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    • 1 hour, 12 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 11 hours, 54 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 13 hours, 21 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 13 hours, 21 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 13 hours, 21 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 15 hours, 34 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 15 hours, 35 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 15 hours, 35 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 16 hours, 17 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 17 hours, 40 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 19 hours, 38 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 13 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 13 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 13 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 17 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 19 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 19 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 20 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 20 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 20 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
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    On a scale of 1-5, how much are your personal relationships (social and intimate) affected by living with T1D? (5 = the most affected, 1 = the least affected)

    Home > LC Polls > On a scale of 1-5, how much are your personal relationships (social and intimate) affected by living with T1D? (5 = the most affected, 1 = the least affected)
    Previous

    If you use a Continuous Glucose Monitor (CGM), where do you get your CGM supplies from?

    Next

    In a typical week, how often are you woken up by your CGM or other diabetes-related alarms (such as, for a low or a high alert)?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    21 Comments

    1. Ahh Life

      Science says that lasting relationships come down to—you guessed it—kindness and generosity. No mention of cancer, T1D, leprosy, or the bubonic plaque. You can do cloud-chasing assemblages of words, but on the whole, people are pretty darn good. 😇👍

      3
      2 years ago Log in to Reply
      1. Russell Buckbee

        Yes, but the problem is they don’t understand my illnesses and I don’t get all of theirs. It’s hard to walk in another shoes especially of a different kind.

        1
        2 years ago Log in to Reply
    2. ConnieT1D62

      Living with T1D is what it is and I am who I am. I have long accepted life with T1D and people who know me totally accept me for being me regardless of whether I have T1D or not. It’s a non-issue in relationships with people – personal, social, professional, casual, and intimate.

      4
      2 years ago Log in to Reply
    3. Steven Gill

      I clicked 2.

      I don’t smoke or do drugs (hmmm… these add risks of complications without diabetes: to worry about a1C than these?), and a light to moderate drinker. Spend a lot of time volunteering (HumaneSociety), in my garden, on my too!s, with my attack pit and SaberTooth Cat, and reading g my days are full.

      But living a somewhat healthy lifestyle kind of separates me? Still a great life.

      1
      2 years ago Log in to Reply
    4. Gary Rind

      as a single guy, I’ve learned the hard way NOT to bring up T1D on a first date!!

      3
      2 years ago Log in to Reply
    5. Lawrence S.

      This question is so vague, any answer from 1 to 5 could be accurate. In as Ahh Life noted. Relationships come down to kindness and generosity … and probably a few other things like that.
      Anyway, I answered “4”. As much as I hate to admit it, Not just my diabetes, but also celiac disease and other autoimmune disorders affect most parts of my life. I have great, loving relationships with my wife and friends. However, intimacy is affected at level “5.” Other activities, like going to restaurants, are limited by celiac disease. Throughout my life low, and high blood glucoses have affected my abilities to do certain things. Some people do not react well to witnessing a low blood glucose reaction.
      Honestly, it’s a tough questions to answer. But, what relationships really come down to is respect for others, sharing thoughts, conversations, doing things together, and spending time together. Oh, and also kindness and generosity.

      4
      2 years ago Log in to Reply
    6. Edward Geary

      As I age, diabetes is increasingly the central focus: meals, travel, medical procedures, bad days…. Trying to be completely honest here

      4
      2 years ago Log in to Reply
      1. Russell Buckbee

        I get you. Me too.

        2 years ago Log in to Reply
    7. Lindsey Whitnell

      As a caregiver for our young T1D child, our relationship has changed and will be very different from what we anticipated, not necessarily in a bad way either!

      2 years ago Log in to Reply
    8. Samantha Hunter

      I actually just broke up with my boyfriend and a big reason was because he never expressed any interest and actively pushed back on learning how my diabetes works. I realized he isn’t a very caring person and that if something happened, he wouldn’t know what to do other than call 911.

      3
      2 years ago Log in to Reply
      1. Joindy23

        You made a smart choice Samantha. It took me many years to find my husband, who always listens attentively and has helped me when I’m too low on numerous occasions. He was worth waiting for so don’t give up, there ARE good men out there.

        1
        2 years ago Log in to Reply
      2. Russell Buckbee

        Good you were wise.

        1
        2 years ago Log in to Reply
    9. Nevin Bowman

      I’m not sure how to answer, but I put 3. My wife gets woken up frequently by all my alarms and cooks special food for me, but she does both gladly. So yes, it affects us, but it could be much worse.

      1
      2 years ago Log in to Reply
    10. Janis Senungetuk

      I chose 4. Life with a chronic disease definitely impacts all aspects of my life. My spouse and I have been together over the past 41 years. Our relationship continues to be strengthened by the compassion, patience and love that we have for each other.

      2
      2 years ago Log in to Reply
      1. Lawrence S.

        Well said.

        1
        2 years ago Log in to Reply
    11. Russell Buckbee

      My problem, like I suppose most, is eating. You know what I mean.

      2 years ago Log in to Reply
    12. Amanda Barras

      Intimate, I believe a lot.
      Regular day to day relationships and social encounters little to none.

      1
      2 years ago Log in to Reply
    13. JuJuB

      I dislike how this is worded, as if “affected” is a bad thing. EVERY person in my life who I consider a friend or a close coworker knows that I am T1D. I educate, I advocate, and sometimes I am called on to help when a family member receives he diagnosis.

      Kind of shaking my head at all the people who answered 1 or 2 to this.

      2 years ago Log in to Reply
    14. Jane Cerullo

      On MDI. Sometimes injecting at a lunch or dinner is a hassle. I try to be discreet

      2 years ago Log in to Reply
    15. Karen Brady

      My answer reflects more how it affects my marriage (a decent amount) than all other relationships in my life (not very much at all)

      2 years ago Log in to Reply
    16. T1D4LongTime

      I said “4”. 5 or 10 years ago, I would have said “1”. With CGMs and smartphones/receivers blaring alarms, daily life is affected all the time. My husband, bless his heart, is patient, but he gets tired of hearing the alarms and waiting on me to take care of clearing it or correcting the out-of-range BG (because FDA won’t approve “swipe and clear for alarms”). The alarms are needed, but definitely impact quality of life.

      2 years ago Log in to Reply

    On a scale of 1-5, how much are your personal relationships (social and intimate) affected by living with T1D? (5 = the most affected, 1 = the least affected) Cancel reply

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