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    • 4 hours, 47 minutes ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I actually don't care, consequently I don't know either. When I was diagnosed I often didn't have the $18 for a vial of Humulin and used expired insulin others wouldn't. I tracked everything. The math didn't change, old or new. How many do I have total? More than I need and enough to share through my endo's office.
    • 4 hours, 47 minutes ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I am working through the end of my 90 day supply of Insulin. It is time to order another batch. Usually 6 vials.
    • 4 hours, 58 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Funny you should ask right now. I had to personally buy my first-ever vial in 25 years. Thanks Medicare for all the obstacles you place in the way. Am I grateful for Medicare? Yes, I guess, but I paid in all my life and I’m still paying. But Walgreens can never get the preauth right. They don’t send it to my doc or they send the wrong form. So I had the bright idea to change pharmacy’s, Publix. I went and had a convo with them, explaining I’m on a pump, I mentioned part B, the preauth. No problem. Have your doc send the script. That’s a whole other story. Then I get a call from Publix. We don’t do part B. Wow, wish you had told me. OK, I’m just going back to Walgreens. Except Medicare won’t allow refills without doctor script. So they called my doctor and my doc declined it because they had already approved it for Publix. Now I had sent an email explaining all of this to doc. I called my doc but they don’t answer their phones. Left a detailed message but have no idea whether they got anything. So I asked Walgreens if I could buy a vial. Nope, no script from doc. So I went to Publix, explained it all and they sold me a vial for $29. It was worth it but so frustrating because I can’t get my hands on a script anymore and take it where I dam-well please. Sorry for long post. I’m angry.
    • 4 hours, 58 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Oh sometimes I miss the old days of not needing an Rx for insulin in any state. Needles and were restricted due to illegal drug users, but then came disscsions about drug abusers sharing dirty needles. I'm not sure where that ended. Anyway it's extremely abusive for politics and insurance companies controlling diabetic supplies. The disease is a big enough burden.
    • 5 hours, 6 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I just got my 3 mo supply so I get 6 for 3 mo. I just opened the 1st if the 6
    • 5 hours, 19 minutes ago
      Gary R. likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 5 hours, 54 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      This is one of those questions that makes me wonder what on earth somebody hopes to learn from the answer. T1D Exchange - please explain.
    • 5 hours, 54 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Medicare is basically not covering Tresiba in 2026 :( so I've been busy stockpiling pens. I have enough Tresiba pens in the fridge to get me through '26 without having to buy any.
    • 5 hours, 55 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 9 hours, 4 minutes ago
      Steve Rumble likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 11 hours, 52 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 22 hours, 34 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 1 day ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 1 day ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 1 day, 2 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day, 2 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 1 day, 2 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 1 day, 2 hours ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 1 day, 4 hours ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 1 day, 6 hours ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 21 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 21 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 21 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 21 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
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    Do you have celiac disease in addition to T1D?

    Home > LC Polls > Do you have celiac disease in addition to T1D?
    Previous

    How much did you spend out-of-pocket on all of your diabetes medications and supplies from the start of April through the end of June 2023?

    Next

    For insulin pump users: On average, how often do you take insulin using a different method other than through your pump? (E.g., giving an injection, using inhaled insulin, etc.)

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    14 Comments

    1. KIMBERELY SMITH

      I am allergic to like cows milk and white bread also yellow mustard

      2 years ago Log in to Reply
    2. Lawrence S.

      YES. I have celiac disease. Celiac disease makes T1D multiple times more difficult to handle. There are so many simple dietary delights that are off limits. It seems that wheat, rye, barley, and sometimes oats are in many, many foods. I was diagnosed approximately 15 years ago, and have (tried) to avoid gluten 100% of the time. Eating at restaurants is a big risk. Even gluten free food, especially in Italian restaurant and pizza shops is not really gluten free from cross contaminations. I go to restaurants seldom, but go because my wife deserves dinner out every once in a while.

      2
      2 years ago Log in to Reply
    3. Marty

      I can say definitively that I don’t have celiac disease because I was just tested to rule it out as the cause of a rapid loss of bone density. Evidently, people with diabetes are prone to acquiring celiac disease and the symptoms can be subtle.

      2 years ago Log in to Reply
    4. Patricia Kilwein

      Ther wasn’t a selection for I don’t know. I’ve never been tested for it.

      2 years ago Log in to Reply
    5. Tina Roberts

      I have no clue.

      2 years ago Log in to Reply
    6. Melinda Lipe

      No Celiac disease, just gut problems. I have had tests for everything by my gastroenterologist, but they did not show anything.

      2 years ago Log in to Reply
    7. Wanacure

      So there is a link between my bone loss and my recent diagnosis of celiac disease? I was already eating low carb diet, so giving up gluten was no biggie. My T1D sibling was diagnosed years ago with celiac but I thought he was just following another fad diet. Come to think of it he lost all his teeth and had to wear dentures. My new dentist said I had bone loss in my jaw and have a couple of loose teeth which I hadn’t noticed. I’ve always flossed and brushed and regularly seen dentists for routine cleaning and polishing.

      1
      2 years ago Log in to Reply
      1. Marty

        I think celiac disease makes it harder for your gut to absorb minerals, like calcium and magnesium, that are needed to maintain your bones.

        2 years ago Log in to Reply
    8. Henry Renn

      A disease specialist & an immunologist have both dx me with unnamed autoimmune disease. Many sx of but not quite Sjorgen’s. Chronic fatigue & low grade fevers are biggest pain in posterior. For 4 years I’ve taken Plaquenel which has held down low grade fevers about 90% of the time. Prescribed by Rheumatologist/Immunologist bc it helped some of her patients dx with Lupus. Also dx with Diabetic Arthropathy as well as Connective Tissue disease. The latter has remained stable since taking Plaquenel.

      2 years ago Log in to Reply
    9. Carolann Hunt

      No my daughter has the gene for celiac so we are on the lookout for it. You have to have the gene to get it; it’s linked to T1D

      2 years ago Log in to Reply
    10. Melissa Childers

      I have what the doctor called “generic” generic markers, but I get so sick from eating gluten that I refuse to do the gluten challenge to confirm.

      2 years ago Log in to Reply
    11. Twinniepoo74

      I’m being tested now for it since my mom and sister have it but not type 1 diabetes but the doctors have me on a gluten free diet since finding out I have gasteroparesis

      2 years ago Log in to Reply
    12. mbulzomi@optonline.net

      No! Not much to discuss.

      2 years ago Log in to Reply
    13. PamK

      I don’t have Celiac, but my son does. The gastro told him he got it because of me!

      2 years ago Log in to Reply

    Do you have celiac disease in addition to T1D? Cancel reply

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