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    • 15 hours, 3 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 15 hours, 5 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 15 hours, 6 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 15 hours, 7 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 15 hours, 15 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 17 hours, 7 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 17 hours, 8 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 17 hours, 10 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 21 hours, 11 minutes ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 23 hours, 13 minutes ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 23 hours, 58 minutes ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 1 day ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day ago
      ConnieT1D62 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 1 hour ago
      eherban1 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 13 hours ago
      NANCY NECIA likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 15 hours ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I won't use the word "diabetic" as a noun. It's as simple as that, an adjective, yes. I didn't refer to a good friend with MS as a "sclerotic". When I was working with first responders, I tried to remember to say "schizophrenia is involved", or "there's alcoholism at play here".
    • 1 day, 15 hours ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 15 hours ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      No one has said (in seriousness) you can't eat that, but I have gotten the question "Can you eat that?"
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    If you have never used a hybrid closed loop system, which of the below potential benefits of these systems would be most important to you?

    Home > LC Polls > If you have never used a hybrid closed loop system, which of the below potential benefits of these systems would be most important to you?
    Previous

    If you currently use a hybrid closed loop system, which of these potential benefits of these systems has been the most impactful for you? Select all that apply!

    Next

    On average, how many grams of carbohydrates do you consume per day?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    24 Comments

    1. Mick Martin

      Sadly, the person that compiled this survey didn’t think to make the option available that more than one of the given options SHOULD be able to be clicked on. i.e. that several of the options might be seen as potential benefits to someone considering using a closed loop system.

      9
      2 years ago Log in to Reply
      1. George Lovelace

        I just wish Tandem would hurry with an Updated Pump that would give me Control with G7 Sensors like I had with G6, they’re trying to get Approval from Medicare now to Upgrade

        3
        2 years ago Log in to Reply
      2. Anneyun

        Or an All of the Above option

        2
        2 years ago Log in to Reply
    2. Jane Cerullo

      Currently switching from three years of MDI to tandem x2. Then hope to get new Mobi. Looking forward to trying the control IQ

      2 years ago Log in to Reply
    3. Lawrence S.

      I’m not sure what a hybrid closed loop system is? I use a Tandem X2 with Control IQ and a Dexcom G6 sensor. I don’t think that fits the definition of a hybrid closed loop system? If it does, my reason is to gain better overall control of my blood sugars, which would be all of the above.

      1
      2 years ago Log in to Reply
      1. Anita Stokar

        Yes, that is a hybrid closed loop. Hybrid closed loop is when pumps deliver variable, automated basal insulin based on the readings from a CGM

        1
        2 years ago Log in to Reply
      2. Lawrence S.

        Thanks, Anita. The “hybrid” part confused me.

        2 years ago Log in to Reply
    4. Daniel Bestvater

      I use Tandem control IQ. My A1c has gone up slightly with it. It was 5.8-6.2 for ~10yrs with CIQ it has been 6.5-6.7. I think it has improved my quality of sleep, BG stays steady overnight. During the day if I am at all active I often have to turn off the CIQ or it will over bolus. When active I have used the CIQ exercise mod with a 50% basal profile, the CIQ still takes over and increases my basal and aggressively boluses. Hopefully going forward CIQ will allow for a bit more user input. If I walk around for more than 15-20 minutes I seem to become extremely insulin sensitive.

      1
      2 years ago Log in to Reply
      1. Lawrence S.

        I do aerobic exercises daily. When I increase my blood glucose level before I do my work out, I unplug my insulin supply from my body, until my blood glucose level comes down below 130. I’m not sure how to turn off the CIQ, and if I did, how much trouble it would be to turn it back on. Would it mess up my CGM sensor/transmitter?

        2 years ago Log in to Reply
    5. Patricia Kilwein

      Love Mrdtronic 780 system with G4 sensor. Waited a long time for this and am so thankful!

      2 years ago Log in to Reply
      1. Patricia Kilwein

        Medtronic

        2 years ago Log in to Reply
    6. Natalie Daley

      For the uninitiated, you might define what this is.

      2
      2 years ago Log in to Reply
      1. Anita Stokar

        A hybrid closed loop system is when a pump automatically varies the basal insulin depending on the readings from a CGM

        2 years ago Log in to Reply
    7. sdimond

      I eat low carb and do MDI. My most recent A1C was 5.0 and I seldom have a glucose reading above 125. When a hybrid closed loop system can get to that level of control I’ll be interested. The ADA standard of care and their advice to eat loads of carbs actively harms diabetics.

      1
      2 years ago Log in to Reply
      1. Lawrence S.

        Interesting.

        2 years ago Log in to Reply
    8. Bob Durstenfeld

      I love the fact that Tandem’s Control IQ lands me at 100mg/dl +/-10 every morning. I tried for years changing basal rates to achieve that. It makes Control the rest of thecday so much easier.

      3
      2 years ago Log in to Reply
    9. ConnieT1D62

      I already use Control IQ and LOVE IT!!!! I answered More Time in Range, but all of the above answers are important and applicable IMHO.

      2 years ago Log in to Reply
    10. KarenM6

      I used to use Tandem Control IQ and Dexcom G6. But, it kept me too low and I was constantly fighting being in hypoglycemia, and then it fought my efforts to stop going too low, so I stopped using the Control IQ function. Then, I changed to the Eversense CGM and now can’t use it (although, for now, I don’t think I would even if I could.)

      1
      2 years ago Log in to Reply
      1. Eva

        Thank you for your comment. It’s important to know the risks.

        2 years ago Log in to Reply
      2. Jen Farley

        What do you think of the Eversense CGM? I just ran across it and thought how great. I do get nervous with newer technology. Just wondering your pro’s and con’s?

        2 years ago Log in to Reply
      3. KarenM6

        Hi Jen and Eva –
        Thank you. 🙂
        I like the Eversense overall.
        Pro and Con:
        The system asks for calibrations and after about two weeks, it goes to once per day. It is learning about the individual patient, which I like. The con is for people who don’t like calibrations, it may not be good for them. As I have struggled A LOT to get good numbers out of a CGM, I don’t mind calibrations.

        Con:
        It _can_ go off on the BS numbers. Although, they are for the most part very good… but, they can go off.
        I had a recent situation where it read a normal number (which I don’t remember precisely, but I’ll say 130 for illustration purposes), but my meter read 48, and the doctor’s meter read 60.
        In that case, more calibrations are needed to get it back on track.
        Con: the system doesn’t like calibrations when BS is going up or down. So, that can be just a bit frustrating. “Cause, I want to fix it, but I have to wait for the roller coaster ride to end.

        Pro: I LOVE that the plastic waste is limited to the initial insertion “syringe” and the daily (or every other day) tapes to keep the transmitter over the sensor. In my mind, the elimination of so much plastic waste is worth _ANY_ cons!

        Pro: I don’t have to change sensors every 7 to 10 days. I just have to chaRge the transmitter which takes only 15 minutes or so and can be done while I’m in the shower and couldn’t wear the transmitter anyway.
        I don’t have to worry about the sensor getting knocked off. (The transmitter could, in theory, get knocked off, but it hasn’t happened to me yet.)
        So, now my body isn’t getting poked as often with sensor insertion.
        Possible con: there is a potential for SMALL scarring at the insertion site.

        Um… there’s probably more, but I’ve run out of Pros and Cons for the time being.
        I hope this information helps!!

        2 years ago Log in to Reply
    11. Anita Stokar

      @GeorgeLovelace. I am not sure what you mean. The Tandem Slimx2 does work with the G7 to do the hybrid closed loop system.

      2 years ago Log in to Reply
    12. Eva

      I have never used a hybrid system because they seem insanely scary. That said, I may consider one – if you can prove that will keep me in an acceptable range, 80-130, for the vast majority of the time > 80% and I’m not chasing lows.

      1
      2 years ago Log in to Reply
    13. PamK

      I chose “none of the above” because I have tried a hybrid closed loop system, but no longer use it. Why? Because when using it my A1C went up, my TIR went down and I felt awful!

      2 years ago Log in to Reply

    If you have never used a hybrid closed loop system, which of the below potential benefits of these systems would be most important to you? Cancel reply

    You must be logged in to post a comment.




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