I believe this is of primary concern to those who acquired diabetes when they lost their pancreas to disease. It’s not something that typically follows T1D (unless the person has lost all or part of their pancreas.)
Unfortunately, not all doctors understand it. The ‘cure’ is to take enzymes with every meal for the rest of your life. But my DH was a rehab hospital when he went back on solid food and after I insisted that enzyme replacement therapy was necessary, the doctor there put him on 6,000 units of pancreatic enzymes once a day. Once we got DH to a GI doctor, we found that the correct dose was 72,000 units with every meal. It’s three capsules with every meal but it keeps him symptom free. I suspect, given the choice, he’d prefer the EPI over T1D any day.
I have not been diagnosed with this but have gastroparesis which explains my sporadic but often very delayed rising in BG after eating.
When I look this condition up on pubmed it is continuing medical education in 2022 and many doctors are not aware of it, and it is often misdiagnosed or not noticed.
I was just diagnosed recently, after an MRI , ultrasound exam and , starting out several months ago, in a stool test that showed a very low level of enzymes. The endocrinologists have been seeking the cause of my IBS for months, if not years, and finally came upon this, after many other exams, tests, diatary changes, etc. I have been using, since it was first suspected over a month ago, an enzyme replacement medication, Creon, taken whenever I eat something. It has certainly improved my IBS, although not eliminated it. Part of the problem may be mine, in taking the medication as prescribed, and eating a better diet. I am still working with the doctors on this.
Have you (or your loved one with T1D) also been diagnosed with Exocrine Pancreatic Insufficiency/Pancreatic Exocrine Insufficiency (EPI/PEI)? Cancel reply
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Ignorance is bliss.
So naturally I go to Google. Unfortunately, Google has decided to improve search by going to Power Point pictures readable by 4-year olds for rather complex subjects. I firmly believe that Power Point will be the death of civilization. And I am holding Bill Gates personally responsible.
A better explanation is: https://www.medicalnewstoday.com/articles/exocrine-pancreatic-insufficiency-diabetes-link#summary