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    • 4 minutes ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 9 minutes ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 16 minutes ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 7 hours, 27 minutes ago
      Ahh Life likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      Unmarked non-sequential bills under the table is preferred. Cash plus free insulin or CGMs would be fine too. Eversense is really missing out on an opportunity by not partnering with trials to offer a free E365 and insertion to get people to try their device.
    • 1 day, 18 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 18 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 18 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 19 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 21 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 1 hour ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 2 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 2 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 2 days, 3 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 3 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 3 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 3 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 3 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 3 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 19 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 19 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 21 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 21 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 23 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 1 hour ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
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    Do you approach strangers in public who have visible diabetes devices?

    Home > LC Polls > Do you approach strangers in public who have visible diabetes devices?
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    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    18 Comments

    1. Steven Gill

      I’ve had people comment on my tubing or even medical alert bracelet.

      2 years ago Log in to Reply
    2. stillarobyn

      I’ve never not made a comment about it while out in public. It’s nice to recognize your people.

      3
      2 years ago Log in to Reply
    3. Lawrence S.

      I was stuck between, “Yes, every chance I get,” and
      “Yes, sometimes, depending on the exact situation.” I take every opportunity to introduce myself to every T1D I see, but sometimes the situation does not allow it.
      I’ve always had a feeling of loneliness about my diabetes, because so few people know or care anything about it. If I get a chance to talk with someone, or even help someone possibly having a low blood glucose (which happened years ago about 2 or 3 times), I take advantage of the opportunity. And who know, maybe have a new friend.

      3
      2 years ago Log in to Reply
    4. Sherolyn Newell

      I have to say I don’t know. I’ve never noticed anyone with visible devices. I have had people approach me a couple times.

      1
      2 years ago Log in to Reply
    5. Jane Cerullo

      I have not approached anyone. Probably because lack of opportunity. Have not seen many devices on people. On the other hand, have had people approach me about Dexcom CGM. Happy to educate.

      2
      2 years ago Log in to Reply
    6. Nicholas Argento

      I don’t usually approach but if I see someone w a diabetes device and they seem open to it, I smile give a thumbs up and point to mine. We are a community…:)

      5
      2 years ago Log in to Reply
    7. Janice B

      I have only done it a couple of times. It is not something that I think is appropriate in most situations.

      1
      2 years ago Log in to Reply
    8. cynthia jaworski

      “every chance I get” applies only to devices. (When I have noticed liposystrophy, or other physical things, etc, in the past, I said nothing, although there was often an opportunity to get acquainted later.

      2 years ago Log in to Reply
    9. Anita Stokar

      I put “yes, but depending on the situation”, but it is extremely rare

      2
      2 years ago Log in to Reply
    10. Janis Senungetuk

      I have when it didn’t seem too intrusive, such as waiting in the grocery check-out line or at the airport during a lay over. I’ve met some nice people that way.

      2
      2 years ago Log in to Reply
    11. Ahh Life

      I’ll talk to anyone anywhere. Most people with medical devices are pretty friendly in grocery stores. gas stations, and drug stores. 😉

      The only really ugly ones are the political wacko’s with huge chips on their shoulders. They are far from nice to talk to. 🔇

      2
      2 years ago Log in to Reply
    12. kilupx

      I may just be very unobservant but I have never noticed someone using diabetic devices in public. How I wish I could, since I don’t know anyone else with T1D and would love the opportunity to connect.

      3
      2 years ago Log in to Reply
    13. Becky Hertz

      I don’t necessarily approach strangers, but if I catch their eye I’ll give a nod to my pump or CGM.

      2 years ago Log in to Reply
    14. Trina Blake

      I’m with Nick Argento. I try to get their attention to the facat my “accessories” are like theirs. Usually a conversation starts and we both like the fact that there are members of our “tribe” all over the place.

      2
      2 years ago Log in to Reply
      1. Kathy Hanavan

        Yes, connecting with strangers with T1d almost always means they are no longer strangers. Nice way to connect.

        2 years ago Log in to Reply
    15. William Rone

      If I have reason to look at my pump in the proximity of another pump wearing person, I will comment on how often I view my pump.

      2 years ago Log in to Reply
    16. LizB

      I live in NYC, a massive city, and have yet to see a visible piece of diabetes tech on anyone. Some people do everything they can to hide it. In cooler weather clothes can cover it all up. Maybe I should pay more attention to random people next summer!

      2 years ago Log in to Reply
    17. KarenM6

      I don’t tend to approach people. But, I was just approached last night in the airport!

      2 years ago Log in to Reply

    Do you approach strangers in public who have visible diabetes devices? Cancel reply

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