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    • 4 hours, 51 minutes ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I actually don't care, consequently I don't know either. When I was diagnosed I often didn't have the $18 for a vial of Humulin and used expired insulin others wouldn't. I tracked everything. The math didn't change, old or new. How many do I have total? More than I need and enough to share through my endo's office.
    • 4 hours, 52 minutes ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I am working through the end of my 90 day supply of Insulin. It is time to order another batch. Usually 6 vials.
    • 5 hours, 2 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Funny you should ask right now. I had to personally buy my first-ever vial in 25 years. Thanks Medicare for all the obstacles you place in the way. Am I grateful for Medicare? Yes, I guess, but I paid in all my life and I’m still paying. But Walgreens can never get the preauth right. They don’t send it to my doc or they send the wrong form. So I had the bright idea to change pharmacy’s, Publix. I went and had a convo with them, explaining I’m on a pump, I mentioned part B, the preauth. No problem. Have your doc send the script. That’s a whole other story. Then I get a call from Publix. We don’t do part B. Wow, wish you had told me. OK, I’m just going back to Walgreens. Except Medicare won’t allow refills without doctor script. So they called my doctor and my doc declined it because they had already approved it for Publix. Now I had sent an email explaining all of this to doc. I called my doc but they don’t answer their phones. Left a detailed message but have no idea whether they got anything. So I asked Walgreens if I could buy a vial. Nope, no script from doc. So I went to Publix, explained it all and they sold me a vial for $29. It was worth it but so frustrating because I can’t get my hands on a script anymore and take it where I dam-well please. Sorry for long post. I’m angry.
    • 5 hours, 2 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Oh sometimes I miss the old days of not needing an Rx for insulin in any state. Needles and were restricted due to illegal drug users, but then came disscsions about drug abusers sharing dirty needles. I'm not sure where that ended. Anyway it's extremely abusive for politics and insurance companies controlling diabetic supplies. The disease is a big enough burden.
    • 5 hours, 10 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I just got my 3 mo supply so I get 6 for 3 mo. I just opened the 1st if the 6
    • 5 hours, 24 minutes ago
      Gary R. likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 5 hours, 59 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      This is one of those questions that makes me wonder what on earth somebody hopes to learn from the answer. T1D Exchange - please explain.
    • 5 hours, 59 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Medicare is basically not covering Tresiba in 2026 :( so I've been busy stockpiling pens. I have enough Tresiba pens in the fridge to get me through '26 without having to buy any.
    • 5 hours, 59 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 9 hours, 8 minutes ago
      Steve Rumble likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 11 hours, 56 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 22 hours, 39 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 1 day ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 1 day ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 1 day, 2 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day, 2 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 1 day, 2 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 1 day, 3 hours ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 1 day, 4 hours ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 1 day, 6 hours ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 21 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 21 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 21 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 21 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
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    Do you have hypoglycemia (low blood glucose) unawareness?

    Home > LC Polls > Do you have hypoglycemia (low blood glucose) unawareness?
    Previous

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    Who in your family lives with T1D? Select all that apply. Please share more about your family's experience with T1D in the comments!

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    26 Comments

    1. Chrisanda

      I am unaware until I hit the 40s. Then I get symptoms of a bit lightheaded, a bit shaky. If it goes lower I get the sweating and shakes. But I try hard not to get that low! Thank you Dexcom G-6!

      4
      2 years ago Log in to Reply
    2. Annie Wall

      I said No but I would rather have chosen Other if that had been offered. I believe the only reason I no longer have hypoglycemia unawareness is because I have a cgm and Tandem CIQ and get alerts that I am quite aware of and thankful for, though often annoyed when CIQ doesn’t understand that I’ve already treated for it!

      4
      2 years ago Log in to Reply
    3. Justin

      Yes. And insurance sometimes requires a complication, like hypo unawareness, in order to approve durable med goods.

      2 years ago Log in to Reply
    4. Rick Martin

      Yes, but fortunately Dexcom G-6 alerts me. However, the G-7 was a very different story. I was found unconscious by my wife a couple of days in a row with blood sugars ready >75 on the G-7. But on the 2nd day, I checked it when I came around after she gave me Glucagon and at that point my G-7 was reading 130 but a finger stick was still reading at LOW. So, who knows how far apart they were. I went off of the G-7 and back to the G-6 and have been fine since.

      2
      2 years ago Log in to Reply
      1. Lynn Smith

        Hey Rick. I’m sorry you felt it necessary to go back to the G-6. From my experience with both the G-6 and now the G-7, they both need calibration from time to time. I never trust the CGMs readings when I start a new session. So I do fingersticks until the numbers are correct. So you might want to try out the G7 again. To me the benefits of it (quicker warm up, Grace period at the end of each session, smaller, no transmitter) make it well worth it. Just a thought. 😁

        2 years ago Log in to Reply
    5. Tina Roberts

      Almost always. There have been a few times I could tell. In the beginning I was always aware and as I aged it changed.

      1
      2 years ago Log in to Reply
    6. KIMBERELY SMITH

      When I am resting

      1
      2 years ago Log in to Reply
    7. Lawrence S.

      When I first became a T1D, 46 yrs ago, I had lots of hypoglycemia awareness. But, I still had many low glucose reactions. After a few years, I got less awareness. In more recent years, since retirement, I’m noticing more awareness, including light headedness, confusion, sweating and shaking.

      What I’ve noticed is that when I was working, I was too busy and too focused on external stimuli to be self aware. Now, that I’m retired, I still keep busy, but I have more time to focus on my internal stimuli. So, I am more aware of hypoglycemia. But, when I get real busy, with lots going on, I still have low glucose without awareness.

      1
      2 years ago Log in to Reply
    8. Amanda Laforet

      Been a T1 for 24 years and from the beginning I have not been able to feel my lows, so I have to rely on Dexcom.

      2 years ago Log in to Reply
    9. mbulzomi@optonline.net

      Thank God for my Dexcom and Tandem Alerts, otherwise I would not be here doing this.

      2
      2 years ago Log in to Reply
    10. Twinniepoo74

      Yes I do and mine comes with ecliptic seizures.

      2 years ago Log in to Reply
    11. Sue Martin

      This is why I have a CGM.

      1
      2 years ago Log in to Reply
    12. Bob Durstenfeld

      Yes, I am thankful for my CGM alarms.

      2 years ago Log in to Reply
    13. Edward Geary

      Largely depends on the rate of the drop. I usually sense rapid drops in BG. Conversely it’s the steady drops in BG I rarely feel. Thank goodness for CGM alarms.

      2 years ago Log in to Reply
    14. Eva

      I feel the symptoms of going low (less than 70) about 95% of the time. It’s that 5% when I’m busy doing something else or in deep sleep that I don’t notice until it goes below 56.

      1
      2 years ago Log in to Reply
    15. Donna Condi

      I am aware when my blood sugar gets around 45 I can feel that I am low. But my Dexcom will warn me with a baby crying at 55.

      2 years ago Log in to Reply
    16. Scott Doerner

      I did for the longest time, but since I started using linked pump and cgm, I rarely go low, and stated feeling at the 60’s

      2 years ago Log in to Reply
    17. Brenna McGowen

      Almost complete unawareness. I depend on my Dexcom and Omnipod with my life, when I don’t have those, I depend on my spouse.

      2 years ago Log in to Reply
    18. Kristi Warmecke

      Yes, I’ve been hypo unaware since the early 90’s. My G6 is good but my D.A.D. is 15 min. faster than it.

      2 years ago Log in to Reply
    19. Nicholas Argento

      I did in past, due to frequent night lows, but use of CGM and then a closed loop pump with CGM have restored my awareness by removing the night lows. I am eternally grateful, as is my wife!

      1
      2 years ago Log in to Reply
    20. Anita Stokar

      Since being on a CGM, I feel my lows much more often than before. Before I literally could be in the 20’s before I would feel a little bit shaky. Now I can usually start to feel a little uncomfortable in the 60’s.

      2 years ago Log in to Reply
    21. ConnieT1D62

      Yes I do and it varies. I must say I do depend on G6 readings and alarms to alert me especially as I age and the internal mechanisms for detecting hypoglycemia diminish over time. I am so grateful for the science behind the bionic technologies that keep us long-timers with advanced duration T1D alive these days.

      1
      2 years ago Log in to Reply
    22. Joindy23

      I only seem to feel hypos when my blood sugar is dropping rapidly. Thank G_d for my CGM with alarms !!!!!!

      2 years ago Log in to Reply
    23. maria prel

      Most of the time I feel when I am hypo, but occasionally I can be symptomatic at 70 and asymptomatic at 50. Very strange

      2 years ago Log in to Reply
    24. Patrick Burner

      Only began within the past 5 years. Have to give credit to the new CGM’s on helping me keep watch.

      2 years ago Log in to Reply
    25. Steve Rumble

      Yes, but I must be very low. Rarely occurs since I started using a CGM

      2 years ago Log in to Reply

    Do you have hypoglycemia (low blood glucose) unawareness? Cancel reply

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