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    • 21 minutes ago
      Lawrence S. likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 22 minutes ago
      Lawrence S. likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      My first reaction was Very Satisfied but there is always room for improvement. I’d like a pump design that wasn’t meant to be worn on a belt just for men. To wear a dress, I have to only get those with pockets (and on both sides because opposite sides cause the CGM to lose contact) and put a button whole in each. The clip shows horribly on blouses worn out. I’ve tried the leg attachments and they never stay secure. I’m not big enough to wear it in my bra. All minor inconveniences. I’d like one that doesn’t keep alarming 20 minutes after I’ve eaten, although I get it that it is there to save my life. Again minor. Ask about CGMs (probably tomorrow’s question): lately I’ve had trouble removing the sensor from my arm without actually ripping off a strip of skin or very bad bruising. I’ve read about using baby oil for removal. That does help. I’m a rip it off fast person, but that didn’t work so well.
    • 56 minutes ago
      Gerald Oefelein likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 12 hours, 45 minutes ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 12 hours, 46 minutes ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 14 hours ago
      Neha Shah likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 17 hours, 33 minutes ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience people have heard of Type 2 Diabetes so if I say Type 1 that makes sense in that if there is a Type 2 there must be a Type 1 also. That is the extent of their understanding. In healthcare there is a bigger failure where "diabetes" or "type 2 diabetes" is used as a shorthand of a set of conditions often seen together. See any research paper by any cardiologist ever. This lack of precision leads to incorrect risk evaluations and incorrect treatment of people with diabetes caused by other factors including autoimmune aka Type 1.
    • 17 hours, 34 minutes ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 20 hours, 58 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      I have, and I do show calcium build up and hardening of the arteries. No action has been taken yet at this time. However, I am taking Repatha for better control of my cholesterol and it has been working great.
    • 20 hours, 58 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 20 hours, 58 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Thank you. Your write up is concise, cogent, and convincing. 🎀
    • 20 hours, 59 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      After 16 stents and a new aortic valve, I've had every scan imaginable and she just keeps on tickin'.
    • 21 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Just googled it and most insurance plans including basic Medicare do not cover it. Said cost ranges $100-400 with out-of-pocket being $100-150 (although I don’t understand that if not covered by insurance).
    • 21 hours, 23 minutes ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 21 hours, 24 minutes ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 22 hours, 13 minutes ago
      Lynn Smith likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      This is a good question! but it does lead to so many other questions.
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      If the mystery train is your favorite form of conveyance, then you’re gonna love T1D. You may choose to be in a universe that is spiritually arid. Or you may choose to live in the harsh realities of reality. Up & down arrows and double arrows? I Love ‘em. Can and do take action immediately. 🙇‍♀️ 🙇‍♀️
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      T1D & T2D are meaningless acronyms for most, nearly all, nondiabetics. Juvenile diabetes vs diabetes is the closest known pairing and that's still few.
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 1 hour ago
      Mike S likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 1 hour ago
      Lauren T likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 1 hour ago
      Meerkat likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 20 hours ago
      lis be likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 1 day, 20 hours ago
      lis be likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, and even with low cholesterol levels all my life, CT Scan show extensive calcified coronary artery disease.
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    If you have never used a hybrid closed loop system, which of the below potential benefits of these systems would be most important to you?

    Home > LC Polls > If you have never used a hybrid closed loop system, which of the below potential benefits of these systems would be most important to you?
    Previous

    If you currently use a hybrid closed loop system, which of these potential benefits of these systems has been the most impactful for you? Select all that apply!

    Next

    On average, how many grams of carbohydrates do you consume per day?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    24 Comments

    1. Mick Martin

      Sadly, the person that compiled this survey didn’t think to make the option available that more than one of the given options SHOULD be able to be clicked on. i.e. that several of the options might be seen as potential benefits to someone considering using a closed loop system.

      9
      2 years ago Log in to Reply
      1. George Lovelace

        I just wish Tandem would hurry with an Updated Pump that would give me Control with G7 Sensors like I had with G6, they’re trying to get Approval from Medicare now to Upgrade

        3
        2 years ago Log in to Reply
      2. Anneyun

        Or an All of the Above option

        2
        2 years ago Log in to Reply
    2. Jane Cerullo

      Currently switching from three years of MDI to tandem x2. Then hope to get new Mobi. Looking forward to trying the control IQ

      2 years ago Log in to Reply
    3. Lawrence S.

      I’m not sure what a hybrid closed loop system is? I use a Tandem X2 with Control IQ and a Dexcom G6 sensor. I don’t think that fits the definition of a hybrid closed loop system? If it does, my reason is to gain better overall control of my blood sugars, which would be all of the above.

      1
      2 years ago Log in to Reply
      1. Anita Stokar

        Yes, that is a hybrid closed loop. Hybrid closed loop is when pumps deliver variable, automated basal insulin based on the readings from a CGM

        1
        2 years ago Log in to Reply
      2. Lawrence S.

        Thanks, Anita. The “hybrid” part confused me.

        2 years ago Log in to Reply
    4. Daniel Bestvater

      I use Tandem control IQ. My A1c has gone up slightly with it. It was 5.8-6.2 for ~10yrs with CIQ it has been 6.5-6.7. I think it has improved my quality of sleep, BG stays steady overnight. During the day if I am at all active I often have to turn off the CIQ or it will over bolus. When active I have used the CIQ exercise mod with a 50% basal profile, the CIQ still takes over and increases my basal and aggressively boluses. Hopefully going forward CIQ will allow for a bit more user input. If I walk around for more than 15-20 minutes I seem to become extremely insulin sensitive.

      1
      2 years ago Log in to Reply
      1. Lawrence S.

        I do aerobic exercises daily. When I increase my blood glucose level before I do my work out, I unplug my insulin supply from my body, until my blood glucose level comes down below 130. I’m not sure how to turn off the CIQ, and if I did, how much trouble it would be to turn it back on. Would it mess up my CGM sensor/transmitter?

        2 years ago Log in to Reply
    5. Patricia Kilwein

      Love Mrdtronic 780 system with G4 sensor. Waited a long time for this and am so thankful!

      2 years ago Log in to Reply
      1. Patricia Kilwein

        Medtronic

        2 years ago Log in to Reply
    6. Natalie Daley

      For the uninitiated, you might define what this is.

      2
      2 years ago Log in to Reply
      1. Anita Stokar

        A hybrid closed loop system is when a pump automatically varies the basal insulin depending on the readings from a CGM

        2 years ago Log in to Reply
    7. sdimond

      I eat low carb and do MDI. My most recent A1C was 5.0 and I seldom have a glucose reading above 125. When a hybrid closed loop system can get to that level of control I’ll be interested. The ADA standard of care and their advice to eat loads of carbs actively harms diabetics.

      1
      2 years ago Log in to Reply
      1. Lawrence S.

        Interesting.

        2 years ago Log in to Reply
    8. Bob Durstenfeld

      I love the fact that Tandem’s Control IQ lands me at 100mg/dl +/-10 every morning. I tried for years changing basal rates to achieve that. It makes Control the rest of thecday so much easier.

      3
      2 years ago Log in to Reply
    9. ConnieT1D62

      I already use Control IQ and LOVE IT!!!! I answered More Time in Range, but all of the above answers are important and applicable IMHO.

      2 years ago Log in to Reply
    10. KarenM6

      I used to use Tandem Control IQ and Dexcom G6. But, it kept me too low and I was constantly fighting being in hypoglycemia, and then it fought my efforts to stop going too low, so I stopped using the Control IQ function. Then, I changed to the Eversense CGM and now can’t use it (although, for now, I don’t think I would even if I could.)

      1
      2 years ago Log in to Reply
      1. Eva

        Thank you for your comment. It’s important to know the risks.

        2 years ago Log in to Reply
      2. Jen Farley

        What do you think of the Eversense CGM? I just ran across it and thought how great. I do get nervous with newer technology. Just wondering your pro’s and con’s?

        2 years ago Log in to Reply
      3. KarenM6

        Hi Jen and Eva –
        Thank you. 🙂
        I like the Eversense overall.
        Pro and Con:
        The system asks for calibrations and after about two weeks, it goes to once per day. It is learning about the individual patient, which I like. The con is for people who don’t like calibrations, it may not be good for them. As I have struggled A LOT to get good numbers out of a CGM, I don’t mind calibrations.

        Con:
        It _can_ go off on the BS numbers. Although, they are for the most part very good… but, they can go off.
        I had a recent situation where it read a normal number (which I don’t remember precisely, but I’ll say 130 for illustration purposes), but my meter read 48, and the doctor’s meter read 60.
        In that case, more calibrations are needed to get it back on track.
        Con: the system doesn’t like calibrations when BS is going up or down. So, that can be just a bit frustrating. “Cause, I want to fix it, but I have to wait for the roller coaster ride to end.

        Pro: I LOVE that the plastic waste is limited to the initial insertion “syringe” and the daily (or every other day) tapes to keep the transmitter over the sensor. In my mind, the elimination of so much plastic waste is worth _ANY_ cons!

        Pro: I don’t have to change sensors every 7 to 10 days. I just have to chaRge the transmitter which takes only 15 minutes or so and can be done while I’m in the shower and couldn’t wear the transmitter anyway.
        I don’t have to worry about the sensor getting knocked off. (The transmitter could, in theory, get knocked off, but it hasn’t happened to me yet.)
        So, now my body isn’t getting poked as often with sensor insertion.
        Possible con: there is a potential for SMALL scarring at the insertion site.

        Um… there’s probably more, but I’ve run out of Pros and Cons for the time being.
        I hope this information helps!!

        2 years ago Log in to Reply
    11. Anita Stokar

      @GeorgeLovelace. I am not sure what you mean. The Tandem Slimx2 does work with the G7 to do the hybrid closed loop system.

      2 years ago Log in to Reply
    12. Eva

      I have never used a hybrid system because they seem insanely scary. That said, I may consider one – if you can prove that will keep me in an acceptable range, 80-130, for the vast majority of the time > 80% and I’m not chasing lows.

      1
      2 years ago Log in to Reply
    13. PamK

      I chose “none of the above” because I have tried a hybrid closed loop system, but no longer use it. Why? Because when using it my A1C went up, my TIR went down and I felt awful!

      2 years ago Log in to Reply

    If you have never used a hybrid closed loop system, which of the below potential benefits of these systems would be most important to you? Cancel reply

    You must be logged in to post a comment.




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