years ago Log in to Reply
    7. Sandra Lee

      I got to exchange my real candy for sugar free candy or toys. 1983 was diagnosed at age 6.

      1
      5 years ago Log in to Reply
    8. Don Pettit

      back in the early 50’s the regulations were a far cry from today’s thoughts. Fortunately I lived through “strict ” everything with no mental harm done. I’ll state that, others may disagree !! LOL

      5 years ago Log in to Reply
    9. Tina Roberts

      I was diagnosed as an adult.

      1
      5 years ago Log in to Reply
    10. Janis Senungetuk

      I was dx in 1955. One of my first experiences at school, 3rd grade, after a month in the hospital, was a classroom birthday party for a girlfriend. When her mom brought the cake, ice cream and party treats (candy) I was told to stay at my desk while everyone else gathered around a large table in the back of the room to celebrate her birthday. My teacher gave me one graham cracker square from a box my mother had given her to help treat my low blood sugars. The memory of the hurt and humilation of being excluded is still vivid after all of these years.

      1
      5 years ago Log in to Reply
    11. Becky Hertz

      I was diagnosed at 14yo, so not really a child but still a child. I was limited some but not a lot.

      5 years ago Log in to Reply
    12. Kristine Warmecke

      Our parents never held us back from anything.

      1
      5 years ago Log in to Reply
    13. Bill Williams

      I attended summer camp beginning in 1960, the same year I was dx’d. Candy bars, available for purchase only on “Candy Night” were the currency of the camp and I was allowed to buy only to pay off on a losing bet. It sucked.

      5 years ago Log in to Reply
    14. Ahh Life

      Dx’d in 1951 as a 4-year old I was raised to be a strict disciplinarian, But part child, part disciplinarian I was also impish enough to know how to cheat! Discipline and cheating were fun, one because the rewards were short term, the other because the rewards were long term. I now, much later in life, see the pleasures and downfalls of both. (ɔ˘ ³( ͡❛ ‿‿ ͡❛c)

      5 years ago Log in to Reply
    15. Leona Hanson

      I was pre diabetic when I was a child I was allowed to participate but not to eat the treats I was on a no sugar diet but that was my mom not the doctor

      5 years ago Log in to Reply
    16. Julie Akawie

      Dx at age 3 in 1970. I got to participate in Halloween until I aged out, and “sold” the candy to my parents and my siblings. My friends were so jealous that I had spending money, they tried to convince their parents to “buy” their candy. I recommend it to everyone, even non-diabetics. The parents “buy” the candy back and then give it away, enjoy it themselves, or dole it back out as the occasional treat for the kiddos.

      5 years ago Log in to Reply
    17. Sally Numrich

      I was always allowed to participate but I wasn’t allowed to eat the candy. My parents bought the candy from me. A penny for each piece. Birthday parties were also ok, but my Mom always knew ahead of time what was being eaten, so she had something similar for me. And of course sugar free juice.

      1
      5 years ago Log in to Reply
    18. NAK Marshall

      I was not allowed candy or sweets but still went to birthday parties, etc. Mom tried to make treats for me but they weren’t very good, due to my being diagnosed at age 9 in 1960. Not much out there, but by golly, she tried. I traded in my Trick or Treating for art supplies and got cookies or candy if I went low.

      5 years ago Log in to Reply

    If you lived with T1D as a child, were you restricted from participating in fun activities that typically involved candy? Cancel reply

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