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    • 3 hours, 25 minutes ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 3 hours, 31 minutes ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 3 hours, 38 minutes ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 1 day, 21 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 21 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 21 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 22 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 2 days ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 3 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 4 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 5 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 6 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 2 days, 6 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 6 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 6 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 6 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 7 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 7 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 22 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 22 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 1 hour ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 2 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 4 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 3 days, 4 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
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    If you have T1D, have you also been diagnosed by a health care provider with ADHD?

    Home > LC Polls > If you have T1D, have you also been diagnosed by a health care provider with ADHD?
    Previous

    At your most recent appointment with your T1D healthcare provider, did you fill out a questionnaire about your mental health during the appointment?

    Next

    Do you approach strangers in public who have visible diabetes devices?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    21 Comments

    1. Ahh Life

      No for myself. However, if someone around you has ADHD, it is most certainly one of those Genies you wish could be returned to their bottles.

      2
      3 years ago Log in to Reply
    2. AimmcG

      My father and my children have ADHD. I am fairly confident I have it and due my MS, my Neurologist prescribed medication to help.

      1
      3 years ago Log in to Reply
    3. Lawrence S.

      No. But, sometimes I wonder. When I was younger, my mind wandered a lot. I also did a lot of running around. I cannot focus on what I’m doing (i.e., reading) with the television on.

      3
      3 years ago Log in to Reply
    4. Kelly Wilhelm

      I have some ADD tendencies but would classify as ADHD.

      1
      3 years ago Log in to Reply
    5. Kristen Clifford

      I’m 90% certain that I have ADHD. I’m pretty sure I’ve always had it. My mom always suspected that I was on the autism spectrum, as my younger brother has autism, but ADHD makes a lot more sense. My husband and sister-in-law have it, too. My mother-in-law once showed me a pamphlet about adult ADHD, trying to make the case that my husband had it. After reading through it, not only was I certain that he had it, but it made me think I might have it, too.

      2
      3 years ago Log in to Reply
    6. Lauren Carey

      I was recently diagnosed, at 42, with ADHD. It makes a lot of sense but has been a struggle to accept and try to make the changes necessary to control it. I am working with my psychiatrist and a therapist, which has helped.

      2
      3 years ago Log in to Reply
    7. james zellerhoff

      What is ADHD — ?

      3 years ago Log in to Reply
      1. Ahh Life

        james zellerhoff–

        It’s a disease with no brakes. You are always on and going 125 mph. Thoughts race constantly equally fast.

        1
        3 years ago Log in to Reply
      2. ConnieT1D62

        Attention Deficit Hyperactive Disorder

        1
        3 years ago Log in to Reply
    8. Lynn Smith

      I have a son who is extremely ADHD. He was diagnosed when he was around 7. He is 42 now. Somewhere along the way, one of his psychiatrists pointed out my traits that seem to indicate some level of ADHD, but he never gave me that diagnosis. These days, many years later, I take meds for anxiety and depression. So that helps with those symptoms. I have been on those same meds for many years now.

      2
      3 years ago Log in to Reply
    9. ConnieT1D62

      I have had Attention Deficit Disorder ADD, now referred to as ADHD, non-attentive type, since childhood. In fact the tendencies to daydream and seem like I wasn’t paying attention, and the opposite to hyper-focus on something, showed up at around the same time I was diagnosed with T1D at age 8 in the 3rd grade. The ADD and hyper-focus brain patterns have been with me my whole life but it wasn’t until I was an adult in my 50s that I was finally given a formal diagnosis and have been treated with a very low dose of Adderall that helps tremendously to reorganize synapse disruption. Even before being prescribed meds, I have worked with deep relaxation, meditation, focused attention, and visualization practices since my twenties to harness the wandering mind tendencies.
      BTW, I celebrated my 60 year diaversary on Dec 28, 2002. ADD and T1D have been with me for a very long time. They have been challenging, but neither has stopped me from living a fulfilling and interesting life and I am still going at it full steam.

      5
      3 years ago Log in to Reply
    10. Henry Renn

      Is there some hypothesis that T1 & ADHD are connected? Family doc put me on pheno-barkatol to save Mom’s sanity before I was dx with T1. As if T1 + another autoimmune issue didnt make life complicated enough.

      3
      3 years ago Log in to Reply
    11. Nichole Pleisch

      I put down other because I have all the symptoms but no formal diagnosis yet however my boyfriend who is type 1 as well is also diagnosed with ADHD

      4
      3 years ago Log in to Reply
    12. Kristine Warmecke

      I had extensive testing in grade school, during the 1970’s, no ADHD diagnosed; just dyslexia.

      3 years ago Log in to Reply
    13. KarenM6

      I have had a psychiatrist who wanted to test me. I don’t the test happened, though. It was long enough ago and I don’t really remember the details.
      It’s been awhile since I knew what the symptoms are… although, I know I can hyperfocus like crazy. Had a co-worker who stood in front of my desk calling my name for a reported 10 minutes before I looked up to see her.
      And, there are a lot of occasions where I can’t focus at all that aren’t related to blood sugar values.
      So, my answer is “Other – possibly, I don’t remember/I don’t know”.

      2
      3 years ago Log in to Reply
      1. Henry Renn

        ADHD is more about attentional inconsistency. When child/adult has high degree of interest they can have laser like concentration. The difference is that most students can attend to subjects with average to low degree of interest enough to get a passing grade. For students with untreated ADHD paying attention is a huge problem. That is compounded with other issues like poor organization, prioritizing input, holding memory, quickly losing interest,, etc. ADHD is also such a wide diagnostic category that 2 students with ADHD rarely present in the same manner.

        1
        3 years ago Log in to Reply
      2. KarenM6

        Thank you, Henry Renn!
        That is a great short description.

        1
        3 years ago Log in to Reply
    14. sweet charlie

      The Doc didn’t tell me… I told him…

      3 years ago Log in to Reply
    15. Jen Farley

      I am a very hyperactive person and been told I act like a person with adhd, it is mainly anxiety and a a high energy level I have to keep in check because my mouth can move faster than my brain.

      1
      3 years ago Log in to Reply
      1. Henry Renn

        Jen, It is true that a person with anxiety and/or depression can present symptoms suggesting ADHD. It is also true that compared to the general population people who have ADHD have a higher than average comorbidity for anxiety and depression. One test is an indicator but not sufficient for making the diagnosis of ADHD. Tests & checklists would be parts of a good diagnostic workup.

        3 years ago Log in to Reply
    16. T1D4LongTime

      LOL! Interesting question! I have never been diagnosed with ADHD. Doctors asked my mother to test me in first grade, but she refused. I was born and still am, very high energy. Type A personality, but I do not have concentration or behavioral/outburst problems. Just inpatience with inefficiency! LOL!

      3 years ago Log in to Reply

    If you have T1D, have you also been diagnosed by a health care provider with ADHD? Cancel reply

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