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    • 19 hours, 37 minutes ago
      Patricia Dalrymple likes your comment at
      How concerned are you about being able to afford your next T1D supply order?
      A little concerned, more so than usual. I currently have insurance that covers diabetes supplies completely but I don’t take this for granted.
    • 22 hours, 12 minutes ago
      Lisa Sierra likes your comment at
      How concerned are you about being able to afford your next T1D supply order?
      I live in a constant fear of losing my health insurance, or having it change to something that makes all my durable medical and prescriptions too expensive.
    • 22 hours, 31 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about being able to afford your next T1D supply order?
      I had a problem with my infusion sets being on back order but I have met my deductible all ready.
    • 22 hours, 31 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about being able to afford your next T1D supply order?
      I live in a constant fear of losing my health insurance, or having it change to something that makes all my durable medical and prescriptions too expensive.
    • 22 hours, 31 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about being able to afford your next T1D supply order?
      A little concerned, more so than usual. I currently have insurance that covers diabetes supplies completely but I don’t take this for granted.
    • 23 hours, 9 minutes ago
      Kathy Hanavan likes your comment at
      In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
      I’ve been taking Rybelsus for 3 years now. I’ve lost 50+ pounds, reduced my insulin by 65% and have kept my A1C at a steady 6.3!!
    • 1 day, 10 hours ago
      Bekki Weston likes your comment at
      In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
      I have used afrezza, the inhalable insulin
    • 1 day, 14 hours ago
      lis be likes your comment at
      In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
      Yes, I tried metformin, Ozempic, and Zepbound. The only one that worked, and worked really well was zepbound. Unfortunately, when my insurance changed, I could no longer get it because it wasn't covered and the T2 version which is Mounjaro I could not get off lable because I am T1. Zepbound cut my insulin needs in half and I lost 30 lbs. I would take it again just for the insulin resistance tho. However, I have some lingering insulin resistance improvement even with discontinuing it in Sept, though I have gained a little weight back.
    • 1 day, 14 hours ago
      lis be likes your comment at
      In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
      Currently using Mounjaro along with Humalog via my TSlim insulin pump, running control IQ.
    • 1 day, 17 hours ago
      Deborah Wright likes your comment at
      In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
      i have used metformin
    • 1 day, 17 hours ago
      Deborah Wright likes your comment at
      In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
      metformin
    • 1 day, 20 hours ago
      Anita Stokar likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      As an avid hiker, climber and mountaineer my challenges are mostly weather related. Is my pump warm enough, are my extra supplies warm enough, is my insulin starting to freeze.
    • 1 day, 21 hours ago
      Marty likes your comment at
      In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
      I was taking metformin at the beginning of this journey, because at 40 they assumed T2. (No family history, not overweight, was running 3-4 miles 2-3x week). Put on insulin when endo diagnosed me with LADA.
    • 2 days, 19 hours ago
      Marty likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      I would like to say accuracy, but if it’s not covered and I can’t afford it, then it’s not happening.
    • 2 days, 19 hours ago
      Marty likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      Hard to say only one is most important. I would not use any device that was problematic on any of these except with a minor level of discomfort/wearability. Maybe the better question is ask to rank these or ask if any are unimportant …
    • 2 days, 21 hours ago
      mojoseje likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      I would like to say accuracy, but if it’s not covered and I can’t afford it, then it’s not happening.
    • 2 days, 21 hours ago
      atr likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      Hard to say only one is most important. I would not use any device that was problematic on any of these except with a minor level of discomfort/wearability. Maybe the better question is ask to rank these or ask if any are unimportant …
    • 2 days, 22 hours ago
      Bonnie kenney likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      If you don’t have accuracy and reliability, none of the rest matters.
    • 2 days, 22 hours ago
      Bill Ervin likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      If you don’t have accuracy and reliability, none of the rest matters.
    • 2 days, 22 hours ago
      Bill Ervin likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      Hard to say only one is most important. I would not use any device that was problematic on any of these except with a minor level of discomfort/wearability. Maybe the better question is ask to rank these or ask if any are unimportant …
    • 2 days, 22 hours ago
      Bill Ervin likes your comment at
      Which of the following is the most important to you when choosing diabetes devices or supplies?
      I would like to say accuracy, but if it’s not covered and I can’t afford it, then it’s not happening.
    • 2 days, 22 hours ago
      Jaysen LeSage likes your comment at
      Which of the following can make exercising more challenging for you? (Select all that apply)
      I find the hardest thing is getting started. Diabetes doesn’t really cause issues
    • 3 days, 13 hours ago
      ChrisW likes your comment at
      What kind of diabetes-related support would be most helpful to you right now?
      Funny you should ask, and I'm with Amanda Barras - dealing with the US insurance and networks system. I switched health plans, effective 1/1/26. My old plan stopped processing Rx's two weeks before (Rx's for pump and CGM supplies). With the network system in US healthcare, I can't see a doctor until September. Since I have different coverage for my supplies (including insulin) I need new Rx's. Having to check in often to see if their are open appointments from cancellations, and trying to see if a Zoom care or Urgent care will provide "bridge refills". My old health plan will not issue bridge refills. I 'spose it isn't strictly a T1D issue - but it's one that unites all of us with chronic medical conditions (and chronic poor medical service)
    • 3 days, 13 hours ago
      ChrisW likes your comment at
      What kind of diabetes-related support would be most helpful to you right now?
      For me, a “cruise director” for long-term Type 1 diabetes or chronic illness would be most beneficial — someone who looks at the whole person. General practitioners are increasingly rare, and specialists tend to work in silos, often without coordinating care, considering overlapping conditions, or cross-checking medications and prognoses. What’s needed is a knowledgeable care coordinator who understands long-term Type 1 diabetes, can help interpret conflicting specialist advice, guide patients toward the right specialist for specific symptoms (for example, whether migrating burning pain is diabetes-related or not), and maintain referral lists of providers who already understand how long-term diabetes affects their specialty.
    • 3 days, 18 hours ago
      kristina blake likes your comment at
      How often do you review your glucose data beyond quick, real-time checks?
      Monthly to quarterly. Depending on control. If I notice more highs or lows I’ll copy check for trends and make dosing adjustments to straighten myself out. I almost never wait for appts to review and make changes on my own.
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    Do you live with any sexual side effects of type 1 diabetes? If you’re comfortable, please share more in the comments.

    Home > LC Polls > Do you live with any sexual side effects of type 1 diabetes? If you’re comfortable, please share more in the comments.
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    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    16 Comments

    1. Bob Durstenfeld

      I developed ED decades ago, the available meds worked for a while, but alas, no longer.
      However, it was an early indicator of heart related issues.

      2 years ago Log in to Reply
    2. Don P

      the answer all depends on whom is answering, myself & or partner & atmosphere …. Hmmmmm. …..some things are inevitable after 70 yrs of T1

      2 years ago Log in to Reply
    3. Patricia Dalrymple

      A lot of sexual side effects have to do with menopause in women. I read an article recently in support of HRT but was never offered it or didn’t consider it because I thought it increased the chances of breast cancer, and those are already high enough. The comments related to the article were hilarious and said that if men had to suffer like women do, there would be drugs available over the counter or in the water for free.

      2 years ago Log in to Reply
    4. rick phillips

      I have had a penile prosthesis, but after 20 years, it failed.

      2 years ago Log in to Reply
    5. Sue Martin

      I have had low libido but having a brain tumor, dialysis, and kidney transplant all play into it. I’ve talked to my OBGYN and read some books.

      2 years ago Log in to Reply
    6. mbulzomi@optonline.net

      Not many ways to define NO!

      2 years ago Log in to Reply
    7. Andrew Carpenter

      ED since 2013. Viagra doesn’t work, not for lack of trying. Just had to get used to not being intimate.

      2 years ago Log in to Reply
      1. Anita Stokar

        🙁

        2 years ago Log in to Reply
    8. Anita Stokar

      Some symptoms can also be age related, so who knows what any actual cause is?

      2 years ago Log in to Reply
    9. Ahh Life

      73 years of T1D. This is probably the ONLY area that has not been affected. . . . Yet. ✌️

      1
      2 years ago Log in to Reply
      1. Mick Martin

        @Ahh Life. Keep going, brother. 😉

        2 years ago Log in to Reply
    10. PamK

      I have vaginal dryness, but I am told that this is due to menopause.

      2 years ago Log in to Reply
    11. Mick Martin

      ED (Erectile Dysfunction) which started when I was about 27 or 28. (I’m now 66.)

      I’ve tried a multitude of different pills/tablets, penile injections, intraurethral suppositories, vacuum therapy device, Kegel exercises as advised by a physiotherapist, B12 tablets, as advised by a psycho-sexual counsellor, but none of them have been as good as I was expecting.

      On a side note, when I first began having penile injections, I was informed by the doctor that I must carry a note explaining what medication I was taking as it was still experimental in the UK … apparently, it was an injection that was used on horses and MIGHT cause extended erections that would need blood removing at a hospital to cause demutescence.

      The vacuum therapy device was the most useful.

      2 years ago Log in to Reply
    12. Amanda Barras

      I have had low libido for several years. As well as intermittent circulation issues in regard to that area. I asked for help and advice and my GYN, who is also female, basically she said it’s all in my head and normal for woman no longer trying to reproduce. And my Endo suggested DHEA but I haven’t noticed any improvement since taking it.

      2 years ago Log in to Reply
      1. Amanda Barras

        I also feel like women get ignored in this department like it only matters if you are a male with ED. Because that is the only sexual health question asked on my Endo’s intake questionnaires.

        2 years ago Log in to Reply
    13. Jeff Balbirnie

      If YOU have questions feel free… T1 is not for the shy or inhibited. Bring it, ask away researchers, white coats. Unclear, never gotten a formal diagnosis regardless of how many times I do and have asked. The white coats seem candidly disinterested on any level and frankly quasi puritanical?! I ask but they have no answer(s), nor referred me to anybody so I cannot be certain. I strongly suspect/believe there are issues, but unless or until diagnosed… cannot be certain

      2 years ago Log in to Reply

    Do you live with any sexual side effects of type 1 diabetes? If you’re comfortable, please share more in the comments. Cancel reply

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