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    • 14 hours, 19 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 14 hours, 19 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 15 hours, 35 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Very, but more worried about it even making to the FDA and approved there first.
    • 15 hours, 35 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 15 hours, 35 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 15 hours, 37 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 15 hours, 37 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 15 hours, 38 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 15 hours, 38 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      General access to islet transplants is still years away. FDA has to deem it safe. Though, I am excited about the possibility.
    • 15 hours, 39 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 17 hours, 40 minutes ago
      Patricia Dalrymple likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 18 hours, 18 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 18 hours, 19 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 19 hours, 1 minute ago
      Marty likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 19 hours, 24 minutes ago
      dholl62@gmail.com likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 19 hours, 47 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 19 hours, 48 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 19 hours, 48 minutes ago
      atr likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 20 hours, 3 minutes ago
      Sarah Berry likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 21 hours, 4 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Age 73 here. I'm in the same boat. I ogten am considered too old for consideration for "smaller" research projects. But - best of luck to them. I'll be rooting on the sidelines.
    • 21 hours, 4 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 12 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
    • 1 day, 12 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
    • 1 day, 12 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 17 hours ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
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    If you are an adult with T1D and take a statin medication, how many milligrams do you take per day?

    Home > LC Polls > If you are an adult with T1D and take a statin medication, how many milligrams do you take per day?
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    When you see a stranger in public wearing a CGM or insulin pump, do you approach them?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    28 Comments

    1. Ahh Life

      10mg. I weigh 70kg.

      An additional benefit of the statins is an increased elasticity in the vein and artery cells, which, like old boiler pipes in old boilers, tend to harden and clog up over time. ( ‾ʖ̫‾)

      1
      4 years ago Log in to Reply
      1. Joan Fray

        Or, explode, as my great uncle’s did, killing him instantly, by taking off his head!

        4 years ago Log in to Reply
    2. Nick Trubov

      I have no idea. I’d have to go look. But my cat is sitting on my lap, so there’s no way that I’m gonna get up and check!

      4
      4 years ago Log in to Reply
      1. Larry Martin

        It took longer for you to type this response than to go look and answer the question.

        4 years ago Log in to Reply
    3. Mary Dexter

      0 is less than 5. Why does the last choice combine not taking statins with not being T1?

      4
      4 years ago Log in to Reply
      1. ConnieT1D62

        Poorly worded survey question (IMHO) to determine accurate assessment of possible answers.

        However, from the comments people have shared with their survey answers it does seems that many of us have had negative side effect experiences with statin medications, which poses the question if statins are really necessary for most T1s.

        4 years ago Log in to Reply
    4. GLORIA MILLER

      After 65 years with diabetes I still do not take any statins. My cardiologist says with a zero score on the coronary calcium scan, I don’t need any statins.

      1
      4 years ago Log in to Reply
      1. lis be

        My doctor also recommended a coronary calcium scan in order to see if I can avoid statins. But the out-of-pocket costs for the test were too high for me to get one!

        4 years ago Log in to Reply
    5. Mark Schweim

      Since simple NO Statins wasn’t an available answer option, I had to say “N/A” even though THAT answer LIES by denying that I have Diabetes!!!

      The CORRECT and HONEST answer for me would be that I was formerly on Statin meds but was taken off of them because process of elimination found that the Statin medications were the primary cause of excruciating cramps in my muscles, mainly in my legs so when I was taken off the Statins, the Doctors added ALL Statins to my list of known medication allergies!!!

      2
      4 years ago Log in to Reply
      1. kristina blake

        I’m (or was) right there with you. When I was put on statins the whole body cramps were horrible – and at that time I was still a dancer. Imagine extending an arm or leg and having the cramps to the point that other dancers had to help me rub them out. They could see the knots in the muscle groups – like I was a creature in a horror film. Stopped those. Now that I am no longer a dancer, I do take a 5 mg every 3 days. So far so good in terms of cramping. It is only occasionally and mostly at night. I don’t have a cholesterol issue so I don’t know why HCP’s are such statin pushers.

        2
        4 years ago Log in to Reply
    6. Lawrence S.

      I do not take statins. I once saw a doctor for the first time, and he wanted to put me on statins. I try to avoid unnecessary medications because kidney failure runs in my family. I declined that doctor’s offer.

      4 years ago Log in to Reply
    7. Melinda Lipe

      What does the dosage mean without knowing the name of the medication?

      4 years ago Log in to Reply
    8. John McHenery

      10 mg/day Rosuvastatin

      4 years ago Log in to Reply
    9. George Lovelace

      Been on different Statins and quantities for 30+ years. I take CoQ10 to avoid muscle cramping

      1
      4 years ago Log in to Reply
      1. Ahh Life

        Thanks, George Loveface. I’ve taken CoQ10 for years and had forgotten why.

        4 years ago Log in to Reply
    10. persevereT1D52

      I have never taken statins due to fear of the side effects since I already have most of those symptoms. I worry about not being proactive and now I’ve added taking SGLT-2 to the worry list since it seems to be the new advice for T1.

      4 years ago Log in to Reply
    11. Nick Trubov

      I finally checked … I’ve been taking 20 mg daily for over twelve years!

      4 years ago Log in to Reply
    12. Nick Trubov

      Simvastatin

      3
      4 years ago Log in to Reply
    13. Tina Roberts

      I said more than 80 because I can’t take statins. I’m taking 140 mg injection every 2 weeks of Repatha. It’s working perfectly for me.

      4 years ago Log in to Reply
    14. Mary Coleman

      Allergic to statins.

      4 years ago Log in to Reply
    15. Janis Senungetuk

      When statins first became available I was immediately prescribed the first of many. After close to a decade of trying every type on the market with very painful results, I was dx as statin intolerant.

      1
      4 years ago Log in to Reply
    16. Kristine Warmecke

      I am no longer an on a statin. When I was it was 75 mg.

      4 years ago Log in to Reply
    17. AnitaS

      I take a 10mg rosuvastatin but only take 3 times per week

      4 years ago Log in to Reply
    18. Thomas Cline

      Very interesting to me how many folks here said they had cramps associated with statins. I’ve taken atorvastatin for decades and have serious problems with leg cramps at night (and only then), but I ultimately solved to problem by simply making sure I’m well hydrated (just water, not ions). I don’t know if my cramping is linked to statins, but since the statins have kept my cholesterol within reasonable limits, and since I can deal with the cramping by simply making sure I drink enough water (although at my age it means a lot of waking up to use the bathroom), I’ll stick with the statins.

      4 years ago Log in to Reply
    19. Kevin McCue

      I do have high cholesterol but cannot tolerate statins. They cause muscle and joint pain.

      4 years ago Log in to Reply
    20. Bonnie Lundblom

      I said 11-20 mg, atorvastatin 20 mg but I take it just twice a week. My endocrinologist 15 years ago said it was studied and this dosing was found to be effective. It sure helps to avoid so many adverse effects of the daily dosing.

      4 years ago Log in to Reply
    21. Annie Simon

      My endocrinolgist prescribed 10 milligrams 3 times a week just to be on the safe side and keep my bad cholesterol LDL in check which wasn’t bad to begin with and HDL was normal.

      4 years ago Log in to Reply
    22. Wanacure

      I was prescribed simvastatin long ago as a preventive measure. I still take 10 mg per day. Sometimes I wonder why, given the long list of side-effects. But I’m all in favor of flexible veins and arteries. 😀

      4 years ago Log in to Reply

    If you are an adult with T1D and take a statin medication, how many milligrams do you take per day? Cancel reply

    You must be logged in to post a comment.




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