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  • Activity
    • 15 hours, 20 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I’m almost always more informed of the reported advancements in T1 treatments than my doc. So I usually bounce ideas off the doc for his input.
    • 15 hours, 21 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I am my own advocate. I read about new devices and always investigate side effects of any new medication before starting. I usually bring up but then have good discussion with Endo before making decisions.
    • 15 hours, 23 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      With my endo, I usually have to ask. With the Diabetes Educator, she'll make the suggestion first. They're both very aware that I'm dependent on insurance covering the majority of the cost.
    • 16 hours, 36 minutes ago
      Trina Blake likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 16 hours, 42 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      No, I was the one who had diabetes
    • 16 hours, 42 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 16 hours, 42 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      Already married over forty years when I was diagnosed.
    • 16 hours, 42 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I never knew of anyone who had diabetes, type 1 or 2 before I was married. I became a T1D after I was married.
    • 16 hours, 47 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I answered “no.” I don’t think my girlfriend at diabetes children’s camp when I was 13 counts. While I think there would be a lot I would have in common with a partner with T1D, I wouldn’t want that to be what brought us together, and I don’t think it would keep us together.
    • 16 hours, 47 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      went on one date with a T1D. she had been dx'd as a child (I was dx'd at 43) so she was very old school. she ragged on me during the entire date about my menu choices, my carbs estimation for my shot and she lost her mind when I ordered a Corona! punchline is that my sugar was less than 150 when I went to sleep.
    • 16 hours, 47 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      When I was married, diabetes was not in the picture at all. All I knew was an uncle who died in 1929 because he refused injections. I developed LADA in my 40's, followed by my husband with Type 2, then my two daughters who had PCOS and Type 2, then my son with Type 2. Enough.
    • 16 hours, 47 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I am married to someone with Type 2.
    • 16 hours, 47 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I have been married since 1985. My wife Susan does not have either type 1 or 2 diabetes, but rather type 3 diabetes- spouse or mate of someone with T1D...:) She has been my guardian for night lows, though she has rarely had to intervene since I started CGM in 8-2006.
    • 16 hours, 48 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I dated someone, but I was/am not out of the closet about having T1 so he didn’t know that I have T1
    • 16 hours, 48 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      My husband was diagnosis at age 3 and I was diagnosed at age 4.
    • 17 hours, 8 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 17 hours, 9 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I think my healthcare providers learn about new medications and devices at about the same time that I do. This wasn't the case when I was first diagnosed, pre-internet. Back then, I always looked forward to seeing my CDE because I knew I'd come away with something to make my life easier/better.
    • 17 hours, 29 minutes ago
      Bonnie Lundblom likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I have been married since 1985. My wife Susan does not have either type 1 or 2 diabetes, but rather type 3 diabetes- spouse or mate of someone with T1D...:) She has been my guardian for night lows, though she has rarely had to intervene since I started CGM in 8-2006.
    • 17 hours, 38 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I may already be on the best medications and devices available to me.
    • 17 hours, 38 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 17 hours, 38 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I think my healthcare providers learn about new medications and devices at about the same time that I do. This wasn't the case when I was first diagnosed, pre-internet. Back then, I always looked forward to seeing my CDE because I knew I'd come away with something to make my life easier/better.
    • 17 hours, 38 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I had to answer “other” because I just got a new endo after my other one retired so I’ve only met with him once. Too early to discuss new technology or medications.
    • 17 hours, 38 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      Generally, no, my healthcare provider does not suggest new medications or devices. However, it is not often that new meds/devices become available. Most things are dependent upon my quarterly blood tests. Recently, my Endo put me on statin drugs when my bloodwork showed high cholesterol over a six month period. Otherwise, I am usually the one who asks about new devices about which I have heard or read.
    • 17 hours, 39 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I’m almost always more informed of the reported advancements in T1 treatments than my doc. So I usually bounce ideas off the doc for his input.
    • 17 hours, 39 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I am on the Dexcom, I’m not on a pump though. I am LADA so I have very high insulin resistance, so I use a lot of insulin & there’s just not a pump that would be efficient for my amount of insulin. I’ve tried to get Afrezza, but every Endoc I bring it up to won’t prescribe it. Even though I bring them evidence that it doesn’t cause lung cancer when you’re not a smoker. So frustrating that we can’t agree on that course of treatment.
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    How many nights in the past week has T1D disturbed your sleep?

    Home > LC Polls > How many nights in the past week has T1D disturbed your sleep?
    Previous

    If you wear an insulin pump, do you have a protective case on your pump or PDM?

    Next

    If you wear a CGM and share your alerts with any friends or family, do you ever feel like your followers worry too much or contact you more often than you’d like?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    17 Comments

    1. connie ker

      Do you count getting up to the bathroom related to diabetes. I am a senior and get up at least 1 time during the night, but I always check the number on the Abbott Freestyle Libre at the same time. I correct or eat spice drops if needed. I wake up about the same time every morning and go to bed about the same time every night, so that schedule helps the bio rhythms.

      2 years ago Log in to Reply
      1. Retired and glad

        Wow, spice drops sounds great. I keep several cans of pineapple juice by my bedside but will now seek out the spice drops to keep as well!

        2 years ago Log in to Reply
    2. Alice Zamora

      4

      2 years ago Log in to Reply
    3. William Bennett

      My overnight BG’s are usually pretty stable, but more frequently wake-ups are due to pump or CGM issues. Tore out my Dexcom sensor rolling over in bed, that was one. Nice loud alarm for that. Low-reservoir alarms are another one. Why do they ALWAYS seem to crop up at 3am??? I set those to alert 12 hrs out from empty, which usually gets around the middle-of-the-night problem, but not always.

      2 years ago Log in to Reply
    4. Becky Hertz

      I said 2, but that’sa guess. Usually due to a high. I just take care of it and go back to sleep. So while “impacted” not a white lot.

      2 years ago Log in to Reply
    5. Eve Rabbiner

      Mainly it’s been my Dexcom telling me the signal is lost.

      2 years ago Log in to Reply
    6. Sally Numrich

      Just one. I am in a trial for a new pump and had to set my high limit higher otherwise, the alarms would drive me nuts. So I had one alarm for a low vs my Tandem which is usually none. Now if my high limit was where it usually is,it would have been every night. Big sigh! But I will say, it is taking much longer than I thought to learn me, but last night was perfect and the night before pretty close. And yesterday, first time I was in the 80% in target range!

      1
      2 years ago Log in to Reply
    7. dave hedeen

      you should have prefaced question “wear cgm & are on automode during night”.
      on AM, every night I get a BG or calibration request every 4 hours.

      1
      2 years ago Log in to Reply
    8. Robin Harold

      I hardly ever get a good full night’s sleep because of my pump alarm’s. I have a Medtronic 670G & it either want’s calibrated or a BG. Then if there’s an alarm for a high or low reading for blood sugar it continues to alarm until it get’s back into the normal range.

      2 years ago Log in to Reply
    9. Kristine Warmecke

      Just last night, had a low I had to treat because my Control IQ didn’t get it. Was surprised that I woke up with a normal blood sugar of 90. I usually don’t have any T1D disturb.

      2 years ago Log in to Reply
    10. Sahran Holiday

      Lows

      2 years ago Log in to Reply
    11. Ken Raiche

      Ever since starting the Keto diet my evening CGM alarms are non-existent. Loving it just wondering how my cholesterol numbers are going to change.

      2 years ago Log in to Reply
    12. Nicholas Argento

      Much less than before with T-Slim with Control IQ. I used to get a lot of lows at night, 2 times a week, now 2 times a month. I’m happy!

      2 years ago Log in to Reply
    13. LizB

      Had a couple of pump/CGM alarms for minor lows that I ignored and went back to sleep.

      2 years ago Log in to Reply
    14. Glenda Schuessler

      My CGM has alerted during the night, I don’t consider it disturbing rather a helpful instrument to help me stay in good control.

      2 years ago Log in to Reply
    15. Robby Doyle

      I’m awakened frequently, for the reasons cited by others. I’m switching from Medtronic 670G system to Tandem t:slim X2 with control IQ along with the Dexcom G6 system, for this very reason. I’ve been using a pump for about 22 years now, and have never been more disappointed with the increasing lack of quality control (& technology) by Medtronic. Fingers crossed my experience with Tandem and Dexcom convinces me the many people I’ve spoken to, who all rave about this technology are correct!

      2 years ago Log in to Reply
    16. Carole Ludwig

      Mostly for lows

      2 years ago Log in to Reply

    How many nights in the past week has T1D disturbed your sleep? Cancel reply

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