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    • 4 hours, 30 minutes ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      It is not often that I get into discussions with people about Type 1 and type 2 diabetes. But, when I do, most people don't know that there is a difference. Those that are aware that there is a difference between type 1 and type 2 diabetes, don't know what the differences are. Generally, unless the person has the disease, is a close family member, or works in the medical profession, there is no understanding of the disease.
    • 4 hours, 30 minutes ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 4 hours, 31 minutes ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 5 hours, 45 minutes ago
      Neha Shah likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 9 hours, 18 minutes ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience people have heard of Type 2 Diabetes so if I say Type 1 that makes sense in that if there is a Type 2 there must be a Type 1 also. That is the extent of their understanding. In healthcare there is a bigger failure where "diabetes" or "type 2 diabetes" is used as a shorthand of a set of conditions often seen together. See any research paper by any cardiologist ever. This lack of precision leads to incorrect risk evaluations and incorrect treatment of people with diabetes caused by other factors including autoimmune aka Type 1.
    • 9 hours, 19 minutes ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 12 hours, 43 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      I have, and I do show calcium build up and hardening of the arteries. No action has been taken yet at this time. However, I am taking Repatha for better control of my cholesterol and it has been working great.
    • 12 hours, 43 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 12 hours, 43 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Thank you. Your write up is concise, cogent, and convincing. 🎀
    • 12 hours, 44 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      After 16 stents and a new aortic valve, I've had every scan imaginable and she just keeps on tickin'.
    • 12 hours, 45 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Just googled it and most insurance plans including basic Medicare do not cover it. Said cost ranges $100-400 with out-of-pocket being $100-150 (although I don’t understand that if not covered by insurance).
    • 13 hours, 9 minutes ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 13 hours, 9 minutes ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 13 hours, 58 minutes ago
      Lynn Smith likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 16 hours, 54 minutes ago
      Lawrence S. likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      This is a good question! but it does lead to so many other questions.
    • 16 hours, 54 minutes ago
      Lawrence S. likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      If the mystery train is your favorite form of conveyance, then you’re gonna love T1D. You may choose to be in a universe that is spiritually arid. Or you may choose to live in the harsh realities of reality. Up & down arrows and double arrows? I Love ‘em. Can and do take action immediately. 🙇‍♀️ 🙇‍♀️
    • 17 hours, 1 minute ago
      Lawrence S. likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      T1D & T2D are meaningless acronyms for most, nearly all, nondiabetics. Juvenile diabetes vs diabetes is the closest known pairing and that's still few.
    • 17 hours, 2 minutes ago
      Lawrence S. likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 17 hours, 5 minutes ago
      Mike S likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 17 hours, 7 minutes ago
      Lauren T likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 17 hours, 8 minutes ago
      Meerkat likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 12 hours ago
      lis be likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 1 day, 12 hours ago
      lis be likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, and even with low cholesterol levels all my life, CT Scan show extensive calcified coronary artery disease.
    • 1 day, 14 hours ago
      Carrolyn likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      If the mystery train is your favorite form of conveyance, then you’re gonna love T1D. You may choose to be in a universe that is spiritually arid. Or you may choose to live in the harsh realities of reality. Up & down arrows and double arrows? I Love ‘em. Can and do take action immediately. 🙇‍♀️ 🙇‍♀️
    • 1 day, 14 hours ago
      Marty likes your comment at
      If you could reimagine your diabetes technology, what’s the one thing you would change?
      The technology is remarkable — and I’m thankful for it. Having managed T1D for a very long time, it's improved my A1C. But as we age with T1D, usability becomes critical. Larger fonts, easier interfaces, simpler navigation, and design for arthritic hands will matter more and more. We also urgently need better training in hospitals and care facilities. Too often staff are unfamiliar with pumps and CGMs, and patients are forced to disconnect from the very tools that keep them safe. With the nationwide shortage of endocrinologists, we cannot rely on specialists to fix these gaps — frontline medical staff need better training and support. Tech innovation must include accessibility and real-world medical training.
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    Adults with T1D: Do you take a statin, and do you have high cholesterol?

    Home > LC Polls > Adults with T1D: Do you take a statin, and do you have high cholesterol?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    43 Comments

    1. Nevin Bowman

      I have high cholesterol and I hate statins, but I finally gave in to taking it to appease my Dr. because I got tired of hearing the pressure of needing a statin.

      3 years ago Log in to Reply
    2. Annie Wall

      The reason I take a statin is because I had creeping high cholesterol. Now I have low cholesterol because I take a statin, thank goodness.

      1
      3 years ago Log in to Reply
    3. JDC C

      Strange. Ever since Covid / or vaccine ldl skyrocketed. Used to be fine. Crazy.

      3 years ago Log in to Reply
    4. KIMBERELY SMITH

      Lower cholesterol

      3 years ago Log in to Reply
    5. Jane Cerullo

      I answered that I do not have high cholesterol but according to my cardiologist a 103 LDL is high. Never the less I refuse to take statins. Too many side effects. As a cardiac nurse I could see lifestyle was more of a marker for coronary heart disease. Also triglycerides and mine are low.

      1
      3 years ago Log in to Reply
    6. Mike S

      confusing question. I started taking statins because of high cholesterol, but because I’m on statins, my cholesterol is no longer high

      3
      3 years ago Log in to Reply
    7. dholl62@gmail.com

      I take a statin and it keeps my cholesterol in normal range , I also take a higher dose to help prevent heart related problems

      3 years ago Log in to Reply
    8. lis be

      The doctor put me on statins to reduce the risk of heart attack. He said even though my cholesterol is really good, being a female over 50, and having been diabetic for 42 years puts me at higher risk. I started just taking one low dose 5mg’s a week a few years ago, but at age 50 he strongly suggested I go to one low dose statin daily. The pharmacist told me to also add a coQ10 supplement if on statins, but research and doctors’ opinions seem to vary on this.

      3 years ago Log in to Reply
      1. Teri Morris

        I too am a Type 1 over 50, having been diagnosed almost 45 years ago…I wonder what else we have in common?

        3 years ago Log in to Reply
    9. KC

      I actually have low cholesterol. I heard from my father, whose is high, that statins are bad for you in the long run.

      3 years ago Log in to Reply
    10. Eva

      No cholesterol issues at all. I eat clean, avoiding fatty foods and ultra-processed carbs (only oats). If I eat bread, it’s usually rye or sprouted grain to get the fiber. And, I don’t remember the last time I had a sugary snack. If my blood sugar goes low, I go for the dextrose/glucose tabs. Although I am mad that they contain Red NO. 40 and Yellow No. 6. My body don’t make those colors so why I should I have to eat it. Luckly, I try to sweat out those poisons daily.

      3 years ago Log in to Reply
    11. cynthia jaworski

      I (and the rest of my family) never had a problem with cholesterol or triglycerides. That changed a couple of years ago. I tried various statins and they all made me feel ill. So I stopped. Instead, I decided to adopt the low-carb approach and include some of the supplements that have been shown to be beneficial to lipid profiles and blood pressure in scientific studies. So far, so good.

      3 years ago Log in to Reply
    12. Sherolyn Newell

      I put other. I had very high cholesterol and started taking rosuvastatin. With the statin, it’s back to normal range.

      3 years ago Log in to Reply
    13. Jordan Harshman

      I was quite annoyed that a medical professional recommended statins just because I was T1D. I have low A1C / high time in range and my cholesterol is great, yet the recommendation was for the anti-inflammatory function to be easier on my nerves… Why would my nerves need an anti-inflammatory agent with glucose number better than most non-diabetics?!

      1
      3 years ago Log in to Reply
    14. Amy Jo

      Always had high cholesterol (runs in my family independent of DM), but not currently on a statin. After some long discussions with my Endo I started one in my mid-20s but holding now while I grow my family. When that phase of my life is over I will restart.

      3 years ago Log in to Reply
    15. Tina Roberts

      I do not take a statin but I do have high cholesterol. I have to take repatha because statins cause me joint pain.

      1
      3 years ago Log in to Reply
    16. Lynn Smith

      I started taking a statin many years ago due to high cholesterol. So I no longer have high cholesterol.

      1
      3 years ago Log in to Reply
    17. Gary Rind

      endo wants LDL under 70 so I take 10 mg of simvastatin (generic for Zocor)

      3 years ago Log in to Reply
    18. Kim J

      I take meds but my high cholesterol is due to heredity vs diet.

      3 years ago Log in to Reply
    19. Beckett Nelson

      I finally caved and started one. My endo has been pushing for a few years and I got sick of fighting him.

      1
      3 years ago Log in to Reply
    20. Denise Carter

      I do take a statin and my cholesterol is 228. However my HDL’s are high, so I’m fine with that.

      1
      3 years ago Log in to Reply
    21. Henry Renn

      I was high for a Type 1 but taking statin for years & eating foods to raise good cholesterol has kept #s good.

      3 years ago Log in to Reply
    22. Russell Buckbee

      I can’t take a statin so I take Ezetimine and it brings my cholesterol down nicely.

      1
      3 years ago Log in to Reply
    23. Kristine Warmecke

      I took a stain for 13 years, from a couple of months after my first CVA to a month after my second Moyamoya Disease brain bypass. My CVA’s were not caused by high cholesterol, plaque build up or my T1D but from Moyamoya Disease causing my arteries to inflame and block off my blood flow. My cholesterol is normal.

      3 years ago Log in to Reply
    24. Nicholas Argento

      Heart disease is the highest cause of death in people with type one diabetes. It’s not just type two diabetes that has an increased risk. The odds are 2 to 4 times more than the non-diabetic population. So use of a statin will decrease the risk for a cardiac events in people with type one diabetes. The risk is always higher at the same cholesterol level then it would be in a non-diabetic person. The American diabetes association does recommend statins for most people with diabetes, whether they have type one or type two diabetes. Some of this is also depending on the age of the person. Under age 40 the risk of heart disease is pretty low to start with. decisions always need to be individualized by the person based on their personal circumstances, and hopefully conversations with their healthcare providers.

      2
      3 years ago Log in to Reply
    25. Janis Senungetuk

      I have statin intolerance. After trying every statin on the market with increasing muscle pain, I was prescribed Ezetimine and have had good results.

      3 years ago Log in to Reply
    26. Patricia Maddix

      I selected I have high cholesterol and take a statin, but actually, the statin has always controlled my previous high cholesterol, and all my lipids are low as long as I take the medication so I may have answered this question incorrectly

      3 years ago Log in to Reply
    27. TomH

      Prescribed as a preventative measure only. Cholesterol is much better than the averages for all types.

      3 years ago Log in to Reply
    28. T1D4LongTime

      I never have had high cholesterol, but have taken the statin for over 2 decades to prevent long-term T1D complications.

      3 years ago Log in to Reply
    29. Edward Geary

      I take a high dose of Crestor and my cholesterol levels are ideal.

      3 years ago Log in to Reply
    30. sdimond

      See the BMJ paper: The effect of statins on average survival in randomised trials
      Conclusions: Statin treatment results in a surprisingly small average gain in overall survival within the trials’ running time. For patients whose life expectancy is limited or who have adverse effects of treatment, withholding statin therapy should be considered.

      1
      3 years ago Log in to Reply
    31. Thomas Cline

      I would have high cholesterol if I didn’t take a statin — and I did before I started on atorvastatin. I’ve had no side effects — only good.

      1
      3 years ago Log in to Reply
    32. AnitaS

      I have high cholesterol but when taking a statin, my numbers are in the normal range so I do take rosuvastatin (crestor)

      3 years ago Log in to Reply
    33. Ahh Life

      Of course, a healthy dose of cynicism is merited—but . . . note the accuracy of the compelling mathematics cited by Dr. Nicholas Argento

      Being Rx’d with T1D is like winning a lottery ticket for a tiger. After you win, you still must deal with a tiger. Sigh!

      2
      3 years ago Log in to Reply
    34. Bekki Weston

      Read some of the “Cholesterol Myth” books out there; don’t buy into the #1 selling drug out there, to line the pockets of Big Pharma.

      2
      3 years ago Log in to Reply
    35. Teri Morris

      My cholesterol is only slightly high, so I take ezetemibe, but a low dose. I would not want to take a statin as my mom was being treated for pneumonia, and was put on a statin while on it which caused her polyarteritis nodosa, which killed her.

      3 years ago Log in to Reply
    36. Lawrence S.

      I just started taking Rovustatin because my cholesterol levels went up over the past 6 months. My last cholesterol test was normal.

      3 years ago Log in to Reply
    37. Tim Moeslein

      I am unable to tolerate statins due to Rhabdo side effect. However, 6 months ago my cardiologist strongly suggested I try Repatha. My LDL-C was >200. After several bi-weekly injections within that time my LDL-C is 42. I hate to admit it but he was right. However, I would only be taking it because the manufacturer has a $5 co-pay program otherwise it is $500+ a month.
      He asked me if I was ok with taking an injection every two weeks. I literally laughed at him having been a T1D 40+ years.

      3 years ago Log in to Reply
    38. Trina Blake

      My cholesterol numbers are great – in the healthy range. But like so many of us here, I get a ration of s**t from the Endo about having to take a statin. The muscle cramping is horrible. Wakes me up several times a night (it is worse when I am prone or laying down). If I stretch my body, the feet, calves, thighs and then arms cramp up – sharp painful cramps. Good thing I am no longer a professional ballet dancer, pointing my toes would send me into a full leg cramp. To be a “good girl” I am trying a lower dose, still have the cramps, but not as severe. I grab my foot, extend my leg, pulling on my heel to stretch the calf muscle and bring my foot up to my ear. At least I don’t have to get out of bed and walk around, and can fall back asleep fairly easily.

      3 years ago Log in to Reply
    39. Steve Rumble

      I take a statin because I have high cholesterol, however, because of the satin my cholesterol falls in the acceptable range.

      3 years ago Log in to Reply
    40. Ruth Chapman

      Statins like so many other meds don’t agree with me. Fortunately no reactions from insulin though!

      3 years ago Log in to Reply
    41. Brad Larson

      My numbers were fair on the lipid panel, but, the Dr. said you need statins. So I bartered for the 5 mg dose instead of the 20 mg dose.

      3 years ago Log in to Reply
    42. PamK

      I do not take a statin, and my cholesterol is borderline. One test has shown it to be high, but usually I am just under the high mark. I had one doctor who tried to give me a statin, but I had already tried Lisinopril for slightly high blood pressure, and it dropped my blood pressure too low. So, I am hesitant to try a statin.

      2 years ago Log in to Reply

    Adults with T1D: Do you take a statin, and do you have high cholesterol? Cancel reply

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