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    • 21 minutes ago
      Ahh Life likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      Unmarked non-sequential bills under the table is preferred. Cash plus free insulin or CGMs would be fine too. Eversense is really missing out on an opportunity by not partnering with trials to offer a free E365 and insertion to get people to try their device.
    • 1 day, 11 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 11 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 11 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 11 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 14 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 17 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 18 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 19 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 19 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 20 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 20 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 12 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 12 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 14 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 14 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 16 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 17 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 17 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 19 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 19 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    For people with T1D who have received at least one dose of a COVID-19 vaccine: Did you have any of the following side effects? Select all that apply to you.

    Home > LC Polls > For people with T1D who have received at least one dose of a COVID-19 vaccine: Did you have any of the following side effects? Select all that apply to you.
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    On a scale of 1-5, how important do you think it is for the T1D community to push back against diabetes jokes made on TV/in movies? 1 = least important, 5 = most important

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    34 Comments

    1. Nicholas Argento

      None of the side effects reported are anything close to serious. Even the strokes that have been reported POSSIBLY brought on by J+J vaccine are a fraction of the rate of the same strokes that are caused by getting COVID: https://outlook.live.com/mail/deleteditems/id/AQMkADAwATIwMTAwAC0wMABhZi0xZDVlLTAwAi0wMAoARgAAA6k6opS94qROrcnoppn%2BXC4HAClRetMOAfNPiialMxGidh8AAAIBCgAAAClRetMOAfNPiialMxGidh8ABDge8CoAAAA%3D
      . COVID has killed more than 550,000 Americans. I hope as many as possible get vaccinated as soon as they can. You owe it to yourself, your community, and the medical people who have to try and save the COVID sick from death and disability.
      There is simply no comparison, none, to any identified risk of vaccines and the freaking horror show COVID has been for the US, and the world.
      And don’t say, oh, most people don’t get sick, or mild, this is exaggerated, etc.
      No reasonable person said that about polio, which killed and crippled thousands each year in the 1950’s, until we have eliminated in the US with vaccination that nearly everyone gets . COVID is the same kind of foe.

      2
      5 years ago Log in to Reply
    2. Thomas Cline

      I only had significant arm soreness on the second shot, but other than an expected rise in insulin resistance (again only on the second shot — Moderna) I did have a couple of trivial but truly bizarre cognitive glitches a day after the second shot — the kind of glitches I’ve seen in the past only when I force (with drugs) a rapid (1 day) large (8 hr) shift in my sleep/wake biological clock. Nothing serious at all, but very curious given that Covid infection itself can affect cognitive functioning.

      5 years ago Log in to Reply
    3. Jeffrey Joseph

      Runny nose, little achy, that’s about it.

      5 years ago Log in to Reply
    4. Patricia Dalrymple

      I agree with Nicholas. But everyone has to make their own decisions. I’ve had both. Until I hear that 550000 people have died from the vaccine, my opinion will not change. I am not about to expose my sister-in-law who has MS and Lupus or my 88-year young father to any risk from COVID because of fear for myself. I might as well die anyway because I couldn’t live with myself if something happened to them, caused by me.

      2
      5 years ago Log in to Reply
    5. Annie Wall

      I had the Moderna. “Tiredness” does not begin to describe the utter exhaustion plus fever on day 2. However, having symptoms like this for one day is well worth the risk of getting covid. I feel such a sense of relief now and still wear a mask and am as mindful as ever of keeping social distance when I’m possibly not with others who have been vaccinated.

      1
      5 years ago Log in to Reply
    6. connie ker

      Just a sore arm with tiredness for shot #1. 2nd injection brought on additional side effects of chills, fever, headache, muscle aches, along with the tiredness. Everything ended when I woke up in damp PJs, and felt better. So the fever ended in sweats and this was on the morning of day #3. I still could eat and took insulin by the numbers on the meter, so don’t know about the effects on blood sugars, probably some.

      5 years ago Log in to Reply
    7. Mary Coleman

      I had no symptoms with Moderna first shot but second shot laid me flat for 36 hours. Exhaustion, nausea, chills, body aches, sore arm, 300+ stubborn blood sugars despite copious amounts of insulin, knew I wouldn’t die but wanted to. And then, bam, it was over. Did not enjoy the side effects but would do it again to get the protection of the vaccine.

      1
      5 years ago Log in to Reply
    8. Richard Vaughn

      My wife and I had much chest pain for several days. Mine was so bad that I thought it might be my heart. I went to the ER and they could not find anything wrong with my heart. Everything was ok a few days later.

      5 years ago Log in to Reply
    9. casey shane

      First dose: April 4. Pfizer. No change in bg’s. No flu like symptoms no arm soreness just 2 monster migraines april 6 and 7th. But I don’t really think I can attribute the
      Migraines to the vaccine as I have been getting migraines for 35 years. Everything is status quo I expect the same in a few weeks after the boost.

      1
      5 years ago Log in to Reply
      1. Daniel Bestvater

        Extreme exhaustion, very high fever and nausea for about 72 hours then gradually improved over the next 48 hours. I’ve worked in healthcare for 35 years so the thought is I may have been exposed to a similar virus in the past, setting off a powerful immune response.

        5 years ago Log in to Reply
    10. Lawrence Stearns

      2020 was a terrible health year for me. I had pain in one lung all year, wheezing, coughing, shortness of breath, exhaustion. Got tested for Covid 19, came back “not detected.” The next day after the first Moderna shot, my lungs cleared up, the pain subsided, overall felt better. That lasted one week, then the symptoms came back. Ten days after the second Moderna shot, all of the symptoms I had over the past year went away. I thought I was dying, and now I am functioning about the same I was prior to March 2020. Thank goodness for the vaccine!

      3
      5 years ago Log in to Reply
    11. Thomas Hatton

      I had no symptoms with the first shot. The day after the second shot, I felt tired, “blah”, a little achy, and a little chilled. The second day after my second shot, I felt good as new! Remarkably better.

      1
      5 years ago Log in to Reply
    12. andrykenn

      Moderna, 2nd dose: very achy, but no fever. Subsided with ibuprofen. Gone within a day.

      5 years ago Log in to Reply
    13. Lisa Shandalov

      I have had 2 shots of Moderna. After both, I had achiness at the injection site; but after the 2nd shot, I felt headachey and very tired, and sore all over. I also noticed an otherwise inexplicable spike in my blood sugars at that time. I’m so grateful to have been vaccinated somewhat early, because I work for an elementary school! (A tier before those with serious health conditions in my state). That is WRONG—both groups should have been in the same early tier….

      5 years ago Log in to Reply
    14. Tb-well

      I have had both of the modern a vaccinations. The initial vaccination led to arm soreness and generalized muscle aches for a day afterwards.

      The second vaccination led to more arm soreness, brain fog, chills and feeling generally run down for about a day afterwards. By the second day, the symptoms were 95% gone leaving me with only a sore arm.

      5 years ago Log in to Reply
    15. George Lovelace

      Both Pfizer injections caused minor pain at injection site and some muscle soreness that basically told me “it’s working” No other effects

      2
      5 years ago Log in to Reply
    16. Scott Doerner

      But… I get the 2nd one tomorrow. Moderna
      I hope no side effects

      5 years ago Log in to Reply
    17. Carol Meares

      Also joint pain the 2nd day for about 3-4 days. I normally have some osteo-arthritic joint pain but it increased. Back to normal now. I am thrilled to be vaccinated! TY Moderna:)

      5 years ago Log in to Reply
    18. Glenda Schuessler

      Moderna vaccine x two. I experienced a sore arm with #1, chills overnight following #2. I am very thankful to have received the vaccine!

      1
      5 years ago Log in to Reply
    19. Sue Herflicker

      Had both Pfizer vaccines. #1 had sore arm but felt fine #2 Very sore arm and rosy red facial cheeks for 2 days that felt hot but no fever. Felt great other than that and blood sugars were fine!! I too am grateful to be vaccinated!!

      5 years ago Log in to Reply
    20. Marie Cardinell-Daldry

      I was part of the Pfizer study. I did well with the first dose. When I received the second dose I just started with arm pain. but by late that evening I became very disoriented and confused. My husband is not a worrier but he was so uneasy he called an ambulance and I was admitted to the hospital. He always takes pride in my mental abilities but I was acting very much out of character. My Covid tests were repeated although I had one that morning and it was still negative. A Cat scan was done to rule out a stroke. There was no brain damage. The physician wanted me admitted but after 13 hours of being poked and prodded I signed myself out. Gradually over the next several days my mental abilities improved. I still have a lot of joint pain but I can function. I reported everything to the FDA and CDC. I also reported everything to The Pfizer center which did my vaccinations. My blood sugars were also erratic on the day of immunization and remained that way for about 2 weeks. Everything now seems to have calmed down.

      5 years ago Log in to Reply
    21. Mitch Chernoff

      I found it interesting that my blood sugar levels were consistently far higher than normal the day after my second COVID shot (Moderna). I didn’t really feel sick that day, just a little bit not myself, but the persistent high blood sugar underlined something atypical was underway.
      Everything returned to normal the next day.

      5 years ago Log in to Reply
    22. Bill Williams

      I’ve had 2 Moderna doses. First one, nothing. Second one, soreness (but not pain, redness or swelling) at the injection site that evening. Nothing the following morning.

      5 years ago Log in to Reply
    23. Lucia Maya

      My first dose of Pfizer, just a very sore arm. Second dose I didn’t feel well the next day – spacey, foggy, achy, spent the day on the couch, but once I ate dinner I felt totally fine and have since! Very grateful to have had it.

      1
      5 years ago Log in to Reply
    24. Ken Raiche

      I had my first shot of AstraZeneca exactly 1 week ago at 11:10am, I seem to be the only one here having received that type. Anyways I’m not sure if this had anything to do with being on Keto and fasting at the time of the vaccination but I had some symptoms approximately 6 or so hours later. First was aches which persisted as well fatigue and then chills these all seem to happen after eating my first meal. Couldn’t fall asleep due to the aches so at 2:30am I took my first advil gel. Then next day had some stomach issues nausea everything finally came to a end after approximately 36 hours. I guess my body was creating antibodies for fighting off this damn virus.

      5 years ago Log in to Reply
    25. William Schaffer

      No symptoms. Wondering how much of an immune reaction I got and if the vaccine worked.

      5 years ago Log in to Reply
    26. Amy Schneider

      Beyond nausea, the 2nd shot made me vomit. One bad session and then a week of fatigue.

      5 years ago Log in to Reply
    27. Leona Hanson

      I haven’t had the covid-19 shot because the doctor is doing research on the amount of white blood cells it creates and my rh-blood does not let the white blood cells attach to red blood cells. He believes that if I have to many white blood cells it may make me sicker. I’ve already had surgerys for infections what caused them we don’t know except it’s common for rh-blood. I’m always sick.

      5 years ago Log in to Reply
    28. Julie Nalibov

      About 11 hours after second dose of Moderna, I got chills and nausea. I wasn’t eating and blood sugar was normal. Then the following afternoon I ate an overly starchy meal (pasta) and, despite bolusing for all the carbs, my blood sugar soared within a few hours to over 500 (!) and I had moderate ketones. First time that’s happened since I was diagnosed with diabetes 54 years ago. I changed tubing, insulin, pump infusion site, etc. and drank nearly a gallon of water. I stayed up nearly all night doing obsessive finger sticks because CGM couldn’t even measure blood sugar readings that high and I was terrified of DKA, The correction boluses more than DOUBLED my normal daily insulin rate. Following morning, I woke up with blood sugar at 84 and then it dropped lower. Fortunately, it was only for a day with a few odd spikes over next 5 days or so. I am a volunteer at vaccination sites and have suggested to the 100s of T2 Diabetics I encounter to please pay attention to blood sugar and drink plenty of fluids. I myself, was not expecting this reaction and a twofold increase in insulin dose can’t be explained away as coincidence given my lifetime of experience with diabetes and good control. Glad I had some unexpired ketone sticks (first use in decades!).

      1
      5 years ago Log in to Reply
    29. LizB

      I’ve had both shots of Pfizer and had no side effects from either dose.

      5 years ago Log in to Reply
    30. Kristine Warmecke

      Just slight pain after my first one in January. After my second one on February 3, I had the same slight pain at the injection site, then the following morning I woke with a low grade fever (100.5 if I remember correctly) body aches & a headache. It lasted less than 36 hours. Just a normal response to a vaccine, thank heavens.

      1
      5 years ago Log in to Reply
      1. Kristine Warmecke

        I received Pfizer vaccine.

        5 years ago Log in to Reply
    31. ConnieT1D62

      Got Moderna vaccinated in January and February 2021. A little arm soreness at injection site after vaccine #1; 24 hours after #2 I felt wipe-out fatigued and achy all over, elevated BGs in the 200-300 range, and a low grade fever for two days. Then it all cleared and I was fine.

      1
      5 years ago Log in to Reply
    32. Bonnie Lundblom

      I got the Moderna Covid vaccine, with the 2nd shot I developed “Covid arm” with my arm being intensely itchy, rash from shoulder to elbow, mild redness and swelling around the injection site. I spent some time looking for information regarding this and found a few article that termed it “Covid arm’. I took Benadryl at bedtime for 3 nights and tried to ignore it the best I could during the day. They gave both doses in the same arm and when I’m due for the booster that everyone thinks will be needed yearly I’m going to alternate arms each time!

      5 years ago Log in to Reply

    For people with T1D who have received at least one dose of a COVID-19 vaccine: Did you have any of the following side effects? Select all that apply to you. Cancel reply

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