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    • 19 minutes ago
      Steve Rumble likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 3 hours, 7 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 13 hours, 50 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 15 hours, 17 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 15 hours, 17 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 15 hours, 17 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 17 hours, 29 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 17 hours, 30 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 17 hours, 31 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 18 hours, 13 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 19 hours, 36 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 21 hours, 33 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 12 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 12 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 12 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 15 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 15 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 15 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 19 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 21 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 21 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 22 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 22 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
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    How much did you spend out-of-pocket on all of your diabetes medications and supplies from the start of July through the end of September 2023?

    Home > LC Polls > How much did you spend out-of-pocket on all of your diabetes medications and supplies from the start of July through the end of September 2023?
    Previous

    When under stress, the body releases hormones that can trigger a rise in blood glucose levels. In which of the following types of situations have you seen a noticeable increase in your blood glucose levels? Please select all that apply to you.

    Next

    At what age were you diagnosed with T1D?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    18 Comments

    1. Annie Wall

      I spent $33 on glucose gummies

      2 years ago Log in to Reply
    2. Nevin Bowman

      My annual insurance deductible is met, so my costs are finally reasonable.

      2 years ago Log in to Reply
    3. Bill Kast

      My out of pocket is very high because I am on Medicare and Medicare will not pay for the Omnipod Dash. I need Dash for my own reasons because I use Loop on my iPhone and I want the added control of automated closed loop, especially at night

      2 years ago Log in to Reply
      1. Jane Cerullo

        And I pay out of pocket because I choose MDI on Medicare. They would pay for a pump (not a pod) and the insulin. Go figure

        2 years ago Log in to Reply
    4. Lawrence S.

      $55 copay on Novolog insulin.
      You didn’t ask, but $30 copay for Endocrinologist visit.

      2 years ago Log in to Reply
    5. Jane Cerullo

      Humalog $105
      Toujeo $105
      Pen needles $9
      InPen $60 ($238 year co pay)

      2 years ago Log in to Reply
    6. Daniel Bestvater

      About $2,600. I live in Canada and with a pre-existing condition I can not get coverage. Luckily all doctor visits are covered by the government.

      2 years ago Log in to Reply
    7. Ahh Life

      Although I (continually!) answer this question the same, I am taking action this time. I am filing a small claims court complaint against the local CVS drugstore for continuing to charge $255 for $105 worth of 3 month insulin supplies.

      It’s not the fault of the local store. They are great people and simply follow the CEO’s direction and command. She, incidentally, got a 4 or 5 million dollar pay raise.

      Wish me luck. 🙂💪

      6
      2 years ago Log in to Reply
      1. Mick Martin

        @Ahh Life. My luck … and thoughts and prayers are with you, sir.

        I certainly DO hope that you win your case.

        2 years ago Log in to Reply
    8. Gary Rind

      have reached out of pocket max for a non-diabetes surgery. spent a little on meter strips (even though I have Libre2) and sugar pills.

      2 years ago Log in to Reply
    9. Russell Buckbee

      I hope you all know that if you are on Medicare with a pump that all of your Insulin should be at 0 dollars. Find a pharmacy that will bill it under part B for a supply to your Durable medical equipment (pump). Medicare then pays for all of it and no co insurance or deductible involved.

      2
      2 years ago Log in to Reply
      1. Tracy Jean

        Medicare covers it at 80 percent. If you have a supplement, that pays the other 20 percent.

        1
        2 years ago Log in to Reply
    10. Jeff Perzan

      In some ways, the question is misleading. For those of us with T1D and High Deductible plans, we hit our deductible amounts quickly. After that, except for prescription co-pays (for me $50 co-pay for insulin AFTER I hit my deductible), diabetes supplies should be covered at 100% (not all are covered such as skin preps).

      2 years ago Log in to Reply
    11. mbulzomi@optonline.net

      Probably not more then 10 dollars.

      2 years ago Log in to Reply
    12. Mick Martin

      $0. I live in the UK (United Kingdom of Great Britain and Northern Ireland), where ALL of my diabetes medications and supplies are paid for through our NHS (National Health Service), which is paid for via direct taxation of all working people.

      2 years ago Log in to Reply
    13. TEH

      All Inhad to paynfor was $135 copay for my 3 month supply of insulin and I purchased IV Prep for $25. Infusion sets, cartriges (resivors), and Dex 6 sensors are all covered 100%.

      2 years ago Log in to Reply
    14. Jen Farley

      $70 office visit. $125 bloodwork.
      Let’s just say too much and medical insurance is not what it used to be. 😠

      2 years ago Log in to Reply
      1. Jen Farley

        Oops supplies-my supplies are covered but medication copays are about $75 with insulin.

        2 years ago Log in to Reply

    How much did you spend out-of-pocket on all of your diabetes medications and supplies from the start of July through the end of September 2023? Cancel reply

    You must be logged in to post a comment.




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