Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 2 hours, 24 minutes ago
      Sarah Berry likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump
    • 3 hours, 21 minutes ago
      Marty likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      One nice thing about a watch for readings is that, while it is normally redundant, you can be separated from your phone. For example, when you are in water.
    • 3 hours, 28 minutes ago
      Marty likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I use both as you can’t do everything you want in one or the other
    • 4 hours, 27 minutes ago
      Kathy Hanavan likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I selected “other” because my preference (smart watch, mobile phone, or pump screen) depends on circumstances. Watch for a quick and discrete view; pump if I’m preparing for a profile or activity adjustment or bolus, mobile phone if just a food bolus.
    • 4 hours, 31 minutes ago
      John Barbuto likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I use both as you can’t do everything you want in one or the other
    • 5 hours, 34 minutes ago
      Gerald Oefelein likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I use both as you can’t do everything you want in one or the other
    • 5 hours, 35 minutes ago
      Laurie B likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I’m curious about the reasoning behind using a dedicated reader. Could someone please enlighten me?
    • 5 hours, 35 minutes ago
      Laurie B likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I selected “other” because my preference (smart watch, mobile phone, or pump screen) depends on circumstances. Watch for a quick and discrete view; pump if I’m preparing for a profile or activity adjustment or bolus, mobile phone if just a food bolus.
    • 5 hours, 36 minutes ago
      mojoseje likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      For Minimed, the dedicated reader is the pump.
    • 5 hours, 36 minutes ago
      mojoseje likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I chose "dedicated reader". That reader is my pump, a Minimed 780G.
    • 5 hours, 36 minutes ago
      Marthaeg likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I use both as you can’t do everything you want in one or the other
    • 18 hours, 8 minutes ago
      KarenM6 likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Sorry. I'm not sold on AI. I don't trust the people making it. There are too many reasons it could go wrong and be disasterous (just read the above comments). I'm not opposed to computers helping with things such as Control IQ, but when the computer starts doing the thinking, I think we've crossed the line. An aside: I've listened to AI music, and I think it sounds impersonal. It lacks a humanness. I don't find it pleasant to listen to. I've heard horror stories about AI being used by the military, with the end result being nuclear holocaust. I am a hard NO to AI. I gave it a "5".
    • 18 hours, 9 minutes ago
      KarenM6 likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I believe that AI may very well become a great tool - but at this time it still makes too many errors for me to be confident in it.
    • 18 hours, 9 minutes ago
      KarenM6 likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Here's my concern. I've used AI when meeting new clients to take notes of my meetings while I'm talking with the client. Ostensibly, this frees me up from having to jot down notes while talking - allowing me to give my full attention to the conversation. (Very good benefit of AI) Then, when reviewing the notes, AI literally fabricated scenarios that weren't discussed (AI Hallucinations are a very bad side effect). Not knowing when AI will fabricate a fact pattern gives me great concern that AI will fabricate a glucose reading and then act on that hallucination. AI has great potential, but it's not ready yet.
    • 1 day ago
      D-connect likes your comment at
      How well do you understand the details of your health insurance coverage?
      I have an MA in writing and lit, but gobbledegook is gobbledegook. The fancy term is obscurantism.
    • 1 day ago
      D-connect likes your comment at
      How well do you understand the details of your health insurance coverage?
      They change all the time. Generally not in a direction to improve my health, but to increase the money in their wallet.
    • 1 day ago
      D-connect likes your comment at
      How well do you understand the details of your health insurance coverage?
      At the risk of being overly simplistic, it boils down to: "Heads, you lose. Tails, You lose." ╰── ──╮
    • 1 day ago
      Ahh Life likes your comment at
      How well do you understand the details of your health insurance coverage?
      I have an MA in writing and lit, but gobbledegook is gobbledegook. The fancy term is obscurantism.
    • 1 day ago
      Ahh Life likes your comment at
      How well do you understand the details of your health insurance coverage?
      Extremely. I have a certificate in Medical Billing & Coding.
    • 1 day, 4 hours ago
      Kathy Hanavan likes your comment at
      How well do you understand the details of your health insurance coverage?
      "Slightly," I think, maybe. Insurance companies change their policies, constantly. Prescription coverage changes every time I look at it. Medicare is a huge question mark. Honestly, Health insurance has become a big money making business, for them. I get different answers every time I call, depending upon whom I am talking with. I say it's time for socialized medicine.
    • 1 day, 4 hours ago
      atr likes your comment at
      How well do you understand the details of your health insurance coverage?
      At the risk of being overly simplistic, it boils down to: "Heads, you lose. Tails, You lose." ╰── ──╮
    • 1 day, 4 hours ago
      TEH likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      Roughly half my lows are caused by my auto correct system now. I expect AI hallucinations to make it worse. I have enough hallucinations when I'm low and need non-hallucinatory help. We all need more info on this subject to make better decisions. As my favorite 80's AI robot (Johnny 5) said, "Need input."
    • 1 day, 4 hours ago
      TEH likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I'm not comfortable for many reasons: 1) AI hasn't proven respects boundaries, quite the opposite, too many reports of AI tend to view its responsibilities and decisions as NOT mine; 2) the companies behind AI systems do likewise in not respecting my data as mine and jumble it in with their own; 3) AI systems haven't proven themselves as reliable parties regarding data and actions. There are many more; AI systems have a long way to go before I entrust one with dosing strategies while I'm awake, let alone while I'm asleep!
    • 1 day, 4 hours ago
      TEH likes your comment at
      How comfortable are you, on a scale of 1–5, with artificial intelligence (AI) being integrated into your diabetes technology?
      I’ve done a large 2 week focus group through Syracuse University on AI. I’ve also been watching shows on European news about AI and medical issues. AI still has too many glitches when it comes to medical issues.
    • 1 day, 5 hours ago
      TEH likes your comment at
      How well do you understand the details of your health insurance coverage?
      At the risk of being overly simplistic, it boils down to: "Heads, you lose. Tails, You lose." ╰── ──╮
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
        • T1D Care Plans
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Industry Partnerships
      • Academic Partnerships
      • Previous Work
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    How concerned are you right now about affording your next order of T1D supplies?

    Home > LC Polls > How concerned are you right now about affording your next order of T1D supplies?
    Previous

    Do you notice any changes in your blood glucose level patterns in colder weather?

    Next

    How many A1c measurements did you have done in 2023?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

    Related Stories

    " At T1D Exchange, we’re proud to announce our Medical and Research Advisory Team — an accomplished group of leaders in endocrinology, research, and quality improvement. Together, they are redefining what’s possible in type 1 diabetes (T1D) care through rigorous data analysis, innovative research approaches, and real-world implementation. Their collective expertise is central to our mission of improving outcomes for all people living with T1D.  “We’re excited to be working with our advisors given their deep expertise across a broad range of areas in T1D,” said Dave Walton, CEO of T1D Exchange. “Their involvement magnifies our reach, knowledge, and impact. These advisors are shaping the future of diabetes care — driving innovation across research, clinical practice, and quality improvement.”    Meet the Medical & Research Advisory Team  The T1D Exchange Medical and Research Advisory Team brings together four leading endocrinologists, each offering a unique perspective and shared commitment to advancing T1D care:    Jenise Wong, MD, PhD Pediatric endocrinologist at UCSF Benioff Children’s Hospital and Professor of Pediatrics in the Division of Endocrinology at the University of California, San Francisco Focus areas: Diabetes technology adoption and usability; health equity and access to care and technology; community-based and peer-support interventions; culturally responsive care          Jennifer Sherr, MD, PhD Pediatric endocrinologist at Yale Medicine and Professor of Pediatrics in the Division of Endocrinology at Yale School of Medicine in New Haven, Connecticut Focus areas: Clinical trials in diabetes technology (CGM and AID systems), disease-modifying treatments and immunotherapies, and emerging technologies and medications, including continuous ketone monitoring and nasal glucagon     Viral Shah, MD Adult endocrinologist at Indiana University Health and Professor of Medicine in the Division of Endocrinology and Metabolism at Indiana University School of Medicine in Indianapolis, Indiana Focus areas: Diabetes technology and adjunctive therapy trials; translational and data-driven research; T1D complications and bone health         Nestoras Mathioudakis, MD, MHS Adult endocrinologist at Johns Hopkins Medicine and Associate Professor of Medicine at Johns Hopkins University School of Medicine in Baltimore, Maryland Focus areas: AI-driven clinical support tools; EMR-based data analytics for clinical decision making; data-driven quality improvement; health equity in T1D care        This accomplished team’s expertise spans adult and pediatric endocrinology, research, and quality improvement affiliated with leading institutions nationwide. Collectively, they have authored over 500 diabetes publications and secured research funding from organizations such as the National Institutes of Health, Helmsley Charitable Trust, the American Diabetes Association, and Breakthrough T1D — while remaining actively engaged in both clinical care and research.  “These individuals represent an impressive body of work while remaining deeply involved in the day-to-day realities of diabetes care,” said Walton. Their expertise covers the full spectrum of T1D care — from AI and predictive analytics to complication prevention, automated insulin delivery, continuous glucose and ketone monitoring, GLP-1 treatments, health equity, mental health, autoantibody screening, and disease prevention.    Turning insight into impact  The team’s work goes beyond research, focusing on translating insights into real-world practice. By leveraging data to scale best practices, the goal is to drive meaningful, measurable change across clinics and communities.  “Our advisors will help to extend our impact — whether through QI strategy, research innovation, funding opportunities, or new data-driven solutions,” said Walton. “We want to take what’s working at individual centers and spread that as broadly as possible.”   He added, “As a Collaborative, we’re also focused on advanced population health strategies such as exploring predictive data models to identify risks earlier and intervene before complications even begin to happen.”    The power of the T1D Exchange Quality Improvement Collaborative  Central to this work is the T1D Exchange Quality Improvement Collaborative (T1DX-QI) — a nationwide network of clinics working together to improve care through shared data, benchmarking, and evidence-based practices.  “I’m thrilled to serve as a Medical Advisor for T1D Exchange, because I’ve seen firsthand the impact this network can have on patient care,” said Dr. Nestoras Mathioudakis. “T1D Exchange is the premier organization for quality improvement in type 1 diabetes, with unparalleled assets like a large EHR database and robust patient registry.”  He added that he is excited to apply his expertise in EHR research and big data analytics to generate real-world evidence across diagnosis, management, and outcomes.  Dr. Viral Shah echoed that perspective, reflecting on T1DX-QI's evolution: “I have been involved with T1D Exchange since its early days and have had the privilege of witnessing how it has transformed the quality of diabetes care across the United States. I’m delighted to return as a Medical Advisor.”  He emphasized the importance of accelerating impact. “I look forward to working closely with the team to accelerate the evidence generation and to help translate these insights to improve patient care.”   Dr. Jenise Wong highlighted the visible impact of T1DX-QI on the delivery of care. "I’m truly honored and grateful to be working with T1D Exchange as a Medical Advisor. T1DX-QI is a remarkable resource for centers that are using continuous process improvement to improve the quality of care for people living with diabetes.”  “Diabetes centers working with T1DX –QI have done amazing work using QI methodology to make care accessible and equitable for all people with diabetes,” she said. “It’s inspiring to be a part of a collaborative in which centers have been creative and thoughtful with initiatives to address individual and systemic challenges to care, improving clinical outcomes as well as the patient experience."  Looking ahead, Dr. Sherr highlighted the opportunity to build on the existing strong foundation. “I’m very excited to be working as a Medical Advisor for T1D Exchange,” she said. “It’s a privilege to help shape what comes next for a group that’s already doing such impactful work.”  “Sharing what’s happening in clinical practice, benchmarking across centers, and understanding outcomes is how we figure out what’s working, what’s not, and where we go next,” she said.      The future of T1D care   With this team’s vision and expertise, T1D Exchange is positioned to accelerate progress in T1D care — bridging research and real-world practice to drive meaningful, measurable impact.  Together, we look forward to advancing innovation and improving outcomes for everyone affected by type 1 diabetes.   "

    4 days ago  
    Meet the Expert

    Meet the Expert: Improving Diabetes Care Through Precision Medicine 

    Jewels Doskicz, 1 week ago 8 min read  
    Meet the Expert

    Meet the Expert: Bridging Research, Technology, and Real-World Care 

    Jewels Doskicz, 2 weeks ago 9 min read  
    Insulin & Meds

    Ask the Expert: Diana Isaacs on Benefits, Risks, and Real-World Use of GLP-1s in T1D 

    Jewels Doskicz, 2 weeks ago 6 min read  
    Meet the Expert

    Meet the Expert: Advancing Equity, Improving Outcomes, and Reducing the Burden of T1D 

    Jewels Doskicz, 1 month ago 8 min read  
    Our team

    Spotlight on T1DX-QI: Clinical Leadership Committee 

    Jewels Doskicz, 2 months ago 6 min read  

    26 Comments

    1. Kathy Hanavan

      I feel grateful to answer “not concerned”. I have Medicare and a supplement and my OOP expenses are low once my deductible is met.

      1
      2 years ago Log in to Reply
    2. john36m

      I am on Medicare with a Supplemental and Rx policy. I am on the Omnipod 5, which Medicare does not consider to be a pump. So it goes on my pharmacy plan and the co-pay is 20%. That’s a lot.

      2 years ago Log in to Reply
      1. Annie Wall

        I’m surprised you’re not being charged the $35 co-pay for one month of insulin, not 20%.

        2 years ago Log in to Reply
    3. Lyn McQuaid

      I answered “not at all concerned” because, for any month other than January, I have already met my part of our family’s deductible and my pump/CGM supplies are covered 100% but the first orders in January where I haven’t met that $600 deductible yet is expensive.

      2 years ago Log in to Reply
    4. Lindsey Whitnell

      I answered not concerned because I understand the cost, not because the supplies will be budget-friendly necessarily.

      1
      2 years ago Log in to Reply
    5. cynthia jaworski

      I answered “other” because while I am not concerned about my NEXT set of supplies, I remember how insulin pries skyrocketed in the last decade. This week my insurance denied a prescription for Afrezza, saying my diabetes treatment is adequate as it is. As a result, I feel uncomfortable about access to better control. I remember a time when using more than 4 finger-sticks a day was not supported by my insurance company.

      So it is a financial decision: do I simply pay for things out of my own pocket?

      3
      2 years ago Log in to Reply
    6. MT

      My employer offers a high deductible plan and even after the deductible we still pay 20%. The costs are brutal. I spend lots of time searching for coupons to make it more affordable. They are out there but I’m searching for them on my own and it gets a bit time consuming since 90day pharmacy won’t accept coupons so most of my supplies are 30day and I’m getting them refilled monthly in order to stay out of the poor house! So is life!

      2 years ago Log in to Reply
    7. Joan Benedetto

      Fortunately, we have good insurance for our son, and a great supplement. Once we meet our deductible, the supplement covers our cost share.

      2 years ago Log in to Reply
    8. Tom Caesar

      Lets face it treating diabetes is expensive both for supplies and the complications it can bring. Thankfully the government has capped insulin at $35 otherwise the cost is almost $300 monthly. I’ve yet to find a part d plan that’s affordable and has good benefit. But I shouldn’t complain, before Medicare my insurance ran $800 monthly.

      2 years ago Log in to Reply
      1. Anita Stokar

        I know what you mean about not complaining. I am not on medicare yet, but I do worry what my prices for supplies will be once I am on it. Right now, everything for my diabetes supplies except my insulin is paid for 100%, but my monthly premium is a little over $500. That is a pretty penny for me, but luckily I am able to afford that.

        2 years ago Log in to Reply
    9. ConnieT1D62

      Not at all concerned for insulin, pump supplies, and cgm sullies. The insurance company that covers my Medicare Advantage plan doesn’t list Baqsimi on their formulary so I co-pay $90.00 a pop with RX from endo provider. However, a T1D diabetes sister freind who lives in another part of NYS has a Medicare plan that does cover Baqsimi monthly at little co-pay or no cost so she sends me extras from her supply. It pays to have one or two “dia-buddies” in your support network.

      1
      2 years ago Log in to Reply
      1. ConnieT1D62

        Typo alert … cgm supplies, not sullies … I wish we had a widow to correct typos …

        2 years ago Log in to Reply
    10. Ahh Life

      Not to be a Girl Scout expressing outrage over the organization’s commitment to cookies, but . . . I can afford the cookies. I am not as sure about insulin.

      And I am not so sure I can afford this American health care of rickety for-profit, not-for-profit, non-profit, who can get what pound of flesh from whom, sometimes organized / sometimes disorganized health care system? Getting better? Yeah, but. ⛏🛠

      1
      2 years ago Log in to Reply
    11. Kate Kuhn

      I am always concerned that I might have to purchase a sensor if I have to remove one unexpectedly.

      2 years ago Log in to Reply
    12. Mick Martin

      Although I selected “Not at all concerned” I thought I must explain that. I live in the UK (United Kingdom of Great Britain and Northern Ireland) where all of my diabetes supplies are paid for by our NHS (National Health System), which is financed via direct taxation of all working people that earn more than a basic level.

      1
      2 years ago Log in to Reply
    13. Karen DeVeaux

      After 3 years on Medicare including Part B, D, and a supplemental I’ve finally learned that Part D is costing me so I’m disenrolling. I went to pick up a pump and they wanted about $500, because I have Part D but if I didn’t have it they would file it against Part B and be free!

      2 years ago Log in to Reply
      1. Sherrie Johnson

        I would look into that before you let it go because I was told if you don’t have part D you’ll get penalized for it. If you get it again I don’t know more things to look at but my pump and all my supplies go under part B I pay nothing because I have a supplement, Blue Cross anthem plan F

        2 years ago Log in to Reply
    14. Clearblueskynm

      I’m 53, not worried for the next set of supplies, BUT very concerned as each year goes by that Medicare will never get their act together for diabetes care. 65 is not too far away anymore, and the pace of any government change for the good of the people is slow at best.

      2 years ago Log in to Reply
    15. Russell Buckbee

      We responded not concerned, but we are toward the upper income level or those with diabetes, Many are very worried. As a social worker I’ve met many who could not get insulin or supplies. We need universal health insurance and could pay for it by removing all of the complex systems to get care. Why do we need to have “Health Care Advocates” paid full time to help people get health care? NO universal care.

      2
      2 years ago Log in to Reply
    16. Steven Gill

      With no insurance since I retired I paid an average $190-200 for insulin and a CGM (Libre3) through Amazon and GoodRX at Wal-Mart. With that said a week ago ordered a 2nd order through the VA pharmacy. Unsure if this idiot did it right, was counting out the units, test strips, and the last prescription for the CGM when the insulin arrived; just got a notification the rest is enroute.

      With that said I think it’d be foolish never to think about supplies.

      2
      2 years ago Log in to Reply
      1. Joindy23

        If you’re still uninsured-go to the website of the insulin manufacturer that you use OR call them, and they’ll send you a voucher to get insulin for $ 35/month. You must be uninsured & paying cash to qualify. Abbott (Libre) & Dexcom also have reduced prices for the uninsured- call them !

        2 years ago Log in to Reply
    17. John McHenery

      My costs are covered by the UK National Health Service

      2 years ago Log in to Reply
    18. Jeff Balbirnie

      Deadly afraid. Two insurance companies both deliberately denying they are “primary”. Both now refuse to pay for anything even the mandatory stuff.

      2 years ago Log in to Reply
      1. Anita Stokar

        🙁

        2 years ago Log in to Reply
    19. lenglish@cimginc.com

      Not concerned at this time…will be retiring in 3 years and starting to do research on what needs to be done and what the costs will be.

      2 years ago Log in to Reply
    20. Joindy23

      Very concerned because I must get CGM supplies through mail order with a medical supply company. I’ve been using Solara (which is owned by Adapt Health) and they’ve repeatedly overcharged me for supplies. I’m looking for a new supplier- any suggestions ??

      2 years ago Log in to Reply

    How concerned are you right now about affording your next order of T1D supplies? Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]