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    • 1 hour, 31 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 2 hours, 57 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 2 hours, 57 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 2 hours, 58 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 5 hours, 10 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 5 hours, 11 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 5 hours, 12 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 5 hours, 54 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 7 hours, 17 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 9 hours, 14 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 2 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 2 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 2 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 6 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 8 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 9 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 9 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 9 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 9 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 9 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
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    Have you ever hired a health coach or diabetes coach to help you with T1D management? Share more about your experiences in the comments!

    Home > LC Polls > Have you ever hired a health coach or diabetes coach to help you with T1D management? Share more about your experiences in the comments!
    Previous

    Have you ever changed your insulin delivery routine because of insulin absorption issues? Select all that apply, and share what has worked for you in the comments.

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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    21 Comments

    1. Britni

      I answered “other.” I’ve never hired a “diabetes coach” per se, but I’ve been seeing a diabetes educator for decades and started seeing a behavioral health specialist a couple years ago. Combined I think they serve roughly the same function as a coach would…

      3 years ago Log in to Reply
    2. Dennis Dacey

      I have received suggestions relating to diabetes management, and “coaching” from many physicians I’ve consulted during the last seven decades, and yes I paid for this advice.

      3 years ago Log in to Reply
    3. cynthia jaworski

      my blue cross insurance plan keeps trying to get me to sign up for coaching sessions. At one point, I decided to be open-minded and see what it could offer me. I found it was chaotically managed (2 different coaches phoned me the same day) and seemed to be geared for people who know absolutely nothing about diabetes or life in general. I quit.

      3
      3 years ago Log in to Reply
    4. Georgina Sokol

      Never heard of them. Must cost a lot of money.

      3 years ago Log in to Reply
    5. KCR

      I am not sure what is meant by health/diabetes coach. Does that include CDEs? If so, then, yes, I consulted a few times with a CDE at Integrated Diabetes 2 years ago.

      3 years ago Log in to Reply
    6. Bea Anderson

      No, but…
      Almost 20 yrs ago my trainer for first pump(Medtronic) was a fount of info. She covered the pump, living with t1 , so many good thoughts about pump life and more! She had t1 and was smart and humorous!! She was one of a kind. The educator I was then assigned to had t1, same pump, but told me to have same diet every day, exercise to bring a high down. What about utilizing the pump? I was confused and quit going. I’m just an average Jo-sephine, but with so many forums, websites and YouTube, I can be my best advocate picking and choosing what fits into my life for now. Barring other things that complicate diabetes care like depression, government rules, other health problems and old age…

      3
      3 years ago Log in to Reply
    7. Eva

      I hired a health coach who looked at my total health habits – eating, sleep, vitamins, and exercise. The idea was to increase my endurance and exercise performance. It was interesting but not worth the cost.

      3 years ago Log in to Reply
    8. Karen Tay

      I actually went years without an endocrinologist. My PCP took care of my prescriptions

      3 years ago Log in to Reply
    9. Janis Senungetuk

      By absolute “luck of the draw” I’ve had and currently have tremendously supportive relationships with two CDEs over the past 68 years of life with T!D. They have both gone over and above their job duties to care for me and assist in any way they could. In the many years in-between these relationships the coaching services either didn’t exist, were financially unavailable or geared toward individuals with extremely little knowledge of T1D glucose management.

      1
      3 years ago Log in to Reply
    10. lis be

      not a health coach, but I did see an amazing nutritionist that helped me figure out how to eat low carb vegetarian. (at my request). she also explained the timing on how protein and fats digest so I could figure out the rest from there.

      2
      3 years ago Log in to Reply
    11. KC

      No, but I worked with a nutritionist when I wanted to go vegan.

      3 years ago Log in to Reply
    12. Ahh Life

      I’ve played the games (many). I’ve coached a few. I’ve even refereed and umpired.

      In all 3 roles, I’ve made mistakes. And in referring and umpiring, I try to even out the good calls and the bad calls even though, strictly speaking, that’s against the rules.

      Same with the diabetic condition. I hope the good calls and the bad calls all work out.

      3 years ago Log in to Reply
    13. Steven Gill

      I do a lot of reading and research, listen to a variety of podcasts regarding the use of insulin, pumps, and especially a CGM. I listened to “Diabetes Connections,” “The Huddle,” and “Juicebox Podcast.” The first 2 were geared to Certified Diabetes Care and Education Care Specialists or endocrinologists. The last is towards the diabetic, initially I thought more for parents but after listening to each heard several episodes on the Juicebox including adult diabetics, educators, pump and CGM industry representatives, and insulin producers. Learned how “smart algorithms” worked and various looping technologies for each pump/CGM system, the rates of various insulin were better explained. By learning how to understand my CGM from the last, timing my insulin brought my a1C down from low 7’s to low 6’s with a decreased risk of hypoglycemia.

      Dropped the pump to insulin pens, was just minor adjustments to doses because there were episodes helping there (my averages on the CGM are lower even without the ability to adjust basal doses). The guy’s daughter was diagnosed TYPE1 as a toddler, now in college. Opted to be a “stay at home” dad for her care, initially blogged than “broadcasted” his experiences, success, and problems. The guests include children (great for younger listeners), older with complications, long term explaining boiling syringes and peeing on strips.

      But he had sponsors or advertisers, no cosys, and also guests from companies from each tool available, whether an advertiser or not.

      3 years ago Log in to Reply
    14. ConnieT1D62

      Other. No I have never hired a diabetes coach or health coach to help me manage my diabetes. However, I have been in therapy to deal with psycho-emotional stress related to family and significant other relationship issues.However, in my professional life as a diabetes care and education specialist RN, I have been hired as a diabetes self-care health coach and advocate on numerous occasions.

      3 years ago Log in to Reply
    15. Carolann Hunt

      Yes we hired Gary Shiners group for help with Loop settings

      3 years ago Log in to Reply
    16. David & Kaleo of Team Nani

      I have worked with many H & W coaches while I trained to become one. I was certified by Wellcoaches and recently gained national board certification through our international professional organization (NBHWC.org) where you can learn about wellness coaching and find Board Certified coaches in your area across the US and around the world.
      I became interested in the field b/c as a T1d person, I understand the impacts of a chronic condition and the huge benefit of the kind of support, accountability, collegial problem solving a H&W coach can provide by applying lessons of behavioral psychology and goal setting to facilitate behaviors that reduce stress, increase mindfulness and promote life satisfaction along the road to setting and achieving health goals.

      3 years ago Log in to Reply
    17. Keira Thurheimer

      My insurance company provides health coaches at no cost. I worked with one for about a year.

      3 years ago Log in to Reply
    18. mbulzomi@optonline.net

      I guess you can call a CDE a Health coach/Diabetes coach I do work with a CDE.

      3 years ago Log in to Reply
    19. Wanacure

      I attended a “Living with Chronic Conditions” series. There was one other T1D, some T2Ds, some pre-diabetics amongst the 20 people with incurable conditions. The main thing I learned was how popular melatonin was. I was curious but never tried this supplement. Recently heard that too many people are overdosing this supplement with hazardous results. Never tried chondroitin for joints either.

      3 years ago Log in to Reply
    20. James Cheairs

      Yes – Dr Jodi Stanislaw who is a naturopath who also has T1D . Great experience and I learned much that is often not discussed in conventional healthcare settings.

      3 years ago Log in to Reply
    21. Jeff Balbirnie

      An oxymoron,. Lacking medical credentials after their name what actual inherent value could they possibly possess?!?! They cannot proscribe… cannot order testing of any kind… sounds like a “soft” woo-woo approach to be polite about it….

      3 years ago Log in to Reply

    Have you ever hired a health coach or diabetes coach to help you with T1D management? Share more about your experiences in the comments! Cancel reply

    You must be logged in to post a comment.




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