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    • 16 minutes ago
      Steve Rumble likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 3 hours, 4 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 13 hours, 47 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 15 hours, 13 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 15 hours, 13 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 15 hours, 14 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 17 hours, 26 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 17 hours, 27 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 17 hours, 27 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 18 hours, 10 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 19 hours, 33 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 21 hours, 30 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 12 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 12 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 12 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 12 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 14 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 14 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 15 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 19 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 21 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 21 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 22 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 22 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
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    Adults with T1D: Do you take a statin, and do you have high cholesterol?

    Home > LC Polls > Adults with T1D: Do you take a statin, and do you have high cholesterol?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    43 Comments

    1. Nevin Bowman

      I have high cholesterol and I hate statins, but I finally gave in to taking it to appease my Dr. because I got tired of hearing the pressure of needing a statin.

      2 years ago Log in to Reply
    2. Annie Wall

      The reason I take a statin is because I had creeping high cholesterol. Now I have low cholesterol because I take a statin, thank goodness.

      1
      2 years ago Log in to Reply
    3. JDC C

      Strange. Ever since Covid / or vaccine ldl skyrocketed. Used to be fine. Crazy.

      2 years ago Log in to Reply
    4. KIMBERELY SMITH

      Lower cholesterol

      2 years ago Log in to Reply
    5. Jane Cerullo

      I answered that I do not have high cholesterol but according to my cardiologist a 103 LDL is high. Never the less I refuse to take statins. Too many side effects. As a cardiac nurse I could see lifestyle was more of a marker for coronary heart disease. Also triglycerides and mine are low.

      1
      2 years ago Log in to Reply
    6. Mike S

      confusing question. I started taking statins because of high cholesterol, but because I’m on statins, my cholesterol is no longer high

      3
      2 years ago Log in to Reply
    7. dholl62@gmail.com

      I take a statin and it keeps my cholesterol in normal range , I also take a higher dose to help prevent heart related problems

      2 years ago Log in to Reply
    8. lis be

      The doctor put me on statins to reduce the risk of heart attack. He said even though my cholesterol is really good, being a female over 50, and having been diabetic for 42 years puts me at higher risk. I started just taking one low dose 5mg’s a week a few years ago, but at age 50 he strongly suggested I go to one low dose statin daily. The pharmacist told me to also add a coQ10 supplement if on statins, but research and doctors’ opinions seem to vary on this.

      2 years ago Log in to Reply
      1. Teri Morris

        I too am a Type 1 over 50, having been diagnosed almost 45 years ago…I wonder what else we have in common?

        2 years ago Log in to Reply
    9. KC

      I actually have low cholesterol. I heard from my father, whose is high, that statins are bad for you in the long run.

      2 years ago Log in to Reply
    10. Eva

      No cholesterol issues at all. I eat clean, avoiding fatty foods and ultra-processed carbs (only oats). If I eat bread, it’s usually rye or sprouted grain to get the fiber. And, I don’t remember the last time I had a sugary snack. If my blood sugar goes low, I go for the dextrose/glucose tabs. Although I am mad that they contain Red NO. 40 and Yellow No. 6. My body don’t make those colors so why I should I have to eat it. Luckly, I try to sweat out those poisons daily.

      2 years ago Log in to Reply
    11. cynthia jaworski

      I (and the rest of my family) never had a problem with cholesterol or triglycerides. That changed a couple of years ago. I tried various statins and they all made me feel ill. So I stopped. Instead, I decided to adopt the low-carb approach and include some of the supplements that have been shown to be beneficial to lipid profiles and blood pressure in scientific studies. So far, so good.

      2 years ago Log in to Reply
    12. Sherolyn Newell

      I put other. I had very high cholesterol and started taking rosuvastatin. With the statin, it’s back to normal range.

      2 years ago Log in to Reply
    13. Jordan Harshman

      I was quite annoyed that a medical professional recommended statins just because I was T1D. I have low A1C / high time in range and my cholesterol is great, yet the recommendation was for the anti-inflammatory function to be easier on my nerves… Why would my nerves need an anti-inflammatory agent with glucose number better than most non-diabetics?!

      1
      2 years ago Log in to Reply
    14. Amy Jo

      Always had high cholesterol (runs in my family independent of DM), but not currently on a statin. After some long discussions with my Endo I started one in my mid-20s but holding now while I grow my family. When that phase of my life is over I will restart.

      2 years ago Log in to Reply
    15. Tina Roberts

      I do not take a statin but I do have high cholesterol. I have to take repatha because statins cause me joint pain.

      1
      2 years ago Log in to Reply
    16. Lynn Smith

      I started taking a statin many years ago due to high cholesterol. So I no longer have high cholesterol.

      1
      2 years ago Log in to Reply
    17. Gary Rind

      endo wants LDL under 70 so I take 10 mg of simvastatin (generic for Zocor)

      2 years ago Log in to Reply
    18. Kim J

      I take meds but my high cholesterol is due to heredity vs diet.

      2 years ago Log in to Reply
    19. Beckett Nelson

      I finally caved and started one. My endo has been pushing for a few years and I got sick of fighting him.

      1
      2 years ago Log in to Reply
    20. Denise Carter

      I do take a statin and my cholesterol is 228. However my HDL’s are high, so I’m fine with that.

      1
      2 years ago Log in to Reply
    21. Henry Renn

      I was high for a Type 1 but taking statin for years & eating foods to raise good cholesterol has kept #s good.

      2 years ago Log in to Reply
    22. Russell Buckbee

      I can’t take a statin so I take Ezetimine and it brings my cholesterol down nicely.

      1
      2 years ago Log in to Reply
    23. Kristine Warmecke

      I took a stain for 13 years, from a couple of months after my first CVA to a month after my second Moyamoya Disease brain bypass. My CVA’s were not caused by high cholesterol, plaque build up or my T1D but from Moyamoya Disease causing my arteries to inflame and block off my blood flow. My cholesterol is normal.

      2 years ago Log in to Reply
    24. Nicholas Argento

      Heart disease is the highest cause of death in people with type one diabetes. It’s not just type two diabetes that has an increased risk. The odds are 2 to 4 times more than the non-diabetic population. So use of a statin will decrease the risk for a cardiac events in people with type one diabetes. The risk is always higher at the same cholesterol level then it would be in a non-diabetic person. The American diabetes association does recommend statins for most people with diabetes, whether they have type one or type two diabetes. Some of this is also depending on the age of the person. Under age 40 the risk of heart disease is pretty low to start with. decisions always need to be individualized by the person based on their personal circumstances, and hopefully conversations with their healthcare providers.

      2
      2 years ago Log in to Reply
    25. Janis Senungetuk

      I have statin intolerance. After trying every statin on the market with increasing muscle pain, I was prescribed Ezetimine and have had good results.

      2 years ago Log in to Reply
    26. Patricia Maddix

      I selected I have high cholesterol and take a statin, but actually, the statin has always controlled my previous high cholesterol, and all my lipids are low as long as I take the medication so I may have answered this question incorrectly

      2 years ago Log in to Reply
    27. TomH

      Prescribed as a preventative measure only. Cholesterol is much better than the averages for all types.

      2 years ago Log in to Reply
    28. T1D4LongTime

      I never have had high cholesterol, but have taken the statin for over 2 decades to prevent long-term T1D complications.

      2 years ago Log in to Reply
    29. Edward Geary

      I take a high dose of Crestor and my cholesterol levels are ideal.

      2 years ago Log in to Reply
    30. sdimond

      See the BMJ paper: The effect of statins on average survival in randomised trials
      Conclusions: Statin treatment results in a surprisingly small average gain in overall survival within the trials’ running time. For patients whose life expectancy is limited or who have adverse effects of treatment, withholding statin therapy should be considered.

      1
      2 years ago Log in to Reply
    31. Thomas Cline

      I would have high cholesterol if I didn’t take a statin — and I did before I started on atorvastatin. I’ve had no side effects — only good.

      1
      2 years ago Log in to Reply
    32. AnitaS

      I have high cholesterol but when taking a statin, my numbers are in the normal range so I do take rosuvastatin (crestor)

      2 years ago Log in to Reply
    33. Ahh Life

      Of course, a healthy dose of cynicism is merited—but . . . note the accuracy of the compelling mathematics cited by Dr. Nicholas Argento

      Being Rx’d with T1D is like winning a lottery ticket for a tiger. After you win, you still must deal with a tiger. Sigh!

      2
      2 years ago Log in to Reply
    34. Bekki Weston

      Read some of the “Cholesterol Myth” books out there; don’t buy into the #1 selling drug out there, to line the pockets of Big Pharma.

      2
      2 years ago Log in to Reply
    35. Teri Morris

      My cholesterol is only slightly high, so I take ezetemibe, but a low dose. I would not want to take a statin as my mom was being treated for pneumonia, and was put on a statin while on it which caused her polyarteritis nodosa, which killed her.

      2 years ago Log in to Reply
    36. Lawrence S.

      I just started taking Rovustatin because my cholesterol levels went up over the past 6 months. My last cholesterol test was normal.

      2 years ago Log in to Reply
    37. Tim Moeslein

      I am unable to tolerate statins due to Rhabdo side effect. However, 6 months ago my cardiologist strongly suggested I try Repatha. My LDL-C was >200. After several bi-weekly injections within that time my LDL-C is 42. I hate to admit it but he was right. However, I would only be taking it because the manufacturer has a $5 co-pay program otherwise it is $500+ a month.
      He asked me if I was ok with taking an injection every two weeks. I literally laughed at him having been a T1D 40+ years.

      2 years ago Log in to Reply
    38. Trina Blake

      My cholesterol numbers are great – in the healthy range. But like so many of us here, I get a ration of s**t from the Endo about having to take a statin. The muscle cramping is horrible. Wakes me up several times a night (it is worse when I am prone or laying down). If I stretch my body, the feet, calves, thighs and then arms cramp up – sharp painful cramps. Good thing I am no longer a professional ballet dancer, pointing my toes would send me into a full leg cramp. To be a “good girl” I am trying a lower dose, still have the cramps, but not as severe. I grab my foot, extend my leg, pulling on my heel to stretch the calf muscle and bring my foot up to my ear. At least I don’t have to get out of bed and walk around, and can fall back asleep fairly easily.

      2 years ago Log in to Reply
    39. Steve Rumble

      I take a statin because I have high cholesterol, however, because of the satin my cholesterol falls in the acceptable range.

      2 years ago Log in to Reply
    40. Ruth Chapman

      Statins like so many other meds don’t agree with me. Fortunately no reactions from insulin though!

      2 years ago Log in to Reply
    41. Brad Larson

      My numbers were fair on the lipid panel, but, the Dr. said you need statins. So I bartered for the 5 mg dose instead of the 20 mg dose.

      2 years ago Log in to Reply
    42. PamK

      I do not take a statin, and my cholesterol is borderline. One test has shown it to be high, but usually I am just under the high mark. I had one doctor who tried to give me a statin, but I had already tried Lisinopril for slightly high blood pressure, and it dropped my blood pressure too low. So, I am hesitant to try a statin.

      2 years ago Log in to Reply

    Adults with T1D: Do you take a statin, and do you have high cholesterol? Cancel reply

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