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    • 1 day, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 10 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 12 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 16 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 16 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 17 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 18 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 18 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 19 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 19 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 10 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 10 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 13 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 13 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 14 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 16 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 16 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 18 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 18 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 19 hours ago
      Laurie B likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    How old were you when you were first diagnosed with T1D?

    Home > LC Polls > How old were you when you were first diagnosed with T1D?
    Previous

    If you wear an insulin pump, how often do you carry a backup method of insulin delivery when you leave your home? (I.e. supplies for a pump site change, an insulin pen, syringes, etc.)

    Next

    On a scale of 1-5, how satisfied are you with your current T1D therapy regimen? (5 = the most satisfied, 1 = the least satisfied)

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    32 Comments

    1. gordon girdwood

      12 years old

      5 years ago Log in to Reply
    2. Kristen Clifford

      I was diagnosed eight days before my 24th birthday.

      5 years ago Log in to Reply
    3. Amanda Barras

      Looks like so many get it as older kids! I just barely had turned 4.

      1
      5 years ago Log in to Reply
    4. Shannon Barnaby

      13

      5 years ago Log in to Reply
    5. Rose Lentzke

      4

      1
      5 years ago Log in to Reply
    6. Greg Felton

      I was a juvenile, back when T1D was called juvenile diabetes. I’m glad I was diagnosed at age 5 rather than 25, honestly.

      5 years ago Log in to Reply
    7. Kristine Warmecke

      I was 11, my brother was 7 months old & his oldest daughter was 23 months old when we were diagnosed.

      5 years ago Log in to Reply
    8. Beckett Nelson

      I was diagnosed on my 10th birthday. Easy to remember the date

      5 years ago Log in to Reply
    9. Kaylea Bowers

      I was almost 11, little sister was 11 and little brother was 16 at our diagnoses.

      5 years ago Log in to Reply
    10. Nevin Bowman

      4

      1
      5 years ago Log in to Reply
    11. Christina Trudo

      I was 11. this summer I celebrate 59 years LIVING with it. (I have a brother who was diagnosed at 18, and his son was diagnosed at 4. )

      5 years ago Log in to Reply
    12. Ceolmhor

      72. I’m 77 now. Our oldest son was diagnosed with T1D at age 29. I like to say that I inherited it from him. 🙂

      5 years ago Log in to Reply
    13. Jana Foley

      I was just turning 61 when I received an accurate diagnosis, but was misdiagnosed as a T2 twenty years earlier. My two youngest children were diagnosed at 11 and 6 however. They were diagnosed at just three months and four days apart.

      5 years ago Log in to Reply
    14. Janis Senungetuk

      8 yrs old

      5 years ago Log in to Reply
    15. Angela Naccari

      I was 6 years old. 60 year ago in November!

      5 years ago Log in to Reply
    16. ConnieT1D62

      I was diagnosed at age 8 in late December 1962.

      5 years ago Log in to Reply
    17. Ann Taylor

      I was diagnosed at age 62 on July 2, 2015. Not too many of us older ones

      5 years ago Log in to Reply
    18. Sally Numrich

      8

      5 years ago Log in to Reply
    19. Daniel Bestvater

      I was a bit of an odd T1D. Some symptoms and elevated BG appeared at about 13 and it was somewhat controlled by diet and exercise until I was 15.
      Right on my 15th birthday I ended up in the hospital and started insulin. I’m now 58 so I guess type 1 for 43-45 years.

      5 years ago Log in to Reply
    20. Tracy Jean

      22

      5 years ago Log in to Reply
    21. Nicole Libby

      1 month before my 54th birthday.

      5 years ago Log in to Reply
    22. William Bennett

      I was. in grad school and had just turned 28. I thought the symptoms must have something to do with exam and paper writing pressure as it was near end of term. Came on pretty suddenly–over a few weeks–and I had no idea what it was. Fortunately my wife mentioned it to my m-i-l, an occupational therapist, and she said “Get him to a dr stat!” This was back in 1983 and the “Type” nomenclature wasn’t instituted yet, though my Dr told me about it by way of explaining that the auto-immune kind doesn’t track with age. So it says “Juvenile type” on my record.

      1
      5 years ago Log in to Reply
      1. Henry Renn

        Dx in 1955, age 4 yr, 7 mos. Called Juvenile Diabetes no matter what the age of the person. Tyoe 2 was adult onset. Later I remember Insulin Dependent Diabetes. I have tried to stay fairly educated about Diabetes. I think bc the disease has been nearly lifelong I didn’t note points of change in terminology.

        5 years ago Log in to Reply
    23. KarenM6

      I had just turned 5 and was in the hospital from Thanksgiving until Christmas Eve.

      5 years ago Log in to Reply
    24. Ernie Richmann

      At 57 I was diagnosed as diabetic. Within 2 more years, I was diagnosed type 1.

      5 years ago Log in to Reply
    25. Sasha Wooldridge

      Diagnosed T1 at 21 years old.

      5 years ago Log in to Reply
    26. Holly Miller

      I was 12yo (1975) and our daughter was 9yo (2006) when dx’d. The differences in our initial experiences with T1D were HUGE. I decided to learn the ‘new’ management techniques with fresh eyes, even though I was well-controlled on a pump for the previous 13 years. Now we’re our own support group!

      5 years ago Log in to Reply
    27. James Goldman

      I had just turned 5 in 1957. I was very fortunate to have Drs. Joslin, White and Krall as my early physicians in Boston.

      5 years ago Log in to Reply
    28. Ahh Life

      4. (👍 ͡❛ ᴗ ͡❛)👍 Thumbs up to all you 4-year-olds. That was 70 years ago for me . . . . . . during the technological ice age. Biggest first advance was test-tape in 1956, ref. https://www.washingtonpost.com/local/obituaries/helen-murray-free-dead/2021/05/04/7757199a-ace8-11eb-b476-c3b287e52a01_story.html

      5 years ago Log in to Reply
    29. Bruce Schnitzler

      Diagnosed in 1951 when I was five years old

      1
      5 years ago Log in to Reply
    30. Leona Hanson

      I was in my early 30s when diagnosed with t1d.was 7 when diagnosed with pre diabetic

      5 years ago Log in to Reply
    31. Megan L

      I was 3. A few days marked 25 years.

      5 years ago Log in to Reply

    How old were you when you were first diagnosed with T1D? Cancel reply

    You must be logged in to post a comment.




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