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    • 12 minutes ago
      Molly Jones likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I responded "Unsure" because I'd need more information about this before I would be willing to try anything...
    • 3 hours, 44 minutes ago
      Mike S likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      If it handled basal and bolus correctly, where my time in range was 80-90% and I only had to do one shot a week that would be amazing
    • 3 hours, 44 minutes ago
      Mike S likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      Would this be a basal insulin? How would meal-time insulin be administered? And how would fluctuating insulin needs (day vs night, sedentary vs active) be managed with a single dose? I have many questions that outweigh the possible convenience of a single injection (if that’s what this question is about).
    • 3 hours, 44 minutes ago
      Mike S likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I responded "Unsure" because I'd need more information about this before I would be willing to try anything...
    • 3 hours, 44 minutes ago
      Mike S likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I like having control over the amount of insulin I administer according to my diet and physical activity.
    • 3 hours, 44 minutes ago
      Mike S likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I said moderately because being on Medicare, I’d need much more information such as how many weeks would I be able to have on hand without additional prescriptions? Would I still need some kind of preauthorization once per year that’s a hassle getting? How long would it stay good - the same amount of time? Would the pump take a week’s worth or how does that work with pump supplies?
    • 3 hours, 55 minutes ago
      eherban1 likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I'm MDI and if we're talking basal it isn't a big deal to me. Now if we're talking fast acting, that's a much different story!
    • 3 hours, 57 minutes ago
      Marty likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      Would this be a basal insulin? How would meal-time insulin be administered? And how would fluctuating insulin needs (day vs night, sedentary vs active) be managed with a single dose? I have many questions that outweigh the possible convenience of a single injection (if that’s what this question is about).
    • 3 hours, 57 minutes ago
      Marty likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I responded "Unsure" because I'd need more information about this before I would be willing to try anything...
    • 3 hours, 57 minutes ago
      Marty likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I like having control over the amount of insulin I administer according to my diet and physical activity.
    • 3 hours, 59 minutes ago
      KCR likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I responded "Unsure" because I'd need more information about this before I would be willing to try anything...
    • 4 hours ago
      KCR likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I'm MDI and if we're talking basal it isn't a big deal to me. Now if we're talking fast acting, that's a much different story!
    • 4 hours, 5 minutes ago
      Bonnie Lundblom likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I responded "Unsure" because I'd need more information about this before I would be willing to try anything...
    • 4 hours, 11 minutes ago
      eherban1 likes your comment at
      On average, how long does it take you to recover from a low glucose episode?
      I find I can normalize my BG in 15-30 minutes. But after ~50 years with T1D and maybe due to getting older I am fairly exhausted for hours after a hypo.
    • 4 hours, 12 minutes ago
      eherban1 likes your comment at
      On average, how long does it take you to recover from a low glucose episode?
      To feel like it hadn’t happened I need a nap.
    • 4 hours, 13 minutes ago
      Derek West likes your comment at
      On average, how long does it take you to recover from a low glucose episode?
      It varies from 5 minutes to 20 minutes. The exception to this is the very occasional low that's resistant to resolving and - as Anthony said in his comment - I continue adding more glucose until I begin to feel the symptoms ebb. Once the low is gone the extra glucose will slowly but surely result in a higher-than-desired blood sugar.
    • 4 hours, 14 minutes ago
      Derek West likes your comment at
      On average, how long does it take you to recover from a low glucose episode?
      I answered 15-30 minutes, but there are times, especially at night, especially when very low, that it can take 1-2 hours. That's a real pain. I just keep throwing glucose at the problem which will creat high readings later, but I have to get the glucose reading to rise and it won't. Also, my best quality decisions are not made when awoken in the middle of the night.
    • 4 hours, 16 minutes ago
      Debbie Pine likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I responded "Unsure" because I'd need more information about this before I would be willing to try anything...
    • 4 hours, 29 minutes ago
      Lawrence S. likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      Never! I think about my blood sugar so much less with all these devices attached. And I barely notice them once they are on. It’s such a blessing that when I have to take them off that’s more of a problem/inconvenience than a vacation.
    • 4 hours, 30 minutes ago
      Lawrence S. likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      Never. I have severe hypoglycemic unawareness. No symptoms even at glucose levels of 40.
    • 4 hours, 31 minutes ago
      Lawrence S. likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      Nope. Love my technology! Having it frees up so much mental bandwidth that I would otherwise have to spend on finger sticks, calculating insulin doses, figuring how much insulin on board, etc. Also, I love not carrying a purse with all that "stuff" everywhere I go - I put my license & credit card in my phone case and I'm hands-free. Absolute magic!
    • 4 hours, 31 minutes ago
      Lawrence S. likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      Not sure how I would without serious ramifications!
    • 4 hours, 37 minutes ago
      Lawrence S. likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      If it handled basal and bolus correctly, where my time in range was 80-90% and I only had to do one shot a week that would be amazing
    • 4 hours, 37 minutes ago
      Lawrence S. likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      Would this be a basal insulin? How would meal-time insulin be administered? And how would fluctuating insulin needs (day vs night, sedentary vs active) be managed with a single dose? I have many questions that outweigh the possible convenience of a single injection (if that’s what this question is about).
    • 4 hours, 38 minutes ago
      Lawrence S. likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I like having control over the amount of insulin I administer according to my diet and physical activity.
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    How much did you spend out-of-pocket on all your diabetes medications and supplies from the start of October through the end of December 2022?

    Home > LC Polls > How much did you spend out-of-pocket on all your diabetes medications and supplies from the start of October through the end of December 2022?
    Previous

    Does the availability of drugs that can delay the full onset of T1D positively change your views on screening for T1D autoantibodies? (Autoantibodies can provide risk information about T1D and may be detected in the blood months to years before clinical signs.)

    Next

    If you use an insulin pump, have you ever received a denial from your insurance company, notifying you that the costs for your pump and/or its supplies will not be covered? If so, what was the reason? Please select all that apply to you, and share in the comments about your experiences.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    23 Comments

    1. Mick Martin

      $0. I live in the United Kingdom where all of my diabetes supplies are paid for by our NHS (National Health Service), which is financed via direct taxation of all working people.

      5
      3 years ago Log in to Reply
      1. P-O Heidling

        Same setup in Sweden and therefore $0 (or 0 SKR) for me too.

        4
        3 years ago Log in to Reply
      2. ELYSSE HELLER

        I wish that we had National Health Service in the USA. Opponents of socialized medicine claim that you would have to wait a long time to get to see a doctor. Well, I saw my endocrinologist in December and she wanted to see me in three months but I couldn’t get an appointment until next summer and that was with a Nurse Practitioner because the doctor was booked for the rest of 2023! Healthcare is not a privaledge it is a basic human right!

        3
        3 years ago Log in to Reply
      3. Mick Martin

        @ELYSSE HELLER,

        I ‘hear’ what you say, ma’am. Unfortunately, I have ‘lost’ internet friends from America when they have died from not being able to afford insulin. I’m sure that Mr. Banting and his colleagues would be ‘turning in their graves’ if they knew what was happening.

        I’d like to say that I agree with your assertion that “Healthcare is not a privaledge it is a basic human right!” but I’m a realist. I KNOW that things have to be paid for. i.e. who would pay for the doctors/nurses/development and production of medicines?

        3 years ago Log in to Reply
      4. Mick Martin

        @P-O Heidling,

        Thank you for educating me, my friend. I hadn’t any idea that Sweden has a National Health Service. Methinks I need to do more reading/become better educated. 😉

        1
        3 years ago Log in to Reply
    2. Lawrence S.

      Novolog $55 copay. Does not count Dr.’s visit copay.

      3 years ago Log in to Reply
    3. jeredb

      The last quarter is always great, I usually have hit my $6,000 maximum out of pocket so the last quarter is free. First quarter before my deductible hits ($4,000) is rough though!!

      3
      3 years ago Log in to Reply
    4. Jane Cerullo

      Copay for insulin pens. Medtronic Iport, pen needles.

      3 years ago Log in to Reply
    5. Nevin Bowman

      My deductible for insulin pump supplies is 2000 which I always meet, plus my copay for Dexcom, so somewhere between 2K and 3k.

      1
      3 years ago Log in to Reply
    6. Louise Robinson

      Being on Medicare and using a CGM, Medicare refuses to pay for ANY of my glucose test strips. Although I use far fewer than prior to CGM use, there are times when test strips are necessary to verify lows or to obtain glucose levels when the CGM is in its “warming-up” period. Medicare is penny-wise and pound foolinh, IMHO.

      3
      3 years ago Log in to Reply
      1. Marty

        I have Medicare Part D prescription coverage that does pay for test strips along with most drug costs. Could there be some route to strips coverage for you, too?

        1
        3 years ago Log in to Reply
    7. Diana L.

      Theonly supply that is not covered 100% by Medicare and supplemental insurance is Glucagon, partially covered by my prescription benefit

      1
      3 years ago Log in to Reply
      1. Diana L.

        I have to add that I pay $200 a month for my supplemental insurance, it has a $250 deductible (Plan G) very worthwhile for all my medical expenses

        3 years ago Log in to Reply
    8. john36m

      It was Zero, since I reached my maximum out of pocket for my insurance plan.

      2
      3 years ago Log in to Reply
    9. Mig Vascos

      I live in the USA and have Medicare and a supplemental to cover the 20% not covered by it.
      All my diabetes supplies , including whatever pump I choose every 5 years, insulin, strips, pump supplies and Dexcom sensors are covered 100% thru the Medicare part B durable equipment clause (considered part of the pump system). This only applies if you use a pump.
      I only have copayments when I order Lantus pens every couple of years in case my pump fails.
      I do pay my Medicare premium and my supplemental premium though that comes to about $500 a month but that covers all my medical necessities. So I’m not complaining. I feel I’m getting more than I’m
      Paying for.

      4
      3 years ago Log in to Reply
    10. Carl Robertson

      $0 due to having reached my medical insurance out of pocket maximum for the year

      2
      3 years ago Log in to Reply
    11. Karington Johnston

      I’m a teacher and my insurance year starts over in September. This is the time of year that I have to pay the most.

      1
      3 years ago Log in to Reply
    12. Tom Caesar

      On insulin approx $300. For insurance to get CGM and pump supplies “free” approx $1400

      1
      3 years ago Log in to Reply
    13. Dave Akers

      Deductible met! Loaded up!

      3 years ago Log in to Reply
    14. Lenora Ventura

      I met my Out of Pocket maximum of $4,000 in early October so the rest of the year was covered @ 100%

      1
      3 years ago Log in to Reply
    15. Jeff Balbirnie

      Uncertain, too much with a million percent certainty.

      3 years ago Log in to Reply
    16. T1D4LongTime

      $0.00 in qtr 4 of 2022 due to exceeding my out of pocket max thanks to cataract surgery in August. Normally, I would spend about $200 in 3 months

      3 years ago Log in to Reply
    17. Lisa Gerken

      This question is so dependent on your health plan. PPO, HSA, nothing? I hit my HSA deductible well before October.

      3 years ago Log in to Reply

    How much did you spend out-of-pocket on all your diabetes medications and supplies from the start of October through the end of December 2022? Cancel reply

    You must be logged in to post a comment.




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