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    • 4 hours, 24 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 4 hours, 25 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 6 hours, 21 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 6 hours, 37 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 17 hours, 47 minutes ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 21 hours, 36 minutes ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 21 hours, 39 minutes ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 22 hours, 21 minutes ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 22 hours, 21 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 22 hours, 23 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 22 hours, 28 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 22 hours, 29 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 22 hours, 30 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 22 hours, 31 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 22 hours, 31 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 23 hours, 7 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 23 hours, 18 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 23 hours, 30 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 23 hours, 31 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 1 day ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 2 hours ago
      ConnieT1D62 likes your comment at
      In your own words, how would you describe the feeling of a severe low?
      Nothing short of terrifying. I often go into seizures, having no idea where I am, who anybody, or even if I’m alive or dead. I’ll feel like I’m falling or hurtling toward something. At home I feel like my house is tilting. Im leaving a lot out but these are some of the scariest things.
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of Europe has the right idea! Is it a good health system for you overall? The US may be too large to implement a national system, but that doesn't hold states back (as long as there is federal money to help).
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      PUMP USERS: Just in case nobody has told you, if you use a pump, Insulin is considered durable medical equipment, which can save a lot of money, even with the new price cap
    Clear All
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    Do you notice changes to your blood glucose levels when you have a sunburn?

    Home > LC Polls > Do you notice changes to your blood glucose levels when you have a sunburn?
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    If you have used overlay patches on pump or CGM sites, have you ever experienced any of the following issues with the patches? Select all that apply.

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    21 Comments

    1. Cristina JS

      Whenever in the sun, my BG shoots up. And the longer I stay in the sun, the longer I experience insulin resistance for sometimes hours afterward. Summer and winter, even in the car. I now wear UPF 50 Clothing and SPF 50 sunscreen to minimize effects. It’s terrible.

      1
      7 months ago Log in to Reply
      1. Wanacure

        UPF clothing? Don’t ordinary long sleeve shirts and full-length pants protect me? And a broad-brimmed hat? And wrap around sunglasses? Is that what you mean by UPF clothing ?

        7 months ago Log in to Reply
      2. Cristina JS

        Most regular shirts are only upf 10-20. I was skeptical at first, too, but I gave it try and wow what a difference. Also saves me time with slathering the sunsuncreen, and less messy!

        7 months ago Log in to Reply
    2. Jneticdiabetic

      I do sunburn, but have not noticed a specific trend with my blood sugars afterward.

      7 months ago Log in to Reply
    3. Diana L.

      I have not had sunburns but I have noticed that some times my glucose goes up if I am in the sun.

      1
      7 months ago Log in to Reply
    4. cynthia jaworski

      absolutely everything affects my blood sugar to some extent. So, I don’t worry about it. I just keep checking and adjusting as needed. Caffeine? Bad traffic? Family illness? That is life.

      3
      7 months ago Log in to Reply
      1. Ahh Life

        What a good full-coverage answer.

        Or, as I used to tell the insurance company — I’ve god a pre-existing condition. I’m alive. ā„

        2
        7 months ago Log in to Reply
    5. Marsha Miller

      With a light sunburn, no.
      But I have experienced 2 severe sunburns over my 37 years, and my BG levels were super high.

      7 months ago Log in to Reply
    6. Drina Nicole Jewell

      I don’t remember the last time I allowed myself to get an actual sun. I’m obsessive about sunblock and protecting my skin. So I really don’t know about myself. My two boys though, ran higher with their sunburn 6 weeks ago.

      7 months ago Log in to Reply
    7. KCR

      I often wear sunblock clothes, use sunscreen, and avoid being out in the hottest part of the day. Dehydration is a bigger concern when the weather gets hot.

      3
      7 months ago Log in to Reply
    8. sdimond

      I eat a low carb diet and I find it makes me resistant to sunburn. I can spend an hour pushing my mower in the south Texas sun with no problem and I have very little suntan. My CGM does freak out at the heat.

      7 months ago Log in to Reply
    9. Janis Senungetuk

      The few times in the distant past when I did get sunburned was way before the technology was available to find out. As an older adult I’ve twice been dx. with skin cancer, so now I try to limit sun exposure.

      2
      7 months ago Log in to Reply
    10. Bonnie Lundblom

      Two episodes of skin cancer has me avoiding the sun. I had many sunburns while growing up, years before my T1D diagnosis. Thankful that I don’t even remember when I last had a sunburn.

      2
      7 months ago Log in to Reply
    11. KarenM6

      I don’t hang out in the sun and try very hard to avoid any sun overexposure.
      I recently (last month) had a 2nd degree burn on the whole back of my hand from a kitchen accident. I didn’t notice any changes to my blood sugar. But, with all the things that affect blood sugar, it’s really, really hard to parse it down to one single thing… at least, it is for me.

      7 months ago Log in to Reply
    12. Patricia Dalrymple

      I grew up in FLA and was always tan. Went away to college and came back pale. Spent two hours in the Miami sun and got so burned I have NEVER allowed that to happen again. Predates my LADA diagnosis so long answer: don’t know and won’t find out.

      1
      7 months ago Log in to Reply
    13. lis be

      I do not notice a blood sugar change in regard to a sunburn, but my blood sugars definitely are lower after being near the ocean. Maybe the sun and sea air/ minerals?

      7 months ago Log in to Reply
    14. Sharon Gerdik

      I never thought about sunburn affecting blood sugars until a few years ago while vacationing in FL, I experienced very high blood sugars and I researched sunburn and BS and realized sunburn causes stress to the body thus increasing blood sugars.

      1
      7 months ago Log in to Reply
    15. Lynn Smith

      I selected Other because I am not sure either way. Most of the time I am outside in the sun, it involves activity, many times strenuous, that cause my blood sugar to go low. If I am not active I am sitting in the shade.

      7 months ago Log in to Reply
    16. Kristine Warmecke

      When I would get a bad burn aka blistered, etc. my sugar levels would rise to high levels and then I would drop, sometime to hypoglycemia levels and have a hard time keeping them up.

      7 months ago Log in to Reply
    17. Mark Schweim

      I’ve never noticed any influence of sunburn on BG control, but over my life I found the best sunscreen/sunburn protection has always been a deep sunburn at the start of the year. I could get a deep all over sunburn early in the year and the entire rest of the year I wouldn’t get any more sunburns despite working outside in direct sunlight all day long with no sunscreen or anything.

      The last few years I have seen videos that are probably correct about the increase in skin cancer because those videos have had experts who correlated the increases in skin cancer following the increase in the use of sunscreen products by the public and they have said that they are convinced that it isn’t the sun’s ultraviolet rays by themselves that cause the skin cancer, but rather it’s something that the sun’s ultraviolet rays do to the sunscreen products applied to the skin and somehow the sunscreen product ingredients actually react with the sunlight becoming carcinogenic and ultimately causing skin cancer.

      Nearly everybody I know routinely uses sunscreen products and over 2/3 of those I’ve worked with who would always preach to me on the importance of using sunscreen products actually had skin cancer, all after they started using the sunscreen products they were trying to talk me into starting to use. I on the other hand have only used sunscreen when visiting my brother and we’d go waterskiing but he’d always refuse to take me on the water unless I’d put on some of his sunscreen. I would use his sunscreen and still go home with a deep sunburn that prevented me from getting burned by the sun for the rest of the year and I have never had any forms of cancer.

      7 months ago Log in to Reply
    18. Cheryl Seibert

      I rarely get sunburns, but have not noticed any BG changes when I do get a burn (I usually tan after the first slight sunburn of the summer).

      7 months ago Log in to Reply

    Do you notice changes to your blood glucose levels when you have a sunburn? Cancel reply

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