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    • 32 minutes ago
      Ahh Life likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      I feel somewhat informed. I get most of my information about new therapies on this website (T1D Exchange). My doctor usually tells me some things long after I've already read about it on this website. Actually, I think I tell my doctor more than she tells me.
    • 1 hour, 54 minutes ago
      KCR likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      I feel somewhat informed. I get most of my information about new therapies on this website (T1D Exchange). My doctor usually tells me some things long after I've already read about it on this website. Actually, I think I tell my doctor more than she tells me.
    • 1 hour, 54 minutes ago
      KCR likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      Only what is reported at conferences and covered by e-zines like DiaTribe.
    • 5 hours, 28 minutes ago
      Lawrence S. likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      It's sometimes difficult shift through. I get a lot of spam redirections. I'm also only really interested in autoimmune type diabetes. Right now GLP-1 interest is all the rage. I'm not a candidate for those type of drugs. Funny how these drugs which became so popular with the rich people mostly non diabetic have taken over by all the drug companies.
    • 1 day, 3 hours ago
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      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 1 day, 3 hours ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 1 day, 3 hours ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 2 days, 22 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 2 days, 22 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 22 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 2 days, 22 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 3 days ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 3 days, 4 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 4 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 5 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 3 days, 6 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 3 days, 7 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 7 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
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      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 3 days, 7 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 7 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 22 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 22 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
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      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
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    If you have never used a hybrid closed loop system, which of the below potential benefits of these systems would be most important to you?

    Home > LC Polls > If you have never used a hybrid closed loop system, which of the below potential benefits of these systems would be most important to you?
    Previous

    If you currently use a hybrid closed loop system, which of these potential benefits of these systems has been the most impactful for you? Select all that apply!

    Next

    On average, how many grams of carbohydrates do you consume per day?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    24 Comments

    1. Mick Martin

      Sadly, the person that compiled this survey didn’t think to make the option available that more than one of the given options SHOULD be able to be clicked on. i.e. that several of the options might be seen as potential benefits to someone considering using a closed loop system.

      9
      2 years ago Log in to Reply
      1. George Lovelace

        I just wish Tandem would hurry with an Updated Pump that would give me Control with G7 Sensors like I had with G6, they’re trying to get Approval from Medicare now to Upgrade

        3
        2 years ago Log in to Reply
      2. Anneyun

        Or an All of the Above option

        2
        2 years ago Log in to Reply
    2. Jane Cerullo

      Currently switching from three years of MDI to tandem x2. Then hope to get new Mobi. Looking forward to trying the control IQ

      2 years ago Log in to Reply
    3. Lawrence S.

      I’m not sure what a hybrid closed loop system is? I use a Tandem X2 with Control IQ and a Dexcom G6 sensor. I don’t think that fits the definition of a hybrid closed loop system? If it does, my reason is to gain better overall control of my blood sugars, which would be all of the above.

      1
      2 years ago Log in to Reply
      1. Anita Stokar

        Yes, that is a hybrid closed loop. Hybrid closed loop is when pumps deliver variable, automated basal insulin based on the readings from a CGM

        1
        2 years ago Log in to Reply
      2. Lawrence S.

        Thanks, Anita. The “hybrid” part confused me.

        2 years ago Log in to Reply
    4. Daniel Bestvater

      I use Tandem control IQ. My A1c has gone up slightly with it. It was 5.8-6.2 for ~10yrs with CIQ it has been 6.5-6.7. I think it has improved my quality of sleep, BG stays steady overnight. During the day if I am at all active I often have to turn off the CIQ or it will over bolus. When active I have used the CIQ exercise mod with a 50% basal profile, the CIQ still takes over and increases my basal and aggressively boluses. Hopefully going forward CIQ will allow for a bit more user input. If I walk around for more than 15-20 minutes I seem to become extremely insulin sensitive.

      1
      2 years ago Log in to Reply
      1. Lawrence S.

        I do aerobic exercises daily. When I increase my blood glucose level before I do my work out, I unplug my insulin supply from my body, until my blood glucose level comes down below 130. I’m not sure how to turn off the CIQ, and if I did, how much trouble it would be to turn it back on. Would it mess up my CGM sensor/transmitter?

        2 years ago Log in to Reply
    5. Patricia Kilwein

      Love Mrdtronic 780 system with G4 sensor. Waited a long time for this and am so thankful!

      2 years ago Log in to Reply
      1. Patricia Kilwein

        Medtronic

        2 years ago Log in to Reply
    6. Natalie Daley

      For the uninitiated, you might define what this is.

      2
      2 years ago Log in to Reply
      1. Anita Stokar

        A hybrid closed loop system is when a pump automatically varies the basal insulin depending on the readings from a CGM

        2 years ago Log in to Reply
    7. sdimond

      I eat low carb and do MDI. My most recent A1C was 5.0 and I seldom have a glucose reading above 125. When a hybrid closed loop system can get to that level of control I’ll be interested. The ADA standard of care and their advice to eat loads of carbs actively harms diabetics.

      1
      2 years ago Log in to Reply
      1. Lawrence S.

        Interesting.

        2 years ago Log in to Reply
    8. Bob Durstenfeld

      I love the fact that Tandem’s Control IQ lands me at 100mg/dl +/-10 every morning. I tried for years changing basal rates to achieve that. It makes Control the rest of thecday so much easier.

      3
      2 years ago Log in to Reply
    9. ConnieT1D62

      I already use Control IQ and LOVE IT!!!! I answered More Time in Range, but all of the above answers are important and applicable IMHO.

      2 years ago Log in to Reply
    10. KarenM6

      I used to use Tandem Control IQ and Dexcom G6. But, it kept me too low and I was constantly fighting being in hypoglycemia, and then it fought my efforts to stop going too low, so I stopped using the Control IQ function. Then, I changed to the Eversense CGM and now can’t use it (although, for now, I don’t think I would even if I could.)

      1
      2 years ago Log in to Reply
      1. Eva

        Thank you for your comment. It’s important to know the risks.

        2 years ago Log in to Reply
      2. Jen Farley

        What do you think of the Eversense CGM? I just ran across it and thought how great. I do get nervous with newer technology. Just wondering your pro’s and con’s?

        2 years ago Log in to Reply
      3. KarenM6

        Hi Jen and Eva –
        Thank you. 🙂
        I like the Eversense overall.
        Pro and Con:
        The system asks for calibrations and after about two weeks, it goes to once per day. It is learning about the individual patient, which I like. The con is for people who don’t like calibrations, it may not be good for them. As I have struggled A LOT to get good numbers out of a CGM, I don’t mind calibrations.

        Con:
        It _can_ go off on the BS numbers. Although, they are for the most part very good… but, they can go off.
        I had a recent situation where it read a normal number (which I don’t remember precisely, but I’ll say 130 for illustration purposes), but my meter read 48, and the doctor’s meter read 60.
        In that case, more calibrations are needed to get it back on track.
        Con: the system doesn’t like calibrations when BS is going up or down. So, that can be just a bit frustrating. “Cause, I want to fix it, but I have to wait for the roller coaster ride to end.

        Pro: I LOVE that the plastic waste is limited to the initial insertion “syringe” and the daily (or every other day) tapes to keep the transmitter over the sensor. In my mind, the elimination of so much plastic waste is worth _ANY_ cons!

        Pro: I don’t have to change sensors every 7 to 10 days. I just have to chaRge the transmitter which takes only 15 minutes or so and can be done while I’m in the shower and couldn’t wear the transmitter anyway.
        I don’t have to worry about the sensor getting knocked off. (The transmitter could, in theory, get knocked off, but it hasn’t happened to me yet.)
        So, now my body isn’t getting poked as often with sensor insertion.
        Possible con: there is a potential for SMALL scarring at the insertion site.

        Um… there’s probably more, but I’ve run out of Pros and Cons for the time being.
        I hope this information helps!!

        2 years ago Log in to Reply
    11. Anita Stokar

      @GeorgeLovelace. I am not sure what you mean. The Tandem Slimx2 does work with the G7 to do the hybrid closed loop system.

      2 years ago Log in to Reply
    12. Eva

      I have never used a hybrid system because they seem insanely scary. That said, I may consider one – if you can prove that will keep me in an acceptable range, 80-130, for the vast majority of the time > 80% and I’m not chasing lows.

      1
      2 years ago Log in to Reply
    13. PamK

      I chose “none of the above” because I have tried a hybrid closed loop system, but no longer use it. Why? Because when using it my A1C went up, my TIR went down and I felt awful!

      2 years ago Log in to Reply

    If you have never used a hybrid closed loop system, which of the below potential benefits of these systems would be most important to you? Cancel reply

    You must be logged in to post a comment.




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