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    • 21 hours, 41 minutes ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 21 hours, 47 minutes ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 21 hours, 54 minutes ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 2 days, 16 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 2 days, 16 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 16 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 2 days, 16 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 2 days, 18 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 22 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 22 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 23 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 3 days ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 3 days, 1 hour ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 1 hour ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days, 1 hour ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 1 hour ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 3 days, 1 hour ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 1 hour ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 16 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 16 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days, 19 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 19 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 20 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 22 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 3 days, 22 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
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    If you are an adult with T1D and take a statin medication, how many milligrams do you take per day?

    Home > LC Polls > If you are an adult with T1D and take a statin medication, how many milligrams do you take per day?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    28 Comments

    1. Ahh Life

      10mg. I weigh 70kg.

      An additional benefit of the statins is an increased elasticity in the vein and artery cells, which, like old boiler pipes in old boilers, tend to harden and clog up over time. ( ‾ʖ̫‾)

      1
      4 years ago Log in to Reply
      1. Joan Fray

        Or, explode, as my great uncle’s did, killing him instantly, by taking off his head!

        4 years ago Log in to Reply
    2. Nick Trubov

      I have no idea. I’d have to go look. But my cat is sitting on my lap, so there’s no way that I’m gonna get up and check!

      4
      4 years ago Log in to Reply
      1. Larry Martin

        It took longer for you to type this response than to go look and answer the question.

        4 years ago Log in to Reply
    3. Mary Dexter

      0 is less than 5. Why does the last choice combine not taking statins with not being T1?

      4
      4 years ago Log in to Reply
      1. ConnieT1D62

        Poorly worded survey question (IMHO) to determine accurate assessment of possible answers.

        However, from the comments people have shared with their survey answers it does seems that many of us have had negative side effect experiences with statin medications, which poses the question if statins are really necessary for most T1s.

        4 years ago Log in to Reply
    4. GLORIA MILLER

      After 65 years with diabetes I still do not take any statins. My cardiologist says with a zero score on the coronary calcium scan, I don’t need any statins.

      1
      4 years ago Log in to Reply
      1. lis be

        My doctor also recommended a coronary calcium scan in order to see if I can avoid statins. But the out-of-pocket costs for the test were too high for me to get one!

        4 years ago Log in to Reply
    5. Mark Schweim

      Since simple NO Statins wasn’t an available answer option, I had to say “N/A” even though THAT answer LIES by denying that I have Diabetes!!!

      The CORRECT and HONEST answer for me would be that I was formerly on Statin meds but was taken off of them because process of elimination found that the Statin medications were the primary cause of excruciating cramps in my muscles, mainly in my legs so when I was taken off the Statins, the Doctors added ALL Statins to my list of known medication allergies!!!

      2
      4 years ago Log in to Reply
      1. kristina blake

        I’m (or was) right there with you. When I was put on statins the whole body cramps were horrible – and at that time I was still a dancer. Imagine extending an arm or leg and having the cramps to the point that other dancers had to help me rub them out. They could see the knots in the muscle groups – like I was a creature in a horror film. Stopped those. Now that I am no longer a dancer, I do take a 5 mg every 3 days. So far so good in terms of cramping. It is only occasionally and mostly at night. I don’t have a cholesterol issue so I don’t know why HCP’s are such statin pushers.

        2
        4 years ago Log in to Reply
    6. Lawrence S.

      I do not take statins. I once saw a doctor for the first time, and he wanted to put me on statins. I try to avoid unnecessary medications because kidney failure runs in my family. I declined that doctor’s offer.

      4 years ago Log in to Reply
    7. Melinda Lipe

      What does the dosage mean without knowing the name of the medication?

      4 years ago Log in to Reply
    8. John McHenery

      10 mg/day Rosuvastatin

      4 years ago Log in to Reply
    9. George Lovelace

      Been on different Statins and quantities for 30+ years. I take CoQ10 to avoid muscle cramping

      1
      4 years ago Log in to Reply
      1. Ahh Life

        Thanks, George Loveface. I’ve taken CoQ10 for years and had forgotten why.

        4 years ago Log in to Reply
    10. persevereT1D52

      I have never taken statins due to fear of the side effects since I already have most of those symptoms. I worry about not being proactive and now I’ve added taking SGLT-2 to the worry list since it seems to be the new advice for T1.

      4 years ago Log in to Reply
    11. Nick Trubov

      I finally checked … I’ve been taking 20 mg daily for over twelve years!

      4 years ago Log in to Reply
    12. Nick Trubov

      Simvastatin

      3
      4 years ago Log in to Reply
    13. Tina Roberts

      I said more than 80 because I can’t take statins. I’m taking 140 mg injection every 2 weeks of Repatha. It’s working perfectly for me.

      4 years ago Log in to Reply
    14. Mary Coleman

      Allergic to statins.

      4 years ago Log in to Reply
    15. Janis Senungetuk

      When statins first became available I was immediately prescribed the first of many. After close to a decade of trying every type on the market with very painful results, I was dx as statin intolerant.

      1
      4 years ago Log in to Reply
    16. Kristine Warmecke

      I am no longer an on a statin. When I was it was 75 mg.

      4 years ago Log in to Reply
    17. AnitaS

      I take a 10mg rosuvastatin but only take 3 times per week

      4 years ago Log in to Reply
    18. Thomas Cline

      Very interesting to me how many folks here said they had cramps associated with statins. I’ve taken atorvastatin for decades and have serious problems with leg cramps at night (and only then), but I ultimately solved to problem by simply making sure I’m well hydrated (just water, not ions). I don’t know if my cramping is linked to statins, but since the statins have kept my cholesterol within reasonable limits, and since I can deal with the cramping by simply making sure I drink enough water (although at my age it means a lot of waking up to use the bathroom), I’ll stick with the statins.

      4 years ago Log in to Reply
    19. Kevin McCue

      I do have high cholesterol but cannot tolerate statins. They cause muscle and joint pain.

      4 years ago Log in to Reply
    20. Bonnie Lundblom

      I said 11-20 mg, atorvastatin 20 mg but I take it just twice a week. My endocrinologist 15 years ago said it was studied and this dosing was found to be effective. It sure helps to avoid so many adverse effects of the daily dosing.

      4 years ago Log in to Reply
    21. Annie Simon

      My endocrinolgist prescribed 10 milligrams 3 times a week just to be on the safe side and keep my bad cholesterol LDL in check which wasn’t bad to begin with and HDL was normal.

      4 years ago Log in to Reply
    22. Wanacure

      I was prescribed simvastatin long ago as a preventive measure. I still take 10 mg per day. Sometimes I wonder why, given the long list of side-effects. But I’m all in favor of flexible veins and arteries. 😀

      4 years ago Log in to Reply

    If you are an adult with T1D and take a statin medication, how many milligrams do you take per day? Cancel reply

    You must be logged in to post a comment.




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