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    • 1 day, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 10 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 12 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 16 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 16 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 17 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 18 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 19 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 19 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 10 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 10 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 13 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 13 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 14 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 16 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 16 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 18 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 18 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 19 hours ago
      Laurie B likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    If you have worked a job while living with T1D, in your current job, which of these statements are true about your experiences with leaving for medical appointments? Select all that apply. (If you do not currently work, please answer for your most recent job.)

    Home > LC Polls > If you have worked a job while living with T1D, in your current job, which of these statements are true about your experiences with leaving for medical appointments? Select all that apply. (If you do not currently work, please answer for your most recent job.)
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    30 Comments

    1. Janice B

      My answer is in error…I did not realize I could choose more than one answer.
      I have worked for 2 different companies over the last 35 years and the following have all been true at one place or the other.

      Current employer:
      I can leave for an appointment and return to work after, but I do not get paid for that time
      I can leave for an appointment any time I need
      I can leave as long as I notify my job ahead of time

      Previous employer:
      I need to take paid time off for an appointment
      If I leave for an appointment, I have to make up those hours later
      I feel pressured by my job not to leave for an appointment

      4 years ago Log in to Reply
    2. Jneticdiabetic

      I’m a salaried employee (not hourly), which allows some flexibility. I generally try to schedule my appts before starting or at the end of my work day to avoid disruption.

      3
      4 years ago Log in to Reply
    3. James Phelps

      I always schedule my appointments after my shift which luckily is early afternoon so there is no problem with that.

      4 years ago Log in to Reply
    4. Beckett Nelson

      I work straight nights, so try to book appointments around my shifts. If I can’t, I either try to switch my shift or go short on sleep.

      4 years ago Log in to Reply
    5. Melinda Lipe

      I leave with notice to my manager, either I’m paid using my paid time off, or I can work extra to avoid using that time. When I worked shifts, I had days scheduled off during the week, so I could schedule medical appointments accordingly.

      4 years ago Log in to Reply
    6. Lloyd Lowe

      I became medically retired before 1992 and in those decades there were not a great number of laws to make working life easy for me. Many times I was let go on the eighty-ninth day.

      1
      4 years ago Log in to Reply
    7. Richard Vaughn

      I was a college teacher. I scheduled appointments that did not interfere with my schedule.

      4 years ago Log in to Reply
    8. Sherolyn Newell

      I put my appointments on the calendar as soon as I make them which is usually at least 3 months in advance. However, if something came up, it would be no problem to leave for the doctor. I work for a great company. I can take paid time off, not charge the time, or make up the time. I usually work enough extra I have already have make-up time to use.

      1
      4 years ago Log in to Reply
    9. Henry Renn

      I was fortunate that for majority of my working years I was a salaried employee who could take time off & either use sick time or make up the hours later. The nature of my jobs meant that I would gladly make up hours to fulfill my obligations.

      4 years ago Log in to Reply
    10. Mark Schweim

      I have worked NIGHT SHIFT most of my life including after my T1D diagnosis so it’s never happened for me to have a medical appointment during the hours I was scheduled to work.

      1
      4 years ago Log in to Reply
    11. Retired and glad

      I retired at the beginning of 2008, but prior to that for the previous 20 years I worked out of my house since I traveled for the company almost 100% of the time. As I always worked extra hours either traveling or just because my office was right across the hall from the bedroom, taking time for an appointment was not a big deal.

      4 years ago Log in to Reply
    12. Kristine Warmecke

      As a bedside RN, I try to plan my work schedule so I’m off on the day of my appointment. Otherwise I have to change my appointment. When I worked night’s I would get the earliest appointment of the day & go after work. That made for a LONG day, though.

      4 years ago Log in to Reply
    13. Mary Dexter

      I was a substitute teacher, so I could take off for appointments, but I wouldn’t be paid for that entire day, because a half day assignment might not be available. Also, not being available for a few hours put me at a disadvantage for getting future assignments.

      1
      4 years ago Log in to Reply
    14. Joan Fray

      I made my own appointments so I always scheduled time off in between appointments.

      4 years ago Log in to Reply
    15. RACHEL BLEVINS

      Our office is closed 2 days out of the work week, meaning that I work from home the other days. I try to schedule my appointments on those days and have to use my lunch in leu of the time I’m not working.

      4 years ago Log in to Reply
    16. Kevin McCue

      Any changes to my work schedule are an inconvenience to my employer and they let me know. I feel like my health comes after the company priority in their eyes.

      1
      4 years ago Log in to Reply
    17. AnitaS

      My last job was night shift. I worked Monday through Friday nights for the last 12 years of that job so I usually would schedule on Mondays if I could so that I had a night’s sleep on Sunday. If I had to have an appointment Tues-Thursday, If the time of the appointment interrupted my sleep too much or if I had such an early appointment that I had to leave work early, as long as I notified them a few days in advance, there was no problem leaving. I was paid either by using sick leave or vacation time . I always used sick leave as I had plenty of that saved up since all unused sick leave carried over. Thank goodness for that as I have had quite a few surgeries (not related to diabetes) that required months off at a time.

      4 years ago Log in to Reply
    18. Amanda Barras

      Other: I worked P/T and was able to schedule my appointments around my shifts.

      2
      4 years ago Log in to Reply
    19. LizB

      I am working from home full time now and can schedule my appointments when it’s convenient for me. Prior to March 2020 I was working at home part time and would schedule my appointments on days I was home. Even before I ever worked from home I was able to schedule my appointments whenever I needed at my current and former job.

      I just came back from an appointment a short time before seeing this question!

      4 years ago Log in to Reply
    20. Andrew Stewart

      I’ve been a salaried computer programmer for 30 years and since my work is project based I have a considerable amount of control over the hours (time not quantity) I work. Mainly because I frequently need to work nights and weekends (mostly nights) to preform system upgrades.

      I’ve worked for roughly 6 different managers at different companies in various industries (Healthcare, IT Software Services, Telecommunications, Online and Print Media, Entertainment and Legal) and I have always been able to schedule and attend medical appointments without issue or problem or affecting my earnings. Only one out of the six managers made it difficult but that manager made most things difficult.

      4 years ago Log in to Reply
    21. Pauline M Reynolds

      I was a music/choir director, and thought it used up many hours, my time was mine to determine.

      4 years ago Log in to Reply
    22. Sahran Holiday

      Work for a NYC agency. We have apid sick leave, if we exhaust paid sick leave we can charge it to our annual or other leave or take the time without pay. Never had to.

      4 years ago Log in to Reply
    23. Mick Martin

      A combination of several of the options given, dependent A LOT who my ‘boss’ was at the time.

      Some of my bosses have allowed me to take time to attend appointments without any quibble. Some have required ‘proof’ that I have a hospital, or clinic, appointment in advance, and SOME have made it extremely difficult for me to attend appointments, citing that they couldn’t get cover for the hours that I would be away from work … not that they actually put much effort into finding cover. (I did start finding cover by myself, but those particular bosses would complain about the suitability of the person(s) that I’d requested to cover my abscence. Admittedly, I had to be careful in which people I requested to cover me as my job involved making ‘life-changing’ decisions.)

      On saying tha above, I PROBABLY didn’t make it easier on myself as I used to ‘get on my high horse’ and questioned the understanding of the interviewer(s) at times when I was being interviewed for ‘new’ positions. (During interview I used to say something along the lines of “it’s down to your ignorance of diabetes and what it entails.”)

      4 years ago Log in to Reply
    24. Janis Senungetuk

      Working salaried or hourly employment created constant issues with employers when I needed medical appointments. Self-employment has presented many financial challenges, but as a solo employer, time off for necessary medical care is available.

      4 years ago Log in to Reply
    25. Sharon Lillibridge

      I teach emtionally disturbed, violent delinquent adolescant girls so my employer is great abouttime off but I schedule everything for only holidays frpom workbecause beimng away puts too much stress and work for my peers.

      2
      4 years ago Log in to Reply
    26. Donna Condi

      I worked part time and scheduled dr. Appointments when I was not working.

      4 years ago Log in to Reply
    27. Wanacure

      Yes, I had sick leave but seldom used it, if ever. If I used vacation time or sick leave, the folders were still piled up for me to file upon my return. Other work like mailing certified mail with return receipt requested was botched in my absence. AIDS was a BIG FEAR, so I was required to go to nurse’s station to inject pre-lunch bolus. Talk about discrimination! Nevertheless, putting up w/ this outright unjustified discrimination for 5 years, got me eligible to choose a TSP. (A 401k with the lowest administrative costs).

      1
      4 years ago Log in to Reply
    28. Kim Murphy

      I can leave as long as I get an appointment late in the afternoon which is hard to do.

      4 years ago Log in to Reply
    29. James Cheairs

      My employer is quite flexible and I get to use allocated sick time for medical appointments of any kind. I am fortunate.

      4 years ago Log in to Reply
    30. Chris Deutsch

      In my career as a nurse, my hours were flexible enough that I could schedule appointments during my personal time off.

      4 years ago Log in to Reply

    If you have worked a job while living with T1D, in your current job, which of these statements are true about your experiences with leaving for medical appointments? Select all that apply. (If you do not currently work, please answer for your most recent job.) Cancel reply

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