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    • 1 hour, 21 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 1 hour, 21 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 1 hour, 22 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 3 hours, 34 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 3 hours, 35 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 3 hours, 35 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 4 hours, 18 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 5 hours, 41 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 7 hours, 38 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 23 hours, 1 minute ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 23 hours, 3 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 23 hours, 4 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 23 hours, 5 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 23 hours, 13 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 1 hour ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 1 hour ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 1 hour ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 5 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 7 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 7 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
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    How often does your T1D health care provider screen for neuropathy with a monofilament, tuning fork or pin prick on your bare feet?

    Home > LC Polls > How often does your T1D health care provider screen for neuropathy with a monofilament, tuning fork or pin prick on your bare feet?
    Previous

    On a scale of 1-5, how much do you think T1D impacts decisions you make in other areas of your life? (1 = the least possible impact, 5 = the most possible impact)

    Next

    In honor of National Neuropathy Awareness Week, have you been diagnosed with neuropathy? If you have tips for how to manage neuropathy, please share them in the comments.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    17 Comments

    1. LizB

      My PCP and endo have both done it occasionally but not on any set schedule.

      5 years ago Log in to Reply
    2. george lovelace

      T1 57 yrs, used to be a yearly check but neuropathy progressed so far haven’t checked for years – “It’s Dead, Jim”

      1
      5 years ago Log in to Reply
    3. Sahran Holiday

      Except my feeling was uneven a few years ago. Endocrinologist said that was extremely unusual. Since then always OK. Maybe shoes.

      5 years ago Log in to Reply
    4. Don P

      Haven’t seen any health care providers for more than two years because of Covid, phone contact only. T1 65+ a few yrs with no complications, just had an eye exam & all is GREAT.

      1
      5 years ago Log in to Reply
    5. cynthia jaworski

      So they can screen. Can somebody please explain what good comes out of it?

      5 years ago Log in to Reply
    6. Sally Numrich

      Every visit both endo & PCP make me take off shoes so they can check feet. Not every visit for all of the above but something is done every visit. Thankfully no problems with neuropathy.

      5 years ago Log in to Reply
    7. Bonnie Lundblom

      My current endocrinologist has only checked my feet once at my initial appointment 4 years ago. She knows I’ve seen podiatrist twice in the past 4 years and he did check for neuropathy. My A1C’s have been good for years now is why I think she hasn’t checked recently as well as the online telehealth visits made checking impossible.

      5 years ago Log in to Reply
    8. Janis Senungetuk

      My endo checked me at my 90 day exam last month. I passed. At previous exams I’ve told her that I’ve been awakened by “electric shock” pain in my toes at night. Because I continue to “pass” the neuropathy screening, there’s no response when I’ve mentioned the discomfort. Sixty-six years living with T1 has left me with nerve damage in my hands, shoulders and feet…but I’ve never received a dx of neuropathy.

      1
      5 years ago Log in to Reply
    9. ConnieT1D62

      At least once a year as an obligatory exam to meet health insurance and Medicare guidelines. However, it is a mute point because I have had progressive, but stable, peripheral neuropathy for years. It hasn’t gotten any better or any worse. It just is what it is. I see a podiatrist every 60 days for ongoing follow-up care – he keeps track of any subtle nerve damage progression or structural changes in my feet.

      5 years ago Log in to Reply
    10. KarenM6

      They used to do the monofilament test and the tuning fork test once a year. But, I haven’t had it done since my PA changed a number of years ago. And, now that appointments are done only online, it’s not likely to get done anytime soon.

      5 years ago Log in to Reply
    11. Jneticdiabetic

      I’ve had T1D for 25 years and I think I’ve only had a monofilament test maybe 2-3 times, when I bought up symptoms of cold feet and foot swelling. Otherwise, the foot exam has been mostly a quick annual look and check of pedal pulses, which have been good. As others have mentioned no physical check-ups in the last year due to COVID.

      5 years ago Log in to Reply
    12. Kelly Steiner

      Used to be annually, but hasn’t been done in the last 4 years or so….

      5 years ago Log in to Reply
    13. Beckett Nelson

      It was every visit, but it’s been a while since covid started since appointments have all been by phone

      5 years ago Log in to Reply
    14. Henry Renn

      I see Podiatrist every 3 months who sends report to T1D care provider.

      5 years ago Log in to Reply
    15. sara falconer

      Back when I had an actual endocrinologist, and not a mirror resident, he tested my feet at every visit. The resident, who I’ve had to deal with for the last two years, tells me that I have to go to Podiatry for that.

      5 years ago Log in to Reply
    16. Glenda Schuessler

      Pre-Covid my Endo would test at each visit, approximately every 6 months.

      5 years ago Log in to Reply
    17. Molly Jones

      I don’t remember ever being tested, but my memory is poor

      5 years ago Log in to Reply

    How often does your T1D health care provider screen for neuropathy with a monofilament, tuning fork or pin prick on your bare feet? Cancel reply

    You must be logged in to post a comment.




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