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    • 1 hour, 2 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Being on Medicare and required to see my Endo. every three months, my next appointment is made prior to departure from my Endo's office.
    • 1 hour, 2 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      If I were not on Medicare, it would be difficult to get an appointment within 3 months, even in an emergency. In an emergency, they would assign me a nurse practitioner to see. It is possible to contact them through their "portal." Whether I get a timely response depends on whether there is a reliable nurse to respond.
    • 1 hour, 17 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      When I saw my endo a year ago, I wasn't able to make an appointment 6 months later because all available appointments were fully booked. I have to see her CDE who has more availability in order to meet Medicare requirements for quarterly visits. Many, many healthcare providers in my area burned out and quit during Covid. I injured my knee badly last June and can't get a consult with an orthopedic surgeon until May due to the backlog of people needing help. I'm on crutches until then. My sports medicine doctor stopped practicing medicine last month. Our healthcare system is in crisis with no solution in sight.
    • 1 hour, 19 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      On hold or actually talking about the issue and calling back to ensure someone follow's up as everyone seems to be over their head. Honestly, it varies. It can take considerable time just to raise the visibility of an issue, then the follow up can take weeks/months and patience to resolve. Another problem is patients without the cognitive skills for follow-up. These days i doubt anyone pays attention to them.
    • 3 hours, 39 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I try to make my appointment for my next appointment when I check out. The scheduler always asks maki g it easier to remember. If I was to forget there would be a wait to get back int the rotation.
    • 10 hours, 48 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 10 hours, 48 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 12 hours, 45 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 13 hours, 1 minute ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 3 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 1 day, 7 hours ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
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    Do you intentionally limit your carb intake?

    Home > LC Polls > Do you intentionally limit your carb intake?
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    23 Comments

    1. Larry Martin

      Mostly when eating out at restaurants because I know they load up things with mystery carbs. I use and insulin pump so am very good and counting what I cook. It is harder at a restaurant so I do it there more

      2 years ago Log in to Reply
    2. William Bennett

      DX’d in 1983, crappy old insulins for 20 yrs before “You can eat anything, just bolus for it!” happy talk era. So even though I’ve loosened up quite a bit since Lantus/Novolog, and more recently pump/CGM regimens, my basic attitude is still “The less insulin you take, the easier it is to manage.” Of all the advances in those years, CGM has been the most significant, though Lantus is a close second. People who didn’t live with the old “Eat Now or DIE!” regimen have no idea how constricting it was, or what it was like to finally have the shackles taken off. Like an old con, though, I still kinda feel the walls of the old cell around me and don’t like to wander too far outside the prison grounds even after being released.

      5
      2 years ago Log in to Reply
      1. Dave Akers

        I only limit carbs for the purposes of managing my weight control. I typically try to eat health, so balancing carbs, fat, protien, etc… I do not restrict carbs for BG sake. I balance that too.. less carbs means less insulin, more carbs means more insulin. The recent advances of Ultra-rapid Acting inhaled insulin has dramatically changed how I am able to better manage that BG balance. Fruit is no longer a difficult task! With a shorter duration of action I no longer worry about tail hypos when consuming fruits.

        2 years ago Log in to Reply
      2. Daniel Bestvater

        I eat about 30 grams of carbohydrate per meal and usually 1-2 snacks of 10-15 grams. With pre-bolusing this seems to keep my BG in a reasonable range.

        2 years ago Log in to Reply
    3. connie ker

      I don’t eliminate carbs totally because a balanced diet requires carbs for energy. I read the labels constantly and go from there. The conflict that I am having presently is do I eat sugar free with all the chemicals that upset the digestive system, or do I eat the regular with sugar products.

      2 years ago Log in to Reply
    4. Nicholas Argento

      Limiting carb intake is very effective at improving mean blood sugar and time in range. I think of it this way- if you are driving on a twisty mountain road at night and trying to stay on the road, you could get the best super-grip tires, a special more responsive steering system, and grip gloves to stay on the road- or you could just drive slower. Eating less carb is like driving slower. Its just easier to stay on path…

      4
      2 years ago Log in to Reply
    5. Hadley Horton

      Depending on the situation. I typically limit my carb intake with beverages

      2 years ago Log in to Reply
    6. P-O Heidling

      Since the switch to eating strict LCHF (Low Carb High Fat) more than 11 years ago, I daily restrict the amount of carb to less then 20 grams/0.7 oz per day. Never felt better, best decision in my life.

      Have no hypos anymore. Exercise on average 7 hours per week, and have done so for the last 5 years. Doing so without any special setup, extra food or fear in running low, since the bg is stable at all times. Lowered the amount of insulin by 80% since the start of this diet. HbA1c and mean bg in non-diabetic ranges, 99% of bg under 10 mmol/l (180 mg/dL)

      Type 1 since 1981, using Lantus and Humalog (no pump, no CGM)
      https://www.dietdoctor.com/overall-now-completely-new-life

      2
      2 years ago Log in to Reply
    7. Kristine Warmecke

      Yes because of my lack of access to affordable Novolog on my Medicare Advantage Plan. I have had to ration it and thus limit my carb intake.

      2 years ago Log in to Reply
    8. Sherolyn Newell

      Not really, although I do choose my carbs. For instance, pretty much no liquid carbs because I’d rather have food carbs. I bolus for my carbs, but there does seem to be a limit to how many carbs I can handle at one time, so that’s a type of limiting. An example, if I have a hamburger and want to have about 8 french fries, I give up the bun. No french fries, I can eat the bun. I guess that’s more like trading than limiting.

      1
      2 years ago Log in to Reply
    9. Natalie Daley

      Insulin has become very expensive. I was always careful, but I now skip lunch and eat two balanced meals with carefully chosen complex carbs. I found rice causes a high similar to cheesecake, so both are off the table unless it’s a mega occasion — other carbs can have similar effects: bun vs French fries for example.

      2 years ago Log in to Reply
    10. Amanda Barras

      I’ve been on a very low carb diet for the last 2 weeks. But, normally I only limit carbs when my blood sugar is elevated otherwise.

      1
      2 years ago Log in to Reply
    11. Sahran Holiday

      How can anyone adjust their insulin without accounting for carbohydrates?

      2
      2 years ago Log in to Reply
    12. Patricia Maddix

      I enjoy meals that are mostly vegetables with a small amount of meat and starch so my carbs rarely become too high as a result of my food preferences. When having a meal of pasta or something else very starchy then I may be eating less than I might actually desire but always supplement the meal with lots of vegetables. I still after 60 years weigh my starches and account for every gram of carbohydrate when deciding on my insulin bolus.

      2 years ago Log in to Reply
    13. ConnieT1D62

      Sometimes. I eat my carbs in the form of whole grains, vegetables, fruit, legumes, diary products and an occasional treat of real deal chocolate or ice cream in a small amount. I generally keep to 30 grams or less for a small meal and 45 grams or less for a large meal, and 12 to 15 grams for an occasional snack.

      I do not deny my body carbs and I do not skimp on insulin to cover the carbs I consume. I choose to eat a variety of wholesome foods in healthy moderation. It has worked for me for years.

      1
      2 years ago Log in to Reply
    14. Janis Senungetuk

      I make an effort to be very conscious of what I’m eating because that’s not what I always did in the past. If I’m experiencing 200+ bg levels I’ll limit carbs, otherwise I continue to count them carefully but trust the Control IQ app to figure the correct bolus and the Tandem pump to deliver it. The majority of my meals are within 30 to 40 carbs.

      2 years ago Log in to Reply
    15. LizB

      I do not eat low carb by any means but lately I have been trying to cut back. I never drank my carbs – no “real” soda, no milkshakes, no juice. I don’t see the point. I just try ti limit my servings of heavy carbs. With pasta I will have just one serving (I cook for myself so it’s easy to know) instead of making a whole box and loading up my plate. I have a small portion of rice if it’s part of a meal. Choose pita bread if I want a sandwich for lunch instead of a big roll.

      2 years ago Log in to Reply
    16. Nevin Bowman

      Compare these results with yearly average of A1c. T1 Diabetics can’t process carbs without medication. I doubt anyone would recommend more medicine to cover someone with heart problems so they could eat more fatty foods.

      2 years ago Log in to Reply
    17. Ahh Life

      I interpret the word ā€œlimitā€ to mean both maximum and minimum, both of which I observe in practice and real life. Generally, the diet is more Mediterranean-like with less carbs. However, in restaurants (yes, we are finally, FINALLY, getting back to returning to restaurants) I frequently have to insure I get at least some minimum of carbs. Sometime restaurants make this challenging. ĀÆ\_( Ķ”ā›ā€Æļ¹ Ķ”ā›)_/ĀÆ

      2 years ago Log in to Reply
    18. Maurine Bowser

      How can P-O Heidling survive on 20 grams of carbs per day??? Your brain might need a little more.

      1
      2 years ago Log in to Reply
      1. P-O Heidling

        That is absolutely no problem, since the intake of protein is partly converted to glucose.

        By the natural process of glucoseneogenesis, the body is perfectly able to produce all the glucose the brain and other vital organs would need.
        I work as an engineer, full time and often overtime. I have never during my years, eating low carb had and mental issues. Quite the opposite in fact.

        Since I don’t have any swings in the bg anymore, my endurance as increased through out the whole day. The same pattern, every day, for more than a decade now…

        https://www.sciencedirect.com/topics/neuroscience/gluconeogenesis

        2 years ago Log in to Reply
    19. Cheryl Seibert

      LOL! Always limit my carb intake! šŸ™‚ After 54 years T1D, always limiting carb intake is just necessary to stay healthy. Plus, I LOVE to eat anything and everything (and I’m only 118 pounds), so limiting all food intake is just the way I roll. However, I do eat a LOT of food, so it’s not like I am starving myself. My endo says my metabolism is so fast that I burn calories just sitting in a chair!

      2 years ago Log in to Reply
    20. James Cheairs

      I am also practicing intermittent fasting and ity has done wonders. Less TDI, desired weight loss and much better control.

      2 years ago Log in to Reply

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