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    • 3 hours, 29 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      I oftentimes give myself a little insulin for when I go unplugged while changing pods, depending on what my current sensor reading is.
    • 3 hours, 30 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Always, until I began to increase the "cannula fill" amount. I found I need a good bit more than the (1.3u) to "prime the site" to have the next blood sugars be in goal. Just remember "every body is different". Darn than OmniPod does not let you change that amount, have to use "fake carbs". Something to consider.....
    • 3 hours, 30 minutes ago
      KarenM6 likes your comment at
      How well do you understand the details of your health insurance coverage?
      At the risk of being overly simplistic, it boils down to: "Heads, you lose. Tails, You lose." ╰── ──╮
    • 3 hours, 30 minutes ago
      KarenM6 likes your comment at
      How well do you understand the details of your health insurance coverage?
      They change all the time. Generally not in a direction to improve my health, but to increase the money in their wallet.
    • 3 hours, 30 minutes ago
      KarenM6 likes your comment at
      How well do you understand the details of your health insurance coverage?
      "Slightly," I think, maybe. Insurance companies change their policies, constantly. Prescription coverage changes every time I look at it. Medicare is a huge question mark. Honestly, Health insurance has become a big money making business, for them. I get different answers every time I call, depending upon whom I am talking with. I say it's time for socialized medicine.
    • 3 hours, 30 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Sometimes, which makes sense to me. It seems like it takes a while til the new insulin is absorbed.
    • 7 hours, 45 minutes ago
      KSannie likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      **cannula
    • 14 hours, 4 minutes ago
      Kathleen Juzenas likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I find a using the T-Connect app I have the main features needed, CMG, bolus, battery level and remaining insulin.
    • 14 hours, 56 minutes ago
      Kathy Hanavan likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      There are certain areas on my body where the insulin is more effective than others.
    • 17 hours, 57 minutes ago
      TEH likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      There are certain areas on my body where the insulin is more effective than others.
    • 17 hours, 57 minutes ago
      TEH likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Sometimes, which makes sense to me. It seems like it takes a while til the new insulin is absorbed.
    • 18 hours, 6 minutes ago
      atr likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      There are certain areas on my body where the insulin is more effective than others.
    • 18 hours, 7 minutes ago
      atr likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Usually the opposite. Fresh insulin sometimes sends me low.
    • 18 hours, 20 minutes ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      Mostly pump because I want to quickly see insulin on board. Tandem on IPhone when holding my great-niece while she sleeps since getting my pump out of my pocket always wakes her ☺️. Dexcom app if not in need of insulin.
    • 18 hours, 20 minutes ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      usually the pump; sometimes my phone.
    • 18 hours, 20 minutes ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump (Tandem X2). Since I have to carry a work phone close to 247, I don't want to deal with two phones (device overload!). As I go about my day, looking at my pump meets my needs, I can decide to bolus etc - and edit the bolus. For more in depth data review and analysis, I use the TConnect.
    • 18 hours, 21 minutes ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I read it from my pump.
    • 18 hours, 21 minutes ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      On my insulin pump
    • 18 hours, 21 minutes ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump. Keep it simple.
    • 18 hours, 23 minutes ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      Do you realize what you have just said: "Obscurantism, gobbledegook, and pointillism used not as an art form but as a 'Gotcha!' of legal/financial determinism?"
    • 18 hours, 24 minutes ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      How much of this is intentionally misleading? My mail order prescription service says that can’t possibly know the cost of a medication until after it’s been shipped, which is too late to cancel or return, of course, and makes it impossible to comparison shop.
    • 18 hours, 26 minutes ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      I have an MA in writing and lit, but gobbledegook is gobbledegook. The fancy term is obscurantism.
    • 18 hours, 27 minutes ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      They change all the time. Generally not in a direction to improve my health, but to increase the money in their wallet.
    • 18 hours, 42 minutes ago
      Lawrence S. likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Usually the opposite. Fresh insulin sometimes sends me low.
    • 1 day, 15 hours ago
      Sarah Berry likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump
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    How many people do you know in person (not online) who have T1D?

    Home > LC Polls > How many people do you know in person (not online) who have T1D?
    Previous

    When you are beginning to experience hypoglycemia, do you consistently have a particular symptom or set of symptoms that signal the start of a low to you? (This is part 1 of a 3-day understanding hypoglycemia series – check back tomorrow and Monday for days 2 and 3!)

    Next

    If you use a CGM, how did your A1c change in the first 6 months of use?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    " At T1D Exchange, we’re proud to announce our Medical and Research Advisory Team — an accomplished group of leaders in endocrinology, research, and quality improvement. Together, they are redefining what’s possible in type 1 diabetes (T1D) care through rigorous data analysis, innovative research approaches, and real-world implementation. Their collective expertise is central to our mission of improving outcomes for all people living with T1D.  “We’re excited to be working with our advisors given their deep expertise across a broad range of areas in T1D,” said Dave Walton, CEO of T1D Exchange. “Their involvement magnifies our reach, knowledge, and impact. These advisors are shaping the future of diabetes care — driving innovation across research, clinical practice, and quality improvement.”    Meet the Medical & Research Advisory Team  The T1D Exchange Medical and Research Advisory Team brings together four leading endocrinologists, each offering a unique perspective and shared commitment to advancing T1D care:    Jenise Wong, MD, PhD Pediatric endocrinologist at UCSF Benioff Children’s Hospital and Professor of Pediatrics in the Division of Endocrinology at the University of California, San Francisco Focus areas: Diabetes technology adoption and usability; health equity and access to care and technology; community-based and peer-support interventions; culturally responsive care          Jennifer Sherr, MD, PhD Pediatric endocrinologist at Yale Medicine and Professor of Pediatrics in the Division of Endocrinology at Yale School of Medicine in New Haven, Connecticut Focus areas: Clinical trials in diabetes technology (CGM and AID systems), disease-modifying treatments and immunotherapies, and emerging technologies and medications, including continuous ketone monitoring and nasal glucagon     Viral Shah, MD Adult endocrinologist at Indiana University Health and Professor of Medicine in the Division of Endocrinology and Metabolism at Indiana University School of Medicine in Indianapolis, Indiana Focus areas: Diabetes technology and adjunctive therapy trials; translational and data-driven research; T1D complications and bone health         Nestoras Mathioudakis, MD, MHS Adult endocrinologist at Johns Hopkins Medicine and Associate Professor of Medicine at Johns Hopkins University School of Medicine in Baltimore, Maryland Focus areas: AI-driven clinical support tools; EMR-based data analytics for clinical decision making; data-driven quality improvement; health equity in T1D care        This accomplished team’s expertise spans adult and pediatric endocrinology, research, and quality improvement affiliated with leading institutions nationwide. Collectively, they have authored over 500 diabetes publications and secured research funding from organizations such as the National Institutes of Health, Helmsley Charitable Trust, the American Diabetes Association, and Breakthrough T1D — while remaining actively engaged in both clinical care and research.  “These individuals represent an impressive body of work while remaining deeply involved in the day-to-day realities of diabetes care,” said Walton. Their expertise covers the full spectrum of T1D care — from AI and predictive analytics to complication prevention, automated insulin delivery, continuous glucose and ketone monitoring, GLP-1 treatments, health equity, mental health, autoantibody screening, and disease prevention.    Turning insight into impact  The team’s work goes beyond research, focusing on translating insights into real-world practice. By leveraging data to scale best practices, the goal is to drive meaningful, measurable change across clinics and communities.  “Our advisors will help to extend our impact — whether through QI strategy, research innovation, funding opportunities, or new data-driven solutions,” said Walton. “We want to take what’s working at individual centers and spread that as broadly as possible.”   He added, “As a Collaborative, we’re also focused on advanced population health strategies such as exploring predictive data models to identify risks earlier and intervene before complications even begin to happen.”    The power of the T1D Exchange Quality Improvement Collaborative  Central to this work is the T1D Exchange Quality Improvement Collaborative (T1DX-QI) — a nationwide network of clinics working together to improve care through shared data, benchmarking, and evidence-based practices.  “I’m thrilled to serve as a Medical Advisor for T1D Exchange, because I’ve seen firsthand the impact this network can have on patient care,” said Dr. Nestoras Mathioudakis. “T1D Exchange is the premier organization for quality improvement in type 1 diabetes, with unparalleled assets like a large EHR database and robust patient registry.”  He added that he is excited to apply his expertise in EHR research and big data analytics to generate real-world evidence across diagnosis, management, and outcomes.  Dr. Viral Shah echoed that perspective, reflecting on T1DX-QI's evolution: “I have been involved with T1D Exchange since its early days and have had the privilege of witnessing how it has transformed the quality of diabetes care across the United States. I’m delighted to return as a Medical Advisor.”  He emphasized the importance of accelerating impact. “I look forward to working closely with the team to accelerate the evidence generation and to help translate these insights to improve patient care.”   Dr. Jenise Wong highlighted the visible impact of T1DX-QI on the delivery of care. "I’m truly honored and grateful to be working with T1D Exchange as a Medical Advisor. T1DX-QI is a remarkable resource for centers that are using continuous process improvement to improve the quality of care for people living with diabetes.”  “Diabetes centers working with T1DX –QI have done amazing work using QI methodology to make care accessible and equitable for all people with diabetes,” she said. “It’s inspiring to be a part of a collaborative in which centers have been creative and thoughtful with initiatives to address individual and systemic challenges to care, improving clinical outcomes as well as the patient experience."  Looking ahead, Dr. Sherr highlighted the opportunity to build on the existing strong foundation. “I’m very excited to be working as a Medical Advisor for T1D Exchange,” she said. “It’s a privilege to help shape what comes next for a group that’s already doing such impactful work.”  “Sharing what’s happening in clinical practice, benchmarking across centers, and understanding outcomes is how we figure out what’s working, what’s not, and where we go next,” she said.      The future of T1D care   With this team’s vision and expertise, T1D Exchange is positioned to accelerate progress in T1D care — bridging research and real-world practice to drive meaningful, measurable impact.  Together, we look forward to advancing innovation and improving outcomes for everyone affected by type 1 diabetes.   "

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    31 Comments

    1. Wanacure

      Thru the UW (Seattle) Experimental College, I set up a T1D support group to meet in my home. Made some great friends. Learned much. I urge you to do likewise, or meet in a neutral public space like a coffee-house, tavern, public library community room or credit union community room. Preferable to Zoom, Facebook which are NOT private….no matter what they claim.

      3
      4 years ago Log in to Reply
    2. AnitaS

      I put “0”, but I used to know more: a cousin who died this past year, people I used to work with but haven’t seen in years. I also know people who have a type 1 spouse or child but since I don’t them personally, I didn’t count them. I also didn’t count someone who also has cystic fibrosis and her mother mentioned that diabetes associated with cystic fibrosis is a little different than a typical type-1, so I didn’t know if to count her or not.

      4 years ago Log in to Reply
    3. Ahh Life

      One guy in the monthly diabetic club who used a 670G because of a pancreatectomy a few years ago. One gal who spent time in prison. Oh, and one cat, Io, across the street whom I used to inject daily for a week when the owner went on vacation. Io is also the name of one of Saturn’s moons. Nice name for a cat. ≧◠‿●‿◠≦

      1
      4 years ago Log in to Reply
    4. gary rind

      have met most of the people I know thru a T1D group in Houston that meets once a month.

      4 years ago Log in to Reply
    5. Lawrence S.

      I put “0”. For most of my life, I’ve felt that I am on an island by myself. I see people at the Endocrinologist office waiting room, but, never speak with any of them. I knew of two people locally, but one died recently, the other I only spoke with once, and haven’t seen in 3 or 4 years. I had two cousins with T1D, but both did not take care of themselves and died young.

      1
      4 years ago Log in to Reply
    6. Julie Kincade

      Prior to my son’s dx I knew 2, my mother in law and a friend from childhood. Since his dx I have been finding t1ds his age to play with (he is 3yrs old) so now I have 3 t1d children in our circle.

      4 years ago Log in to Reply
    7. connie ker

      T1D is auto-immune diabetes, however I know type 2s who have become insulin dependent and call themselves a type 1. I don’t correct them, just listen, and know we are walking a similar journey. I was first diagnosed as a type 1 &1/2 until the medical term LADA came into being. So I only counted the true T1Ds which is 5. Happy Birthday Insulin turning 100 years old!

      1
      4 years ago Log in to Reply
    8. Sherolyn Newell

      I put 0. Someone at work has a T1D son, but I don’t know him. I met a little boy at the zoo, maybe 3 or 4 years old, who had T1D. His mom saw my Omnipod and asked if I would talk to him. I thought that was nice.

      1
      4 years ago Log in to Reply
      1. William Bennett

        Love it when that happens. A few years ago I was in the parking garage elevator on my way to work and the guy next to me noticed my checking my CGM reading. Turned out he had a kid who had just gotten one and we had a pretty good chin wag about the ins and outs of using one and other T1 stuff. I was late to work but I didn’t care!

        4 years ago Log in to Reply
    9. Gary Taylor

      My daughter, three other clergy in my denomination area, three people in the church I serve, one teacher at the seminary I attended, and one friend. Total of nine.

      4 years ago Log in to Reply
    10. Paul McGuigan

      Hundreds

      4 years ago Log in to Reply
    11. Amanda Barras

      When I was a kid, dozens as I went to Diabetes Camp. But, now I only keep in contact on the regular with one diabetic friend. And even that’s online now as we haven’t seen each other in person in years.

      4 years ago Log in to Reply
    12. Natalie Daley

      I became T1D 17 years after my brother. We were illness buddies as well as good friends. We lived on opposite coasts but talked often and met up a couple of times a year. He died at 67, almost 12 years ago. I miss him every day. There hasn’t been that link with anyone else.

      4 years ago Log in to Reply
    13. cynthia jaworski

      As a kid, I had gone to diabetic camp. I stayed in touch with a few of them. I keep meeting T1ds throughout life, usually incidentallt. Recently, I began attending the DC T1international “insulin for all” group. Lots of new, but much younger faces. all were women.

      4 years ago Log in to Reply
    14. LizB

      Just one, my sister. I was diagnosed at 19, she was diagnosed 25 years after me in her 40s. I also used to work with a guy who had Type 1 but we didn’t talk much.

      4 years ago Log in to Reply
    15. NancyT

      Only my sister. Our mother had been diagnosed late in her life but she died over 20 years ago.

      4 years ago Log in to Reply
    16. Carol Meares

      I put 5 or 6, but my sister is the only one I know closely. I have two 1st cousins once removed and 3 people whom I met online and have also met in person several times as well as on the phone many times.

      4 years ago Log in to Reply
    17. RegMunro

      Although I’ve been T1D since 1966 I’ve not got to know more than two. One is my wife’s gym pal of many years, the other my daughter who contracted diabetes in the early 1980’s.

      4 years ago Log in to Reply
    18. Tracy Jean

      I know 8-9, from a local support group. It is the best group I’ve joined.

      4 years ago Log in to Reply
    19. Patricia Dalrymple

      Can we get a heart emoji that we can click on to show sympathy/empathy for some of these comments like we had in Glu? I cannot bring myself to give a thumbs up when someone mentions they someone died. I miss the heart.

      3
      4 years ago Log in to Reply
      1. Patricia Dalrymple

        And maybe an edit key!

        4
        4 years ago Log in to Reply
    20. ConnieT1D62

      Several dozens. Attended diabetes camp as a kid in the 1960s and there were at least 50 or 60 T1 kids from ages 7 to 17 as well as college aged counselors and high school aged junior counselors with T1D every year.

      As an adult, I have attended TCOYD ONE and Joslin Medalist Conferences and have met at least 100 other adults with T1D at those events. And Diabetes Sisters (diabetessisters.org) used to have an annual Weekend for Women and there were always several dozen T1 women in attendance, along with dozens of T2 women. I have made many T1D sister friendships with women I met at those DS conferences.

      1
      4 years ago Log in to Reply
    21. Vickie Baumgartner

      My endocrinologist has T1D and a few other friends.

      4 years ago Log in to Reply
    22. George Lovelace

      I suppose Hundreds if you also include those that have passed on. Dxed in ’64 and it used to feel so lonely, only my Father had T1, then a niece then I started a Local Support Group. It’s hard to tell if they’re not Online. Fun seeing someone Online and going “I remember when they were a youngster in my Support Group”

      4 years ago Log in to Reply
    23. KarenM6

      I’ve known 4 or 5 other Type 1s over the years, but no one at the moment.
      2 of the 4 to 5-ish have passed away and I was not close with the other people and haven’t seen them in years.

      4 years ago Log in to Reply
    24. Jan Masty

      Just one, my nephew.

      4 years ago Log in to Reply
    25. Molly Jones

      I know zero with T1D and one person with LADA. We both were diagnosed around the same age, but her treatment was different than mine, more similar to T2D. She doesn’t bolus for meals.

      4 years ago Log in to Reply
    26. Joan Fray

      I had one friend who had gotten T1d the same year as I and was the same age. But he died in his sleep ( hypoglycemia) a few years ago. Only one other, just diagnosed with LADA.

      4 years ago Log in to Reply
    27. StPetie

      I put 1 or 2. I was thinking of a dental assistant at my dentist office who I’ve spoken to about t1d. But I don’t really know her outside that office. Other than her, though, there’s nobody.

      4 years ago Log in to Reply
    28. persevereT1D52

      I belong to a support group so I included them in answer.

      4 years ago Log in to Reply
    29. Savanna Vance

      I have 3 best friends who are also t1d, but I also know several others from school and camp for kids with t1d where I was a camper for 6 years and been on staff since 2012.

      4 years ago Log in to Reply

    How many people do you know in person (not online) who have T1D? Cancel reply

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