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    • 1 hour, 20 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 1 hour, 20 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 1 hour, 20 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 3 hours, 33 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 3 hours, 33 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 3 hours, 34 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 4 hours, 16 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 5 hours, 39 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 7 hours, 36 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 22 hours, 59 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 23 hours, 1 minute ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 23 hours, 2 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 23 hours, 3 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 23 hours, 11 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 1 hour ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 1 hour ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 1 hour ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 5 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 7 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 7 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
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    If you have a child with T1D, which of the following people do/did you feel comfortable with babysitting your child? Select all that apply to you.

    Home > LC Polls > If you have a child with T1D, which of the following people do/did you feel comfortable with babysitting your child? Select all that apply to you.
    Previous

    If you use an insulin pump, do you currently have a protective case on your pump or PDM?

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    Have you ever experienced other people acting fearful or otherwise negatively about you checking your BG levels or disposing of glucose strips because of the blood?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    9 Comments

    1. Don P

      fortunately to this date, none, oldest being 47, hopefully all remain that way in their lifetime.

      3 years ago Log in to Reply
    2. Bob Durstenfeld

      My son was dx’ed at 8 months old. The only people willing to watch him were family.

      3 years ago Log in to Reply
      1. Jneticdiabetic

        Wow! 8 mo old! I can’t imagine how challenging it must be to estimate insulin meal doses for children diagnosed at such a young ages when how much food will actually gets eaten is so unpredictable.
        Special props to T1D parents!

        3 years ago Log in to Reply
    3. Yaffa Steubinger

      I don’t have children with T1 but I have two grandkids with it. Their parents felt comfortable leaving their kids with me, since I have T1

      3 years ago Log in to Reply
    4. pru barry

      My three kids are all in their fifties, and fortunately for all of us, none have diabetes. You can’t know how lucky that makes me feel. I’ve always believed that it would be easier to have diabetes than to have a child with the condition. And after almost 70 years of lots of shots, test tape, and all the rest of it, I still feel that way. Three years ago, my labradoodle was moved into our category following a case of pancreatitis, so my belief has been reality checked. I’m not complaining because my now much smaller world has something in it that I have the experience to deal with. I’m almost ridiculously grateful to have the years of experience learning first hand how to manage Charlie’s insulin regimen, applying Libre’s to make sure he’s in range as much as possible, and giving him 4 shots a day of 2 different insulins. Some have called it a bad joke. I call it serendipity. Charlie reinforces my will to take care of both of us, and to find something to be happy about each and every day.

      2
      3 years ago Log in to Reply
    5. Melinda Lipe

      So many of these questions are not appropriate for those of us with long term T1. I think my mom tried so hard, but it was not an easy answer. I managed to have severe lows most everywhere and with everyone we knew when I was left in their care. It was a nightmare until I grew older.

      1
      3 years ago Log in to Reply
      1. ConnieT1D62

        Me too! I think part of the hot mess syndrome suffered by many of us from that era was the fact that we were on such limited & primitive insulin formulations – often NPH once or twice a day, or maybe one shot of NPH with some R or Lente given later on. But still, we were lucky to have insulin to keep us alive.

        Diabetes self-care was much more complicated and difficult in those days and we had to work hard with the limited resources that we had. For us T1D long-timers, it’s a miraculous blessing that we are still alive and thriving with diabetes tech advances!!!

        3 years ago Log in to Reply
    6. ConnieT1D62

      I was a young child with T1 diabetes back in the 1960s. My single divorced mom worked full-time as a dance teacher & choreographer 6 days a week, usually in the afternoons and evenings. My younger brother and I spent a lot of time with babysitters when we weren’t at school. None of the babysitters had T1 diabetes but my mom taught them whatever she knew from what she was taught. My mom left detailed instruction notes for the babysitters about meal prep, snacks, S&S of insulin reaction, what to do give me if I was having one, and when to call a doctor, i.e. if I was having a seizure.

      On Saturdays we often stayed with my father relatives, usually his sister so we could play with our cousins of similar age. At that time nobody else had diabetes on either side of the family. My aunt was a grade school teacher so she did have some familiarity about kids with diabetes from her own experience as a teacher. Because of the insulin I was on I often had severe insulin reactions just before lunch time if I didn’t eat a mid-morning snack. My aunt was always very diligent about making sure I had something to eat – like a peanut butter and apple sandwich cut into little squares for snack time.

      3 years ago Log in to Reply
    7. Bruce Johnson

      I have been a T1D since the age of 13 and have a younger sister (3 years) who had been insulin dependent since a few months after birth. My mother, of course, was very concerned when babysitting of my sister started. Fortunately my mom and dads close association when forming a local chapter of the Canadian Diabetes Association in the 1950’s / ’60’s they met and associated with other diabetic families, health professionals associated with the disease and others from much larger communities. The babysitting often included other siblings as well. There were 5 children in the family and some of us thought we were the “best babysitter” and through the incredible patience of our parents did get that opportunity, probably at a much younger age than others and it made us feel kind of proud of ourselves especially amongst our grandparents and the many other relatives and friends. I will never forget the very first time my parents were able to go out of town together for several days. There was so many relatives both for and against that! I was of course brought up in a “diabetic family” so when I was diagnosed at 13 and was being taught how to give myself an injection every morning I devised a plan to help my little sister to finally be able to inject herself as well and it worked! WE all knew how to sterilize the glass syringes and sharpen and sterilize the stainless steel needles, but our Dad was the only one who would inject my sister until I got out of the hospital and then we often played games daring each other who could do it first. I was released from the hospital by mid October and my sister was teaching her other siblings how to inject her morning insulin dose before Xmas. Our parents, but especially my Dad, were so grateful that a big portion of their daily lives was getting to be as close to normal than it had ever been for over 13 years. My youngest sister would still require a baby sitter for several more years but now the options had expanded. Her life took on a new meaning as well because she was able to do more things as there were enough of us to be around whenever needed. My point of this story about babysitting a diabetic child is it can be done by almost anyone who is determined they want to do that, a little bit courageous and happy they can assist others when asked.

      3 years ago Log in to Reply

    If you have a child with T1D, which of the following people do/did you feel comfortable with babysitting your child? Select all that apply to you. Cancel reply

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