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    • 1 day, 8 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 8 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 8 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 9 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 11 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 15 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 16 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 17 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 17 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 17 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 17 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 17 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 17 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 18 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 9 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 9 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 11 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 12 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 13 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 15 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 15 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 16 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 16 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 17 hours ago
      Laurie B likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    If you had T1D while in school (excluding college), were you ever picked on or bullied because of having T1D? If so, did it bother you?

    Home > LC Polls > If you had T1D while in school (excluding college), were you ever picked on or bullied because of having T1D? If so, did it bother you?
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    Have you ever used expired insulin? If so, tell us in the comments about your experience.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    23 Comments

    1. Janis Senungetuk

      I was dx. at the age of 8 in the 3rd grade. This was 1955, time of strict adherence to the Exchange Diet and very little general knowledge about diabetes. From the 3rd grade thru 6th grade I was’t allowed to sit with my classmates when they celebrated their birthdays with special treats. In 3rd grade I had to stay at my desk and was given a single graham cracker segment in place of the cake and ice cream. The lack of trust in my behavior along with comments on my “special” treat was very humiliating. In 5th and 6th grades I was sent to the library when there were treats. Some kids made fun of me, others saying they didn’t want to be around me because they didn’t want to “catch my sickness”. As much as I tried to ignore it, it did hurt.

      5 years ago Log in to Reply
    2. Britni Steingard

      I was 6 years old and terrified of needles when I was diagnosed. I used to insist on have a bandaid for every injection _and_ finger stick. So I got made fun of for coming to school with a bandaid on every finger.

      5 years ago Log in to Reply
    3. Ahh Life

      ≧◠‿●‿◠≦ I was 4. No, but I did have one cousin in my class that was somewhat jealous of me seemingly getting special favors. (ㆆ_ㆆ)

      5 years ago Log in to Reply
    4. Claire Schneider

      Wasn’t really teased for being diabetic, but I reckon that’s because no one knew I had it.

      5 years ago Log in to Reply
    5. Becky Buchanan

      I was diagnosed in 1970. I really didn’t tell other kids about it. By high school my close friends knew. I just took my 1 shot a day back then and there was no BG monitoring. It was an easily hidden and ignored disease sadly.

      5 years ago Log in to Reply
    6. connie ker

      I was diagnosed with LADA at the age of 49, so luckily I was out of school. But 4 years later, our 13 year old son was diagnosed with juvenile T1D. One of the scariest moments was when he took his pump off for gym class and left it on the back of a toliet in the restroom. He didn’t miss it until he went to the nurses station before lunch, ran back to the gym restroom, and by the Grace of God it was still on the back of the toliet. I think this diagnosis bothered him more than his classmates, his security and normalcy was threatened. Plus he felt doomed since both of his parents were T1Ds and gave this gene to him. I felt sadness and the 911 incident had just happened at the same time; 20 years ago.

      5 years ago Log in to Reply
    7. Paul GILLINGHAM

      I was 9 when diagnosed. I was immediately treated as different by the other kids. Nickname was sugarlump. Constant teasing and mickey taking. Not a great time but I got through.

      5 years ago Log in to Reply
    8. Ken Raiche

      I was never ever teased or bullied for being a diabetic. All of my friends knew I had it and fortunately it really didn’t make it’s presents known back in those days. I would take my usual one needle per day in the morning a mixture of NPH and Toronto insulin and go on my way. For some reason it seemed much easier back then I relied on how I was feeling no testing well the odd urine test which was never performed while in school. I found that my life back then with T1D was much simpler and less complicated then today and as mentioned no bullying well maybe from my doctor😉😠

      5 years ago Log in to Reply
    9. George Lovelace

      I was 15 at Dx and teasing was minor and mostly ended when my close friends saw me going through a severe hypo,

      5 years ago Log in to Reply
    10. Kristine Warmecke

      My brother, who was diagnosed at 7 months old in 1972, had more than I did. I wasn’t diagnosed until January 1982 at age 11. It wasn’t until I was in high school that some people in my group of people tried to pick on me. Looking back on this, those people haven’t changed.

      5 years ago Log in to Reply
    11. Elif DeSimone

      I was bullied for other things, but never for my Diabetes

      5 years ago Log in to Reply
    12. Nevin Bowman

      If I anything, I was cool for having something that no one else understood. I got to eat whenever I wanted to, while everyone else had to wait til snack time.

      5 years ago Log in to Reply
    13. Tod Herman

      I was just starting my senior year of high school, and about a month after my 17th birthday. I had to constantly run to the bathroom to take a leak between each class and I was losing a lot of weight (about 35 lbs). I had no idea what was going on (as nobody in my family, including cousins had ever had diabetes). My vision was getting bad (eyes were now dehydrated) and I was always tired. My friends at school said I didn’t look right, I was getting very skinny. Finally, I left school and drove by my mom’s office to tell her I was going home but she called the doctor. After explaining my symptoms he said to go to his office immediately. I never made it home and ended up in the hospital for several days… This was a shock to all of us. Back at school, nobody bothered me about my diabetes (few in my school probably had it). But my life drastically changed after that.

      5 years ago Log in to Reply
    14. Ginger Vieira

      Just once, by a dummy who teased me for wearing a pager when it was actually my insulin pump. I felt more sorry for him than I did for myself!

      5 years ago Log in to Reply
    15. Mary Ann Sayers

      I was picked on like any other kid– nobody knew anything about diabetes! I WAS THE ONLY KID IN THE ENTIRE SCHOOL THAT HAD DIABETES!!! That was 1954! Today, type 2 is rampant in schools! And covid-19 compounds the seriousness of treatment!

      5 years ago Log in to Reply
    16. Richard Vaughn

      I was diagnosed in 1945, when I was 6. Teachers and students had not heard of diabetes. The students knew I was different. I was not allowed to participate in gym, to avoid insulin reactions. I was ignored, but not teased. I did not make friends in Elementary School.

      5 years ago Log in to Reply
    17. Stephen Woodward

      I was not bullied, however the naive or joking comments that I did encounter were often hurtful.

      5 years ago Log in to Reply
    18. cynthia jaworski

      I would occasionally be teased about my thick sandwiches (2 meat exchanges as opposed to the pb and j eaten by other kids) but it was never mean.

      5 years ago Log in to Reply
    19. Germaine Sarda

      Dx 1974 at age 8. My teacher gave out candy bars to the kids as rewards and she always had something else for me (colorful pencils, stickers, etc.). The other kids were envious and would ask if I’d trade so I really appreciated what she did. I only talked about diabetes with my best friend who was like a sister to me. I don’t ever remember being teased for it, but I also never knew of any other students who had Type 1. It was still unknown to many.

      5 years ago Log in to Reply
    20. Sally Numrich

      Never. Diagnosed in 1970 at the age of 8. Everyone knew because I was in the hospital for almost 2 weeks. I shared everything, everyone knew and nothing really changed except for school parties. My Mom would send some kind of treat, usually some fruit cup with vanilla wafer cookies instead of the cupcakes everyone else got. Oh well, as had as it was, I survived! And vanilla wafer cookies are still to this day one of my favorites!

      5 years ago Log in to Reply
    21. Dennis Dacey

      Never teased, because no one at the school knew I had diabetes. I was diagnosed, and spent two weeks in hospital, during summer break while in high-school. I lived in a suburb and commuted alone to a preparatory school in Boston, so I was able to shield my personal life from my educational experience. My experience remained the same as I matriculated into college.

      5 years ago Log in to Reply
    22. KarenM6

      Like others, I was not teased because no one knew… there were no blood sugar meters… no CGMs… no pumps… nothing to outwardly say, “I am diabetic.” So, the only people who knew were the people I told (and I didn’t tell anyone but the closest of friends). In my entire school career, I only went to the nurse once (because I got to school and remembered I had not taken my shot that morning.) I don’t think even the PE teachers knew. So, basically, hiding in plain sight. ;p

      5 years ago Log in to Reply
    23. Leona Hanson

      In School I was pre diabetic I was only picked on when I would pass out for no reason or and picked on because I was a straight A student

      5 years ago Log in to Reply

    If you had T1D while in school (excluding college), were you ever picked on or bullied because of having T1D? If so, did it bother you? Cancel reply

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