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    • 14 minutes ago
      Kristi Warmecke likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 2 hours, 46 minutes ago
      Lee Tincher likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      If I could get a CGM that is consistent and predictable I'd be very happy with the Twiist or the Tandem. The weak point with pumps used to be infusion sites, but now that we are relying on poor performing technology to support potentially great algorithms itis quite frustrating.
    • 4 hours, 40 minutes ago
      Beckett Nelson likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      My first reaction was Very Satisfied but there is always room for improvement. I’d like a pump design that wasn’t meant to be worn on a belt just for men. To wear a dress, I have to only get those with pockets (and on both sides because opposite sides cause the CGM to lose contact) and put a button whole in each. The clip shows horribly on blouses worn out. I’ve tried the leg attachments and they never stay secure. I’m not big enough to wear it in my bra. All minor inconveniences. I’d like one that doesn’t keep alarming 20 minutes after I’ve eaten, although I get it that it is there to save my life. Again minor. Ask about CGMs (probably tomorrow’s question): lately I’ve had trouble removing the sensor from my arm without actually ripping off a strip of skin or very bad bruising. I’ve read about using baby oil for removal. That does help. I’m a rip it off fast person, but that didn’t work so well.
    • 6 hours, 5 minutes ago
      John Barbuto likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      I have been using a insulin smart pen for the last 2 years; I find that it meets my current needs to ensure good management and results
    • 6 hours, 48 minutes ago
      Lawrence S. likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 6 hours, 49 minutes ago
      Lawrence S. likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      My first reaction was Very Satisfied but there is always room for improvement. I’d like a pump design that wasn’t meant to be worn on a belt just for men. To wear a dress, I have to only get those with pockets (and on both sides because opposite sides cause the CGM to lose contact) and put a button whole in each. The clip shows horribly on blouses worn out. I’ve tried the leg attachments and they never stay secure. I’m not big enough to wear it in my bra. All minor inconveniences. I’d like one that doesn’t keep alarming 20 minutes after I’ve eaten, although I get it that it is there to save my life. Again minor. Ask about CGMs (probably tomorrow’s question): lately I’ve had trouble removing the sensor from my arm without actually ripping off a strip of skin or very bad bruising. I’ve read about using baby oil for removal. That does help. I’m a rip it off fast person, but that didn’t work so well.
    • 7 hours, 23 minutes ago
      Gerald Oefelein likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 19 hours, 12 minutes ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 19 hours, 13 minutes ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 20 hours, 27 minutes ago
      Neha Shah likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 1 day ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience people have heard of Type 2 Diabetes so if I say Type 1 that makes sense in that if there is a Type 2 there must be a Type 1 also. That is the extent of their understanding. In healthcare there is a bigger failure where "diabetes" or "type 2 diabetes" is used as a shorthand of a set of conditions often seen together. See any research paper by any cardiologist ever. This lack of precision leads to incorrect risk evaluations and incorrect treatment of people with diabetes caused by other factors including autoimmune aka Type 1.
    • 1 day ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 3 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      I have, and I do show calcium build up and hardening of the arteries. No action has been taken yet at this time. However, I am taking Repatha for better control of my cholesterol and it has been working great.
    • 1 day, 3 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 1 day, 3 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Thank you. Your write up is concise, cogent, and convincing. 🎀
    • 1 day, 3 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      After 16 stents and a new aortic valve, I've had every scan imaginable and she just keeps on tickin'.
    • 1 day, 3 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Just googled it and most insurance plans including basic Medicare do not cover it. Said cost ranges $100-400 with out-of-pocket being $100-150 (although I don’t understand that if not covered by insurance).
    • 1 day, 3 hours ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 3 hours ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 1 day, 4 hours ago
      Lynn Smith likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 7 hours ago
      Lawrence S. likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      This is a good question! but it does lead to so many other questions.
    • 1 day, 7 hours ago
      Lawrence S. likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      If the mystery train is your favorite form of conveyance, then you’re gonna love T1D. You may choose to be in a universe that is spiritually arid. Or you may choose to live in the harsh realities of reality. Up & down arrows and double arrows? I Love ‘em. Can and do take action immediately. 🙇‍♀️ 🙇‍♀️
    • 1 day, 7 hours ago
      Lawrence S. likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      T1D & T2D are meaningless acronyms for most, nearly all, nondiabetics. Juvenile diabetes vs diabetes is the closest known pairing and that's still few.
    • 1 day, 7 hours ago
      Lawrence S. likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 7 hours ago
      Mike S likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
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    If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies?

    Home > LC Polls > If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    23 Comments

    1. Molly Jones

      I keep a few on hand in case they are needed, an older pump, basal insulin, syringes, …. The rest including other pumps and supplies have been donated to the hospital of my endocrinologist.

      5 years ago Log in to Reply
    2. kilupx

      I would love to donate them but when I have asked endocrinologist and diabetic educators to give insulin and sensors to a patient who really can’t afford them, the professionals tell me they are not allowed to suggest drugs and supplies that came from storage that could not be verified. I also tried to do this with my rheumatologist for rheumatoid arthritis medication and was given the same no answer. Such a shame.

      5 years ago Log in to Reply
    3. Ahh Life

      Current laws will dictate the shape of this graphic representation. If it’s acceptable, fine, so be it. If it’s not, then change your current political representation, not your individual behavior. I suspect, in this instance, that individual behavior matters little, even though I would individually give my eye teeth for a $750 bottle of insulin.

      5 years ago Log in to Reply
    4. Larry Martin

      I have all the leftover parts now from my 670G and I have called Endocrinologist, JDRF, Charities. No one wants them. It is sad we throw so much away in this country but there are people in need. I am sure big pharma has mandated it.

      5 years ago Log in to Reply
    5. Ernie Richmann

      I have given devices to a friend in a support group I attend. Opened or expired stuff I throw away. I gave a few pens of insulin to a relative using the same insulin. I have some unopened stuff I will donate to a diabetic camp if the camp accepts.

      5 years ago Log in to Reply
    6. Mick Martin

      I have given supplies, if they are still within their use by date, to my local Diabetes Centre, who ensure that they are redistributed to other patients that need them.

      5 years ago Log in to Reply
    7. Kathy Hanavan

      Insulin for Life will take supplies for those in need.

      5 years ago Log in to Reply
    8. connie ker

      I always give extra supplies to my endo practice to give to patients who could use them. For example, I don’t use a log book anymore, but some senior patients still prefer paper and pen to record readings. So my endo said “I am so glad to get these because I have requests all of the time for these books. I also donate diabetic magazines but you cannot give any RX in your name. Test strips do not have your name on the box, so those are OK for donation too.

      5 years ago Log in to Reply
    9. William Bennett

      Kept ’em. Because the Zombie Apocalypse could strike at any time, and you can’t be sure you’re not gonna need all that stuff. Including that ca. 1996 OneTouch.

      5 years ago Log in to Reply
    10. Tod Herman

      I gave my old G4 Dexcom sensors (2 boxes) to a friend’s dad who was still using the G4. In the past, the Nurse Practitioner at my primary care physician’s office was also a pumper and I gave her my old pump supplies. I still have some extras, but she no longer works there anymore. Some of these responses are giving me some ideas as to where to send them.

      5 years ago Log in to Reply
    11. Kristine Warmecke

      I’ve given them to T1D friends who used the device still, asked the group leader of the Diabetic Divas, support group of T1D women, to ask if anyone can use them, if still no home I ask my CDE if she can find home for them. I’ve also given extra’s to the local doctor’s group that goes to Honduras several times a year, they now have a permeant building with a year round clinic.

      5 years ago Log in to Reply
    12. Emily Meister

      I have supplies for the Animas pump but have been unable to find anyone that wants them.

      5 years ago Log in to Reply
    13. Jennifer Wilson

      Kept a few as backup. Donated extra to my endocrinologist to distribute to patients in need. Listed on community forum as free for anyone in need.

      5 years ago Log in to Reply
    14. Kathleen Begbie

      I asked my Endocrinologist who told me to toss them

      5 years ago Log in to Reply
    15. Mig Vascos

      I’ve saved some for “just in case” but could donate some other things. My endocrinologist office would not take them. I’ll try the divas that someone mentioned. It’s sad to throw supplies away that someone else needs when they are so expensive and hard to get sometimes.

      5 years ago Log in to Reply
    16. Marie Cardinell-Daldry

      The first time I had extra supplies was before the pandemic. I was able to give them to a charitable organization. When I recently had more insulin because my prescription changed I went to the same organization they refused the insulin because of the pandemic. The vials were completely sealed with excellent expiration dates. My daughter had a friend who was having trouble with the expense of insulin so he was quite happy to get the insulin.

      5 years ago Log in to Reply
    17. Becca Gae Leppanen

      I kept my Cozmo along with a month supply of disposables, I have a BNIB MM630g and 2 months of supplies but when I stopped using the MM I donated the 29 months or so of extra supplies I had left squirreled away. When I switched over from the OmniPod Eros to the Dash, I kept them for 5 months then gave them ALL away, kept none. I am soon to be giving away all the Medtronic supplies as well (pump included which is brand new in a sealed box.. DO NOT ASK ME FOR IT!! I will tell you no)..

      5 years ago Log in to Reply
    18. ConnieT1D62

      The diabetes education center where I used to work as a CDE accepted donated supplies unopened and in their original sealed packaging with an unexpired expiration date to pass on to Doctors Without Borders or given directly to patients in need. For awhile old Medtronic Revel pumps were being sought after by patients seeking older model pump parts to make their own loop system with a Riley link. We kept a current list of folks requesting supplies and notified those on the list if, and when, we had such a donation.

      5 years ago Log in to Reply
    19. Janis Senungetuk

      In the past I’ve donated insulin , meters and strips to Insulin for Life. Before the pandemic I donated meters and strips to a community senior center and Animas pump and G5 Dexcom supplies to people I’ve met through online groups.

      5 years ago Log in to Reply
    20. Cheryl Seibert

      Is there an organization that takes them? I’ve given a couple of individual sealed infusion sets and insert devices to my CDE but would love it if T1D would post organizations to take unused products to give to others who can’t afford them

      5 years ago Log in to Reply
    21. Jan Masty

      I tried to give away 3 BOXES of dexcom 5 sensors. Only got 1 response from someone who sounded a bit fishy. Wish there was a good place to donate them!

      5 years ago Log in to Reply
    22. Marie Seymour-Green

      I gave an extra glucose meter and strips to a friend whose cat had been diagnosed with diabetes. Their ears are used for getting the blood sample and she said that it didn’t bother him at all. 😉

      5 years ago Log in to Reply
    23. Leona Hanson

      I share with a friend when I get a new meter I give him my old one with strips and lancet device and lancets he can’t afford insurance so it helps him out and when the doctor changed his insulin he gave me that it was the same I used so it didn’t go to the trash

      5 years ago Log in to Reply

    If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Cancel reply

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