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    • 1 hour, 24 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 1 hour, 24 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 2 hours, 40 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Very, but more worried about it even making to the FDA and approved there first.
    • 2 hours, 40 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 2 hours, 40 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 2 hours, 41 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 2 hours, 42 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 2 hours, 43 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 2 hours, 43 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      General access to islet transplants is still years away. FDA has to deem it safe. Though, I am excited about the possibility.
    • 2 hours, 43 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 4 hours, 45 minutes ago
      Patricia Dalrymple likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 5 hours, 23 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 5 hours, 23 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 6 hours, 6 minutes ago
      Marty likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 6 hours, 28 minutes ago
      dholl62@gmail.com likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 6 hours, 52 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 6 hours, 52 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 6 hours, 53 minutes ago
      atr likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 7 hours, 8 minutes ago
      Sarah Berry likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 8 hours, 8 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Age 73 here. I'm in the same boat. I ogten am considered too old for consideration for "smaller" research projects. But - best of luck to them. I'll be rooting on the sidelines.
    • 8 hours, 9 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 23 hours, 9 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
    • 23 hours, 10 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
    • 23 hours, 10 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 4 hours ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
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    If you lived with T1D as a child, were you restricted from participating in fun activities that typically involved candy?

    Home > LC Polls > If you lived with T1D as a child, were you restricted from participating in fun activities that typically involved candy?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    18 Comments

    1. Britni Steingard

      I was allowed to participate but, for the first few years at least, I had to trade in my candy for pennies and/or nickels. Then I was allowed to buy whatever I wanted with the money.

      5 years ago Log in to Reply
    2. Michelle Saunders

      I got to go trick or treating, but my brother got all the candy. Easter and Christmas I got sugar free candy or treats that could easily be figured into the exchange diet.

      5 years ago Log in to Reply
    3. Rebecca Lambert

      I was diagnosed as an adult

      1
      5 years ago Log in to Reply
    4. Nevin Bowman

      I participated but did not eat the candy. My mom was very strict with my diet and 40+ years later I’m very thankful. I had an A1c of 6.0 in 1977 before glucose testers were on the market.

      5 years ago Log in to Reply
    5. Jana Foley

      I personally was diagnosed as an adult, but my Terr two youngest children were diagnosed at ages 6 and 11. They were allowed to participate and eat the candy they received because our endo had told us that sugar free candy still had the carbs, just from a different source so we would have still needed to bolus for them. So we went with bolusing for the stuff they really wanted, but we very careful about the quantity they ate.

      5 years ago Log in to Reply
    6. Judy Hampton

      It seem funny now, but I was diagnosed in 1960 and given “diet” jellies, sodas, tea, etc. There was no restriction on candy at Halloween. LOL

      5 years ago Log in to Reply
    7. Sandra Lee

      I got to exchange my real candy for sugar free candy or toys. 1983 was diagnosed at age 6.

      1
      5 years ago Log in to Reply
    8. Don Pettit

      back in the early 50’s the regulations were a far cry from today’s thoughts. Fortunately I lived through “strict ” everything with no mental harm done. I’ll state that, others may disagree !! LOL

      5 years ago Log in to Reply
    9. Tina Roberts

      I was diagnosed as an adult.

      1
      5 years ago Log in to Reply
    10. Janis Senungetuk

      I was dx in 1955. One of my first experiences at school, 3rd grade, after a month in the hospital, was a classroom birthday party for a girlfriend. When her mom brought the cake, ice cream and party treats (candy) I was told to stay at my desk while everyone else gathered around a large table in the back of the room to celebrate her birthday. My teacher gave me one graham cracker square from a box my mother had given her to help treat my low blood sugars. The memory of the hurt and humilation of being excluded is still vivid after all of these years.

      1
      5 years ago Log in to Reply
    11. Becky Hertz

      I was diagnosed at 14yo, so not really a child but still a child. I was limited some but not a lot.

      5 years ago Log in to Reply
    12. Kristine Warmecke

      Our parents never held us back from anything.

      1
      5 years ago Log in to Reply
    13. Bill Williams

      I attended summer camp beginning in 1960, the same year I was dx’d. Candy bars, available for purchase only on “Candy Night” were the currency of the camp and I was allowed to buy only to pay off on a losing bet. It sucked.

      5 years ago Log in to Reply
    14. Ahh Life

      Dx’d in 1951 as a 4-year old I was raised to be a strict disciplinarian, But part child, part disciplinarian I was also impish enough to know how to cheat! Discipline and cheating were fun, one because the rewards were short term, the other because the rewards were long term. I now, much later in life, see the pleasures and downfalls of both. (ɔ˘ ³( ͡❛ ‿‿ ͡❛c)

      5 years ago Log in to Reply
    15. Leona Hanson

      I was pre diabetic when I was a child I was allowed to participate but not to eat the treats I was on a no sugar diet but that was my mom not the doctor

      5 years ago Log in to Reply
    16. Julie Akawie

      Dx at age 3 in 1970. I got to participate in Halloween until I aged out, and “sold” the candy to my parents and my siblings. My friends were so jealous that I had spending money, they tried to convince their parents to “buy” their candy. I recommend it to everyone, even non-diabetics. The parents “buy” the candy back and then give it away, enjoy it themselves, or dole it back out as the occasional treat for the kiddos.

      5 years ago Log in to Reply
    17. Sally Numrich

      I was always allowed to participate but I wasn’t allowed to eat the candy. My parents bought the candy from me. A penny for each piece. Birthday parties were also ok, but my Mom always knew ahead of time what was being eaten, so she had something similar for me. And of course sugar free juice.

      1
      5 years ago Log in to Reply
    18. NAK Marshall

      I was not allowed candy or sweets but still went to birthday parties, etc. Mom tried to make treats for me but they weren’t very good, due to my being diagnosed at age 9 in 1960. Not much out there, but by golly, she tried. I traded in my Trick or Treating for art supplies and got cookies or candy if I went low.

      5 years ago Log in to Reply

    If you lived with T1D as a child, were you restricted from participating in fun activities that typically involved candy? Cancel reply

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