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    • 1 hour, 20 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 1 hour, 21 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 1 hour, 21 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 3 hours, 33 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 3 hours, 34 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 3 hours, 35 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 4 hours, 17 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 5 hours, 40 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 7 hours, 37 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 23 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 23 hours, 2 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 23 hours, 3 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 23 hours, 4 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 23 hours, 12 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 1 hour ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 1 hour ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 1 hour ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 5 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 7 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 7 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
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    If you use an insulin pump, how many times in the past month have you had to change your pump site more than 24 hours before its session was over?

    Home > LC Polls > If you use an insulin pump, how many times in the past month have you had to change your pump site more than 24 hours before its session was over?
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    Have you ever been without health insurance while living with T1D? If so, please share more in the comments about how being without insurance impacted your T1D management.

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    If you have had surgery while living with T1D, were you able to choose the person who managed your T1D during the procedure? If you have had surgery multiple times, please answer for your most recent procedure.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    16 Comments

    1. Barbara Bubar

      Tough to answer because after 72 years of inserting things here and there in my body it’s tough to find new areas that work well. When I DO find a spot that works well I almost hate to change it so I’ve gone as long as 5 days. Often a tougher site just requires more insulin for the same foods. I am one of those skinny people (slender sounds better…LOL) so there’s not a lot of unused territory!

      3
      3 years ago Log in to Reply
      1. Catherine Davis

        I know the feeling. Steel needle infusion sets are the way to go, if you aren’t already using them. Leaving the plastic cannulas in for too long will ruin the absorption areas you have left. Steel needle sets are not so scary after I started using them, and much more reliable!

        3 years ago Log in to Reply
    2. Jneticdiabetic

      Once. My pump fell off my waistband in the restroom, fell to the floor, and a yanked out my infusion site.

      3 years ago Log in to Reply
    3. TomH

      I’ve been using a pump for 18 months using Omnipod Dash. I’ve had one pump die during the setup process (a screamer) before I put it on, and had one become pretty loose (on a cruise, multiple times in pools/water fun areas/ocean), but it hung in there with some extra 1st aid tape (no over-patches with me). I sometimes shave the hairs off, more to limit painful removal (I’m a wimp!). I think it depends on the skin oils make-up and sweatiness and I’m lucky not to have the issue. I’ve nearly pulled one off once, but not actually succeeded!

      3 years ago Log in to Reply
      1. pru barry

        What is a screamer? Is it just part of the Omni Pod Dash?

        3 years ago Log in to Reply
    4. Andrew Stewart

      Once, only because the site was not working very well for me. When it’s good, I ride it until the cartridge runs out.
      #BeWell

      1
      3 years ago Log in to Reply
    5. mbulzomi@optonline.net

      My pump, Tandem X2 has no sessions warnings. If you fill the cartridge to its maximum 300 units, it will run till the end. You the Pumper should change the cartridge every three days. However, they make it difficult if you are wearing a Sensor because the Sensor quits in ten days, so that is 3 1/3 day per secession. It’s one pain in the butt to have to wear the Sensor on one side and the Q set on the other side of your body.

      3 years ago Log in to Reply
    6. Amanda Barras

      That’s a loaded question. If you mean early because of site failure none. (Which I picked.) But if you mean changing it early because you go through 300 U in 2 days and they type of insulin you use will cause occlusion alarms if you refill and run past 2 days. Then every time.

      3 years ago Log in to Reply
    7. Janis Senungetuk

      By choice I’d rather replace the infusion set after 3 days than fill the insulin cartridge. I fill the Tandem cartridge with 250+ units and use it until there are less than 10 units left. Sometime I replace the infusion set every 3 days and sometimes, if there’s no irritation at the insertion site, I leave it until I run out of insulin.

      1
      3 years ago Log in to Reply
    8. Kathryn Keller

      Had first screamer dash pod. I woke up and was confused for awhile until I figured out what it was.

      3 years ago Log in to Reply
    9. Becky Hertz

      I have insulin resistance and absorption issues. My sites can crap out before 24 hours or be bad from the start. TruSteel sets help mitigate this as I can just move to another area without wasting an insertion set.

      1
      3 years ago Log in to Reply
      1. Catherine Davis

        I had the same problem which was really dangerous and the steel needle sets were scary at first, but they are not so painful and what a difference they made in getting insulin into me!!

        3 years ago Log in to Reply
    10. Joan Fray

      Interesting answers. I change my infusion set and cartridge every three days as a matter of course. Load the cartridge with 60 units and use aprox 16 units a day. I thought the insulin loses effectiveness after 3 or 4 days in the cartridge..?

      3 years ago Log in to Reply
    11. AnitaS

      I did once about a week ago because I put the infusion set in an area that sometimes just doesn’t absorb well. Luckily with a steel infusion set, I don’t waste an infusion set when I need to change the sight. I must say that having to change the site because of insulin not working well with a particular infusion site happens very infrequently.

      3 years ago Log in to Reply
    12. Catherine Davis

      None. Then again I don’t need that much insulin anymore, so my steel needle infusion sets may exceed the 2-day mark at times, because I have to load at least 80 units each time with my Tandem t:slim pump system, WHICH I LOVE!!! My total daily dose may be as low as 13-14 units or up to 25 units if my BG spikes.

      3 years ago Log in to Reply
    13. PamK

      I’m really not sure what is meant here by “changing a pump site more than 24 hours before its session was over.” Do you mean when the cartridge is empty? Or the three days of wear time for the infusion set? Or?? This question really isn’t clear.
      For the cartridge/reservoir to empty, I usually use it for 4 – 5 days. For the infusion set, I have to change mine every 2 – 2 1/2 days, so sooner than the 3 day wear time. So again, it depends on what you mean!

      3 years ago Log in to Reply

    If you use an insulin pump, how many times in the past month have you had to change your pump site more than 24 hours before its session was over? Cancel reply

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