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    • 6 seconds ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 hour, 26 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 1 hour, 26 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 1 hour, 27 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 3 hours, 39 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 3 hours, 40 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 3 hours, 40 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 4 hours, 23 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 5 hours, 46 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 7 hours, 43 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 23 hours, 6 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 23 hours, 8 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 23 hours, 9 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 23 hours, 10 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 23 hours, 18 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 1 hour ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 1 hour ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 1 hour ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 5 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 7 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 8 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
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    If you have a child with T1D, have they ever gone to an overnight summer camp that is not specifically for kids with diabetes?

    Home > LC Polls > If you have a child with T1D, have they ever gone to an overnight summer camp that is not specifically for kids with diabetes?
    Previous

    Health care providers may prescribe type 2 diabetes medications that might be helpful for a person’s concern or problem with T1D – commonly called ‘off-label use’. Does your provider currently prescribe you any type 2 diabetes medications ‘off-label’? Select all that apply.

    Next

    Overall, how do you feel using a CGM affects your stress related to T1D management? If you’ve used one in the past, reflect on that experience to answer the question.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    14 Comments

    1. PamK

      When I was younger I went first to a day camp that was not specifically for children with T1D and then to an overnight camp that was specifically for children with T1D (run by the ADA).

      2 years ago Log in to Reply
    2. Britni

      I don’t have kids, so I answered N/A. When I was a kid I went to day camps. I was 17 when I went to my first (and only) sleep away camp and it wasn’t specifically for diabetics. My family and I did spend a weekend at the Clara Barton camp once; my parents were hoping I’d like it enough to go by myself the following the summer. I enjoyed the weekend, but I refused to go to the camp anyway.

      2 years ago Log in to Reply
    3. KIMBERELY SMITH

      My son isn’t DIABETIC

      1
      2 years ago Log in to Reply
    4. Velika Peterson

      My daughter is 12 and has never been able to wake up from her Dexcom alarms (even Omnipod alarms which can wake a dead man) or a phone call, so all sleepovers happen at our place and no overnight camp is in the cards for her yet.

      2 years ago Log in to Reply
    5. Karen Mielish-Clausell

      I was a child with type 1 and I went to diabetic camp it was call camp njeda in new jersey

      2 years ago Log in to Reply
    6. Bob Durstenfeld

      I went to 6th grade science camp with T1D. As did my son with T1D. I expect that my granddaughter with T1D will do the same.

      2 years ago Log in to Reply
    7. Anneyun

      When I was 14 I went to a sleep away camp for 2 weeks. I was not diagnosed as diabetic yet. While at the camp about 6 of us went away on a canoeing trip that involved canoeing all day, multiple portages (carrying the canoe and all supplies past rapids) and sleeping in tents. It was during this canoeing trip that I had my first diabetic experience, but I didn’t know what it was at the time, and I didn’t tell anyone about it. During a portage I felt extremely weak and tired and couldn’t carry the canoe. I know now it was a low blood sugar. After that we had a big snack of s’mores. And the next day while canoeing I was so thirsty I was secretly scooping handfuls of water from the lake to drink (a big no-no). I know now that was because of high blood sugar.
      I wasn’t diagnosed as diabetic for another 6 months.

      2 years ago Log in to Reply
    8. cynthia jaworski

      I had gone several years as a camper and later as a counselor to a diabetic 2 week overnight camp.

      I had gone on shorter overnight camping trips with Girl Scouts.

      No one had to worry about e hearing my dexcom because there were no dexcoms. Or blood tests either.

      2 years ago Log in to Reply
    9. Wanacure

      Side note: I always enjoy reading comments by other PERSONS WITH DIABETES (nod to Kimberly.) Now to the Q. Thanks to the eugenics movement’s influence on Mom, then me, one of the reasons I never had kids was because I worried they might “inherit” the “defect” of T1D. Mom abruptly gave up her eugenics ideology after I became T1D, but sort of blamed my Dad’s DNA. (And my Dad blamed himself!) After reading John Hersey’s book Hiroshima, and Rachel Carson’s Silent Spring, and remembering our living at Hanford for at least 4 years when U-238 was produced, our family became aware of radioactivity as a significant ENVIRONMENTAL factor affecting DNA. Assorted governments testing nuclear bombs in the atmosphere, “accidents” (Three Mile Island, Chernobyl, Fukushima, et al), and dumping of radioactive waste from nuclear reactors plus jet streams and ocean currents, guarantee the human genome has been altered. “Downwinders” from around the world have sued governments and corporations for decades. Helpful hint: make sure your salt has iodine. 🥴

      2 years ago Log in to Reply
    10. Samantha Hunter

      I dont have a kid, but when I was a kid with diabetes I would regularly go to non-diabetic sleep away camps.

      1
      2 years ago Log in to Reply
    11. KarenM6

      When I was a kid, I went to a couple of non-diabetic specific camps. I have never been to a diabetic one.

      2 years ago Log in to Reply
    12. Hadley Horton

      When I was a kid, I attended a diabetes camp for a week long session in the summer

      2 years ago Log in to Reply
    13. Kris van Bergen

      Yes, but only when I’ve gone with her because the camps in our area do not have nursing or health staff who are educated in diabtetes care.

      2 years ago Log in to Reply
    14. Anthony Harder

      Neither of my children have T1D. However, when I was a child, in the 1960’s I would attend a church camp in South Dakota by myself.

      2 years ago Log in to Reply

    If you have a child with T1D, have they ever gone to an overnight summer camp that is not specifically for kids with diabetes? Cancel reply

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