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    • 11 minutes ago
      Derek West likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Very! However, I wish I could use Fiasp insulin in the Tandem pumps.
    • 2 hours, 46 minutes ago
      Bruce Schnitzler likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I broke down for the first time in 25 years and bought a bottle of insulin because I think I may have thrown a bottle out with the box. Medicare wouldn’t fill the prescription because it was too early. I just didn’t want the fight and worry. I’m not sure that’s what happened but it’s the only explanation. Also, I live in Florida and the threat of losing power is always there. I should get a generator but I’m a little afraid of them and you still can’t be sure you have access to propane. If my insulin goes bad, I’m not sure I could get refills. My back up plan is to leave before hurricane or go to a hospital. But it is all just causes concern.
    • 3 hours, 18 minutes ago
      Karen Newe likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      The most common comment: but you aren’t heavy. That’s when we get into the differences. A relative tried to tell me that insulin makes you lose weight. But when we last discussed this, one of you said it best: if it isn’t in their circle of experience, why would they know or care?
    • 3 hours, 36 minutes ago
      KSannie likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Very! However, I wish I could use Fiasp insulin in the Tandem pumps.
    • 3 hours, 37 minutes ago
      KSannie likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 3 hours, 37 minutes ago
      KSannie likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      My first reaction was Very Satisfied but there is always room for improvement. I’d like a pump design that wasn’t meant to be worn on a belt just for men. To wear a dress, I have to only get those with pockets (and on both sides because opposite sides cause the CGM to lose contact) and put a button whole in each. The clip shows horribly on blouses worn out. I’ve tried the leg attachments and they never stay secure. I’m not big enough to wear it in my bra. All minor inconveniences. I’d like one that doesn’t keep alarming 20 minutes after I’ve eaten, although I get it that it is there to save my life. Again minor. Ask about CGMs (probably tomorrow’s question): lately I’ve had trouble removing the sensor from my arm without actually ripping off a strip of skin or very bad bruising. I’ve read about using baby oil for removal. That does help. I’m a rip it off fast person, but that didn’t work so well.
    • 5 hours, 4 minutes ago
      Patricia Dalrymple likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Try Uni-Solve Adhesive Remover (smith&nephew)- wipe it on wait a minute to let it work and it will come off easy. at least it works great for me and I've tried several different brands, I use it for CGM & Omnipod removal
    • 12 hours, 4 minutes ago
      Sandy Norman likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 19 hours, 30 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      There are several conversations about this across social media. Many people chime in and vote for a new, more accurate name for type 1.. some of the popular alternatives- Pancreatic Autoimmune Disease, Beta Cell Destruction Disease, Autoimmune Diabetes, Autoimmune Insulin Failure, Autoimmune Absolute Insulin Deficiency (AAID)
    • 19 hours, 31 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      The most common comment: but you aren’t heavy. That’s when we get into the differences. A relative tried to tell me that insulin makes you lose weight. But when we last discussed this, one of you said it best: if it isn’t in their circle of experience, why would they know or care?
    • 19 hours, 32 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 21 hours, 44 minutes ago
      Kristi Warmecke likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 1 day ago
      Lee Tincher likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      If I could get a CGM that is consistent and predictable I'd be very happy with the Twiist or the Tandem. The weak point with pumps used to be infusion sites, but now that we are relying on poor performing technology to support potentially great algorithms itis quite frustrating.
    • 1 day, 2 hours ago
      Beckett Nelson likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      My first reaction was Very Satisfied but there is always room for improvement. I’d like a pump design that wasn’t meant to be worn on a belt just for men. To wear a dress, I have to only get those with pockets (and on both sides because opposite sides cause the CGM to lose contact) and put a button whole in each. The clip shows horribly on blouses worn out. I’ve tried the leg attachments and they never stay secure. I’m not big enough to wear it in my bra. All minor inconveniences. I’d like one that doesn’t keep alarming 20 minutes after I’ve eaten, although I get it that it is there to save my life. Again minor. Ask about CGMs (probably tomorrow’s question): lately I’ve had trouble removing the sensor from my arm without actually ripping off a strip of skin or very bad bruising. I’ve read about using baby oil for removal. That does help. I’m a rip it off fast person, but that didn’t work so well.
    • 1 day, 3 hours ago
      John Barbuto likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      I have been using a insulin smart pen for the last 2 years; I find that it meets my current needs to ensure good management and results
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      My first reaction was Very Satisfied but there is always room for improvement. I’d like a pump design that wasn’t meant to be worn on a belt just for men. To wear a dress, I have to only get those with pockets (and on both sides because opposite sides cause the CGM to lose contact) and put a button whole in each. The clip shows horribly on blouses worn out. I’ve tried the leg attachments and they never stay secure. I’m not big enough to wear it in my bra. All minor inconveniences. I’d like one that doesn’t keep alarming 20 minutes after I’ve eaten, although I get it that it is there to save my life. Again minor. Ask about CGMs (probably tomorrow’s question): lately I’ve had trouble removing the sensor from my arm without actually ripping off a strip of skin or very bad bruising. I’ve read about using baby oil for removal. That does help. I’m a rip it off fast person, but that didn’t work so well.
    • 1 day, 4 hours ago
      Gerald Oefelein likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 1 day, 16 hours ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 16 hours ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 1 day, 17 hours ago
      Neha Shah likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 1 day, 21 hours ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 2 days ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      I have, and I do show calcium build up and hardening of the arteries. No action has been taken yet at this time. However, I am taking Repatha for better control of my cholesterol and it has been working great.
    • 2 days ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 2 days ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Thank you. Your write up is concise, cogent, and convincing. 🎀
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    How many nights in the past week has T1D disturbed your sleep?

    Home > LC Polls > How many nights in the past week has T1D disturbed your sleep?
    Previous

    If you wear an insulin pump, do you have a protective case on your pump or PDM?

    Next

    If you wear a CGM and share your alerts with any friends or family, do you ever feel like your followers worry too much or contact you more often than you’d like?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    17 Comments

    1. connie ker

      Do you count getting up to the bathroom related to diabetes. I am a senior and get up at least 1 time during the night, but I always check the number on the Abbott Freestyle Libre at the same time. I correct or eat spice drops if needed. I wake up about the same time every morning and go to bed about the same time every night, so that schedule helps the bio rhythms.

      5 years ago Log in to Reply
      1. Retired and glad

        Wow, spice drops sounds great. I keep several cans of pineapple juice by my bedside but will now seek out the spice drops to keep as well!

        5 years ago Log in to Reply
    2. Alice Zamora

      4

      5 years ago Log in to Reply
    3. William Bennett

      My overnight BG’s are usually pretty stable, but more frequently wake-ups are due to pump or CGM issues. Tore out my Dexcom sensor rolling over in bed, that was one. Nice loud alarm for that. Low-reservoir alarms are another one. Why do they ALWAYS seem to crop up at 3am??? I set those to alert 12 hrs out from empty, which usually gets around the middle-of-the-night problem, but not always.

      5 years ago Log in to Reply
    4. Becky Hertz

      I said 2, but that’sa guess. Usually due to a high. I just take care of it and go back to sleep. So while “impacted” not a white lot.

      5 years ago Log in to Reply
    5. Eve Rabbiner

      Mainly it’s been my Dexcom telling me the signal is lost.

      5 years ago Log in to Reply
    6. Sally Numrich

      Just one. I am in a trial for a new pump and had to set my high limit higher otherwise, the alarms would drive me nuts. So I had one alarm for a low vs my Tandem which is usually none. Now if my high limit was where it usually is,it would have been every night. Big sigh! But I will say, it is taking much longer than I thought to learn me, but last night was perfect and the night before pretty close. And yesterday, first time I was in the 80% in target range!

      1
      5 years ago Log in to Reply
    7. dave hedeen

      you should have prefaced question “wear cgm & are on automode during night”.
      on AM, every night I get a BG or calibration request every 4 hours.

      1
      5 years ago Log in to Reply
    8. Robin Harold

      I hardly ever get a good full night’s sleep because of my pump alarm’s. I have a Medtronic 670G & it either want’s calibrated or a BG. Then if there’s an alarm for a high or low reading for blood sugar it continues to alarm until it get’s back into the normal range.

      5 years ago Log in to Reply
    9. Kristine Warmecke

      Just last night, had a low I had to treat because my Control IQ didn’t get it. Was surprised that I woke up with a normal blood sugar of 90. I usually don’t have any T1D disturb.

      5 years ago Log in to Reply
    10. Sahran Holiday

      Lows

      5 years ago Log in to Reply
    11. Ken Raiche

      Ever since starting the Keto diet my evening CGM alarms are non-existent. Loving it just wondering how my cholesterol numbers are going to change.

      5 years ago Log in to Reply
    12. Nicholas Argento

      Much less than before with T-Slim with Control IQ. I used to get a lot of lows at night, 2 times a week, now 2 times a month. I’m happy!

      5 years ago Log in to Reply
    13. LizB

      Had a couple of pump/CGM alarms for minor lows that I ignored and went back to sleep.

      5 years ago Log in to Reply
    14. Glenda Schuessler

      My CGM has alerted during the night, I don’t consider it disturbing rather a helpful instrument to help me stay in good control.

      5 years ago Log in to Reply
    15. Robby Doyle

      I’m awakened frequently, for the reasons cited by others. I’m switching from Medtronic 670G system to Tandem t:slim X2 with control IQ along with the Dexcom G6 system, for this very reason. I’ve been using a pump for about 22 years now, and have never been more disappointed with the increasing lack of quality control (& technology) by Medtronic. Fingers crossed my experience with Tandem and Dexcom convinces me the many people I’ve spoken to, who all rave about this technology are correct!

      5 years ago Log in to Reply
    16. Carole Ludwig

      Mostly for lows

      5 years ago Log in to Reply

    How many nights in the past week has T1D disturbed your sleep? Cancel reply

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