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    • 1 hour, 10 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 hour, 11 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 1 hour, 12 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 1 hour, 54 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 3 hours, 17 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 5 hours, 14 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 20 hours, 37 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 20 hours, 39 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 20 hours, 40 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 20 hours, 41 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 20 hours, 49 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 22 hours, 41 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 22 hours, 42 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 22 hours, 44 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 2 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 4 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 5 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 1 day, 6 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 6 hours ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 6 hours ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
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    If you lived with T1D as a child, were you restricted from participating in fun activities that typically involved candy?

    Home > LC Polls > If you lived with T1D as a child, were you restricted from participating in fun activities that typically involved candy?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    18 Comments

    1. Britni Steingard

      I was allowed to participate but, for the first few years at least, I had to trade in my candy for pennies and/or nickels. Then I was allowed to buy whatever I wanted with the money.

      5 years ago Log in to Reply
    2. Michelle Saunders

      I got to go trick or treating, but my brother got all the candy. Easter and Christmas I got sugar free candy or treats that could easily be figured into the exchange diet.

      5 years ago Log in to Reply
    3. Rebecca Lambert

      I was diagnosed as an adult

      1
      5 years ago Log in to Reply
    4. Nevin Bowman

      I participated but did not eat the candy. My mom was very strict with my diet and 40+ years later I’m very thankful. I had an A1c of 6.0 in 1977 before glucose testers were on the market.

      5 years ago Log in to Reply
    5. Jana Foley

      I personally was diagnosed as an adult, but my Terr two youngest children were diagnosed at ages 6 and 11. They were allowed to participate and eat the candy they received because our endo had told us that sugar free candy still had the carbs, just from a different source so we would have still needed to bolus for them. So we went with bolusing for the stuff they really wanted, but we very careful about the quantity they ate.

      5 years ago Log in to Reply
    6. Judy Hampton

      It seem funny now, but I was diagnosed in 1960 and given “diet” jellies, sodas, tea, etc. There was no restriction on candy at Halloween. LOL

      5 years ago Log in to Reply
    7. Sandra Lee

      I got to exchange my real candy for sugar free candy or toys. 1983 was diagnosed at age 6.

      1
      5 years ago Log in to Reply
    8. Don Pettit

      back in the early 50’s the regulations were a far cry from today’s thoughts. Fortunately I lived through “strict ” everything with no mental harm done. I’ll state that, others may disagree !! LOL

      5 years ago Log in to Reply
    9. Tina Roberts

      I was diagnosed as an adult.

      1
      5 years ago Log in to Reply
    10. Janis Senungetuk

      I was dx in 1955. One of my first experiences at school, 3rd grade, after a month in the hospital, was a classroom birthday party for a girlfriend. When her mom brought the cake, ice cream and party treats (candy) I was told to stay at my desk while everyone else gathered around a large table in the back of the room to celebrate her birthday. My teacher gave me one graham cracker square from a box my mother had given her to help treat my low blood sugars. The memory of the hurt and humilation of being excluded is still vivid after all of these years.

      1
      5 years ago Log in to Reply
    11. Becky Hertz

      I was diagnosed at 14yo, so not really a child but still a child. I was limited some but not a lot.

      5 years ago Log in to Reply
    12. Kristine Warmecke

      Our parents never held us back from anything.

      1
      5 years ago Log in to Reply
    13. Bill Williams

      I attended summer camp beginning in 1960, the same year I was dx’d. Candy bars, available for purchase only on “Candy Night” were the currency of the camp and I was allowed to buy only to pay off on a losing bet. It sucked.

      5 years ago Log in to Reply
    14. Ahh Life

      Dx’d in 1951 as a 4-year old I was raised to be a strict disciplinarian, But part child, part disciplinarian I was also impish enough to know how to cheat! Discipline and cheating were fun, one because the rewards were short term, the other because the rewards were long term. I now, much later in life, see the pleasures and downfalls of both. (ɔ˘ ³( ͡❛ ‿‿ ͡❛c)

      5 years ago Log in to Reply
    15. Leona Hanson

      I was pre diabetic when I was a child I was allowed to participate but not to eat the treats I was on a no sugar diet but that was my mom not the doctor

      5 years ago Log in to Reply
    16. Julie Akawie

      Dx at age 3 in 1970. I got to participate in Halloween until I aged out, and “sold” the candy to my parents and my siblings. My friends were so jealous that I had spending money, they tried to convince their parents to “buy” their candy. I recommend it to everyone, even non-diabetics. The parents “buy” the candy back and then give it away, enjoy it themselves, or dole it back out as the occasional treat for the kiddos.

      5 years ago Log in to Reply
    17. Sally Numrich

      I was always allowed to participate but I wasn’t allowed to eat the candy. My parents bought the candy from me. A penny for each piece. Birthday parties were also ok, but my Mom always knew ahead of time what was being eaten, so she had something similar for me. And of course sugar free juice.

      1
      5 years ago Log in to Reply
    18. NAK Marshall

      I was not allowed candy or sweets but still went to birthday parties, etc. Mom tried to make treats for me but they weren’t very good, due to my being diagnosed at age 9 in 1960. Not much out there, but by golly, she tried. I traded in my Trick or Treating for art supplies and got cookies or candy if I went low.

      5 years ago Log in to Reply

    If you lived with T1D as a child, were you restricted from participating in fun activities that typically involved candy? Cancel reply

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