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    • 1 minute ago
      Ahh Life likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      Unmarked non-sequential bills under the table is preferred. Cash plus free insulin or CGMs would be fine too. Eversense is really missing out on an opportunity by not partnering with trials to offer a free E365 and insertion to get people to try their device.
    • 1 day, 11 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 11 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 11 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 11 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 13 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 17 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 17 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 18 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 19 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 20 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 20 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 11 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 11 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 14 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 14 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 15 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 17 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 17 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 19 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 19 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies?

    Home > LC Polls > If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    23 Comments

    1. Molly Jones

      I keep a few on hand in case they are needed, an older pump, basal insulin, syringes, …. The rest including other pumps and supplies have been donated to the hospital of my endocrinologist.

      5 years ago Log in to Reply
    2. kilupx

      I would love to donate them but when I have asked endocrinologist and diabetic educators to give insulin and sensors to a patient who really can’t afford them, the professionals tell me they are not allowed to suggest drugs and supplies that came from storage that could not be verified. I also tried to do this with my rheumatologist for rheumatoid arthritis medication and was given the same no answer. Such a shame.

      5 years ago Log in to Reply
    3. Ahh Life

      Current laws will dictate the shape of this graphic representation. If it’s acceptable, fine, so be it. If it’s not, then change your current political representation, not your individual behavior. I suspect, in this instance, that individual behavior matters little, even though I would individually give my eye teeth for a $750 bottle of insulin.

      5 years ago Log in to Reply
    4. Larry Martin

      I have all the leftover parts now from my 670G and I have called Endocrinologist, JDRF, Charities. No one wants them. It is sad we throw so much away in this country but there are people in need. I am sure big pharma has mandated it.

      5 years ago Log in to Reply
    5. Ernie Richmann

      I have given devices to a friend in a support group I attend. Opened or expired stuff I throw away. I gave a few pens of insulin to a relative using the same insulin. I have some unopened stuff I will donate to a diabetic camp if the camp accepts.

      5 years ago Log in to Reply
    6. Mick Martin

      I have given supplies, if they are still within their use by date, to my local Diabetes Centre, who ensure that they are redistributed to other patients that need them.

      5 years ago Log in to Reply
    7. Kathy Hanavan

      Insulin for Life will take supplies for those in need.

      5 years ago Log in to Reply
    8. connie ker

      I always give extra supplies to my endo practice to give to patients who could use them. For example, I don’t use a log book anymore, but some senior patients still prefer paper and pen to record readings. So my endo said “I am so glad to get these because I have requests all of the time for these books. I also donate diabetic magazines but you cannot give any RX in your name. Test strips do not have your name on the box, so those are OK for donation too.

      5 years ago Log in to Reply
    9. William Bennett

      Kept ’em. Because the Zombie Apocalypse could strike at any time, and you can’t be sure you’re not gonna need all that stuff. Including that ca. 1996 OneTouch.

      5 years ago Log in to Reply
    10. Tod Herman

      I gave my old G4 Dexcom sensors (2 boxes) to a friend’s dad who was still using the G4. In the past, the Nurse Practitioner at my primary care physician’s office was also a pumper and I gave her my old pump supplies. I still have some extras, but she no longer works there anymore. Some of these responses are giving me some ideas as to where to send them.

      5 years ago Log in to Reply
    11. Kristine Warmecke

      I’ve given them to T1D friends who used the device still, asked the group leader of the Diabetic Divas, support group of T1D women, to ask if anyone can use them, if still no home I ask my CDE if she can find home for them. I’ve also given extra’s to the local doctor’s group that goes to Honduras several times a year, they now have a permeant building with a year round clinic.

      5 years ago Log in to Reply
    12. Emily Meister

      I have supplies for the Animas pump but have been unable to find anyone that wants them.

      5 years ago Log in to Reply
    13. Jennifer Wilson

      Kept a few as backup. Donated extra to my endocrinologist to distribute to patients in need. Listed on community forum as free for anyone in need.

      5 years ago Log in to Reply
    14. Kathleen Begbie

      I asked my Endocrinologist who told me to toss them

      5 years ago Log in to Reply
    15. Mig Vascos

      I’ve saved some for “just in case” but could donate some other things. My endocrinologist office would not take them. I’ll try the divas that someone mentioned. It’s sad to throw supplies away that someone else needs when they are so expensive and hard to get sometimes.

      5 years ago Log in to Reply
    16. Marie Cardinell-Daldry

      The first time I had extra supplies was before the pandemic. I was able to give them to a charitable organization. When I recently had more insulin because my prescription changed I went to the same organization they refused the insulin because of the pandemic. The vials were completely sealed with excellent expiration dates. My daughter had a friend who was having trouble with the expense of insulin so he was quite happy to get the insulin.

      5 years ago Log in to Reply
    17. Becca Gae Leppanen

      I kept my Cozmo along with a month supply of disposables, I have a BNIB MM630g and 2 months of supplies but when I stopped using the MM I donated the 29 months or so of extra supplies I had left squirreled away. When I switched over from the OmniPod Eros to the Dash, I kept them for 5 months then gave them ALL away, kept none. I am soon to be giving away all the Medtronic supplies as well (pump included which is brand new in a sealed box.. DO NOT ASK ME FOR IT!! I will tell you no)..

      5 years ago Log in to Reply
    18. ConnieT1D62

      The diabetes education center where I used to work as a CDE accepted donated supplies unopened and in their original sealed packaging with an unexpired expiration date to pass on to Doctors Without Borders or given directly to patients in need. For awhile old Medtronic Revel pumps were being sought after by patients seeking older model pump parts to make their own loop system with a Riley link. We kept a current list of folks requesting supplies and notified those on the list if, and when, we had such a donation.

      5 years ago Log in to Reply
    19. Janis Senungetuk

      In the past I’ve donated insulin , meters and strips to Insulin for Life. Before the pandemic I donated meters and strips to a community senior center and Animas pump and G5 Dexcom supplies to people I’ve met through online groups.

      5 years ago Log in to Reply
    20. Cheryl Seibert

      Is there an organization that takes them? I’ve given a couple of individual sealed infusion sets and insert devices to my CDE but would love it if T1D would post organizations to take unused products to give to others who can’t afford them

      5 years ago Log in to Reply
    21. Jan Masty

      I tried to give away 3 BOXES of dexcom 5 sensors. Only got 1 response from someone who sounded a bit fishy. Wish there was a good place to donate them!

      5 years ago Log in to Reply
    22. Marie Seymour-Green

      I gave an extra glucose meter and strips to a friend whose cat had been diagnosed with diabetes. Their ears are used for getting the blood sample and she said that it didn’t bother him at all. 😉

      5 years ago Log in to Reply
    23. Leona Hanson

      I share with a friend when I get a new meter I give him my old one with strips and lancet device and lancets he can’t afford insurance so it helps him out and when the doctor changed his insulin he gave me that it was the same I used so it didn’t go to the trash

      5 years ago Log in to Reply

    If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Cancel reply

    You must be logged in to post a comment.




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