Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 1 hour, 7 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 1 hour, 7 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 1 hour, 7 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 3 hours, 20 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 3 hours, 21 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 3 hours, 21 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 4 hours, 4 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 5 hours, 27 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 7 hours, 24 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 22 hours, 47 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 22 hours, 49 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 22 hours, 50 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 22 hours, 50 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 22 hours, 59 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 4 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 6 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 7 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Previous Work
      • Academic Partnerships
      • Industry Partnerships
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    How much did you spend out-of-pocket on all your diabetes medications and supplies from the start of October through the end of December 2022?

    Home > LC Polls > How much did you spend out-of-pocket on all your diabetes medications and supplies from the start of October through the end of December 2022?
    Previous

    Does the availability of drugs that can delay the full onset of T1D positively change your views on screening for T1D autoantibodies? (Autoantibodies can provide risk information about T1D and may be detected in the blood months to years before clinical signs.)

    Next

    If you use an insulin pump, have you ever received a denial from your insurance company, notifying you that the costs for your pump and/or its supplies will not be covered? If so, what was the reason? Please select all that apply to you, and share in the comments about your experiences.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

    Related Stories

    Advocacy

    Blue Circle Health: A Free Virtual Program Expanding Support for Adults Living with Type 1 Diabetes 

    Michael Howerton, 3 days ago 4 min read  
    News

    Thyroid Eye Disease (TED): What You Need to Know 

    Jewels Doskicz, 5 days ago 4 min read  
    News

    Immunosuppressants in T1D Research: Expert Opinions from Diabetes Pharmacist Diana Isaacs 

    Jewels Doskicz, 1 week ago 5 min read  
    2025 Learning Session

    The 2025 T1DX-QI Learning Session: Driving Better Diabetes Care 

    Sarah Howard, 2 weeks ago 7 min read  
    Lifestyle

    Barriers to Care in Aging: Voices from the T1D Community 

    Jewels Doskicz, 3 weeks ago 7 min read  
    Lifestyle

    When T1D Becomes a Calling: Stories From our Team 

    Jewels Doskicz, 4 weeks ago 11 min read  

    23 Comments

    1. Mick Martin

      $0. I live in the United Kingdom where all of my diabetes supplies are paid for by our NHS (National Health Service), which is financed via direct taxation of all working people.

      5
      3 years ago Log in to Reply
      1. P-O Heidling

        Same setup in Sweden and therefore $0 (or 0 SKR) for me too.

        4
        3 years ago Log in to Reply
      2. ELYSSE HELLER

        I wish that we had National Health Service in the USA. Opponents of socialized medicine claim that you would have to wait a long time to get to see a doctor. Well, I saw my endocrinologist in December and she wanted to see me in three months but I couldn’t get an appointment until next summer and that was with a Nurse Practitioner because the doctor was booked for the rest of 2023! Healthcare is not a privaledge it is a basic human right!

        3
        3 years ago Log in to Reply
      3. Mick Martin

        @ELYSSE HELLER,

        I ‘hear’ what you say, ma’am. Unfortunately, I have ‘lost’ internet friends from America when they have died from not being able to afford insulin. I’m sure that Mr. Banting and his colleagues would be ‘turning in their graves’ if they knew what was happening.

        I’d like to say that I agree with your assertion that “Healthcare is not a privaledge it is a basic human right!” but I’m a realist. I KNOW that things have to be paid for. i.e. who would pay for the doctors/nurses/development and production of medicines?

        3 years ago Log in to Reply
      4. Mick Martin

        @P-O Heidling,

        Thank you for educating me, my friend. I hadn’t any idea that Sweden has a National Health Service. Methinks I need to do more reading/become better educated. 😉

        1
        3 years ago Log in to Reply
    2. Lawrence S.

      Novolog $55 copay. Does not count Dr.’s visit copay.

      3 years ago Log in to Reply
    3. jeredb

      The last quarter is always great, I usually have hit my $6,000 maximum out of pocket so the last quarter is free. First quarter before my deductible hits ($4,000) is rough though!!

      3
      3 years ago Log in to Reply
    4. Jane Cerullo

      Copay for insulin pens. Medtronic Iport, pen needles.

      3 years ago Log in to Reply
    5. Nevin Bowman

      My deductible for insulin pump supplies is 2000 which I always meet, plus my copay for Dexcom, so somewhere between 2K and 3k.

      1
      3 years ago Log in to Reply
    6. Louise Robinson

      Being on Medicare and using a CGM, Medicare refuses to pay for ANY of my glucose test strips. Although I use far fewer than prior to CGM use, there are times when test strips are necessary to verify lows or to obtain glucose levels when the CGM is in its “warming-up” period. Medicare is penny-wise and pound foolinh, IMHO.

      3
      3 years ago Log in to Reply
      1. Marty

        I have Medicare Part D prescription coverage that does pay for test strips along with most drug costs. Could there be some route to strips coverage for you, too?

        1
        3 years ago Log in to Reply
    7. Diana L.

      Theonly supply that is not covered 100% by Medicare and supplemental insurance is Glucagon, partially covered by my prescription benefit

      1
      3 years ago Log in to Reply
      1. Diana L.

        I have to add that I pay $200 a month for my supplemental insurance, it has a $250 deductible (Plan G) very worthwhile for all my medical expenses

        3 years ago Log in to Reply
    8. john36m

      It was Zero, since I reached my maximum out of pocket for my insurance plan.

      2
      3 years ago Log in to Reply
    9. Mig Vascos

      I live in the USA and have Medicare and a supplemental to cover the 20% not covered by it.
      All my diabetes supplies , including whatever pump I choose every 5 years, insulin, strips, pump supplies and Dexcom sensors are covered 100% thru the Medicare part B durable equipment clause (considered part of the pump system). This only applies if you use a pump.
      I only have copayments when I order Lantus pens every couple of years in case my pump fails.
      I do pay my Medicare premium and my supplemental premium though that comes to about $500 a month but that covers all my medical necessities. So I’m not complaining. I feel I’m getting more than I’m
      Paying for.

      4
      3 years ago Log in to Reply
    10. Carl Robertson

      $0 due to having reached my medical insurance out of pocket maximum for the year

      2
      3 years ago Log in to Reply
    11. Karington Johnston

      I’m a teacher and my insurance year starts over in September. This is the time of year that I have to pay the most.

      1
      3 years ago Log in to Reply
    12. Tom Caesar

      On insulin approx $300. For insurance to get CGM and pump supplies “free” approx $1400

      1
      3 years ago Log in to Reply
    13. Dave Akers

      Deductible met! Loaded up!

      3 years ago Log in to Reply
    14. Lenora Ventura

      I met my Out of Pocket maximum of $4,000 in early October so the rest of the year was covered @ 100%

      1
      3 years ago Log in to Reply
    15. Jeff Balbirnie

      Uncertain, too much with a million percent certainty.

      3 years ago Log in to Reply
    16. T1D4LongTime

      $0.00 in qtr 4 of 2022 due to exceeding my out of pocket max thanks to cataract surgery in August. Normally, I would spend about $200 in 3 months

      3 years ago Log in to Reply
    17. Lisa Gerken

      This question is so dependent on your health plan. PPO, HSA, nothing? I hit my HSA deductible well before October.

      3 years ago Log in to Reply

    How much did you spend out-of-pocket on all your diabetes medications and supplies from the start of October through the end of December 2022? Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]