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    • 4 hours, 49 minutes ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 4 hours, 55 minutes ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 5 hours, 1 minute ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 1 day, 23 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 23 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 23 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 23 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 2 days, 1 hour ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 5 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 6 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 7 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 7 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 2 days, 8 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 8 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 8 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 8 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 8 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 8 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days, 2 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 2 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 4 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 5 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 3 days, 5 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
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    Adults with T1D: Do you take a statin, and do you have high cholesterol?

    Home > LC Polls > Adults with T1D: Do you take a statin, and do you have high cholesterol?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    43 Comments

    1. Nevin Bowman

      I have high cholesterol and I hate statins, but I finally gave in to taking it to appease my Dr. because I got tired of hearing the pressure of needing a statin.

      3 years ago Log in to Reply
    2. Annie Wall

      The reason I take a statin is because I had creeping high cholesterol. Now I have low cholesterol because I take a statin, thank goodness.

      1
      3 years ago Log in to Reply
    3. JDC C

      Strange. Ever since Covid / or vaccine ldl skyrocketed. Used to be fine. Crazy.

      3 years ago Log in to Reply
    4. KIMBERELY SMITH

      Lower cholesterol

      3 years ago Log in to Reply
    5. Jane Cerullo

      I answered that I do not have high cholesterol but according to my cardiologist a 103 LDL is high. Never the less I refuse to take statins. Too many side effects. As a cardiac nurse I could see lifestyle was more of a marker for coronary heart disease. Also triglycerides and mine are low.

      1
      3 years ago Log in to Reply
    6. Mike S

      confusing question. I started taking statins because of high cholesterol, but because I’m on statins, my cholesterol is no longer high

      3
      3 years ago Log in to Reply
    7. dholl62@gmail.com

      I take a statin and it keeps my cholesterol in normal range , I also take a higher dose to help prevent heart related problems

      3 years ago Log in to Reply
    8. lis be

      The doctor put me on statins to reduce the risk of heart attack. He said even though my cholesterol is really good, being a female over 50, and having been diabetic for 42 years puts me at higher risk. I started just taking one low dose 5mg’s a week a few years ago, but at age 50 he strongly suggested I go to one low dose statin daily. The pharmacist told me to also add a coQ10 supplement if on statins, but research and doctors’ opinions seem to vary on this.

      3 years ago Log in to Reply
      1. Teri Morris

        I too am a Type 1 over 50, having been diagnosed almost 45 years ago…I wonder what else we have in common?

        3 years ago Log in to Reply
    9. KC

      I actually have low cholesterol. I heard from my father, whose is high, that statins are bad for you in the long run.

      3 years ago Log in to Reply
    10. Eva

      No cholesterol issues at all. I eat clean, avoiding fatty foods and ultra-processed carbs (only oats). If I eat bread, it’s usually rye or sprouted grain to get the fiber. And, I don’t remember the last time I had a sugary snack. If my blood sugar goes low, I go for the dextrose/glucose tabs. Although I am mad that they contain Red NO. 40 and Yellow No. 6. My body don’t make those colors so why I should I have to eat it. Luckly, I try to sweat out those poisons daily.

      3 years ago Log in to Reply
    11. cynthia jaworski

      I (and the rest of my family) never had a problem with cholesterol or triglycerides. That changed a couple of years ago. I tried various statins and they all made me feel ill. So I stopped. Instead, I decided to adopt the low-carb approach and include some of the supplements that have been shown to be beneficial to lipid profiles and blood pressure in scientific studies. So far, so good.

      3 years ago Log in to Reply
    12. Sherolyn Newell

      I put other. I had very high cholesterol and started taking rosuvastatin. With the statin, it’s back to normal range.

      3 years ago Log in to Reply
    13. Jordan Harshman

      I was quite annoyed that a medical professional recommended statins just because I was T1D. I have low A1C / high time in range and my cholesterol is great, yet the recommendation was for the anti-inflammatory function to be easier on my nerves… Why would my nerves need an anti-inflammatory agent with glucose number better than most non-diabetics?!

      1
      3 years ago Log in to Reply
    14. Amy Jo

      Always had high cholesterol (runs in my family independent of DM), but not currently on a statin. After some long discussions with my Endo I started one in my mid-20s but holding now while I grow my family. When that phase of my life is over I will restart.

      3 years ago Log in to Reply
    15. Tina Roberts

      I do not take a statin but I do have high cholesterol. I have to take repatha because statins cause me joint pain.

      1
      3 years ago Log in to Reply
    16. Lynn Smith

      I started taking a statin many years ago due to high cholesterol. So I no longer have high cholesterol.

      1
      3 years ago Log in to Reply
    17. Gary Rind

      endo wants LDL under 70 so I take 10 mg of simvastatin (generic for Zocor)

      3 years ago Log in to Reply
    18. Kim J

      I take meds but my high cholesterol is due to heredity vs diet.

      3 years ago Log in to Reply
    19. Beckett Nelson

      I finally caved and started one. My endo has been pushing for a few years and I got sick of fighting him.

      1
      3 years ago Log in to Reply
    20. Denise Carter

      I do take a statin and my cholesterol is 228. However my HDL’s are high, so I’m fine with that.

      1
      3 years ago Log in to Reply
    21. Henry Renn

      I was high for a Type 1 but taking statin for years & eating foods to raise good cholesterol has kept #s good.

      3 years ago Log in to Reply
    22. Russell Buckbee

      I can’t take a statin so I take Ezetimine and it brings my cholesterol down nicely.

      1
      3 years ago Log in to Reply
    23. Kristine Warmecke

      I took a stain for 13 years, from a couple of months after my first CVA to a month after my second Moyamoya Disease brain bypass. My CVA’s were not caused by high cholesterol, plaque build up or my T1D but from Moyamoya Disease causing my arteries to inflame and block off my blood flow. My cholesterol is normal.

      3 years ago Log in to Reply
    24. Nicholas Argento

      Heart disease is the highest cause of death in people with type one diabetes. It’s not just type two diabetes that has an increased risk. The odds are 2 to 4 times more than the non-diabetic population. So use of a statin will decrease the risk for a cardiac events in people with type one diabetes. The risk is always higher at the same cholesterol level then it would be in a non-diabetic person. The American diabetes association does recommend statins for most people with diabetes, whether they have type one or type two diabetes. Some of this is also depending on the age of the person. Under age 40 the risk of heart disease is pretty low to start with. decisions always need to be individualized by the person based on their personal circumstances, and hopefully conversations with their healthcare providers.

      2
      3 years ago Log in to Reply
    25. Janis Senungetuk

      I have statin intolerance. After trying every statin on the market with increasing muscle pain, I was prescribed Ezetimine and have had good results.

      3 years ago Log in to Reply
    26. Patricia Maddix

      I selected I have high cholesterol and take a statin, but actually, the statin has always controlled my previous high cholesterol, and all my lipids are low as long as I take the medication so I may have answered this question incorrectly

      3 years ago Log in to Reply
    27. TomH

      Prescribed as a preventative measure only. Cholesterol is much better than the averages for all types.

      3 years ago Log in to Reply
    28. T1D4LongTime

      I never have had high cholesterol, but have taken the statin for over 2 decades to prevent long-term T1D complications.

      3 years ago Log in to Reply
    29. Edward Geary

      I take a high dose of Crestor and my cholesterol levels are ideal.

      3 years ago Log in to Reply
    30. sdimond

      See the BMJ paper: The effect of statins on average survival in randomised trials
      Conclusions: Statin treatment results in a surprisingly small average gain in overall survival within the trials’ running time. For patients whose life expectancy is limited or who have adverse effects of treatment, withholding statin therapy should be considered.

      1
      3 years ago Log in to Reply
    31. Thomas Cline

      I would have high cholesterol if I didn’t take a statin — and I did before I started on atorvastatin. I’ve had no side effects — only good.

      1
      3 years ago Log in to Reply
    32. AnitaS

      I have high cholesterol but when taking a statin, my numbers are in the normal range so I do take rosuvastatin (crestor)

      3 years ago Log in to Reply
    33. Ahh Life

      Of course, a healthy dose of cynicism is merited—but . . . note the accuracy of the compelling mathematics cited by Dr. Nicholas Argento

      Being Rx’d with T1D is like winning a lottery ticket for a tiger. After you win, you still must deal with a tiger. Sigh!

      2
      3 years ago Log in to Reply
    34. Bekki Weston

      Read some of the “Cholesterol Myth” books out there; don’t buy into the #1 selling drug out there, to line the pockets of Big Pharma.

      2
      3 years ago Log in to Reply
    35. Teri Morris

      My cholesterol is only slightly high, so I take ezetemibe, but a low dose. I would not want to take a statin as my mom was being treated for pneumonia, and was put on a statin while on it which caused her polyarteritis nodosa, which killed her.

      3 years ago Log in to Reply
    36. Lawrence S.

      I just started taking Rovustatin because my cholesterol levels went up over the past 6 months. My last cholesterol test was normal.

      3 years ago Log in to Reply
    37. Tim Moeslein

      I am unable to tolerate statins due to Rhabdo side effect. However, 6 months ago my cardiologist strongly suggested I try Repatha. My LDL-C was >200. After several bi-weekly injections within that time my LDL-C is 42. I hate to admit it but he was right. However, I would only be taking it because the manufacturer has a $5 co-pay program otherwise it is $500+ a month.
      He asked me if I was ok with taking an injection every two weeks. I literally laughed at him having been a T1D 40+ years.

      3 years ago Log in to Reply
    38. Trina Blake

      My cholesterol numbers are great – in the healthy range. But like so many of us here, I get a ration of s**t from the Endo about having to take a statin. The muscle cramping is horrible. Wakes me up several times a night (it is worse when I am prone or laying down). If I stretch my body, the feet, calves, thighs and then arms cramp up – sharp painful cramps. Good thing I am no longer a professional ballet dancer, pointing my toes would send me into a full leg cramp. To be a “good girl” I am trying a lower dose, still have the cramps, but not as severe. I grab my foot, extend my leg, pulling on my heel to stretch the calf muscle and bring my foot up to my ear. At least I don’t have to get out of bed and walk around, and can fall back asleep fairly easily.

      3 years ago Log in to Reply
    39. Steve Rumble

      I take a statin because I have high cholesterol, however, because of the satin my cholesterol falls in the acceptable range.

      3 years ago Log in to Reply
    40. Ruth Chapman

      Statins like so many other meds don’t agree with me. Fortunately no reactions from insulin though!

      3 years ago Log in to Reply
    41. Brad Larson

      My numbers were fair on the lipid panel, but, the Dr. said you need statins. So I bartered for the 5 mg dose instead of the 20 mg dose.

      3 years ago Log in to Reply
    42. PamK

      I do not take a statin, and my cholesterol is borderline. One test has shown it to be high, but usually I am just under the high mark. I had one doctor who tried to give me a statin, but I had already tried Lisinopril for slightly high blood pressure, and it dropped my blood pressure too low. So, I am hesitant to try a statin.

      3 years ago Log in to Reply

    Adults with T1D: Do you take a statin, and do you have high cholesterol? Cancel reply

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