Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 8 hours, 14 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 9 hours, 41 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 9 hours, 41 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 9 hours, 41 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 11 hours, 54 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 11 hours, 54 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 11 hours, 55 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 12 hours, 37 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 14 hours ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 15 hours, 58 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 7 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 7 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 7 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 7 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 7 hours ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 9 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 9 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 9 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 13 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 15 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 16 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 16 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 16 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 16 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 16 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Previous Work
      • Academic Partnerships
      • Industry Partnerships
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    When you’re experiencing high blood glucose, what symptoms do you typically experience? Select all that apply!

    Home > LC Polls > When you’re experiencing high blood glucose, what symptoms do you typically experience? Select all that apply!
    Previous

    After you've had what you consider a very low blood glucose reading (usually a reading between 50 mg/dl or 2.8 mmol/l and 60 mg/dl or 3.3 mmol/l), how long does it take for you to feel like you've fully recovered?

    Next

    When you're experiencing low blood glucose, what symptoms do you typically experience? Select all that apply!

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

    Related Stories

    Advocacy

    Blue Circle Health: A Free Virtual Program Expanding Support for Adults Living with Type 1 Diabetes 

    Michael Howerton, 4 days ago 4 min read  
    News

    Thyroid Eye Disease (TED): What You Need to Know 

    Jewels Doskicz, 6 days ago 4 min read  
    News

    Immunosuppressants in T1D Research: Expert Opinions from Diabetes Pharmacist Diana Isaacs 

    Jewels Doskicz, 1 week ago 5 min read  
    2025 Learning Session

    The 2025 T1DX-QI Learning Session: Driving Better Diabetes Care 

    Sarah Howard, 3 weeks ago 7 min read  
    Lifestyle

    Barriers to Care in Aging: Voices from the T1D Community 

    Jewels Doskicz, 3 weeks ago 7 min read  
    Lifestyle

    When T1D Becomes a Calling: Stories From our Team 

    Jewels Doskicz, 4 weeks ago 11 min read  

    23 Comments

    1. Ahh Life

      Unlike the unmitigated hell of low BG, I feel nothing with highs 400, 500, 600. Meh?

      2
      2 years ago Log in to Reply
    2. sdimond

      Looking at my CGM I see that my high for the day was 94. I seldom get above 125. This is low carb eating and MDI.

      1
      2 years ago Log in to Reply
    3. Molly Jones

      My BG is often above 200 or 250, but this does not last for extended periods of time, just for short bouts after eating.
      The only time I have felt the one symptom of increased urination was when I was first diagnosed and also during DKA after a surgery. I assume hyperglycemia needs to last a certain length of time or be above a level for me to experience symptoms.

      1
      2 years ago Log in to Reply
    4. Trina Blake

      At 140-150 I get horrid heartburn – my own personal CGM alert system I ‘spose. I learned early on that that was a great alert system, long before we had CGM’s. I appreciate it.

      1
      2 years ago Log in to Reply
      1. Anne Blayney

        I was coming to say much the same! And at the same threshold, which is really interesting — it’s not what people would think of as particularly high, but I absolutely feel it at that point.

        2 years ago Log in to Reply
    5. Annie Wall

      I chose malaise but the truth of the matter is, I can’t really describe what I feel when my blood sugar skyrockets and it happens much less often now that I have Tandem CQI. Ironically, a friend was just asking me what high blood sugar feels like to which I responded “I can’t really tell you”. But I sure can tell anyone what low blood sugar feels like!

      3
      2 years ago Log in to Reply
    6. Janice B

      Have to be very high for symptoms to occur

      2
      2 years ago Log in to Reply
    7. Donna Condi

      Feeling extremely tired is the only symptom I can remember because thanks to Dexcom I no longer hit 300-400.

      2 years ago Log in to Reply
    8. Gary Rind

      I have neuropathy in my feet and when my sugar is high, my feet feel really uncomfortable.

      2 years ago Log in to Reply
    9. Tina Roberts

      Makes me feel drunk. I get real flipping funny!😂

      2 years ago Log in to Reply
    10. Tod Herman

      It’s been years since I’ve had any lengthy high glucose values, thus I rarely have any notable symptoms. This initially was the result of moving from MDI to a pump (and a CGM).

      1
      2 years ago Log in to Reply
    11. Jeffrey Joseph

      Oddly I just feel off. I feel it in my blood. This awareness has been increased ever since the miraculous BG improvements via the Minimed 780G whereby I’m usually flatlined through the day in range >90% most days. With a BG >200, I instantly feel it and need to correct manually which the pump then readjusts me down.

      2 years ago Log in to Reply
    12. Janis Senungetuk

      I don’t feel anything different until my bg is over 400. When my meter test tells me that I’ve reached the Extreme High level (600+) my skin becomes very itchy ad I’m hot. Fortunately that has only happened a few times that I’m aware of. Since starting to use a CGM in 2017 I’m well aware, long before I get to the 400+ level, and can take a correction bolus or, more likely, injection.

      1
      2 years ago Log in to Reply
    13. Amanda Barras

      Additional Other:
      Tightness in chest

      2 years ago Log in to Reply
    14. Becky Hertz

      Not sure what this question considers high blood glucose. I usually don’t feel anything unless my bg’s are over 300 (which is very rare) and then it’s usually thirst.

      2 years ago Log in to Reply
    15. Lawrence S.

      As most of you have already commented, I don’t get long lasting highs very often. Steroids can put me into that condition. Most commonly, it happens when I forget to take my insulin before a meal. I checked “irritable.” I get irritable and grrrrrumpy!

      2 years ago Log in to Reply
    16. Lynn Smith

      This is hard for me to answer. I takes medications for allergies and depression/anxiety. All of those cause dry mouth and the dry mouth causes excessive thirst. So I can’t tell what’s causing those symptoms. 😬🙄😳

      2 years ago Log in to Reply
    17. Juha Kankaanpaa

      The foremost feeling for me is that I feel tired and not willing to do anything, lethargic. For me, I start to get this when bg is getting close to 10 (180).

      2 years ago Log in to Reply
    18. KarenM6

      off topic, but I’m only seeing half of the website… The left half. I use chrome. Now I’m typing, but I can’t see… Oh! there we are..
      Is there a recommendation for using a new web browser?
      Thank you.

      2 years ago Log in to Reply
    19. William Bennett

      I checked “None.” Have to get up in the range of 250+ to feel anything at all really, and I almost never let that happen since the bad old days, what with tools like CGM and faster insulin. If there’d been a box for “Annoyed at myself for screwing up,” I’d have checked it, but that’s not really a symptom is it.

      2 years ago Log in to Reply
    20. mbulzomi@optonline.net

      The typical low glucose symptoms.

      2 years ago Log in to Reply
    21. vbaum1956

      High energy,

      2 years ago Log in to Reply
    22. T1D4LongTime

      Symptoms are not significant for me until I reach close to 300. 250-300 I will be thirsty and have a dry mouth. Again, it depends how fast the BG rises as to how severe the symptoms are.

      2 years ago Log in to Reply

    When you’re experiencing high blood glucose, what symptoms do you typically experience? Select all that apply! Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]