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In the past 5 years, have you participated in a T1D-related clinical trial? Please share more in the comments!
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tried to do one of the Vertex trials. this one did not require immunosuppressants but my A1C was lower than the range that they wanted.
I am currently participating in the T1D Beacon trial at Mass General looking at bone density with long standing T1 and changes over 2 years.
I consistently try – but never qualify. Perhaps my “numbers” are too good?
I still participate in research for many different conditions, but not currently clinical trials.
I used to do this often, mainly for epilepsy, but I am now no longer a good candidate with too many conditions.
No, but I did in 2017-18 for Medtronic.
I was part of a flu vaccine trial for post-transplant patients.
I’ve tried but my A1C is too low. It seems they only want people with poor control.
These feels like a very “shaming” response. Sometimes a myriad of factors affect a1c other than poor control: stress, hormones, growth spurts, other medical issues, dosing adjustments, or medication changes. I would love to see simple support for all who face T1D daily regardless of their “control”.
The Vertex trail regarding stem cell replacement. I went through to the very end and then found out I didn’t qualify. Very disappointing!
I have not been eligible for any
I applied but my A1C was too low to qualify.
I answered No, but I should have answered Yes, but not T1D related. No studies related to T1D ever want me because my A1c is too low, or I’m not overweight, or I take a psych med, or I’m too old, etc. I participated in the original Moderna COVID vaccine study in 2020.
I was in a trial for a non-invasive device to check blood sugar
I participated in the Faustman lab phase 2 BCG trial for Type 1
I’ve been apart of the DCCT/EDIC study for over 35 years I am proud to be a part of the advancements in diabetes that have been found through the years on the study.
I tested the adhesive for the new dexcom G7 a few years ago. I wore a fake sensor on each arm and each side of my abdomen for 14 days and tracked how the adhesive was affected.
I wish! Applied to many, many but was never chosen (sic. yet). I have serious decades of experience to offer somebody… use me already will ya!?!?!
I participated in the first Tandem ControlIQ trials and adhesive testing for the Dexcom G7
I have also participated in trials for products that never made it to market including several non-invasive, no blood BG meters.
I’ve participated in a trial for the Medtronic 780g with their newest Guardian CGM.
No, but my endo knows that I would be interested in a dual hormone pump trial (glucagon and insulin) if that trial were in my area. She said she would let me know if one is set to go near where I live.
I have participated and finished one and am at the end of another right now.
I wanted to participate in a third trial, but my A1c was too low.
The two that I participate(d) in have been fantastic experiences. I’ve learned a lot and my pump set up has gotten lots and lots of great scrutiny! The doctors and nurses I have encountered have been fantastically kind and generous with their time and information.
If more come up in the future that I can qualify for, I will definitely give it a go!
Several kidney studies at Joslin Clinic in Boston.
Bionic insulin pump
My T1D son is enrolled in a clinical trial for Afrezza inhaled insulin use in 12-17 year olds
I have participated in the PERL study and the PANDA studies on kidney disease. Also one for the latest closed loop pump. I have done many studies over the past 30 years at the University of Washington medical center.
Omnipod 5 trial (was called Horizon at the time)
EDIC