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    • 5 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 5 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 48 minutes ago
      Marty likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 1 hour, 10 minutes ago
      dholl62@gmail.com likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 1 hour, 34 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 1 hour, 34 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 1 hour, 35 minutes ago
      atr likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 1 hour, 50 minutes ago
      Sarah Berry likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 2 hours, 50 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Age 73 here. I'm in the same boat. I ogten am considered too old for consideration for "smaller" research projects. But - best of luck to them. I'll be rooting on the sidelines.
    • 2 hours, 51 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 17 hours, 51 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
    • 17 hours, 52 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
    • 17 hours, 52 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 23 hours, 39 minutes ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 23 hours, 39 minutes ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day ago
      Marthaeg likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day ago
      kristina blake likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 1 day ago
      Mike S likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 1 hour ago
      Eve Rabbiner likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 1 day, 1 hour ago
      Marty likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 1 hour ago
      John Barbuto likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 1 day, 20 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      not for those of moderate income.
    • 1 day, 20 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 1 day, 20 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      But probably not in my lifetime.
    • 1 day, 22 hours ago
      dholl62@gmail.com likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
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    If you have never used a hybrid closed loop system, which of the below potential benefits of these systems would be most important to you?

    Home > LC Polls > If you have never used a hybrid closed loop system, which of the below potential benefits of these systems would be most important to you?
    Previous

    If you currently use a hybrid closed loop system, which of these potential benefits of these systems has been the most impactful for you? Select all that apply!

    Next

    On average, how many grams of carbohydrates do you consume per day?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    24 Comments

    1. Mick Martin

      Sadly, the person that compiled this survey didn’t think to make the option available that more than one of the given options SHOULD be able to be clicked on. i.e. that several of the options might be seen as potential benefits to someone considering using a closed loop system.

      9
      2 years ago Log in to Reply
      1. George Lovelace

        I just wish Tandem would hurry with an Updated Pump that would give me Control with G7 Sensors like I had with G6, they’re trying to get Approval from Medicare now to Upgrade

        3
        2 years ago Log in to Reply
      2. Anneyun

        Or an All of the Above option

        2
        2 years ago Log in to Reply
    2. Jane Cerullo

      Currently switching from three years of MDI to tandem x2. Then hope to get new Mobi. Looking forward to trying the control IQ

      2 years ago Log in to Reply
    3. Lawrence S.

      I’m not sure what a hybrid closed loop system is? I use a Tandem X2 with Control IQ and a Dexcom G6 sensor. I don’t think that fits the definition of a hybrid closed loop system? If it does, my reason is to gain better overall control of my blood sugars, which would be all of the above.

      1
      2 years ago Log in to Reply
      1. Anita Stokar

        Yes, that is a hybrid closed loop. Hybrid closed loop is when pumps deliver variable, automated basal insulin based on the readings from a CGM

        1
        2 years ago Log in to Reply
      2. Lawrence S.

        Thanks, Anita. The “hybrid” part confused me.

        2 years ago Log in to Reply
    4. Daniel Bestvater

      I use Tandem control IQ. My A1c has gone up slightly with it. It was 5.8-6.2 for ~10yrs with CIQ it has been 6.5-6.7. I think it has improved my quality of sleep, BG stays steady overnight. During the day if I am at all active I often have to turn off the CIQ or it will over bolus. When active I have used the CIQ exercise mod with a 50% basal profile, the CIQ still takes over and increases my basal and aggressively boluses. Hopefully going forward CIQ will allow for a bit more user input. If I walk around for more than 15-20 minutes I seem to become extremely insulin sensitive.

      1
      2 years ago Log in to Reply
      1. Lawrence S.

        I do aerobic exercises daily. When I increase my blood glucose level before I do my work out, I unplug my insulin supply from my body, until my blood glucose level comes down below 130. I’m not sure how to turn off the CIQ, and if I did, how much trouble it would be to turn it back on. Would it mess up my CGM sensor/transmitter?

        2 years ago Log in to Reply
    5. Patricia Kilwein

      Love Mrdtronic 780 system with G4 sensor. Waited a long time for this and am so thankful!

      2 years ago Log in to Reply
      1. Patricia Kilwein

        Medtronic

        2 years ago Log in to Reply
    6. Natalie Daley

      For the uninitiated, you might define what this is.

      2
      2 years ago Log in to Reply
      1. Anita Stokar

        A hybrid closed loop system is when a pump automatically varies the basal insulin depending on the readings from a CGM

        2 years ago Log in to Reply
    7. sdimond

      I eat low carb and do MDI. My most recent A1C was 5.0 and I seldom have a glucose reading above 125. When a hybrid closed loop system can get to that level of control I’ll be interested. The ADA standard of care and their advice to eat loads of carbs actively harms diabetics.

      1
      2 years ago Log in to Reply
      1. Lawrence S.

        Interesting.

        2 years ago Log in to Reply
    8. Bob Durstenfeld

      I love the fact that Tandem’s Control IQ lands me at 100mg/dl +/-10 every morning. I tried for years changing basal rates to achieve that. It makes Control the rest of thecday so much easier.

      3
      2 years ago Log in to Reply
    9. ConnieT1D62

      I already use Control IQ and LOVE IT!!!! I answered More Time in Range, but all of the above answers are important and applicable IMHO.

      2 years ago Log in to Reply
    10. KarenM6

      I used to use Tandem Control IQ and Dexcom G6. But, it kept me too low and I was constantly fighting being in hypoglycemia, and then it fought my efforts to stop going too low, so I stopped using the Control IQ function. Then, I changed to the Eversense CGM and now can’t use it (although, for now, I don’t think I would even if I could.)

      1
      2 years ago Log in to Reply
      1. Eva

        Thank you for your comment. It’s important to know the risks.

        2 years ago Log in to Reply
      2. Jen Farley

        What do you think of the Eversense CGM? I just ran across it and thought how great. I do get nervous with newer technology. Just wondering your pro’s and con’s?

        2 years ago Log in to Reply
      3. KarenM6

        Hi Jen and Eva –
        Thank you. 🙂
        I like the Eversense overall.
        Pro and Con:
        The system asks for calibrations and after about two weeks, it goes to once per day. It is learning about the individual patient, which I like. The con is for people who don’t like calibrations, it may not be good for them. As I have struggled A LOT to get good numbers out of a CGM, I don’t mind calibrations.

        Con:
        It _can_ go off on the BS numbers. Although, they are for the most part very good… but, they can go off.
        I had a recent situation where it read a normal number (which I don’t remember precisely, but I’ll say 130 for illustration purposes), but my meter read 48, and the doctor’s meter read 60.
        In that case, more calibrations are needed to get it back on track.
        Con: the system doesn’t like calibrations when BS is going up or down. So, that can be just a bit frustrating. “Cause, I want to fix it, but I have to wait for the roller coaster ride to end.

        Pro: I LOVE that the plastic waste is limited to the initial insertion “syringe” and the daily (or every other day) tapes to keep the transmitter over the sensor. In my mind, the elimination of so much plastic waste is worth _ANY_ cons!

        Pro: I don’t have to change sensors every 7 to 10 days. I just have to chaRge the transmitter which takes only 15 minutes or so and can be done while I’m in the shower and couldn’t wear the transmitter anyway.
        I don’t have to worry about the sensor getting knocked off. (The transmitter could, in theory, get knocked off, but it hasn’t happened to me yet.)
        So, now my body isn’t getting poked as often with sensor insertion.
        Possible con: there is a potential for SMALL scarring at the insertion site.

        Um… there’s probably more, but I’ve run out of Pros and Cons for the time being.
        I hope this information helps!!

        2 years ago Log in to Reply
    11. Anita Stokar

      @GeorgeLovelace. I am not sure what you mean. The Tandem Slimx2 does work with the G7 to do the hybrid closed loop system.

      2 years ago Log in to Reply
    12. Eva

      I have never used a hybrid system because they seem insanely scary. That said, I may consider one – if you can prove that will keep me in an acceptable range, 80-130, for the vast majority of the time > 80% and I’m not chasing lows.

      1
      2 years ago Log in to Reply
    13. PamK

      I chose “none of the above” because I have tried a hybrid closed loop system, but no longer use it. Why? Because when using it my A1C went up, my TIR went down and I felt awful!

      2 years ago Log in to Reply

    If you have never used a hybrid closed loop system, which of the below potential benefits of these systems would be most important to you? Cancel reply

    You must be logged in to post a comment.




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