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    • 30 minutes ago
      Beckett Nelson likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      My first reaction was Very Satisfied but there is always room for improvement. I’d like a pump design that wasn’t meant to be worn on a belt just for men. To wear a dress, I have to only get those with pockets (and on both sides because opposite sides cause the CGM to lose contact) and put a button whole in each. The clip shows horribly on blouses worn out. I’ve tried the leg attachments and they never stay secure. I’m not big enough to wear it in my bra. All minor inconveniences. I’d like one that doesn’t keep alarming 20 minutes after I’ve eaten, although I get it that it is there to save my life. Again minor. Ask about CGMs (probably tomorrow’s question): lately I’ve had trouble removing the sensor from my arm without actually ripping off a strip of skin or very bad bruising. I’ve read about using baby oil for removal. That does help. I’m a rip it off fast person, but that didn’t work so well.
    • 1 hour, 55 minutes ago
      John Barbuto likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      I have been using a insulin smart pen for the last 2 years; I find that it meets my current needs to ensure good management and results
    • 2 hours, 38 minutes ago
      Lawrence S. likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 2 hours, 39 minutes ago
      Lawrence S. likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      My first reaction was Very Satisfied but there is always room for improvement. I’d like a pump design that wasn’t meant to be worn on a belt just for men. To wear a dress, I have to only get those with pockets (and on both sides because opposite sides cause the CGM to lose contact) and put a button whole in each. The clip shows horribly on blouses worn out. I’ve tried the leg attachments and they never stay secure. I’m not big enough to wear it in my bra. All minor inconveniences. I’d like one that doesn’t keep alarming 20 minutes after I’ve eaten, although I get it that it is there to save my life. Again minor. Ask about CGMs (probably tomorrow’s question): lately I’ve had trouble removing the sensor from my arm without actually ripping off a strip of skin or very bad bruising. I’ve read about using baby oil for removal. That does help. I’m a rip it off fast person, but that didn’t work so well.
    • 3 hours, 13 minutes ago
      Gerald Oefelein likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 15 hours, 2 minutes ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 15 hours, 3 minutes ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 16 hours, 17 minutes ago
      Neha Shah likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 19 hours, 50 minutes ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience people have heard of Type 2 Diabetes so if I say Type 1 that makes sense in that if there is a Type 2 there must be a Type 1 also. That is the extent of their understanding. In healthcare there is a bigger failure where "diabetes" or "type 2 diabetes" is used as a shorthand of a set of conditions often seen together. See any research paper by any cardiologist ever. This lack of precision leads to incorrect risk evaluations and incorrect treatment of people with diabetes caused by other factors including autoimmune aka Type 1.
    • 19 hours, 51 minutes ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 23 hours, 15 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      I have, and I do show calcium build up and hardening of the arteries. No action has been taken yet at this time. However, I am taking Repatha for better control of my cholesterol and it has been working great.
    • 23 hours, 15 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 23 hours, 15 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Thank you. Your write up is concise, cogent, and convincing. 🎀
    • 23 hours, 16 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      After 16 stents and a new aortic valve, I've had every scan imaginable and she just keeps on tickin'.
    • 23 hours, 17 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Just googled it and most insurance plans including basic Medicare do not cover it. Said cost ranges $100-400 with out-of-pocket being $100-150 (although I don’t understand that if not covered by insurance).
    • 23 hours, 40 minutes ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 23 hours, 41 minutes ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 1 day ago
      Lynn Smith likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 3 hours ago
      Lawrence S. likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      This is a good question! but it does lead to so many other questions.
    • 1 day, 3 hours ago
      Lawrence S. likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      If the mystery train is your favorite form of conveyance, then you’re gonna love T1D. You may choose to be in a universe that is spiritually arid. Or you may choose to live in the harsh realities of reality. Up & down arrows and double arrows? I Love ‘em. Can and do take action immediately. 🙇‍♀️ 🙇‍♀️
    • 1 day, 3 hours ago
      Lawrence S. likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      T1D & T2D are meaningless acronyms for most, nearly all, nondiabetics. Juvenile diabetes vs diabetes is the closest known pairing and that's still few.
    • 1 day, 3 hours ago
      Lawrence S. likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 3 hours ago
      Mike S likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 3 hours ago
      Lauren T likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 3 hours ago
      Meerkat likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
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    Do you pay completely out-of-pocket (not processed through any insurance) for any of the following? Select all that apply.

    Home > LC Polls > Do you pay completely out-of-pocket (not processed through any insurance) for any of the following? Select all that apply.
    Previous

    At your most recent (or current) job, did you tell your coworkers that you have T1D?

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    What was your most recent A1c?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    22 Comments

    1. Mick Martin

      Not Applicable as I live in the UK where all of my diabetes-related medical supplies are paid for by our NHS (National Health Service), which is financed via direct taxation from all working people.

      5 years ago Log in to Reply
    2. Nicholas Argento

      Other because I bought Baqsimi before COVID lockdown because I was afraid no one would be available to answer a desperate 911 call from my wife. I live in what was then a hot spot- but not now, because we have had effective local and state leadership, unlike many states. People here understand that a mask is a public health tool , not a political endorsement. Baqsimi was not covered, so I bought it. Peace of mind is of great value.

      5 years ago Log in to Reply
    3. Britni Steingard

      My job may pay poorly but we have the best insurance. Relatively low copays, no deductibles, so far everything I’ve needed has been covered…

      5 years ago Log in to Reply
    4. Ahh Life

      Test strips, since use of the Dexcom G6 obviates the need for them. Really? Ask the question sometime of T1D’s of what do they do when one or many sensors fail. (っ^▿^)💨 Also, pay for cotton balls, alcohol, skin wipes, alcohol pads, glucometers, trips to the MD, parking, tolls, glucose tablets. The insulin technically cannot be labeled “completely out-of-pocket, but the co-pay is so prohibitively high that it might as well be . . . . . . 😭😭😭💰💰💰

      5 years ago Log in to Reply
    5. Gene Maggard

      I’m on Medicare (an Advantage plan) so my CGM supplies are covered 100%, and my pump supplies are 80% covered. I haven’t had to buy test strips for years as I had a huge oversupply (from old insurance). The last time I purchased a new pump it was only $200 so pleased with that. My highest cost has been insulin (again, an 80% coverage for a very high priced medication), but the new law limiting it to $35 will help there.

      5 years ago Log in to Reply
    6. gary rind

      Express Scripts is my PBM so they are problematic with strips. They only allow OneTouch Verio which is garbage. I’ve been buying Choice strips from Amazon and they are the same price.

      5 years ago Log in to Reply
    7. Kristen Clifford

      All my supplies are either covered by insurance or able to pay for with FSA except for alcohol swabs.

      5 years ago Log in to Reply
    8. Greg Felton

      I am fortunate to have good coverage on pump and CGM supplies but “peripherals” like alcohol, tegaderm, emergency glucose and tape are out of pocket. I once tried to get reimbursement for pump batteries but was told that only the amount exceeding the over-the-counter price was covered.

      5 years ago Log in to Reply
    9. Trina Blake

      For a while after changing health pans (we moved) I paid out of pocket for my Dexcom. I had been Dexcom’ing for years and really valued evverything about it. After about 3 years, the new health plan covered Dexcom. I pay out of pocket for meter and strips. Can’t use the meter covered by health plan (reads higher than actual on people with chronic anemia – that is disastrous – correcting high bg’s I wasn’t experiencing).

      5 years ago Log in to Reply
    10. Gustavo Avitabile

      I live in a civilized country, Italy. Like most European countries, health items are paid by National Health Service, that is by all taxpayers. In this way, health care is not a privilege for affluent people.

      5 years ago Log in to Reply
    11. Kristine Warmecke

      I did a couple times in 2020 for pump supplies & G6 sensors because the supplier I chose to use through my Medicare Advantage Plan messed up my orders repeatedly and I was left with nothing for months. So out of pocket via Tandem on a limited fixed income.

      5 years ago Log in to Reply
    12. Melinda Lipe

      Glucose tablets/smarties or other hypo supplies, yes for supplemental alcohol/syringes for pump problems, supplemental test strips.

      5 years ago Log in to Reply
    13. Rebecca Lambert

      I pay out of pocket for barrier wipes, overlay patches, alcohol wipes, etc. Insurance covers everything else.

      5 years ago Log in to Reply
    14. Chip Brookes

      Glucose meter test strips. I have a CGM Medicare and supplemental won’t pay. Also I purchase glucose tabs, alcohol wipes, IV prep pads, and clear dressing film to make my own over patches when needed

      5 years ago Log in to Reply
    15. Elif DeSimone

      Thankfully my insurance pays for all this

      5 years ago Log in to Reply
    16. Mig Vascos

      For several years I paid for my sensors but I got coverage when Medicare approved the Dexcom CGM. Right now strips are not covered because of the Dex G6 I use them only occasionally and I ’m still using supplies I had from before. Dexcom is providing the overlay patches for free. You just have to call them and request them (packages of 10 each) monthly.

      5 years ago Log in to Reply
    17. Patricia Dalrymple

      I suppose N/A means No to all? That’s what I chose.

      5 years ago Log in to Reply
    18. Carol Meares

      Lately I found that I could get test strips on Amazon without prescription and totally out of pocket cheaper than I could with my copay at the pharmacy. I will be changing to pharmacy by mail which may be cheaper but not sure about the test strips.

      5 years ago Log in to Reply
    19. Patricia Maddix

      I checked other because all of the products mentioned are covered completely or in part by my insurance. I have original Medicare plus a United healthcare supplement. At first when I started the G6 a year ago apparently Medicare was not covering strips anymore according to Dexcom. A little later in the year they indicated that they would send me some test strips for free. Then I changed my supplies to come from United States medical mail order, And they are also able to send me at least 200 test strips every three months. However if I want the contour next test strips I buy them out of pocket At Amazon because those are not part of the formulary’s.

      5 years ago Log in to Reply
    20. ConnieT1D62

      I pay out of pocket for Baqsemi with a RX at CVS, and I get Skin Prep and IV3000 patches for pump use w/o a RX directly online with Amazon Prime. Everything else related to insulins, pump and cgm supplies is covered by my insurance.

      5 years ago Log in to Reply
    21. Molly Jones

      All of the supplies and visits listed are covered by my insurance. I chose other as there was not a no. N/A meant to me I did not need these. I pay for prescribed polyethylene glycol 3350 completely to help with digestion/constipation. If this is not used my appetite and food intake is null.

      5 years ago Log in to Reply
    22. PersonofSweet

      I don’t use my meter that much, so it’s less of a hassle to just buy the strips and pay out of pocket.

      5 years ago Log in to Reply

    Do you pay completely out-of-pocket (not processed through any insurance) for any of the following? Select all that apply. Cancel reply

    You must be logged in to post a comment.




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