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    • 7 hours, 5 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 7 hours, 5 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 8 hours, 20 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Very, but more worried about it even making to the FDA and approved there first.
    • 8 hours, 21 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 8 hours, 21 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 8 hours, 22 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 8 hours, 23 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 8 hours, 24 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 8 hours, 24 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      General access to islet transplants is still years away. FDA has to deem it safe. Though, I am excited about the possibility.
    • 8 hours, 24 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 10 hours, 26 minutes ago
      Patricia Dalrymple likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 11 hours, 4 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 11 hours, 4 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 11 hours, 47 minutes ago
      Marty likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 12 hours, 9 minutes ago
      dholl62@gmail.com likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 12 hours, 33 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 12 hours, 33 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 12 hours, 33 minutes ago
      atr likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 12 hours, 49 minutes ago
      Sarah Berry likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 13 hours, 49 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Age 73 here. I'm in the same boat. I ogten am considered too old for consideration for "smaller" research projects. But - best of luck to them. I'll be rooting on the sidelines.
    • 13 hours, 50 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 4 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
    • 1 day, 4 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
    • 1 day, 4 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 10 hours ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
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    If you wear any devices, how many times in the past month have you accidentally ripped out a sensor or pump site?

    Home > LC Polls > If you wear any devices, how many times in the past month have you accidentally ripped out a sensor or pump site?
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    If you were diagnosed with T1D as an adult, were you first misdiagnosed before you got the correct diagnosis? If yes, with what were you misdiagnosed? Select all that apply to you.

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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    17 Comments

    1. George Hamilton

      I have pulled out two infusion sets, both of them last week. That was unusual for me. I was trying them in a new location on my abdomen, and I think the tubing was pulling on it in a new way. No problem with sensors; they seem to stay attached even without the overtape that Dexcom recommends.

      5 years ago Log in to Reply
    2. Tina Roberts

      None in a very long time. In the beginning I accidentally knocked a couple out by running into things. I finally got used to them and learned to avoid bumping them.

      1
      5 years ago Log in to Reply
    3. connie ker

      I didn’t rip it out, it just got loose in the bath tub and was recording low numbers. So I ripped it off myself,, and replaced the sensor ( Abbott Freestyle Libre).

      5 years ago Log in to Reply
    4. Lawrence Stearns

      I have not counted, but it’s about 3 times this past month. I have recently expanded the areas where I place my cannula to my arms and legs. I was no longer getting the full effect of the insulin in my belly area. I am using much more of the overtape, taping both the cannula and the tubing. I keep knocking the cannulas out when I take showers, and dry off with the towels. I am also getting much more pulling when I move my arms and legs, working or exercising.

      5 years ago Log in to Reply
    5. Kathy Hanavan

      Unusually a sensor site became loose in the bathtub as did a pump site so 2 this month, but normally only 1 or less.

      5 years ago Log in to Reply
    6. Natalie Daley

      Would be handy to have NA since people who don’t wear devices may have used none as the only option available to answer the question.

      1
      5 years ago Log in to Reply
    7. Ken Raiche

      It has happened in the past but not in the last 3 months, I just hope I haven’t hexed myself.😉

      5 years ago Log in to Reply
    8. Nancy Murphy

      Losing pump sites never ever happens to me (and I’ve been wearing pumps since they were invented!) But this past week my tubing got caught on a cabinet door, not once, but twice! I put a new site on, then an hour later, the same exact door yanked off my tubing!

      1
      5 years ago Log in to Reply
      1. Derek West

        Dam doors, you just can’t trust ’em.

        1
        5 years ago Log in to Reply
    9. Grey Gray

      I answered once because I somehow dislodged a sensor from the back of my arm. But that never happens in the last 25 years I may have lost 5 sites due to dropping my pump or something. I have sweated off hundreds.

      5 years ago Log in to Reply
    10. Ceolmhor

      Three times in four years. I don’t have enough real estate (with sufficient fat) around my middle to manage a rotating system, so I use thighs. Doing exercise, I occasionally ripped things out early on, but after I started wearing compression shorts, that problem disappeared. I think they may have improved the adhesives, though, as I no longer seem to even need to do that. I’ve been amazed at how well the Medtronic stuff stays put when tugged or scraped.

      5 years ago Log in to Reply
    11. Bob Durstenfeld

      For my pump, I loop the tubing and tape it to provide safety for the infusion set from being ripped out. My CGM I wear on my chest and only catch it through my shirt, either on my seatbelt or an occasional table edge or counter.

      5 years ago Log in to Reply
    12. Dan Patrick

      Hi All, this is a challenge. Personally the choice of the “glu” can make a big difference.

      5 years ago Log in to Reply
    13. LizB

      I’ve never ripped out a sensor but over the years I’ve lost a few sets to door knobs/handles. Not in the last month or even last few years though.

      5 years ago Log in to Reply
    14. Sally Numrich

      I can’t even remember the last time this happened. I did pull pump sites out back in my early days. Tube getting hooked on cabinet knobs but I have been pumping over 30 years. It has been a couple decades since this has happened.

      5 years ago Log in to Reply
    15. Ahh Life

      Ripped them all, the small, the short & the tall. In the last month, maybe twice. But over a lifetime? Let me count the ways: knobs, drawer handles, twigs, branches, car doors, USB connectors, dressing, undressing, running, lying, sitting, exceeding the 3-day limit, you name it, I’ve done it. ( ͡> ͜ʖ ͡<)

      5 years ago Log in to Reply
    16. Leona Hanson

      I didn’t rip one out the cow did I was walking down the road and this cow went through the gate ran me over she ripped out and stomped on my pump about 3 times I’m ok the pump did great I tell you medtronic made a strong pump except for a scratch it work great

      5 years ago Log in to Reply

    If you wear any devices, how many times in the past month have you accidentally ripped out a sensor or pump site? Cancel reply

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