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    • 23 hours, 8 minutes ago
      ChrisW likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      Novo Nordisk is in clinical trials with a once weekly basal insulin. I am on MDI and was offered a place in the trial and declined for several reasons. The market for this is Type 2s currently on a once daily long-acting insulin like Lantus. Novo’s hope is that fewer shots will attract more patients.
    • 23 hours, 18 minutes ago
      ChrisW likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      If it handled basal and bolus correctly, where my time in range was 80-90% and I only had to do one shot a week that would be amazing
    • 23 hours, 41 minutes ago
      Ahh Life likes your comment at
      How often do you eat or drink sweets specifically to treat or prevent low glucose?
      No option for "I just use chocolate/other"
    • 1 day, 1 hour ago
      kristina blake likes your comment at
      How often do you eat or drink sweets specifically to treat or prevent low glucose?
      This is part of living with a pancreas that is not capable of telling the liver the body needs glucose. If you are keeping BG in tight range smaller adjustments are both proactive and reactive done to manage BG. To look at it as a bad thing is a bit irrational and unrealistic.
    • 1 day, 1 hour ago
      kristina blake likes your comment at
      How often do you eat or drink sweets specifically to treat or prevent low glucose?
      I much prefer glucose tablets so I know exactly what I'm getting and how soon.
    • 1 day, 2 hours ago
      Bill Williams likes your comment at
      How often do you eat or drink sweets specifically to treat or prevent low glucose?
      This is part of living with a pancreas that is not capable of telling the liver the body needs glucose. If you are keeping BG in tight range smaller adjustments are both proactive and reactive done to manage BG. To look at it as a bad thing is a bit irrational and unrealistic.
    • 1 day, 2 hours ago
      Laurie B likes your comment at
      How often do you eat or drink sweets specifically to treat or prevent low glucose?
      Sometimes I eat Peeps instead but it's not often. :)
    • 1 day, 2 hours ago
      John Barbuto likes your comment at
      How often do you eat or drink sweets specifically to treat or prevent low glucose?
      too freaking often! :(
    • 1 day, 2 hours ago
      mojoseje likes your comment at
      How often do you eat or drink sweets specifically to treat or prevent low glucose?
      too freaking often! :(
    • 1 day, 3 hours ago
      Patricia Dalrymple likes your comment at
      How often do you eat or drink sweets specifically to treat or prevent low glucose?
      I much prefer glucose tablets so I know exactly what I'm getting and how soon.
    • 1 day, 3 hours ago
      Lawrence S. likes your comment at
      How much does your diabetes technology improve your quality of life?
      We’ve come a long way from clinistix
    • 1 day, 3 hours ago
      Lawrence S. likes your comment at
      How much does your diabetes technology improve your quality of life?
      And an even longer way from 6 urine drops boiled with copper sulfate in a test tube. ଓ
    • 1 day, 3 hours ago
      Lawrence S. likes your comment at
      How confident are you in the accuracy of the T1D information you see online?
      My confidence depends on the source; if and how well I know the person or organization.
    • 1 day, 3 hours ago
      Lawrence S. likes your comment at
      How confident are you in the accuracy of the T1D information you see online?
      I will always do my own research after seeing something interesting or new. So, I don't trust anything right off, but I will listen and learn.
    • 1 day, 3 hours ago
      Lawrence S. likes your comment at
      How confident are you in the accuracy of the T1D information you see online?
      My confidence level depends on the source.
    • 1 day, 3 hours ago
      Lawrence S. likes your comment at
      How confident are you in the accuracy of the T1D information you see online?
      The good, the bad, and the ugly appear on line. Even the source needs to be questioned and questioned continually about statistical significance, sample size, collaborating cross-referenced studies, and current vs. distant relevancy. ☀️🛰️⚡
    • 1 day, 3 hours ago
      Lawrence S. likes your comment at
      How confident are you in the accuracy of the T1D information you see online?
      Yes it does and there are several very good sources which I trust. Maybe a question about those would be good.
    • 1 day, 3 hours ago
      Lawrence S. likes your comment at
      How confident are you in the accuracy of the T1D information you see online?
      It all depends on your source!
    • 1 day, 3 hours ago
      TEH likes your comment at
      How often do you eat or drink sweets specifically to treat or prevent low glucose?
      too freaking often! :(
    • 1 day, 4 hours ago
      Derek West likes your comment at
      How confident are you in the accuracy of the T1D information you see online?
      It all depends on your source!
    • 1 day, 12 hours ago
      ChrisW likes your comment at
      How confident are you in the accuracy of the T1D information you see online?
      It all depends on your source!
    • 1 day, 16 hours ago
      John Barbuto likes your comment at
      How confident are you in the accuracy of the T1D information you see online?
      All depends on the source.
    • 1 day, 16 hours ago
      John Barbuto likes your comment at
      How confident are you in the accuracy of the T1D information you see online?
      Yes it does and there are several very good sources which I trust. Maybe a question about those would be good.
    • 1 day, 16 hours ago
      John Barbuto likes your comment at
      How confident are you in the accuracy of the T1D information you see online?
      It all depends on your source!
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      How confident are you in the accuracy of the T1D information you see online?
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    Compared to a year ago, how much has your out-of-pocket cost increased for T1D devices and supplies?

    Home > LC Polls > Compared to a year ago, how much has your out-of-pocket cost increased for T1D devices and supplies?
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    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    18 Comments

    1. Tod Herman

      Since I switched to the Omnipod 5, the formerly “durable medical equipment” status of the old Omnipods now switched over to a “formulary” (allegedly by the FDA) and now I pay the high tier amount of $50 a month for my replacement Pods. Thus my out of pocket increases accordingly. [Fortunately my Endo prescribes me with more than enough each month, which allows me to have extras.] You never know when one might get ripped off during work activities.

      2 years ago Log in to Reply
    2. Bill Williams

      A year ago I had a Part D plan that cost me about $68 per month but I had no copay on insulin. That plan was discontinued and I now have one that costs me $38 per month and $35 copays for insulin. Since I take two different insulins, my total cost has gone from $68 to $108, an increase of 58.8%.

      2 years ago Log in to Reply
    3. Edward Geary

      Supply benefits are stable ie pumps, tubes, sensors. Rx co-pay, however, are rising incrementally.

      2 years ago Log in to Reply
    4. Anita Stokar

      My co-pays for insulin have gone up, but since I don’t remember past costs, I can’t say how much the cost has increased

      2 years ago Log in to Reply
    5. Tracy Jean

      My costs have gone down, due to the cap on insulin.

      1
      2 years ago Log in to Reply
    6. cynthia jaworski

      The big increases were several years ago.

      2 years ago Log in to Reply
    7. Jian

      I think mine are less last yr and maybe even less this yr, on Medicare advantage and drugs are less

      2 years ago Log in to Reply
    8. Gary Rind

      last year I reached my OOP max due to an operation so last year’s costs were very low

      2 years ago Log in to Reply
    9. Jane Cerullo

      Just switched to pump after MDI. Supplies are no copay. Insulin is now only $35 for one type compared to needing two different insulins. Also paid deductible for my InPen which won’t have any more. So I guess saving some

      1
      2 years ago Log in to Reply
    10. ConnieT1D62

      Not much, but I am not sure by how much.

      2 years ago Log in to Reply
    11. Kristi Warmecke

      I am extremely lucky, my pump and CGM supplies are covered 100%, my insulin pump is covered by an 80% / 20% co-pay thank goodness. My Novolog co-pay even went down in price by about $20 per month, making $53 and change.

      2 years ago Log in to Reply
    12. PamK

      We switched to a lower cost plan at the beginning of the year because we were told everything would still be covered. My out of pocket cost has risen considerably on the new plan. We will switch back next year. Live and learn!

      2 years ago Log in to Reply
    13. KarenM6

      My deductible went up significantly and my percentage of co-pay went up from 20% to 30%.

      2 years ago Log in to Reply
    14. Bob Durstenfeld

      After two year of trying, I finally got my first vial of insulin under Medicare Part B. Last year Medicare granted me an exemption because I could not locate a pharmacy to fill my Part B prescription and I went back to pard D at quite an expense.
      My medications co payhave gone up significantly.

      2 years ago Log in to Reply
    15. Stephen Woodward

      The pharmacies are blocking access to required supplies if billing to Part B Medicare, by using outdated documentation requirements that MDs cannot provide because charts do not include the info in the format requested any longer, so pharmacies refuse to submit billing for covered supplies in the required amount…examples include specific insulin, test strips, which require out of pocked purchasing to get the necessary supplies. This is not Medicare, it is outdated data requirements asked for from an MD that are no longer documented in med records. The extra work has caused MDs to state that part b covered supplies are no longer covered, yet Medicare says they are.

      2 years ago Log in to Reply
    16. jamesmpii

      My OPE has gone way down. Insulin and needles are now covered in full. In the past I paid $90 every 90 days or so.

      2 years ago Log in to Reply
    17. Anthony Harder

      Answered not sure. This past year switched from private insurance to Medicare parts A, B, and D. The perpetual problem with insurance is determining the cost of anything. Premiums, co-pays, deductibles, discounts, coupons, changing rules with pharmacy benefit managers. Medicare has decent coverage. I believe overall costs have risen, but I’m not going to calculate year-over-year expenditures for this survey.

      2 years ago Log in to Reply
    18. Ben Holladay

      I am newly diagnosed within the year. The amount I pay is less than I was warned. With that said, my opinion is that T1D supplies should be free.

      5 days ago Log in to Reply

    Compared to a year ago, how much has your out-of-pocket cost increased for T1D devices and supplies? Cancel reply

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