Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.
I selected “Other”, but that could quite as easily have been “0” as I don’t go out of the house, save for hospital and clinical appointments, and simply can’t afford to make plans to attend anywhere.
I have missed events (or work projects around the house) mostly because of other health issues, asthma, shoulder pain, celiac disease, back pain. T1D mostly effects home work projects. We don’t go out very often. I said “once or twice.” (Maybe).
I almost never miss events because of urgent T1D situations (blood sugar issues, DKA, etc.) — but I frequently miss events because of diabetes complications (gastroparesis flares in particular). Plus there’s the calculus of risk, especially since the pandemic. When COVID and flu rates are high, how many events do I just not even consider because of that risk? That feels very different than bailing on an event that I planned to attend because of a diabetes emergency, but it still has the net result of me not going to an event.
I said 1-2. It’s rare but I won’t do things like tubing or kayaking because I don’t want to get my pump wet (live in FL and most involves salt water). Even in fresh water I wouldn’t risk it.
Prior to gastroparesis, the first 65 – 70 years of T1D, the answer was zero. But alas and alack, I now am enslaved to a spastic digestive nerve that sits there and contemplates to itself in a complete soliloquy, “Will I or won’t I digest this carb?” And I cannot drive, travel, etc. until the dolting dither-er in chief makes up it’s mind.
The way my work life went, I gave up planning to do things decades ago. If I wanted to work overtime, the most reliable way to get the overtime was to plan on doing something or going somewhere on my days off. If I had nothing planned, it was almost guaranteed that I’d have the time off. But without fail, if I had made any plans, it was guaranteed that work would require me to work the entire time of whatever I had planned to attend.
The only thing I’ve missed have been 2 workouts when I woke up much lower than planned and was not able to rebound in time to go do a hard work workout. But generally speaking, it’s not an issue.
My own damn fault
I selected “Other”, but that could quite as easily have been “0” as I don’t go out of the house, save for hospital and clinical appointments, and simply can’t afford to make plans to attend anywhere.
I’ve never missed anything but I’ve been late because I won’t drive if my bg is too low.
I have missed events (or work projects around the house) mostly because of other health issues, asthma, shoulder pain, celiac disease, back pain. T1D mostly effects home work projects. We don’t go out very often. I said “once or twice.” (Maybe).
I put 3-4, but it really varies. Could be 0 or could be 6.
I almost never miss events because of urgent T1D situations (blood sugar issues, DKA, etc.) — but I frequently miss events because of diabetes complications (gastroparesis flares in particular). Plus there’s the calculus of risk, especially since the pandemic. When COVID and flu rates are high, how many events do I just not even consider because of that risk? That feels very different than bailing on an event that I planned to attend because of a diabetes emergency, but it still has the net result of me not going to an event.
Really, never ever.
I have missed events due to pregnancy or flu or family responsibilities.
I said 1-2. It’s rare but I won’t do things like tubing or kayaking because I don’t want to get my pump wet (live in FL and most involves salt water). Even in fresh water I wouldn’t risk it.
Prior to gastroparesis, the first 65 – 70 years of T1D, the answer was zero. But alas and alack, I now am enslaved to a spastic digestive nerve that sits there and contemplates to itself in a complete soliloquy, “Will I or won’t I digest this carb?” And I cannot drive, travel, etc. until the dolting dither-er in chief makes up it’s mind.
Honestly I never miss an event…unless it’s an event I don’t want to attend, then Inuse T1D as a scapegoat to get out of it! 😳
Or I use it to get me and kids to front of line at Disney! 😬
If having to bail on an event early due to pump failure counts, then yeah, 1-2 a year maybe. Not often but not never.
The way my work life went, I gave up planning to do things decades ago. If I wanted to work overtime, the most reliable way to get the overtime was to plan on doing something or going somewhere on my days off. If I had nothing planned, it was almost guaranteed that I’d have the time off. But without fail, if I had made any plans, it was guaranteed that work would require me to work the entire time of whatever I had planned to attend.
Never is self-explanatory.
Rarely. That should have been an option.
The only thing I’ve missed have been 2 workouts when I woke up much lower than planned and was not able to rebound in time to go do a hard work workout. But generally speaking, it’s not an issue.
Never considered the question before. Not very often that I am aware of