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    • 11 hours, 46 minutes ago
      TEH likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      People keep sending me articles with headlines that suggest stem cell transplants “cure” diabetes. However, as mentioned above, a lifetime on immunosuppressive drugs carries its own risks that are probably worse than the risks of well-controlled diabetes. They’ll figure out a way to hide these engineered beta cells from our immune systems someday. I might be willing to call it a “cure” when that happens, although I’ll probably to too old to benefit by then.
    • 11 hours, 46 minutes ago
      TEH likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      I am aware that cell therapies are being researched. This may be a panacea in the future. But, for me, red flags are waving. There are many possible dangers with these experiments. I only have this one life. There are no do-overs if something goes wrong, or if there are side effects. So, I tread carefully. Even with all the health issue that I have, I enjoy the one life that I have.
    • 13 hours, 28 minutes ago
      Janis Senungetuk likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      Taking immunosuppressive drugs creates a whole other risk factor.
    • 14 hours, 37 minutes ago
      Amanda Barras likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      Taking immunosuppressive drugs creates a whole other risk factor.
    • 14 hours, 46 minutes ago
      René Wagner likes your comment at
      If you or your spouse live with T1D and are thinking about having a baby, how concerned are you about them carrying T1D autoantibodies?
      I decided not to have kids when I was young enough to do so. I was too worried I may pass it to them, or their children.
    • 15 hours, 34 minutes ago
      Marty likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      Taking immunosuppressive drugs creates a whole other risk factor.
    • 17 hours, 31 minutes ago
      Lawrence S. likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      Taking immunosuppressive drugs creates a whole other risk factor.
    • 17 hours, 31 minutes ago
      Lawrence S. likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      I follow diabetic research rather meticulously. Most advancements are top-notch. But please take note of the risks and warnings. My spouse, on an entirely different issue (lower lumbar pain) injected umbilical stem cells one ago and has had intense headaches ever since.
    • 18 hours, 11 minutes ago
      KCR likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      Taking immunosuppressive drugs creates a whole other risk factor.
    • 18 hours, 45 minutes ago
      mojoseje likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      Taking immunosuppressive drugs creates a whole other risk factor.
    • 19 hours ago
      Gary R. likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      Taking immunosuppressive drugs creates a whole other risk factor.
    • 1 day, 12 hours ago
      Amanda Barras likes your comment at
      If you or your spouse live with T1D and are thinking about having a baby, how concerned are you about them carrying T1D autoantibodies?
      I had two healthy pregnancies. The only issues were low blood sugars and my babies being born early other than that they are 38 and 35 years old, healthy children.
    • 1 day, 17 hours ago
      Lawrence S. likes your comment at
      When you bolus for a meal, do you usually estimate carbs, use an app, or the nutrition label? Please share your habits in the comments.
      I use them all. I use an app when I’m eating out. I use labels when at home. If not on the app I estimate.
    • 1 day, 17 hours ago
      Lawrence S. likes your comment at
      When you bolus for a meal, do you usually estimate carbs, use an app, or the nutrition label? Please share your habits in the comments.
      I generally do a very rough guess of carbs and correct if needed by adding more insulin for an also rough guess for effect of fat and protein later. My alert is set at 130 to remind me so I don’t get too high. I watch arrows a lot. I have had individual sensors lately that are not accurate. This can throw me off, where the sensor reading will be going up fast at say 180 and I will test my blood and it is 130. Sometimes I will have already corrected for the 180. This can cause a very rough day having to feed the insulin. I am hoping sensors will continue to get more accurate. So much depends on it especially with the algorithm. I usually don’t wait for my algorithm to correct because it will let my bg get too high. I know I’m supposed to let the algorithm do its thing but my goals are more strict. I am on G7 and Omnipod 5. I would like to be able to set my target at 100.
    • 1 day, 17 hours ago
      Lawrence S. likes your comment at
      When you bolus for a meal, do you usually estimate carbs, use an app, or the nutrition label? Please share your habits in the comments.
      I should have clicked the fourth option. I use the labels if available. If not, I estimate.
    • 1 day, 17 hours ago
      atr likes your comment at
      If you or your spouse live with T1D and are thinking about having a baby, how concerned are you about them carrying T1D autoantibodies?
      We knew the risk was 50%. My wife miscarried 4x. We ended up with three great sons, only 1 has T1D. His eldest daughter (of 2) also has T1D.
    • 1 day, 17 hours ago
      atr likes your comment at
      If you or your spouse live with T1D and are thinking about having a baby, how concerned are you about them carrying T1D autoantibodies?
      47 years ago i had my pregnancies and didnt hear about her carrying T1D antibodies but i did have concerns about my child having diabetes. When she was about 12 there was a study to see her chance of developing diabetes ,this blood test was negative. 2 of my grandchildren have been tested and were negative . At the time of my pregnancies i had diabetes for 10 years
    • 2 days, 6 hours ago
      Watertail likes your comment at
      When people talk about diabetes, are there trigger words that bother you? Please share what they are in the comments.
      oh and this one...... when I see a new doctor they say... "let's get some blood work to see if you have diabetes" and I ask them... did you even read my intake forms that say I have had T1 D for over 40 years? ughhhhhh
    • 2 days, 6 hours ago
      Janis Senungetuk likes your comment at
      When you bolus for a meal, do you usually estimate carbs, use an app, or the nutrition label? Please share your habits in the comments.
      I use the nutrition labels as a starting point. For home made foods or for restaurant meals, my wife who was a nutritionist, helps come up with a carb estimate. Then there are times that I just have to take a wild ass guess. I have collected a list of over a hundred common foods that I eat and I keep that keep that list in a notes app on my phone right next to my T-slim app. I often check the nutrition labels for things on my list to see if the recommended carb levels for that item have changed. Then I adjust my list as needed. I also check my BG response to listed carbs I eat. I have adjusted some items over time. So, I would call this approach a hybrid. As Daniel Bestvater notes above, we are only controlling one item out of 6. Your mileage may vary.
    • 2 days, 6 hours ago
      Watertail likes your comment at
      When people talk about diabetes, are there trigger words that bother you? Please share what they are in the comments.
      Not really trigger words as much as not understanding or even aware of the difference between Type 1 and Type 2.
    • 2 days, 6 hours ago
      Watertail likes your comment at
      When people talk about diabetes, are there trigger words that bother you? Please share what they are in the comments.
      And it's especially frustrating when HCP's ask about "checking your sugars? Be a professional dammit, ask about my "blood glucose"
    • 2 days, 6 hours ago
      Janis Senungetuk likes your comment at
      When you bolus for a meal, do you usually estimate carbs, use an app, or the nutrition label? Please share your habits in the comments.
      I count carbs, acc. To Mabel if I have, look up nutrition for items, and estimate if needed. Used to always cook myself till this yr, now in apt where food is provided, so now looking up a lot to estimate. Going pretty well
    • 2 days, 6 hours ago
      Janis Senungetuk likes your comment at
      When you bolus for a meal, do you usually estimate carbs, use an app, or the nutrition label? Please share your habits in the comments.
      Years ago I used to calculate out carbs with a scale & book. Then I realized it didn’t seem to make a huge difference. I had many discussions with an endocrinologist friend about this topic and we both found that highly accurate carb counting didn’t seem to make much difference. As long as you are in the ballpark. I think we need to realize the pancreas produces at least 6 BG regulator hormones and we are only injecting one, insulin. So we need to do our best but not stress over it. This is at least why 2 identical meals can result in two different BG levels.
    • 2 days, 6 hours ago
      Janis Senungetuk likes your comment at
      When you bolus for a meal, do you usually estimate carbs, use an app, or the nutrition label? Please share your habits in the comments.
      It depends on the situation. At home I calculate carbohydrate with my scale. At restaurants it depends on if they have nutritional information available. If they don't have it, I estimate. The same with eating with other people's houses even while using my scale.
    • 2 days, 9 hours ago
      AmyM likes your comment at
      When you bolus for a meal, do you usually estimate carbs, use an app, or the nutrition label? Please share your habits in the comments.
      If I have a label I use it. Mostly I guesstimate then use the info the next time I eat the same meal. I am a big eater with no weight problem. When I go out, usually 2-3 times per week, I have to put in 90 grams of carbs, then add if not enough because I will go low before I go high. The other times, when eating at home, I eat less. Exercise is key. I just got back from 3 trips in 6 weeks. To Sicily, Boothbay Harbor, Maine, and to visit family in Baltimore. Only in Baltimore did I have issues with BG, because I wasn’t walking as much, although I did walk 1.5 miles most days. A1C when got home was 6.3. Time in range about 75%, down from usual 85%. I’ll take that. Not traveling for another year probably and will get back on track.
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    For people with T1D who have received at least one dose of a COVID-19 vaccine: Did you have any of the following side effects? Select all that apply to you.

    Home > LC Polls > For people with T1D who have received at least one dose of a COVID-19 vaccine: Did you have any of the following side effects? Select all that apply to you.
    Previous

    Do you most often bolus before, during or after you eat a meal?

    Next

    On a scale of 1-5, how important do you think it is for the T1D community to push back against diabetes jokes made on TV/in movies? 1 = least important, 5 = most important

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    34 Comments

    1. Nicholas Argento

      None of the side effects reported are anything close to serious. Even the strokes that have been reported POSSIBLY brought on by J+J vaccine are a fraction of the rate of the same strokes that are caused by getting COVID: https://outlook.live.com/mail/deleteditems/id/AQMkADAwATIwMTAwAC0wMABhZi0xZDVlLTAwAi0wMAoARgAAA6k6opS94qROrcnoppn%2BXC4HAClRetMOAfNPiialMxGidh8AAAIBCgAAAClRetMOAfNPiialMxGidh8ABDge8CoAAAA%3D
      . COVID has killed more than 550,000 Americans. I hope as many as possible get vaccinated as soon as they can. You owe it to yourself, your community, and the medical people who have to try and save the COVID sick from death and disability.
      There is simply no comparison, none, to any identified risk of vaccines and the freaking horror show COVID has been for the US, and the world.
      And don’t say, oh, most people don’t get sick, or mild, this is exaggerated, etc.
      No reasonable person said that about polio, which killed and crippled thousands each year in the 1950’s, until we have eliminated in the US with vaccination that nearly everyone gets . COVID is the same kind of foe.

      2
      4 years ago Log in to Reply
    2. Thomas Cline

      I only had significant arm soreness on the second shot, but other than an expected rise in insulin resistance (again only on the second shot — Moderna) I did have a couple of trivial but truly bizarre cognitive glitches a day after the second shot — the kind of glitches I’ve seen in the past only when I force (with drugs) a rapid (1 day) large (8 hr) shift in my sleep/wake biological clock. Nothing serious at all, but very curious given that Covid infection itself can affect cognitive functioning.

      4 years ago Log in to Reply
    3. Jeffrey Joseph

      Runny nose, little achy, that’s about it.

      4 years ago Log in to Reply
    4. Patricia Dalrymple

      I agree with Nicholas. But everyone has to make their own decisions. I’ve had both. Until I hear that 550000 people have died from the vaccine, my opinion will not change. I am not about to expose my sister-in-law who has MS and Lupus or my 88-year young father to any risk from COVID because of fear for myself. I might as well die anyway because I couldn’t live with myself if something happened to them, caused by me.

      2
      4 years ago Log in to Reply
    5. Annie Wall

      I had the Moderna. “Tiredness” does not begin to describe the utter exhaustion plus fever on day 2. However, having symptoms like this for one day is well worth the risk of getting covid. I feel such a sense of relief now and still wear a mask and am as mindful as ever of keeping social distance when I’m possibly not with others who have been vaccinated.

      1
      4 years ago Log in to Reply
    6. connie ker

      Just a sore arm with tiredness for shot #1. 2nd injection brought on additional side effects of chills, fever, headache, muscle aches, along with the tiredness. Everything ended when I woke up in damp PJs, and felt better. So the fever ended in sweats and this was on the morning of day #3. I still could eat and took insulin by the numbers on the meter, so don’t know about the effects on blood sugars, probably some.

      4 years ago Log in to Reply
    7. Mary Coleman

      I had no symptoms with Moderna first shot but second shot laid me flat for 36 hours. Exhaustion, nausea, chills, body aches, sore arm, 300+ stubborn blood sugars despite copious amounts of insulin, knew I wouldn’t die but wanted to. And then, bam, it was over. Did not enjoy the side effects but would do it again to get the protection of the vaccine.

      1
      4 years ago Log in to Reply
    8. Richard Vaughn

      My wife and I had much chest pain for several days. Mine was so bad that I thought it might be my heart. I went to the ER and they could not find anything wrong with my heart. Everything was ok a few days later.

      4 years ago Log in to Reply
    9. casey shane

      First dose: April 4. Pfizer. No change in bg’s. No flu like symptoms no arm soreness just 2 monster migraines april 6 and 7th. But I don’t really think I can attribute the
      Migraines to the vaccine as I have been getting migraines for 35 years. Everything is status quo I expect the same in a few weeks after the boost.

      1
      4 years ago Log in to Reply
      1. Daniel Bestvater

        Extreme exhaustion, very high fever and nausea for about 72 hours then gradually improved over the next 48 hours. I’ve worked in healthcare for 35 years so the thought is I may have been exposed to a similar virus in the past, setting off a powerful immune response.

        4 years ago Log in to Reply
    10. Lawrence Stearns

      2020 was a terrible health year for me. I had pain in one lung all year, wheezing, coughing, shortness of breath, exhaustion. Got tested for Covid 19, came back “not detected.” The next day after the first Moderna shot, my lungs cleared up, the pain subsided, overall felt better. That lasted one week, then the symptoms came back. Ten days after the second Moderna shot, all of the symptoms I had over the past year went away. I thought I was dying, and now I am functioning about the same I was prior to March 2020. Thank goodness for the vaccine!

      3
      4 years ago Log in to Reply
    11. Thomas Hatton

      I had no symptoms with the first shot. The day after the second shot, I felt tired, “blah”, a little achy, and a little chilled. The second day after my second shot, I felt good as new! Remarkably better.

      1
      4 years ago Log in to Reply
    12. andrykenn

      Moderna, 2nd dose: very achy, but no fever. Subsided with ibuprofen. Gone within a day.

      4 years ago Log in to Reply
    13. Lisa Shandalov

      I have had 2 shots of Moderna. After both, I had achiness at the injection site; but after the 2nd shot, I felt headachey and very tired, and sore all over. I also noticed an otherwise inexplicable spike in my blood sugars at that time. I’m so grateful to have been vaccinated somewhat early, because I work for an elementary school! (A tier before those with serious health conditions in my state). That is WRONG—both groups should have been in the same early tier….

      4 years ago Log in to Reply
    14. Tb-well

      I have had both of the modern a vaccinations. The initial vaccination led to arm soreness and generalized muscle aches for a day afterwards.

      The second vaccination led to more arm soreness, brain fog, chills and feeling generally run down for about a day afterwards. By the second day, the symptoms were 95% gone leaving me with only a sore arm.

      4 years ago Log in to Reply
    15. George Lovelace

      Both Pfizer injections caused minor pain at injection site and some muscle soreness that basically told me “it’s working” No other effects

      2
      4 years ago Log in to Reply
    16. Scott Doerner

      But… I get the 2nd one tomorrow. Moderna
      I hope no side effects

      4 years ago Log in to Reply
    17. Carol Meares

      Also joint pain the 2nd day for about 3-4 days. I normally have some osteo-arthritic joint pain but it increased. Back to normal now. I am thrilled to be vaccinated! TY Moderna:)

      4 years ago Log in to Reply
    18. Glenda Schuessler

      Moderna vaccine x two. I experienced a sore arm with #1, chills overnight following #2. I am very thankful to have received the vaccine!

      1
      4 years ago Log in to Reply
    19. Sue Herflicker

      Had both Pfizer vaccines. #1 had sore arm but felt fine #2 Very sore arm and rosy red facial cheeks for 2 days that felt hot but no fever. Felt great other than that and blood sugars were fine!! I too am grateful to be vaccinated!!

      4 years ago Log in to Reply
    20. Marie Cardinell-Daldry

      I was part of the Pfizer study. I did well with the first dose. When I received the second dose I just started with arm pain. but by late that evening I became very disoriented and confused. My husband is not a worrier but he was so uneasy he called an ambulance and I was admitted to the hospital. He always takes pride in my mental abilities but I was acting very much out of character. My Covid tests were repeated although I had one that morning and it was still negative. A Cat scan was done to rule out a stroke. There was no brain damage. The physician wanted me admitted but after 13 hours of being poked and prodded I signed myself out. Gradually over the next several days my mental abilities improved. I still have a lot of joint pain but I can function. I reported everything to the FDA and CDC. I also reported everything to The Pfizer center which did my vaccinations. My blood sugars were also erratic on the day of immunization and remained that way for about 2 weeks. Everything now seems to have calmed down.

      4 years ago Log in to Reply
    21. Mitch Chernoff

      I found it interesting that my blood sugar levels were consistently far higher than normal the day after my second COVID shot (Moderna). I didn’t really feel sick that day, just a little bit not myself, but the persistent high blood sugar underlined something atypical was underway.
      Everything returned to normal the next day.

      4 years ago Log in to Reply
    22. Bill Williams

      I’ve had 2 Moderna doses. First one, nothing. Second one, soreness (but not pain, redness or swelling) at the injection site that evening. Nothing the following morning.

      4 years ago Log in to Reply
    23. Lucia Maya

      My first dose of Pfizer, just a very sore arm. Second dose I didn’t feel well the next day – spacey, foggy, achy, spent the day on the couch, but once I ate dinner I felt totally fine and have since! Very grateful to have had it.

      1
      4 years ago Log in to Reply
    24. Ken Raiche

      I had my first shot of AstraZeneca exactly 1 week ago at 11:10am, I seem to be the only one here having received that type. Anyways I’m not sure if this had anything to do with being on Keto and fasting at the time of the vaccination but I had some symptoms approximately 6 or so hours later. First was aches which persisted as well fatigue and then chills these all seem to happen after eating my first meal. Couldn’t fall asleep due to the aches so at 2:30am I took my first advil gel. Then next day had some stomach issues nausea everything finally came to a end after approximately 36 hours. I guess my body was creating antibodies for fighting off this damn virus.

      4 years ago Log in to Reply
    25. William Schaffer

      No symptoms. Wondering how much of an immune reaction I got and if the vaccine worked.

      4 years ago Log in to Reply
    26. Amy Schneider

      Beyond nausea, the 2nd shot made me vomit. One bad session and then a week of fatigue.

      4 years ago Log in to Reply
    27. Leona Hanson

      I haven’t had the covid-19 shot because the doctor is doing research on the amount of white blood cells it creates and my rh-blood does not let the white blood cells attach to red blood cells. He believes that if I have to many white blood cells it may make me sicker. I’ve already had surgerys for infections what caused them we don’t know except it’s common for rh-blood. I’m always sick.

      4 years ago Log in to Reply
    28. Julie Nalibov

      About 11 hours after second dose of Moderna, I got chills and nausea. I wasn’t eating and blood sugar was normal. Then the following afternoon I ate an overly starchy meal (pasta) and, despite bolusing for all the carbs, my blood sugar soared within a few hours to over 500 (!) and I had moderate ketones. First time that’s happened since I was diagnosed with diabetes 54 years ago. I changed tubing, insulin, pump infusion site, etc. and drank nearly a gallon of water. I stayed up nearly all night doing obsessive finger sticks because CGM couldn’t even measure blood sugar readings that high and I was terrified of DKA, The correction boluses more than DOUBLED my normal daily insulin rate. Following morning, I woke up with blood sugar at 84 and then it dropped lower. Fortunately, it was only for a day with a few odd spikes over next 5 days or so. I am a volunteer at vaccination sites and have suggested to the 100s of T2 Diabetics I encounter to please pay attention to blood sugar and drink plenty of fluids. I myself, was not expecting this reaction and a twofold increase in insulin dose can’t be explained away as coincidence given my lifetime of experience with diabetes and good control. Glad I had some unexpired ketone sticks (first use in decades!).

      1
      4 years ago Log in to Reply
    29. LizB

      I’ve had both shots of Pfizer and had no side effects from either dose.

      4 years ago Log in to Reply
    30. Kristine Warmecke

      Just slight pain after my first one in January. After my second one on February 3, I had the same slight pain at the injection site, then the following morning I woke with a low grade fever (100.5 if I remember correctly) body aches & a headache. It lasted less than 36 hours. Just a normal response to a vaccine, thank heavens.

      1
      4 years ago Log in to Reply
      1. Kristine Warmecke

        I received Pfizer vaccine.

        4 years ago Log in to Reply
    31. ConnieT1D62

      Got Moderna vaccinated in January and February 2021. A little arm soreness at injection site after vaccine #1; 24 hours after #2 I felt wipe-out fatigued and achy all over, elevated BGs in the 200-300 range, and a low grade fever for two days. Then it all cleared and I was fine.

      1
      4 years ago Log in to Reply
    32. Bonnie Lundblom

      I got the Moderna Covid vaccine, with the 2nd shot I developed “Covid arm” with my arm being intensely itchy, rash from shoulder to elbow, mild redness and swelling around the injection site. I spent some time looking for information regarding this and found a few article that termed it “Covid arm’. I took Benadryl at bedtime for 3 nights and tried to ignore it the best I could during the day. They gave both doses in the same arm and when I’m due for the booster that everyone thinks will be needed yearly I’m going to alternate arms each time!

      4 years ago Log in to Reply

    For people with T1D who have received at least one dose of a COVID-19 vaccine: Did you have any of the following side effects? Select all that apply to you. Cancel reply

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