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    • 15 hours, 6 minutes ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 15 hours, 12 minutes ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 15 hours, 19 minutes ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 2 days, 9 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 2 days, 9 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 9 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 2 days, 10 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 2 days, 12 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 15 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 16 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 17 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 17 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 2 days, 18 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 18 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 18 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 18 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 18 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 18 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 10 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 10 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days, 12 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 12 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 14 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 16 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 3 days, 16 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
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    If you have a child with T1D, have they ever gone to an overnight summer camp that is not specifically for kids with diabetes?

    Home > LC Polls > If you have a child with T1D, have they ever gone to an overnight summer camp that is not specifically for kids with diabetes?
    Previous

    Health care providers may prescribe type 2 diabetes medications that might be helpful for a person’s concern or problem with T1D – commonly called ‘off-label use’. Does your provider currently prescribe you any type 2 diabetes medications ‘off-label’? Select all that apply.

    Next

    Overall, how do you feel using a CGM affects your stress related to T1D management? If you’ve used one in the past, reflect on that experience to answer the question.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    14 Comments

    1. PamK

      When I was younger I went first to a day camp that was not specifically for children with T1D and then to an overnight camp that was specifically for children with T1D (run by the ADA).

      3 years ago Log in to Reply
    2. Britni

      I don’t have kids, so I answered N/A. When I was a kid I went to day camps. I was 17 when I went to my first (and only) sleep away camp and it wasn’t specifically for diabetics. My family and I did spend a weekend at the Clara Barton camp once; my parents were hoping I’d like it enough to go by myself the following the summer. I enjoyed the weekend, but I refused to go to the camp anyway.

      3 years ago Log in to Reply
    3. KIMBERELY SMITH

      My son isn’t DIABETIC

      1
      3 years ago Log in to Reply
    4. Velika Peterson

      My daughter is 12 and has never been able to wake up from her Dexcom alarms (even Omnipod alarms which can wake a dead man) or a phone call, so all sleepovers happen at our place and no overnight camp is in the cards for her yet.

      3 years ago Log in to Reply
    5. Karen Mielish-Clausell

      I was a child with type 1 and I went to diabetic camp it was call camp njeda in new jersey

      3 years ago Log in to Reply
    6. Bob Durstenfeld

      I went to 6th grade science camp with T1D. As did my son with T1D. I expect that my granddaughter with T1D will do the same.

      3 years ago Log in to Reply
    7. Anneyun

      When I was 14 I went to a sleep away camp for 2 weeks. I was not diagnosed as diabetic yet. While at the camp about 6 of us went away on a canoeing trip that involved canoeing all day, multiple portages (carrying the canoe and all supplies past rapids) and sleeping in tents. It was during this canoeing trip that I had my first diabetic experience, but I didn’t know what it was at the time, and I didn’t tell anyone about it. During a portage I felt extremely weak and tired and couldn’t carry the canoe. I know now it was a low blood sugar. After that we had a big snack of s’mores. And the next day while canoeing I was so thirsty I was secretly scooping handfuls of water from the lake to drink (a big no-no). I know now that was because of high blood sugar.
      I wasn’t diagnosed as diabetic for another 6 months.

      3 years ago Log in to Reply
    8. cynthia jaworski

      I had gone several years as a camper and later as a counselor to a diabetic 2 week overnight camp.

      I had gone on shorter overnight camping trips with Girl Scouts.

      No one had to worry about e hearing my dexcom because there were no dexcoms. Or blood tests either.

      3 years ago Log in to Reply
    9. Wanacure

      Side note: I always enjoy reading comments by other PERSONS WITH DIABETES (nod to Kimberly.) Now to the Q. Thanks to the eugenics movement’s influence on Mom, then me, one of the reasons I never had kids was because I worried they might “inherit” the “defect” of T1D. Mom abruptly gave up her eugenics ideology after I became T1D, but sort of blamed my Dad’s DNA. (And my Dad blamed himself!) After reading John Hersey’s book Hiroshima, and Rachel Carson’s Silent Spring, and remembering our living at Hanford for at least 4 years when U-238 was produced, our family became aware of radioactivity as a significant ENVIRONMENTAL factor affecting DNA. Assorted governments testing nuclear bombs in the atmosphere, “accidents” (Three Mile Island, Chernobyl, Fukushima, et al), and dumping of radioactive waste from nuclear reactors plus jet streams and ocean currents, guarantee the human genome has been altered. “Downwinders” from around the world have sued governments and corporations for decades. Helpful hint: make sure your salt has iodine. 🥴

      3 years ago Log in to Reply
    10. Samantha Hunter

      I dont have a kid, but when I was a kid with diabetes I would regularly go to non-diabetic sleep away camps.

      1
      3 years ago Log in to Reply
    11. KarenM6

      When I was a kid, I went to a couple of non-diabetic specific camps. I have never been to a diabetic one.

      3 years ago Log in to Reply
    12. Hadley Horton

      When I was a kid, I attended a diabetes camp for a week long session in the summer

      3 years ago Log in to Reply
    13. Kris van Bergen

      Yes, but only when I’ve gone with her because the camps in our area do not have nursing or health staff who are educated in diabtetes care.

      3 years ago Log in to Reply
    14. Anthony Harder

      Neither of my children have T1D. However, when I was a child, in the 1960’s I would attend a church camp in South Dakota by myself.

      3 years ago Log in to Reply

    If you have a child with T1D, have they ever gone to an overnight summer camp that is not specifically for kids with diabetes? Cancel reply

    You must be logged in to post a comment.




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