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    • 3 hours, 41 minutes ago
      Ahh Life likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      Unmarked non-sequential bills under the table is preferred. Cash plus free insulin or CGMs would be fine too. Eversense is really missing out on an opportunity by not partnering with trials to offer a free E365 and insertion to get people to try their device.
    • 1 day, 14 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 14 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 14 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 15 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 17 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 20 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 21 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 22 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 23 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 23 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 23 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 23 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 23 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 15 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 15 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 17 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 18 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 19 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 21 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 21 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 22 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 22 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    How many extra (unopened) insulin vials/pens do you have on-hand?

    Home > LC Polls > How many extra (unopened) insulin vials/pens do you have on-hand?
    Previous

    Have you ever participated in a T1D focused clinical trial? Tell us about it in the comments!

    Next

    Have you ever run out of insulin and had issues getting more because of insurance? Share in the comments what you did.

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    16 Comments

    1. kilupx

      The answer to this question varies based on where I am in the 3-month supply cycle. I try to keep a couple of extra vials in reserve for emergencies. My prescription is for 6 vials every 3 months.

      2
      2 years ago Log in to Reply
      1. kilupx

        Sorry. This was posted to wrong question.

        2 years ago Log in to Reply
      2. Gary Taylor

        Seems like your response is to the correct question.

        2 years ago Log in to Reply
    2. Gary Taylor

      8 right now because I just received a 3 month supply of 7 vials.

      2 years ago Log in to Reply
    3. Sue Martin

      Oh, I just counted my Humalog for my pump and not my glargine backup. I think I really have around eight vials.

      2 years ago Log in to Reply
    4. Dave Akers

      I have INHALED INSULIN CARTRIDGES.. must have forgotten to include that. 🙂

      2 years ago Log in to Reply
    5. Kristi Warmecke

      I technically do not have back up vials. What I have are my monthly supply that I haven’t opened yet. Huge difference in back up and what I need for the month.
      The question is worded badly in my opinion.

      1
      2 years ago Log in to Reply
    6. Bob Durstenfeld

      I get a 90-day supply and I try to always have an extra vial or two of Novolog, If the doctor has them, I try and get a sample insulin pen as a spare too.

      2 years ago Log in to Reply
    7. Nichole Pleisch

      I have 3 diabetics In my house so our doctor prescribes us just a little extra each just in case.

      2 years ago Log in to Reply
    8. Russell Buckbee

      I marked 4-6, but they aren’t “extra”. They are part of the 90 day supply that Medicare requires I get.

      2 years ago Log in to Reply
    9. dholl62@gmail.com

      I have an insulin pump and the amount should last me 21/2 monthe

      2 years ago Log in to Reply
    10. TomH

      You need to define “extra”. I put 10-12, but that includes my next 90-day supply (15 pens) I just picked up.

      2
      2 years ago Log in to Reply
    11. Annie Wall

      My 1-3 2 actually) are not really backup because I get 90 day supplies and soon I’ll be ordering a new batch.

      2 years ago Log in to Reply
    12. Phyllis Biederman

      As with most other respondents, my “extra” Humalog insulin is actually part of my 3 month supply (4vials )for pump use. I always keep one vial of Glargine for use in the event of pump failure.

      2 years ago Log in to Reply
    13. KarenM6

      Oh! I didn’t think about this, but reading the replies, I answered 4 to 6, but that is part of my 90 day supply!
      I do also have some Afrezza for emergency high BSes.

      2 years ago Log in to Reply
    14. Jeff Balbirnie

      Specifically designated “back-up” insulin, absolutely none. I wish I could have or afford any back-up insulin so that is a pen goes out of date, or is out of date, a vial falls/breaks…. I can STAY alive because without insulin I will die, period. There should be a mandatory safety factor which permits having a minimum of back up insulin.

      2 years ago Log in to Reply

    How many extra (unopened) insulin vials/pens do you have on-hand? Cancel reply

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