Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 3 hours, 35 minutes ago
      KarenM6 likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Moderately. My doctor and pharmacy are awesome, my insurance and durable medical equipment supplier, not so much. The excessive red tape of paper to get DME supplies shipped is almost always a nightmare!
    • 3 hours, 41 minutes ago
      KarenM6 likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Run, don’t walk from Edgepark! Read my response to Nevin Bowman above! (Hint: the company I was referring to in that post was Edgepark)
    • 3 hours, 41 minutes ago
      KarenM6 likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I once had a supplier withhold old pump supplies while refusing to ship the order for a new pump and I was on a 3-way call with insurance and got to listen to DME lie directly to Insurance about it and then I had the pleasure of interjecting and getting to call them a liar! I would have been more vindicated if it actually accomplished anything, but after I finally got my shipment I fired that DME and never looked back. The red tape that insurance insists on for DME is excessive for chronically ill patients!
    • 3 hours, 50 minutes ago
      kristina blake likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      After doing this weighing and measurements you get pretty good at estimating
    • 5 hours, 11 minutes ago
      Patricia Dalrymple likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    • 6 hours, 22 minutes ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      Been doing it for so long it's mostly estimation at this point. Every once in a while at home I'll measure out exact portions of rice, pasta, etc to remind myself just how SMALL portions should be as I tend to let them get a little bigger over time. (wishful thinking) Very helpful to have that image in mind at restaurants where portions tend to be way larger than a single serving.
    • 6 hours, 22 minutes ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      Yes, for me never weighing or measuring but actively using the Calorie King book and app for several years I have most things memorized or I can make a decent assessment.
    • 6 hours, 22 minutes ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      After doing this weighing and measurements you get pretty good at estimating
    • 6 hours, 22 minutes ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    • 7 hours, 17 minutes ago
      Lawrence S. likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    • 7 hours, 57 minutes ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Well, since I'm waiting on pump supplies for 2 months now, my confidence is slipping.
    • 7 hours, 57 minutes ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I am confident about access to my medical needs in the immediate future. I am not a fortune teller and have no idea what my access to medical supplies will be like in a year or longer. I don't take my spoiled lifestyle for granted.
    • 7 hours, 57 minutes ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I've often said that "hoarding": is a character asset for T1D people. I try to purchase (paying out of pocket) a 60-90 day supply - just in case). I have a new health plan,. effective 1/1/26. AS we know, getting an appt with an HCP isn't easy. They have to be accepting new patients, they have to be in network etc. Once I knew what my new policy would be (nov 2025) I made an appt. The earliest appt I could get was in Sept 2026. Thank goodness for my stash of device supplies. I had to go to Urgent care to get an Rx for insulin (my old HMO plan "doesn't do bridge refills"). So yeah, I worry, and plan for hiccups in the supplies process.
    • 8 hours, 4 minutes ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I am worried about the changes to Medicare making no provision for getting an immediate replacement if a pump fails. It sounds like we will have to get these from the suppliers instead of a warranty replacement from Tandem themselves (or whatever brand you use). Pumps will be rented and will have to be returned so they can verify the problem before replacing them, which is ridiculous. Meanwhile, Medicare would not pay for us to get long acting insulin as a temporary replacement for the basal.
    • 8 hours, 10 minutes ago
      Amanda Barras likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      After doing this weighing and measurements you get pretty good at estimating
    • 8 hours, 14 minutes ago
      Derek West likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    • 10 hours, 47 minutes ago
      Ahh Life likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      So far since Jan 1, ‘26, I’ve spent nearly 30 hours on the phone battling and trying to get Medicare covered diabetes supplies. Called 5 different suppliers t get what I need to use my pump.
    • 10 hours, 48 minutes ago
      Ahh Life likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      You are too modest. That hurdle is on fire and you have to juggle chainsaws as you jump over it. Congratulations and good luck making it over the next one in 90 days.
    • 1 day ago
      KarenM6 likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 1 day, 2 hours ago
      Kristi Warmecke likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Well, since I'm waiting on pump supplies for 2 months now, my confidence is slipping.
    • 1 day, 2 hours ago
      Laurie B likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I've often said that "hoarding": is a character asset for T1D people. I try to purchase (paying out of pocket) a 60-90 day supply - just in case). I have a new health plan,. effective 1/1/26. AS we know, getting an appt with an HCP isn't easy. They have to be accepting new patients, they have to be in network etc. Once I knew what my new policy would be (nov 2025) I made an appt. The earliest appt I could get was in Sept 2026. Thank goodness for my stash of device supplies. I had to go to Urgent care to get an Rx for insulin (my old HMO plan "doesn't do bridge refills"). So yeah, I worry, and plan for hiccups in the supplies process.
    • 1 day, 2 hours ago
      Kristi Warmecke likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I answered slightly. I'm absolutely certain supplies and medication will be available. However, I'm doubtful they will be affordable. If I can't afford them, I can't access them.
    • 1 day, 3 hours ago
      Lawrence S. likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I am confident about access to my medical needs in the immediate future. I am not a fortune teller and have no idea what my access to medical supplies will be like in a year or longer. I don't take my spoiled lifestyle for granted.
    • 1 day, 3 hours ago
      Lawrence S. likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I've often said that "hoarding": is a character asset for T1D people. I try to purchase (paying out of pocket) a 60-90 day supply - just in case). I have a new health plan,. effective 1/1/26. AS we know, getting an appt with an HCP isn't easy. They have to be accepting new patients, they have to be in network etc. Once I knew what my new policy would be (nov 2025) I made an appt. The earliest appt I could get was in Sept 2026. Thank goodness for my stash of device supplies. I had to go to Urgent care to get an Rx for insulin (my old HMO plan "doesn't do bridge refills"). So yeah, I worry, and plan for hiccups in the supplies process.
    • 1 day, 3 hours ago
      Lawrence S. likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I answered slightly. I'm absolutely certain supplies and medication will be available. However, I'm doubtful they will be affordable. If I can't afford them, I can't access them.
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
        • T1D Care Plans
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Industry Partnerships
      • Academic Partnerships
      • Previous Work
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    Has your insulin ever frozen? Tell us how you handled it in the comments!

    Home > LC Polls > Has your insulin ever frozen? Tell us how you handled it in the comments!
    Previous

    With COVID-19 rates at an all-time high across the country, are you or your loved ones with T1D doing any of the following for your holiday gatherings? Select all that apply.

    Next

    How many times in 2020 did you have an appointment with a certified diabetes educator (CDE)?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

    Related Stories

    News

    What’s Keeping Glucagon Out of Reach for Many with T1D? 

    Jewels Doskicz, 2 days ago 6 min read  
    News

    Thinking About Type 1 Diabetes Autoantibody Screening? Here’s What to Consider 

    Jewels Doskicz, 1 week ago 9 min read  
    2025 Learning Session

    T1DX-QI 2025 November Learning Session Abstracts 

    QI Team at T1D Exchange, 2 weeks ago 1 min read  
    Advocacy

    The Language of Type 1 Diabetes: Why Words Matter 

    Jewels Doskicz, 2 weeks ago 6 min read  
    News

    Understanding Time in Range, GMI, and A1C in Type 1 Diabetes 

    Jewels Doskicz, 3 weeks ago 4 min read  
    News

    Out of Insulin? Expert Tips from Diana Isaacs, PharmD 

    Jewels Doskicz, 4 weeks ago 9 min read  

    15 Comments

    1. Shannon Barnaby

      In a hotel room refrigerator. I threw it away.

      5 years ago Log in to Reply
    2. Lawrence Stearns

      Tried using it. Blood sugars went out of control. Threw out the remainder.

      5 years ago Log in to Reply
    3. connie ker

      Mail order pharmacies pack insulin in frozen plastic bags to keep it cold, but in winter time that is concerning, but it has never arrived frozen.

      5 years ago Log in to Reply
    4. James Dexter

      I was winter camping and the insulin softpac and 2 vials of insulin liquid froze solid during the night. In the morning I warmed them with body heat and subsequently used them with no ill effects and no apparent change in effectiveness.

      5 years ago Log in to Reply
    5. Eve Rabbiner

      Almost – from a motel in-room fridge. Now I use the fridge to freeze my own ice packs and keep the insulin in an insulated case.

      5 years ago Log in to Reply
    6. Mark Fuller

      I let it thaw back to room temperature. I used it going forward with no issues.

      5 years ago Log in to Reply
    7. carl adams

      The tube on my pump froze and snapped off once.

      5 years ago Log in to Reply
    8. Maureen Helinski

      My husband put a new bottle in the freezer instead of frige. I thawed it out and used it a while.

      5 years ago Log in to Reply
    9. Dennis Dacey

      On a skiing trip, left a imal derivative NPH insulin in luggage in vehicle. It frozen almost solid. Tucked it in armpit until thawed and didn’t have any ill effects.

      5 years ago Log in to Reply
    10. Megen Blackburn

      My insulin froze on a business trip after I placed it in the refrigerator in my hotel room. I was so worried that I ruined it that I went to CVS and paid out of pocket for a whole new bottle.

      5 years ago Log in to Reply
    11. Mara Pentlarge

      I was winter camping and never thought about the possibility of my insulin freezing. When it did, I freaked out, thought about hiking out by myself, then thought better of that idea. I spent the next 24 hours being scared and not eating much carbohydrate. Lots of frozen cheese, vegetable soup before they added pasta, etc.

      5 years ago Log in to Reply
    12. George Lovelace

      I used to Order my Apidra from a Pharmacy in Canada and I’m in Texas. They didn’t “Cold Pack” the shipments so I would try to order after they were coming out of their ‘frozen temps’ but before my temps were going into the 80’s. Not sure it was frozen but the Apidra was almost as solid as a jelly. They replaced it

      5 years ago Log in to Reply
    13. KarenM6

      Never had it freeze like an ice cube. But, I’ve had situations where the refrigerator (small hotel ones) were too cold and I had to replace the ruined vials. The first time it happened, I learned not to trust hotels’ small refrigerators and started testing them with a glass of water. If the water froze, then I was able to tell if the dial was set too high and either get a new frig or reset the dial. The second time it happened, I don’t remember how my “fix” failed… but it did and I had to get another vial. Then, I was in a situation for months where I couldn’t control the refrigerator temp and just hoped for 5 or so months that all would be well. I made it through, sooo… musta been ok or not bad enough to really kill the insulin. These days I have the cooling devices when I travel so that refrigerators aren’t as necessary. And, well, covid put a stop to traveling, too.

      5 years ago Log in to Reply
    14. Lizzi Skywalker

      I was about 10 or 11 when my family and I went on vacation to the wisconsin dells – The Great Wolf Lodge – when we got to the room that we were staying in, I unpacked my insulin and not knowing that the little box in the fridge up top was the freezer section. (Never stayed in a hotel or anything of that sort before) at lunch time time when my insulin was due I got it out of the fridge [freezer] my humalog was frozen. Almost like a slushie consistency. I freaked and stated crying. After I pulled myself together, I realized all I really could do was let it thaw out and hope that it still works. Fortunately it did still work! 🙂 Never put my insulin near the freezer part of the fridge EVER again.

      5 years ago Log in to Reply
    15. Leona Hanson

      We moved to Gunnison on the worst winter they had gotten in years and my insulin froze sitting on the table I ended up throwing it away and asking churches for help to get more insulin they were very nice they knew how cold it was and we lived in a fifth wheel not much money for alot of propane so not much heat so ended up putting the insulin in my clothes so it wouldn’t freeze again

      5 years ago Log in to Reply

    Has your insulin ever frozen? Tell us how you handled it in the comments! Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]