Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 2 hours, 36 minutes ago
      Amanda Barras likes your comment at
      Which T1D influencers do you enjoy following?
      Currently it’s the Diabetech, Justin Easter.
    • 11 hours, 56 minutes ago
      ChrisW likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
      I don't do T1 podcasts.
    • 12 hours, 28 minutes ago
      Kathy Hanavan likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
      TCOYD Diabetes Nerd Your Best T1D Year Think Like a Pancreas
    • 12 hours, 28 minutes ago
      Kathy Hanavan likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
      Take Control of Your Diabetes
    • 14 hours, 3 minutes ago
      Marty likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
      Take Control of Your Diabetes
    • 1 day, 6 hours ago
      Kathy Hanavan likes your comment at
      Which T1D influencers do you enjoy following?
      And TCOYD
    • 1 day, 6 hours ago
      Kathy Hanavan likes your comment at
      Which T1D influencers do you enjoy following?
      Diabetes Strong
    • 1 day, 6 hours ago
      Kathy Hanavan likes your comment at
      Which T1D influencers do you enjoy following?
      TCOYD AND DiaTribe are thoughtful information providers.
    • 1 day, 6 hours ago
      Kathy Hanavan likes your comment at
      Which T1D influencers do you enjoy following?
      Dan Heller on Substack
    • 1 day, 6 hours ago
      Kathy Hanavan likes your comment at
      Which T1D influencers do you enjoy following?
      TCOYD, as they are Doctors living with T1D. Their video's are informative and funny, I like T1D to 100, and Joanne Milo, as she too lives with T1D and understands what aging with T1D is like, and Tom from Type One Talks, as his video's are entertaining and informative.
    • 1 day, 6 hours ago
      Kathy Hanavan likes your comment at
      Which T1D influencers do you enjoy following?
      Currently it’s the Diabetech, Justin Easter.
    • 1 day, 6 hours ago
      Kathy Hanavan likes your comment at
      Which T1D influencers do you enjoy following?
      TCOYD
    • 1 day, 6 hours ago
      Kathy Hanavan likes your comment at
      Which T1D influencers do you enjoy following?
      TCOYD, Diabetech, Diabetes nerd, She's Diabetic, Juicebox Pod cast
    • 1 day, 6 hours ago
      Kathy Hanavan likes your comment at
      Which T1D influencers do you enjoy following?
      Diabe_Tech Justin Eastzer, TCOYD Steve Edelman & Jeremy Pettus, The Savvy Diabetic Joanne Laufer Milo, DiaTribe.
    • 1 day, 11 hours ago
      kristina blake likes your comment at
      Which T1D influencers do you enjoy following?
      TCOYD AND DiaTribe are thoughtful information providers.
    • 1 day, 11 hours ago
      kristina blake likes your comment at
      Which T1D influencers do you enjoy following?
      I am going to be general rather than specific (to protect the innocent 😏 ). I enjoy the researchers and the individuals living and making a good life of T1D. I loathe following what insurance companies, private equity, investment bankers, credit default swappers, derivative managers, mergers & acquisition operatives are doing (legally, and encouraged by) to the American health care system.
    • 1 day, 13 hours ago
      Derek West likes your comment at
      Which T1D influencers do you enjoy following?
      None
    • 1 day, 13 hours ago
      Derek West likes your comment at
      Which T1D influencers do you enjoy following?
      I am going to be general rather than specific (to protect the innocent 😏 ). I enjoy the researchers and the individuals living and making a good life of T1D. I loathe following what insurance companies, private equity, investment bankers, credit default swappers, derivative managers, mergers & acquisition operatives are doing (legally, and encouraged by) to the American health care system.
    • 1 day, 14 hours ago
      atr likes your comment at
      Which T1D influencers do you enjoy following?
      I am going to be general rather than specific (to protect the innocent 😏 ). I enjoy the researchers and the individuals living and making a good life of T1D. I loathe following what insurance companies, private equity, investment bankers, credit default swappers, derivative managers, mergers & acquisition operatives are doing (legally, and encouraged by) to the American health care system.
    • 1 day, 15 hours ago
      TEH likes your comment at
      Which T1D influencers do you enjoy following?
      I am going to be general rather than specific (to protect the innocent 😏 ). I enjoy the researchers and the individuals living and making a good life of T1D. I loathe following what insurance companies, private equity, investment bankers, credit default swappers, derivative managers, mergers & acquisition operatives are doing (legally, and encouraged by) to the American health care system.
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      Which T1D influencers do you enjoy following?
      I am going to be general rather than specific (to protect the innocent 😏 ). I enjoy the researchers and the individuals living and making a good life of T1D. I loathe following what insurance companies, private equity, investment bankers, credit default swappers, derivative managers, mergers & acquisition operatives are doing (legally, and encouraged by) to the American health care system.
    • 1 day, 17 hours ago
      Ahh Life likes your comment at
      Have you ever worked with a professional (outside your T1D healthcare team) to review your diabetes data, adjust settings, and insulin ratios?
      Early on in my diagnosis, I went to a diabetes camp. I had just started insulin and nothing was dialed in yet. It was really nice to have so much time with so many knowledgeable people. I think it would have taken quite a while to put things together with just me and my team.
    • 2 days, 8 hours ago
      Anita Stokar likes your comment at
      How many times a week do you exercise?
      Define exercise: I walk, do yoga, mow a corner lot at home, garden, vacuum, take care of a toddler from 9:30 am until 4:30pm twice per week, do Core exercises for women over 50 (I’m 68). Do I go to the gym and perform a regimen? No. But I think I get plenty of exercise.
    • 2 days, 8 hours ago
      Anita Stokar likes your comment at
      How many times a week do you exercise?
      My dog and I hike 4 miles a day (2 early am and then 2 in the pm). Then I also do 30 minutes of yoga and 30 minutes of TaiChi 6 days a week.
    • 2 days, 10 hours ago
      Sarah Berry likes your comment at
      Have you ever worked with a professional (outside your T1D healthcare team) to review your diabetes data, adjust settings, and insulin ratios?
      I am not sure. Do you consider a pump trainer outside your healthcare team? She wasn’t my usual go to and haven’t spoken to her since I got set up and dialed in. Despite that, most pump setting changes I do myself.
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
        • T1D Care Plans
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Industry Partnerships
      • Academic Partnerships
      • Previous Work
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    Compared to a year ago, how much has your out-of-pocket cost increased for T1D devices and supplies?

    Home > LC Polls > Compared to a year ago, how much has your out-of-pocket cost increased for T1D devices and supplies?
    Previous

    If you’ve received an EPI Pen injection for an allergic reaction, how did it affect your blood glucose?

    Next

    Happy Father’s Day! Please share anything T1D-related that your dad (or grandfather / any father figure) does that you’re grateful for.

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

    Related Stories

    Meet the Expert

    Meet the Expert: Improving Diabetes Care Through Precision Medicine 

    Jewels Doskicz, 2 days ago 8 min read  
    Meet the Expert

    Meet the Expert: Bridging Research, Technology, and Real-World Care 

    Jewels Doskicz, 3 days ago 9 min read  
    Insulin & Meds

    Ask the Expert: Diana Isaacs on Benefits, Risks, and Real-World Use of GLP-1s in T1D 

    Jewels Doskicz, 1 week ago 6 min read  
    Meet the Expert

    Meet the Expert: Advancing Equity, Improving Outcomes, and Reducing the Burden of T1D 

    Jewels Doskicz, 3 weeks ago 8 min read  
    Our team

    Spotlight on T1DX-QI: Clinical Leadership Committee 

    Jewels Doskicz, 1 month ago 6 min read  
    2026 Publications

    Persistent Burden of Severe Hypoglycemia and Impaired Awareness of Hypoglycemia Among People With Type 1 Diabetes Despite Technology Use: A Follow-up Survey 

    T1D Exchange, 1 month ago 1 min read  

    18 Comments

    1. Tod Herman

      Since I switched to the Omnipod 5, the formerly “durable medical equipment” status of the old Omnipods now switched over to a “formulary” (allegedly by the FDA) and now I pay the high tier amount of $50 a month for my replacement Pods. Thus my out of pocket increases accordingly. [Fortunately my Endo prescribes me with more than enough each month, which allows me to have extras.] You never know when one might get ripped off during work activities.

      2 years ago Log in to Reply
    2. Bill Williams

      A year ago I had a Part D plan that cost me about $68 per month but I had no copay on insulin. That plan was discontinued and I now have one that costs me $38 per month and $35 copays for insulin. Since I take two different insulins, my total cost has gone from $68 to $108, an increase of 58.8%.

      2 years ago Log in to Reply
    3. Edward Geary

      Supply benefits are stable ie pumps, tubes, sensors. Rx co-pay, however, are rising incrementally.

      2 years ago Log in to Reply
    4. Anita Stokar

      My co-pays for insulin have gone up, but since I don’t remember past costs, I can’t say how much the cost has increased

      2 years ago Log in to Reply
    5. Tracy Jean

      My costs have gone down, due to the cap on insulin.

      1
      2 years ago Log in to Reply
    6. cynthia jaworski

      The big increases were several years ago.

      2 years ago Log in to Reply
    7. Jian

      I think mine are less last yr and maybe even less this yr, on Medicare advantage and drugs are less

      2 years ago Log in to Reply
    8. Gary Rind

      last year I reached my OOP max due to an operation so last year’s costs were very low

      2 years ago Log in to Reply
    9. Jane Cerullo

      Just switched to pump after MDI. Supplies are no copay. Insulin is now only $35 for one type compared to needing two different insulins. Also paid deductible for my InPen which won’t have any more. So I guess saving some

      1
      2 years ago Log in to Reply
    10. ConnieT1D62

      Not much, but I am not sure by how much.

      2 years ago Log in to Reply
    11. Kristi Warmecke

      I am extremely lucky, my pump and CGM supplies are covered 100%, my insulin pump is covered by an 80% / 20% co-pay thank goodness. My Novolog co-pay even went down in price by about $20 per month, making $53 and change.

      2 years ago Log in to Reply
    12. PamK

      We switched to a lower cost plan at the beginning of the year because we were told everything would still be covered. My out of pocket cost has risen considerably on the new plan. We will switch back next year. Live and learn!

      2 years ago Log in to Reply
    13. KarenM6

      My deductible went up significantly and my percentage of co-pay went up from 20% to 30%.

      2 years ago Log in to Reply
    14. Bob Durstenfeld

      After two year of trying, I finally got my first vial of insulin under Medicare Part B. Last year Medicare granted me an exemption because I could not locate a pharmacy to fill my Part B prescription and I went back to pard D at quite an expense.
      My medications co payhave gone up significantly.

      2 years ago Log in to Reply
    15. Stephen Woodward

      The pharmacies are blocking access to required supplies if billing to Part B Medicare, by using outdated documentation requirements that MDs cannot provide because charts do not include the info in the format requested any longer, so pharmacies refuse to submit billing for covered supplies in the required amount…examples include specific insulin, test strips, which require out of pocked purchasing to get the necessary supplies. This is not Medicare, it is outdated data requirements asked for from an MD that are no longer documented in med records. The extra work has caused MDs to state that part b covered supplies are no longer covered, yet Medicare says they are.

      2 years ago Log in to Reply
    16. jamesmpii

      My OPE has gone way down. Insulin and needles are now covered in full. In the past I paid $90 every 90 days or so.

      2 years ago Log in to Reply
    17. Anthony Harder

      Answered not sure. This past year switched from private insurance to Medicare parts A, B, and D. The perpetual problem with insurance is determining the cost of anything. Premiums, co-pays, deductibles, discounts, coupons, changing rules with pharmacy benefit managers. Medicare has decent coverage. I believe overall costs have risen, but I’m not going to calculate year-over-year expenditures for this survey.

      2 years ago Log in to Reply
    18. Ben Holladay

      I am newly diagnosed within the year. The amount I pay is less than I was warned. With that said, my opinion is that T1D supplies should be free.

      2 months ago Log in to Reply

    Compared to a year ago, how much has your out-of-pocket cost increased for T1D devices and supplies? Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]