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    • 21 minutes ago
      Steve Rumble likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 3 hours, 9 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 13 hours, 52 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 15 hours, 18 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 15 hours, 18 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 15 hours, 19 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 17 hours, 31 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 17 hours, 32 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 17 hours, 32 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 18 hours, 15 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 19 hours, 38 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 21 hours, 35 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 12 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 15 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 15 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 15 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 19 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 21 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 21 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 22 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 22 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
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    If you are an adult with T1D and take a statin medication, how many milligrams do you take per day?

    Home > LC Polls > If you are an adult with T1D and take a statin medication, how many milligrams do you take per day?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    28 Comments

    1. Ahh Life

      10mg. I weigh 70kg.

      An additional benefit of the statins is an increased elasticity in the vein and artery cells, which, like old boiler pipes in old boilers, tend to harden and clog up over time. ( ‾ʖ̫‾)

      1
      4 years ago Log in to Reply
      1. Joan Fray

        Or, explode, as my great uncle’s did, killing him instantly, by taking off his head!

        4 years ago Log in to Reply
    2. Nick Trubov

      I have no idea. I’d have to go look. But my cat is sitting on my lap, so there’s no way that I’m gonna get up and check!

      4
      4 years ago Log in to Reply
      1. Larry Martin

        It took longer for you to type this response than to go look and answer the question.

        4 years ago Log in to Reply
    3. Mary Dexter

      0 is less than 5. Why does the last choice combine not taking statins with not being T1?

      4
      4 years ago Log in to Reply
      1. ConnieT1D62

        Poorly worded survey question (IMHO) to determine accurate assessment of possible answers.

        However, from the comments people have shared with their survey answers it does seems that many of us have had negative side effect experiences with statin medications, which poses the question if statins are really necessary for most T1s.

        4 years ago Log in to Reply
    4. GLORIA MILLER

      After 65 years with diabetes I still do not take any statins. My cardiologist says with a zero score on the coronary calcium scan, I don’t need any statins.

      1
      4 years ago Log in to Reply
      1. lis be

        My doctor also recommended a coronary calcium scan in order to see if I can avoid statins. But the out-of-pocket costs for the test were too high for me to get one!

        4 years ago Log in to Reply
    5. Mark Schweim

      Since simple NO Statins wasn’t an available answer option, I had to say “N/A” even though THAT answer LIES by denying that I have Diabetes!!!

      The CORRECT and HONEST answer for me would be that I was formerly on Statin meds but was taken off of them because process of elimination found that the Statin medications were the primary cause of excruciating cramps in my muscles, mainly in my legs so when I was taken off the Statins, the Doctors added ALL Statins to my list of known medication allergies!!!

      2
      4 years ago Log in to Reply
      1. kristina blake

        I’m (or was) right there with you. When I was put on statins the whole body cramps were horrible – and at that time I was still a dancer. Imagine extending an arm or leg and having the cramps to the point that other dancers had to help me rub them out. They could see the knots in the muscle groups – like I was a creature in a horror film. Stopped those. Now that I am no longer a dancer, I do take a 5 mg every 3 days. So far so good in terms of cramping. It is only occasionally and mostly at night. I don’t have a cholesterol issue so I don’t know why HCP’s are such statin pushers.

        2
        4 years ago Log in to Reply
    6. Lawrence S.

      I do not take statins. I once saw a doctor for the first time, and he wanted to put me on statins. I try to avoid unnecessary medications because kidney failure runs in my family. I declined that doctor’s offer.

      4 years ago Log in to Reply
    7. Melinda Lipe

      What does the dosage mean without knowing the name of the medication?

      4 years ago Log in to Reply
    8. John McHenery

      10 mg/day Rosuvastatin

      4 years ago Log in to Reply
    9. George Lovelace

      Been on different Statins and quantities for 30+ years. I take CoQ10 to avoid muscle cramping

      1
      4 years ago Log in to Reply
      1. Ahh Life

        Thanks, George Loveface. I’ve taken CoQ10 for years and had forgotten why.

        4 years ago Log in to Reply
    10. persevereT1D52

      I have never taken statins due to fear of the side effects since I already have most of those symptoms. I worry about not being proactive and now I’ve added taking SGLT-2 to the worry list since it seems to be the new advice for T1.

      4 years ago Log in to Reply
    11. Nick Trubov

      I finally checked … I’ve been taking 20 mg daily for over twelve years!

      4 years ago Log in to Reply
    12. Nick Trubov

      Simvastatin

      3
      4 years ago Log in to Reply
    13. Tina Roberts

      I said more than 80 because I can’t take statins. I’m taking 140 mg injection every 2 weeks of Repatha. It’s working perfectly for me.

      4 years ago Log in to Reply
    14. Mary Coleman

      Allergic to statins.

      4 years ago Log in to Reply
    15. Janis Senungetuk

      When statins first became available I was immediately prescribed the first of many. After close to a decade of trying every type on the market with very painful results, I was dx as statin intolerant.

      1
      4 years ago Log in to Reply
    16. Kristine Warmecke

      I am no longer an on a statin. When I was it was 75 mg.

      4 years ago Log in to Reply
    17. AnitaS

      I take a 10mg rosuvastatin but only take 3 times per week

      4 years ago Log in to Reply
    18. Thomas Cline

      Very interesting to me how many folks here said they had cramps associated with statins. I’ve taken atorvastatin for decades and have serious problems with leg cramps at night (and only then), but I ultimately solved to problem by simply making sure I’m well hydrated (just water, not ions). I don’t know if my cramping is linked to statins, but since the statins have kept my cholesterol within reasonable limits, and since I can deal with the cramping by simply making sure I drink enough water (although at my age it means a lot of waking up to use the bathroom), I’ll stick with the statins.

      4 years ago Log in to Reply
    19. Kevin McCue

      I do have high cholesterol but cannot tolerate statins. They cause muscle and joint pain.

      4 years ago Log in to Reply
    20. Bonnie Lundblom

      I said 11-20 mg, atorvastatin 20 mg but I take it just twice a week. My endocrinologist 15 years ago said it was studied and this dosing was found to be effective. It sure helps to avoid so many adverse effects of the daily dosing.

      4 years ago Log in to Reply
    21. Annie Simon

      My endocrinolgist prescribed 10 milligrams 3 times a week just to be on the safe side and keep my bad cholesterol LDL in check which wasn’t bad to begin with and HDL was normal.

      4 years ago Log in to Reply
    22. Wanacure

      I was prescribed simvastatin long ago as a preventive measure. I still take 10 mg per day. Sometimes I wonder why, given the long list of side-effects. But I’m all in favor of flexible veins and arteries. 😀

      4 years ago Log in to Reply

    If you are an adult with T1D and take a statin medication, how many milligrams do you take per day? Cancel reply

    You must be logged in to post a comment.




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