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      Which T1D influencers do you enjoy following?
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      I am going to be general rather than specific (to protect the innocent 😏 ). I enjoy the researchers and the individuals living and making a good life of T1D. I loathe following what insurance companies, private equity, investment bankers, credit default swappers, derivative managers, mergers & acquisition operatives are doing (legally, and encouraged by) to the American health care system.
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      Which T1D influencers do you enjoy following?
      I am going to be general rather than specific (to protect the innocent 😏 ). I enjoy the researchers and the individuals living and making a good life of T1D. I loathe following what insurance companies, private equity, investment bankers, credit default swappers, derivative managers, mergers & acquisition operatives are doing (legally, and encouraged by) to the American health care system.
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      Which T1D influencers do you enjoy following?
      I am going to be general rather than specific (to protect the innocent 😏 ). I enjoy the researchers and the individuals living and making a good life of T1D. I loathe following what insurance companies, private equity, investment bankers, credit default swappers, derivative managers, mergers & acquisition operatives are doing (legally, and encouraged by) to the American health care system.
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      TEH likes your comment at
      Which T1D influencers do you enjoy following?
      I am going to be general rather than specific (to protect the innocent 😏 ). I enjoy the researchers and the individuals living and making a good life of T1D. I loathe following what insurance companies, private equity, investment bankers, credit default swappers, derivative managers, mergers & acquisition operatives are doing (legally, and encouraged by) to the American health care system.
    • 5 hours, 35 minutes ago
      Lawrence S. likes your comment at
      Which T1D influencers do you enjoy following?
      I am going to be general rather than specific (to protect the innocent 😏 ). I enjoy the researchers and the individuals living and making a good life of T1D. I loathe following what insurance companies, private equity, investment bankers, credit default swappers, derivative managers, mergers & acquisition operatives are doing (legally, and encouraged by) to the American health care system.
    • 6 hours, 53 minutes ago
      Ahh Life likes your comment at
      Have you ever worked with a professional (outside your T1D healthcare team) to review your diabetes data, adjust settings, and insulin ratios?
      Early on in my diagnosis, I went to a diabetes camp. I had just started insulin and nothing was dialed in yet. It was really nice to have so much time with so many knowledgeable people. I think it would have taken quite a while to put things together with just me and my team.
    • 22 hours, 9 minutes ago
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      How many times a week do you exercise?
      Define exercise: I walk, do yoga, mow a corner lot at home, garden, vacuum, take care of a toddler from 9:30 am until 4:30pm twice per week, do Core exercises for women over 50 (I’m 68). Do I go to the gym and perform a regimen? No. But I think I get plenty of exercise.
    • 22 hours, 11 minutes ago
      Anita Stokar likes your comment at
      How many times a week do you exercise?
      My dog and I hike 4 miles a day (2 early am and then 2 in the pm). Then I also do 30 minutes of yoga and 30 minutes of TaiChi 6 days a week.
    • 1 day ago
      Sarah Berry likes your comment at
      Have you ever worked with a professional (outside your T1D healthcare team) to review your diabetes data, adjust settings, and insulin ratios?
      I am not sure. Do you consider a pump trainer outside your healthcare team? She wasn’t my usual go to and haven’t spoken to her since I got set up and dialed in. Despite that, most pump setting changes I do myself.
    • 1 day, 1 hour ago
      Lori C likes your comment at
      Have you ever worked with a professional (outside your T1D healthcare team) to review your diabetes data, adjust settings, and insulin ratios?
      If you consider referring to Gary Scheiner and John Walsh's books - then no. But those two gave me the confidence to adjust settings and since I am a math/data nerd to trust my ability to interpret data.
    • 1 day, 4 hours ago
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      How many times a week do you exercise?
      I walk over three miles a day and use my indoor bike every day.
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      How many times a week do you exercise?
      Pickleball two mornings a week, 2 strength training classes and 1 yoga class per week at the gym. Plus, dog walks on demand!
    • 1 day, 4 hours ago
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      How many times a week do you exercise?
      I do not exercise. At 86, my years of regular exercise have stood me in good stead.
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      How many times a week do you exercise?
      lift weights 3x a week and run several times per week. been having foot problems lately so the running has been spotty but it's getting better. The consistency of lifting weights have a big effect on the amount of background insulin needed (MDI).
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      How many times a week do you exercise?
      Define exercise: I walk, do yoga, mow a corner lot at home, garden, vacuum, take care of a toddler from 9:30 am until 4:30pm twice per week, do Core exercises for women over 50 (I’m 68). Do I go to the gym and perform a regimen? No. But I think I get plenty of exercise.
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      How many times a week do you exercise?
      I do cardio (elliptical and rower) and Pilates (mat and reformer) nearly every day. Consistency makes my BG more predictable and easier to manage. I’ve just emerged from a month of inactivity after cataract surgery, which made me realize how much I need exercise for stress relief, too.
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      How many times a week do you exercise?
      I play pickleball three mornings a week and do daily calesthenics.
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      How many times a week do you exercise?
      My dog and I hike 4 miles a day (2 early am and then 2 in the pm). Then I also do 30 minutes of yoga and 30 minutes of TaiChi 6 days a week.
    • 1 day, 4 hours ago
      Marty likes your comment at
      How many times a week do you exercise?
      I do not exercise. At 86, my years of regular exercise have stood me in good stead.
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      Have you been tested for and diagnosed with celiac disease?
      Tested for yes. Diagnosed with no. Gotta watch those complex questions because the answer becomes invalid.
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      How many times a week do you exercise?
      Define exercise: I walk, do yoga, mow a corner lot at home, garden, vacuum, take care of a toddler from 9:30 am until 4:30pm twice per week, do Core exercises for women over 50 (I’m 68). Do I go to the gym and perform a regimen? No. But I think I get plenty of exercise.
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      How many times a week do you exercise?
      Define exercise: I walk, do yoga, mow a corner lot at home, garden, vacuum, take care of a toddler from 9:30 am until 4:30pm twice per week, do Core exercises for women over 50 (I’m 68). Do I go to the gym and perform a regimen? No. But I think I get plenty of exercise.
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      How many times a week do you exercise?
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    Do you live with any sexual side effects of type 1 diabetes? If you’re comfortable, please share more in the comments.

    Home > LC Polls > Do you live with any sexual side effects of type 1 diabetes? If you’re comfortable, please share more in the comments.
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    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    16 Comments

    1. Bob Durstenfeld

      I developed ED decades ago, the available meds worked for a while, but alas, no longer.
      However, it was an early indicator of heart related issues.

      2 years ago Log in to Reply
    2. Don P

      the answer all depends on whom is answering, myself & or partner & atmosphere …. Hmmmmm. …..some things are inevitable after 70 yrs of T1

      2 years ago Log in to Reply
    3. Patricia Dalrymple

      A lot of sexual side effects have to do with menopause in women. I read an article recently in support of HRT but was never offered it or didn’t consider it because I thought it increased the chances of breast cancer, and those are already high enough. The comments related to the article were hilarious and said that if men had to suffer like women do, there would be drugs available over the counter or in the water for free.

      2 years ago Log in to Reply
    4. rick phillips

      I have had a penile prosthesis, but after 20 years, it failed.

      2 years ago Log in to Reply
    5. Sue Martin

      I have had low libido but having a brain tumor, dialysis, and kidney transplant all play into it. I’ve talked to my OBGYN and read some books.

      2 years ago Log in to Reply
    6. mbulzomi@optonline.net

      Not many ways to define NO!

      2 years ago Log in to Reply
    7. Andrew Carpenter

      ED since 2013. Viagra doesn’t work, not for lack of trying. Just had to get used to not being intimate.

      2 years ago Log in to Reply
      1. Anita Stokar

        🙁

        2 years ago Log in to Reply
    8. Anita Stokar

      Some symptoms can also be age related, so who knows what any actual cause is?

      2 years ago Log in to Reply
    9. Ahh Life

      73 years of T1D. This is probably the ONLY area that has not been affected. . . . Yet. ✌️

      1
      2 years ago Log in to Reply
      1. Mick Martin

        @Ahh Life. Keep going, brother. 😉

        2 years ago Log in to Reply
    10. PamK

      I have vaginal dryness, but I am told that this is due to menopause.

      2 years ago Log in to Reply
    11. Mick Martin

      ED (Erectile Dysfunction) which started when I was about 27 or 28. (I’m now 66.)

      I’ve tried a multitude of different pills/tablets, penile injections, intraurethral suppositories, vacuum therapy device, Kegel exercises as advised by a physiotherapist, B12 tablets, as advised by a psycho-sexual counsellor, but none of them have been as good as I was expecting.

      On a side note, when I first began having penile injections, I was informed by the doctor that I must carry a note explaining what medication I was taking as it was still experimental in the UK … apparently, it was an injection that was used on horses and MIGHT cause extended erections that would need blood removing at a hospital to cause demutescence.

      The vacuum therapy device was the most useful.

      2 years ago Log in to Reply
    12. Amanda Barras

      I have had low libido for several years. As well as intermittent circulation issues in regard to that area. I asked for help and advice and my GYN, who is also female, basically she said it’s all in my head and normal for woman no longer trying to reproduce. And my Endo suggested DHEA but I haven’t noticed any improvement since taking it.

      2 years ago Log in to Reply
      1. Amanda Barras

        I also feel like women get ignored in this department like it only matters if you are a male with ED. Because that is the only sexual health question asked on my Endo’s intake questionnaires.

        2 years ago Log in to Reply
    13. Jeff Balbirnie

      If YOU have questions feel free… T1 is not for the shy or inhibited. Bring it, ask away researchers, white coats. Unclear, never gotten a formal diagnosis regardless of how many times I do and have asked. The white coats seem candidly disinterested on any level and frankly quasi puritanical?! I ask but they have no answer(s), nor referred me to anybody so I cannot be certain. I strongly suspect/believe there are issues, but unless or until diagnosed… cannot be certain

      2 years ago Log in to Reply

    Do you live with any sexual side effects of type 1 diabetes? If you’re comfortable, please share more in the comments. Cancel reply

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