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    • 4 hours, 26 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 4 hours, 26 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 6 hours, 23 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 6 hours, 39 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 17 hours, 49 minutes ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 21 hours, 38 minutes ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 21 hours, 40 minutes ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 22 hours, 22 minutes ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 22 hours, 22 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 22 hours, 25 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 22 hours, 30 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 22 hours, 30 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 22 hours, 32 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 22 hours, 32 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 22 hours, 33 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 23 hours, 8 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 23 hours, 20 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 23 hours, 32 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 23 hours, 32 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 1 day ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 2 hours ago
      ConnieT1D62 likes your comment at
      In your own words, how would you describe the feeling of a severe low?
      Nothing short of terrifying. I often go into seizures, having no idea where I am, who anybody, or even if I’m alive or dead. I’ll feel like I’m falling or hurtling toward something. At home I feel like my house is tilting. Im leaving a lot out but these are some of the scariest things.
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of Europe has the right idea! Is it a good health system for you overall? The US may be too large to implement a national system, but that doesn't hold states back (as long as there is federal money to help).
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      PUMP USERS: Just in case nobody has told you, if you use a pump, Insulin is considered durable medical equipment, which can save a lot of money, even with the new price cap
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    Although it may vary based on different circumstances for you, on a typical night, in which of these blood glucose level ranges would you most prefer to be before going to sleep?

    Home > LC Polls > Although it may vary based on different circumstances for you, on a typical night, in which of these blood glucose level ranges would you most prefer to be before going to sleep?
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    28 Comments

    1. Wanacure

      On present MDI using split dose glargine and bolus with lispro before meals, evening glargine causes bg to go lower in morning before dawn effect. So to be safe I chose 100-109.

      1
      10 months ago Log in to Reply
    2. Ahh Life

      The answer is 110-119. However, I struggled with this question mightily.

      Control IQ compels a complete flat line for me from 22:00 to 05:30. I am enslaved to an algorithm regardless of what I do.

      But I have this deep-seated fear of going to bed ā€œtoo low,ā€ which compels me to enter anything up to 200. I suppose Sigmund Freud would have a field day about this subconscious compulsion.

      However, it forces me to ask, ā€œIs this a mathematical question or a psychological question?ā€ We are human beings, you know. We are analog, not digital, regardless of what tech mavens do. Ź•T//į“„//T Ź”

      6
      10 months ago Log in to Reply
      1. Hark87

        @Ahh Life- I’ve been Type1 for 25 years. I will always rather err on the side of high than low. I have had the tslim for 7 months, and I am thankful to have a flatline at sleep hours. Before the pump, lantus would make me drop frequently. It was never fun waking up with lows.

        2
        10 months ago Log in to Reply
      2. Hark87

        **I concur with 110-119 šŸ™‚

        10 months ago Log in to Reply
      3. cynthia jaworski

        Definitely a psychological answer, for me. (110 to 119)

        1
        10 months ago Log in to Reply
      4. Karen Brady

        I relate to this so well! I’m on a closed-loop system and still have a huge psychological hurdle going to bed below 110.

        1
        10 months ago Log in to Reply
      5. Lawrence S.

        Ahhh! Freud! šŸ˜‰

        1
        10 months ago Log in to Reply
    3. mbulzomi@optonline.net

      After all my years of being a T1D, my injection sites are questionable. I prefer to be a little high, so as by the time I awake it’s in a good range to start the day.

      1
      10 months ago Log in to Reply
    4. Joan Fray

      110-120 would be optimal for me. Seems like thats where Control IQ has me. Wiggle room to get out of a low and not too high. Control IQ, I love you!šŸ’•šŸ˜˜ā¤ļø

      3
      10 months ago Log in to Reply
    5. Sherolyn Newell

      I picked 110-119. If I paid more attention to where I started at bedtime compared to the nights I get waked up by a low alarm, I might change that.

      10 months ago Log in to Reply
    6. Patricia Dalrymple

      I said 10O-109 with my finger hovering over 90-99. I have known people totally out of control going blind, dying, having limbs cut off. It scares me more than most lows. I have been fortunate that I have never had any negative ramifications from a low, and I’ve been as low as 19 and stayed on my feet and conscious (I’m a LADA so that might have something to do with it). Perhaps I am damaging other body parts I don’t know about. But for the most part I am eliminating lows at night. Not on a CGM yet. Retiring in 2 years and then I can focus on that new item.

      2
      10 months ago Log in to Reply
    7. ELYSSE HELLER

      If my bedtime BG reading is 120 or higher, I will take a correction bolus, but I lower the suggested correction bolus by 1 unit.

      10 months ago Log in to Reply
      1. Amy Eisenhut

        My CGM/Pump has made this 90-100 range possible for me. Prior to that, when I was injecting, i would never feel comfortable with a BG under 140 at bedtime. The CGM/Pump has been a game changer.

        1
        10 months ago Log in to Reply
    8. Carol Meares

      I always shoot for 100. Anywhere from 80-100 will be generally ok if I have not had a glass of wine with dinner. Some dinners can change things as well as other variables.

      1
      10 months ago Log in to Reply
    9. Becky Hertz

      Currently, I like to go to bed between 120-129 because I drop in the wee hours. Still working in basal rates to get it to where I can go to bed between 90-110 and be good for the night.

      1
      10 months ago Log in to Reply
    10. Hieromonk Alexis

      I have had too many episodes at night, so I’m quite comfortable to be over 160 before bed. If the level is still high in the early morning, I can always lower it for breakfast.

      2
      10 months ago Log in to Reply
    11. Patricia Maddix

      I like to aim for around 100 at bedtime as well as before meals. Since starting control IQ a couple of months ago any hypoglycemia is extremely rare due to the pumps ability to lower basal rates and stop insulin delivery as needed. It’s really Great to be able to sleep again without worry and being awoken by alarms.

      1
      10 months ago Log in to Reply
    12. KSannie

      I actually cannot get to sleep unless my BG is about 119 or higher. I would prefer to aim lower, but cannot. Somehow no matter how tired I am I cannot sleep. Unless I am on an airplane. Once I am asleep, if I wake up to go to the bathroom, sometimes my BG has fallen below 100, but I have to have some glucose to get back to sleep. When I was younger, I had nightmares that would wake me up when my BG went below 50 or 60, but I have hypoglycemic unawareness now, so I rely on the Dexcom to wake me up instead. It can take a couple hours to get my sugar back up high enough before falling back to sleep. Normally, I do sleep just fine and low sugars do not wake me up. But sometimes I think I must underestimate the effect of some late activity, say doing laundry or packing a suitcase, and that pushes me low at night.

      2
      10 months ago Log in to Reply
      1. kflying1@yahoo.com

        Another good example how this disease trats us all differently and that there are no hard and fast rules in dealing with it.

        10 months ago Log in to Reply
      2. Mig Vascos

        I also had nightmares that I was lost and couldn’t find my way back home or couldn’t figure the answer to something during my first few years when my sugar was low during the night. It’s interesting how we all had the same experiences but thought it was weird before we had the means like now to know what others experienced.

        10 months ago Log in to Reply
    13. AnitaS

      It was very difficult for me to answer. As was mentioned in the question, there are so many variables that can affect what your blood sugar does over night. Control IQ is very effective. Even if I start out a little high (125), I will usually wake up between 95 and 108.

      2
      10 months ago Log in to Reply
    14. Karen Brady

      T1D for over 30 years, I’ve been on a closed-loop system which does a decent job eliminating both overnight highs and lows – 90% of the time I’m flat all night. Still such a mental hurdle for me going to bed hovering anywhere near 100. Probably so many memories of waking up drenched in sweat with a BG of 40-50 make me reluctant! I also have a hard time falling back to sleep (regardless of why I wake up) so that’s part of it too.

      10 months ago Log in to Reply
      1. Mig Vascos

        Same thing happens to me. Very difficult going back to sleep. Anything can ruin my night, but the control IQ works quite well for me during the night.

        10 months ago Log in to Reply
    15. Bonnie Lundblom

      100-109 works well for me, but if the range shown was 100-120 I’d have selected that range!

      10 months ago Log in to Reply
    16. Mig Vascos

      Anywhere between 110 and 140 is ok. Sounds like we all have the deep fear of the lows during the night it doesn’t matter what. Not pleasant waking up drenched in swear and confused. Have to grant it to Control IQ has improved my nights Tremendously tough.
      It just doesn’t work well for me during the day.

      10 months ago Log in to Reply
    17. Leigh French

      I use tandem IQ so I just want to be in the 70-180 range. IQ will help keep me there.

      10 months ago Log in to Reply
    18. Wanacure

      Drastically lowering carbohydrates resulted in no need for industrial size insulin doses and no more terrible nighttime hypoglycemic episodes. The less insulin, the better. I’m still on MDI. Dexcom 6 is very helpful 24/7.

      10 months ago Log in to Reply
    19. Cheryl Seibert

      My selection was 120-129 mg/dL. I am a brittle diabetic and have always quickly dropped low about 3am. The 110 lower range is too low for a drop. My Tandem pump in Sleep Mode keeps me right at 120-129 all night providing I don’t load up on carbs or have a dropping BG before bed. LOL!

      10 months ago Log in to Reply

    Although it may vary based on different circumstances for you, on a typical night, in which of these blood glucose level ranges would you most prefer to be before going to sleep? Cancel reply

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